,,ii #aah? ,,congress #a/ ,session ,s4 #accc ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,april #bg1 #bjbc,mr4 ,m55dez 7= himself & ,ms4 ,coll9s7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to au?orize ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 to aw>d grants = provid+ evid5ce-bas$ c>egiv] skills tra9+ to family c>egiv]s ( *ildr5 ) autism spectrum disord] or o!r developm5tal disabilities or delays1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,autism ,family ,c>egiv]s ,act ( #bjbc4 #b4 ,c>egiv] ,skills ,tra9+ ,pilot ,program 7a7 ,au?orization ,! ,secret>y %all c>ry out a program1 to be kn[n z ! ,c>egiv] ,skills ,tra9+ ,pilot ,program1 "u :i* ! ,secret>y %all aw>d grants to eligible entities to provide evid5ce-bas$ c>egiv] skills tra9+ to family c>egiv]s ( *ildr5 ) autism spectrum disord] or o!r developm5tal disabilities or delays1 = ! purposes (-- 7#a7 improv+ ! well-be+ ( *ildr5 & _! c>egiv]s2 & 7#b7 tea*+ c>egiv]s ( su* *ildr5 evid5c$-bas$ int]v5tion /rategies to promote-- 7,a7 improvem5t 9 ! well-be+ ( su* *ildr5 & _! c>egiv]s2 & 7,b7 ! great] inclusion ( su* *ildr5 9 family & community life4 7b7 ,eligibility ,to be eligible to receive a grant "u subsection 7a71 an entity %all be-- 7#a7 a nonpr(it or o!r community-bas$ organization2 7#b7 a ,f$]ally qualifi$ heal? c5t]2 7#c7 an academic heal? c5t]2 7#d7 a heal? sy/em2 or 7#e7 a collaboration or consortium ( #b or m entities li/$ 9 p>agraphs 7#a7 ?r\gh 7#d74 7c7 ,application ,to seek a grant "u ?is section1 an eligible entity %all submit to ! ,secret>y an application t includes-- 7#a7 a description (-- 7,a7 ! applicant's exp]i5ce deliv]+ evid5ce-bas$ c>egiv] skills tra9+ to family c>egiv]s ( *ildr5 ) autism spectrum disord] or o!r developm5tal disabilities or delays2 7,b7 ! activities t ! applicant proposes to c>ry out ?r\gh ! grant2 & 7,c7 h[ su* activities w a*ieve ! purposes describ$ 9 subsection 7a72 & 7#b7 a plan =-- 7,a7 coord9ation ) community-bas$ organizations1 ,/ate & local e>ly int]v5tion provid]s1 ,/ate ,m$icaid sy/ems1 s*ools1 & o!r provid]s ( e>ly int]v5+ s]vices2 7,b7 collaboration ) heal? c>e payors 7includ+ public & private insurance71 ,/ate dep>tm5ts ( insurance1 heal? plans1 & o!r relevant payors2 7,c7 exp&+ ! skills tra9+ program propos$ to be c>ri$ out ?r\gh ! grant2 7,d7 a*iev+ su/a9ability ( su* program2 & 7,e7 e/abli%+ & ma9ta9+ a /akehold] implem5tation committee "u subsection 7f74 7d7 ,selection ( grantees 7#a7 ,selection crit]ia ,9 aw>d+ a grant to an eligible entity or a collaboration or consortium ( #b or m entities describ$ 9 subsection 7b71 ! ,secret>y %all require at lea/ "o ( ! recipi5ts to-- 7,a7 h at lea/ #c ye>s ( demon/rat$ exp]i5ce-- 7i7 deliv]+ culturally compet5t s]vices = *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities1 z well z collaborat+ directly ) _! families1 includ+ 9 m$ically und]s]v$ communities2 7ii7 provid+ s]vices to *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities1 z well z collaborat+ directly ) _! families2 7iii7 provid+ individual c>egiv] coa*+ to c>egiv]s ( *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities2 & 7iv7 work+ ) self-advocates or adults ) autism spectrum disord] or o!r developm5tal delays or disabilities2 & 7,b7 demon/rate ! ability to access res\rces f & collaborate )-- 7i7 heal? c>e provid]s2 7ii7 alli$ heal? pr(essionals2 7iii7 educators2 7iv7 social work]s2 & 7v7 nonpr(essional family c>egiv]s :o assi/ ) daily liv+ & developm5tal activities1 includ+ = *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities4 7#b7 ,r$uc+ disp>ities ,9 aw>d+ grants "u ?is section1 ! ,secret>y may consid]1 z appropriate1 ! ext5t to :i* an eligible entity c deliv] evid5ce-bas$1 culturally compet5t c>egiv] skills tra9+ programs = *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities f div]se racial1 e?nic1 geographic1 or l+ui/ic backgr\nds4 7e7 ,use ( funds ,! recipi5t ( a grant "u ?is section %all use ! grant-- 7#a7 to provide1 at no or m9imal co/ to p>ticipants-- 7,a7 evid5ce-bas$ c>egiv] skills tra9+ to family c>egiv]s ( *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities2 & 7,b7 su* tra9+ 9 areas relat$ to *ildr5's le>n+ & developm5t1 includ+-- 7i7 communication skills2 7ii7 social engagem5t2 7iii7 daily liv+ skills2 & 7iv7 c>egiv] response /rategies to sev]e & *all5g+ behaviors2 & 7#b7 to e/abli% & ma9ta9 a /akehold] implem5tation committee "u subsection 7f74 7f7 ,/akehold] implem5tation committee 7#a7 ,9 g5]al ,z a condition