,,ii  #aah? ,,congress  #a/ ,session    
,s4 #aahc  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,april #ah1 #bjbc,mr4  
,rubio 7= himself & ,ms4 ,hassan7       
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to prohibit discrim9ation on
 ! basis ( m5tal or physical disability 
9 cases ( organ transplants4  #a4 ,%ort 
title ,?is ,act may be cit$ z ! ,*>lotte
 ,woodw>d ,organ ,transplant            
,discrim9ation ,prev5tion ,act4  #b4    
,f9d+s ,congress f9ds ! foll[+3 7#a7 ,! 
,am]icans ) ,disabilities ,act ( #aiij1 
section #ejd ( ! ,rehabilitation ,act ( 
#aigc1 & section #aeeg ( ! ,pati5t      
,protection & ,af=dable ,c>e ,act       
prohibit discrim9ation aga9/ individuals
 ) disabilities 9 organ transplantation 
& ! allocation ( organs4  7#b7 ,despite 
^? prohibitions1 !re are f9d+s & cases t
 %[1 z is docum5t$ by ! ,national       
,c\ncil on ,disability & o!rs1 t        
individuals ) disabilities are be+ d5i$ 

organ transplants & relat$ s]vices bas$ 
solely on ! fact t ^? individuals h a   
disability4  7#c7 #cd ,/ates h craft$   
,/ate-level policy to prohibit organ    
transplant discrim9ation aga9/          
individuals ) disabilities4 ,f$]al      
action1 h[ev]1 is requir$ to protect    
individuals ) disabilities & to en=ce   
exi/+ law reg>dless ( ! ,/ate 9 :i* !y  
live4  7#d7 ,! curr5t situation1 )      
cont9u+ cases ( discrim9ation aga9/     
individuals ) disabilities1 calls =     
fur!r cl>ity by ,congress ab\t :i*      
actions con/itute discrim9ation "u      
curr5t law1 :i* entities are cov]$1 & ! 
rem$ies available to individuals        
exp]i5c+ pot5tial discrim9ation4  7#e7  
,lic5s$ provid]s ( heal? c>e s]vices t  
provide organ transplants & relat$      
s]vices 9 ex*ange = m$ical fees are     
engag+ 9 an economic transaction )      
pati5ts t occurs 9 or sub/antially      
impacts int]/ate comm]ce4  7#f7 ,9 !    
national adm9i/ration ( organ allocation
 9 ! ,unit$ ,/ates1 organs are          

transport$ across ,/ate l9es =          
transplantation proc$ures4  7#g7        
,discrim9ation 9 organ transplantation  
limits individuals ) disabilities f     
p>ticipat+ 9 heal? c>e transactions 9 a 
mann] t all[s equal access to int]/ate  
comm]ce4  7#h7 ,! exi/5ce (             
discrim9ation aga9/ individuals )       
disabilities 9 ! provision ( organ      
transplantation & relat$ s]vices burd5s 
! fl[ ( organs ?r\gh legal *annels (    
int]/ate comm]ce4  #c4 ,def9itions ,9   
?is ,act3 7#a7 ,auxili>y aids & s]vices 
,! t]m auxili>y aids & s]vices          
includes-- 7,a7 qualifi$ int]pret]s or  
o!r effective me?ods ( mak+ aurally     
deliv]$ mat]ials available to           
individuals ) a he>+ impairm5t2  7,b7   
qualifi$ read]s1 tap$ texts1 or o!r     
effective me?ods ( mak+ visually deliv]$
 mat]ials available to individuals ) a  
visual impairm5t2  7,c7 in=mation 9 a   
=mat t is accessible = individuals ) a  
cognitive1 neurological1 developm5tal1  
or intellectual disability2  7,d7       