on receipt ( a grant "u ?is section1 an eligible entity %all agree to use ! grant to e/abli% & ma9ta9 a /akehold] implem5tation committee to advise on ensur+ t ! tra9+ provid$ pursuant to ! grant is accessible & culturally relevant4 7#b7 ,composition ,! memb]s ( ! /akehold] implem5tation committee %all all be f ! local community s]v$ pursuant to ! grant 7or ! relevant metropolitan /ati/ical area7 & %all include1 at a m9imum1 ! foll[+3 7,a7 ,family c>egiv]s ( *ildr5 ) autism or o!r developm5tal disabilities1 includ+ auti/ic c>egiv]s & o!r c>egiv]s ) disabilities4 7,b7 ,p$iatric heal? c>e & e>ly int]v5tion provid]s ) exp]i5ce provid+ s]vices to *ildr5 ) autism or o!r developm5tal delays or disabilities4 7,c7 ,educators ) exp]i5ce work+ ) *ildr5 ) autism or o!r developm5tal delays or disabilities4 7,d7 ,repres5tatives ( local organizations famili> ) ! cultural values & priorities ( individuals 9 ! local community4 7,e7 ,local gov]nm5t (ficials4 7g7 ,requirem5ts 7#a7 ,numb] ( recipi5ts & ,/ates ,! ,secret>y %all aw>d grants "u subsection 7a7 to n few] ?an #be eligible entities 9 n few] ?an #ae ,/ates4 7#b7 ,am\nt ,! total am\nt ( ea* grant aw>d$ "u subsection 7a7 %all be n less ?an #ejj1jjj ov] a #e-ye> p]iod4 7h7 ,supplem5t n supplant ,am\nts receiv$ ?r\gh a grant "u ?is section %all be us$ to supplem5t1 n supplant1 o!r am\nts receiv$ to provide-- 7#a7 behavioral1 m$ical1 habilitative1 & o!r s]vices cov]$ by ! ,m$icaid program or private heal? insurance2 7#b7 s]vices provid$ "u ! ,individuals ) ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adjj et seq472 or 7#c7 adaptations ( a tra9+ program us+ evid5ce-bas$ approa*es to s]ve *ildr5 ( diff]5t ages1 communities1 & und]repres5t$ gr\ps4 7i7 ,activities ( ! ,secret>y ,! ,secret>y %all-- 7#a7 assi/ recipi5ts ( grants "u subsection 7a7 9-- 7,a7 ! implem5tation ( c>egiv] skills tra9+ programs us+ lessons le>n$ f o!r evid5c$-bas$ activities or c>egiv] programs conduct$ or support$ by ! ,heal? ,res\rces & ,s]vices ,adm9i/ration2 7,b7 ensur+ ! programs ( ! recipi5ts assi/ m$ically und]s]v$ communities1 :5 possible2 & 7,c7 develop+ plans = a*iev+ su/a9ability ( ! programs ( ! recipi5ts2 7#b7 conduct an annual evaluation ( activities fund$ ?r\gh grants "u subsection 7a71 9 consultation ) ! grant recipi5ts1 includ+ evaluation ( ! effectiv5ess ( su* grants at improv+ heal? outcomes & quality ( life = *ildr5 ) autism spectrum disord] or o!r developm5tal delays or disabilities & _! family c>egiv]s2 & 7#c7 conv5e at lea/ "o national or regional meet+ ( su* grant recipi5ts to discuss be/ practices4 7j7 ,reports 7#a7 ,initial report ,n lat] ?an #f mon?s aft] aw>d+ ! fir/ grant "u subsection 7a71 ! ,secret>y %all submit to ! ,committees on ,appropriations ( ! ,h\se ( ,repres5tatives & ! ,s5ate1 & to o!r appropriate congressional committees1 a report on ! implem5tation ( ?is section4 ,su* report %all include-- 7,a7 h[ _m grants h be5 aw>d$2 7,b7 ! "n & location ( ! grant recipi5ts2 7,c7 ! communities impact$ by ! grants2 7,d7 a description ( ! k9d ( activities to be c>ri$ out ) ! grants2 7,e7 an analysis1 conduct$ by ! ,secret>y1 bas$ on ! evaluation "u subsection 7i77#b71 ( ! effectiv5ess ( su* grants at improv+ heal? outcomes & quality ( life = *ildr5 ) autism or o!r developm5tal delays or disabilities & _! family c>egiv]s2 & 7,f7 be/ practices to increase access to c>egiv] skills tra9+ programs describ$ 9 subsection 7a7 9 m$ically und]s]v$ communities4 7#b7 ,f9al report ,n lat] ?an ! end ( fiscal ye> #bjbg1 ! ,secret>y %all submit to ! ,committees on ,appropriations ( ! ,h\se ( ,repres5tatives & ! ,s5ate1 & to o!r appropriate congressional committees1 a f9al report on ! implem5tation ( ?is section1 includ+-- 7,a7 ! in=mation1 analysis1 & be/ practices li/$ 9 subp>agraphs 7,a7 ?r\gh 7,f7 ( p>agraph 7#a72 & 7,b7 recomm5dations on h[ to exp& & ext5d ! program "u ?is section4 7k7 ,def9itions ,9 ?is section3 7#a7 ,! t]m family c>egiv] means an adult family memb] or o!r individual :o has a significant relation%ip )1 & :o provides a broad range ( assi/ance to1 a *ild betwe5 ! ages ( #j & #i diagnos$ ) autism spectrum disord] or o!r developm5tal disabilities or delays4 7#b7 ,! t]m ,f$]ally qualifi$ heal? c5t] has ! mean+ giv5 ! t]m 9 section #ahfa7;aa7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7aa774 7#c7 ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration4 7l7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #aj1jjj1jjj = ea* ( fiscal ye>s #bjbd ?r\gh #bjbh4