support$ decision-mak+ s]vices2 &  7,e7 
acquisition or modification ( equipm5t  
or devices4  7#b7 ,cov]$ entity ,! t]m  
cov]$ entity means any lic5s$ provid] ( 
heal? c>e s]vices 7includ+ lic5s$ heal? 
c>e practition]s1 hospitals1 nurs+      
facilities1 laboratories1 int]m$iate c>e
 facilities1 psy*iatric resid5tial      
treatm5t facilities1 in/itutions =      
individuals ) intellectual or           
developm5tal disabilities1 & prison     
heal? c5t]s71 & any transplant hospital 
7z def9$ 9 section #aba4b ( title #db1  
,code ( ,f$]al ,regulations or a        
successor regulation71 t-- 7,a7 is 9    
int]/ate comm]ce2 or  7,b7 provides     
heal? c>e s]vices 9 a mann] t-- 7i7     
sub/antially affects or has a sub/antial
 relation to int]/ate comm]ce2 or  7ii7 
includes use ( an in/rum5t 7includ+ an  
in/rum5t ( transportation or            
communication7 ( int]/ate comm]ce4  7#c7
 ,disability ,! t]m disability has !    
mean+ giv5 ! t]m 9 section #c ( !       
,am]icans ) ,disabilities ,act ( #aiij  

7#db ,u4,s4,c4 #abajb74  7#d7 ,human    
organ ,! t]m human organ has ! mean+    
giv5 ! t]m 9 section #cja7;c7 ( !       
,national ,organ ,transplant ,act 7#db  
,u4,s4,c4 #bgd;e7c774  7#e7 ,mat*+      
entity ,! t]m mat*+ entity means an     
entity describ$ 9 section #d4  7#f7     
,organ transplant ,! t]m organ          
transplant means ! transplantation or   
transfusion ( a donat$ human organ into 
! body ( ano!r human = ! purpose (      
treat+ a m$ical condition4  7#g7        
,qualifi$ individual ,! t]m qualifi$    
individual means an individual :o1 ) or 
)\t a support network1 provision (      
auxili>y aids & s]vices1 or reasonable  
modifications to policies or practices1 
meets eligibility requirem5ts = !       
receipt ( a human organ4  7#h7          
,reasonable modifications to policies or
 practices ,! t]m reasonable            
modifications to policies or practices  
includes-- 7,a7 communication ) p]sons  
responsible = support+ a qualifi$       
individual ) po/surgical or o!r c>e     

foll[+ an organ transplant or relat$    
s]vices1 includ+ support ) m$ication2 & 
7,b7 consid]ation1 9 det]m9+ :e!r a     
qualifi$ individual w be able to comply 
) heal? requirem5ts foll[+ an organ     
transplant or receipt ( relat$ s]vices1 
( support networks available to !       
qualifi$ individual1 includ+ family1    
fri5ds1 & provid]s ( home &             
community-bas$ s]vices1 includ+ home &  
community-bas$ s]vices fund$ ?r\gh !    
,m$ic>e or ,m$icaid program "u title    
,,xviii or ,,xix1 respectively1 ( !     
,social ,security ,act 7#db ,u4,s4,c4   
#acie et seq41 #acif et seq471 ano!r    
heal? plan 9 :i* ! qualifi$ individual  
is enroll$1 or any program or s\rce (   
fund+ available to ! qualifi$           
individual4  7#i7 ,relat$ s]vices ,! t]m
 relat$ s]vices means s]vices relat$ to 
an organ transplant t consi/ (-- 7,a7   
evaluation2  7,b7 c\nsel+2  7,c7        
treatm5t1 includ+ po/op]ative treatm5t1 
& c>e2  7,d7 provision ( in=mation2 &   
7,e7 any o!r s]vice recomm5d$ or requir$

 by a physician4  7#aj7 ,secret>y ,! t]m
 ,secret>y means ! ,secret>y ( ,heal? & 
,human ,s]vices4  7#aa7 ,support$       
decision mak+ ,! t]m support$ decision  
mak+ means ! use ( a support p]son to   
assi/ a qualifi$ individual 9 mak+ heal?
 c>e decisions1 communicate in=mation to
 ! qualifi$ individual1 or asc]ta9 a    
qualifi$ individual's wi%es4 ,su* t]m   
includes-- 7,a7 ! inclusion ( !         
individual's attorney-9-fact or heal?   
c>e proxy1 or any p]son ( ! individual's
 *oice1 9 communications ab\t !         
individual's heal? c>e2  7,b7 p]mitt+ ! 
individual to designate a p]son ( !     
individual's *oice = ! purposes (       
support+ t individual 9 communicat+1    
process+ in=mation1 or mak+ heal? c>e   
decisions2  7,c7 provid+ auxili>y aids &
 s]vices describ$ 9 subp>agraph 7,a71   
7,b71 7,c71 or 7,e7 ( p>agraph 7#a7 to  
facilitate ! individual's ability to    
communicate & process heal?-relat$      
in=mation1 includ+ provid+ use (        
assi/ive communication te*nology2  7,d7 

provid+ heal? in=mation to p]sons       
designat$ by ! individual1 consi/5t ) ! 
regulations promulgat$ "u section       
#bfd7;c7 ( ! ,heal? ,insurance          
,portability & ,acc\ntability ,act (    
#aiif 7#db ,u4,s4,c4 #acbj;d-#b note7 & 
o!r applicable laws & regulations gov]n+
 disclosure ( heal? in=mation2  7,e7    
provid+ heal? in=mation 9 a =mat t is   
readily und]/&able by ! individual2 &   
7,f7 work+ ) a c\rt-appo9t$ gu>dian or  
o!r p]son responsible = mak+ heal? c>e  
decisions on behalf ( ! individual1 to  
ensure t ! individual is includ$ 9      
decisions involv+ ! heal? c>e ( !       
individual & t heal? c>e decisions are 9
 accordance ) ! individual's own        
express$ int]e/s4  7#ab7 ,support       
network ,! t]m support network means1 ) 
respect to a qualifi$ individual1 "o or 
m p :o are-- 7,a7 select$ by ! qualifi$ 
individual or by ! qualifi$ individual &
 ! gu>dian ( ! qualifi$ individual1 to  
provide assi/ance to ! qualifi$         
individual or guidance to t qualifi$    

individual 9 und]/&+ issues1 mak+ plans 
= ! future1 or mak+ complex decisions2 &
  7,b7 :o may include ! family memb]s1  
fri5ds1 unpaid support]s1 memb]s ( !    
religi\s congregation1 & appropriate    
p]sonnel at a community c5t]1 ( or s]v+ 
! qualifi$ individual4  #d4 ,prohibition
 ( discrim9atory policy ,an entity :o   
receives a contract "u section #cgb ( ! 
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #bgd7 to mat* human organs &  
individuals1 & o!rwise c>ry out !       
functions describ$ 9 subsection 7b7 ( t 
section1 %all n issue policies1         
recomm5dations1 or o!r memor&a t w\ld   
prohibit1 or o!rwise h9d]1 a qualifi$   
individual's access to an organ         
transplant solely on ! basis ( t        
individual's disability4  #e4           
,prohibition ( discrim9ation  7a7 ,9    
g5]al ,subject to subsection 7b71 a     
cov]$ entity may n1 solely on ! basis ( 
a qualifi$ individual's disability--    
7#a7 det]m9e t ! individual is          
ineligible to receive an organ          

transplant or relat$ s]vices2  7#b7 d5y 
! individual an organ transplant or     
relat$ s]vices2  7#c7 refuse to ref] !  
individual to an organ transplant c5t]  
or o!r relat$ speciali/ = ! purpose (   
receipt ( an organ transplant or o!r    
relat$ s]vices2 or  7#d7 refuse to place
 ! individual on an organ transplant    
wait+ li/4  7b7 ,exception  7#a7 ,9     
g5]al  7,a7 ,m$ically significant       
disabilities ,not)/&+ subsection 7a71 a 
cov]$ entity may take a qualifi$        
individual's disability into acc\nt :5  
mak+ a heal? c>e treatm5t or cov]age    
recomm5dation or decision1 solely to !  
ext5t t ! disability has be5 f\nd by a  
physician1 foll[+ an individualiz$      
evaluation ( ! pot5tial recipi5t1 to be 
m$ically significant to ! receipt ( !   
organ transplant or relat$ s]vices1 z ! 
case may be4  7,b7 ,con/ruction         
,subp>agraph 7,a7 %all n be con/ru$ to  
require a ref]ral or recomm5dation =1 or
 ! p]=mance (1 a m$ically inappropriate 
organ transplant or m$ically            

inappropriate relat$ s]vices4  7#b7     
,cl>ification ,if a qualifi$ individual 
has ! necess>y support network to       
provide a reasonable assurance t !      
qualifi$ individual w be able to comply 
) heal? requirem5ts foll[+ an organ     
transplant or receipt ( relat$ s]vices1 
z ! case may be1 ! qualifi$ individual's
 inability to indep5d5tly comply ) ^?   
requirem5ts may n be con/ru$ to be      
m$ically significant = purposes (       
p>agraph 7#a74  7c7 ,reasonable         
modifications ,a cov]$ entity %all make 
reasonable modifications to policies or 
practices 7includ+ proc$ures7 ( su*     
entity if su* modifications are necess>y
 to make an organ transplant or relat$  
s]vices available to qualifi$           
individuals ) disabilities1 unless !    
entity c demon/rate t mak+ su*          
modifications w\ld fundam5tally alt] !  
nature ( su* policies or practices4  7d7
 ,cl>ifications  7#a7 ,no d5ial (       
s]vices because ( abs5ce ( auxili>y aids
 & s]vices ,= purposes ( ?is section1 a 

cov]$ entity %all take su* /eps z may be
 necess>y to ensure t a qualifi$        
individual ) a disability is n d5i$ a   
proc$ure associat$ ) ! receipt ( an     
organ transplant or relat$ s]vices1     
because ( ! abs5ce ( auxili>y aids &    
s]vices1 unless ! cov]$ entity c        
demon/rate t tak+ su* /eps w\ld         
fundam5tally alt] ! nature ( ! proc$ure 
be+ (f]$ or w\ld result 9 an undue burd5
 on ! entity4  7#b7 ,compliance ) o!r   
law ,no?+ 9 ?is section %all be         
con/ru$-- 7,a7 to prev5t a cov]$ entity 
f provid+ organ transplants or relat$   
s]vices at a level t is great] ?an !    
level t is requir$ by ?is section2 or   
7,b7 to limit ! rights ( an individual )
 a disability "u1 or to replace or limit
 ! scope ( obligations impos$ by1 !     
,am]icans ) ,disabilities ,act ( #aiij  
7#db ,u4,s4,c4 #abaja et seq47 includ+ !
 provisions add$ to su* ,act by ! ,,ada 
,am5dm5ts ,act ( #bjjh1 section #ejd ( !
 ,rehabilitation ,act ( #aigc 7#bi      
,u4,s4,c4 #gid71 section #aeeg ( !      

,pati5t ,protection & ,af=dable ,c>e    
,act 7#db ,u4,s4,c4 #ahaaf71 or any o!r 
applicable law4  7e7 ,en=cem5t  7#a7 ,9 
g5]al ,any individual :o alleges t a    
qualifi$ individual 0 subject to a      
violation ( ?is section by a cov]$      
entity-- 7,a7 may br+ a claim reg>d+ !  
allegation to ! ,(fice = ,civil ,rights 
( ! ,dep>tm5t ( ,heal? & ,human         
,s]vices1 = exp$it$ resolution2 &  7,b7 
:e!r or n su* a claim is br\ght "u      
subp>agraph 7,a7 or a violation is f\nd 
pursuant to subp>agraph 7,a71 may br+ a 
civil action 9 a di/rict c\rt ( ! ,unit$
 ,/ates = injunctive or o!r equitable   
relief1 includ+ ! relief describ$ 9     
p>agraph 7#b71 aga9/ su* cov]$ entity to
 obta9 compliance ( su* cov]$ entity )  
?is section4  7#b7 ,relief available ,! 
injunctive & equitable relief available 
9 a civil action br\ght "u p>agraph     
7#a77;,b71 ) respect to a cov]$ entity1 
includes-- 7,a7 requir+ auxili>y aids & 
s]vices to be made available by ! entity
 involv$2  7,b7 requir+ reasonable      

modifications to policies or practices  
7includ+ proc$ures7 ( su* entity2 or    
7,c7 requir+ t a facility ( su* entity  
be made readily accessible & usable4    
7#c7 ,exp$it$ review ,9 ! case ( a civil
 action br\ght "u p>agraph 7#a77;,b71 ) 
respect to a cov]$ entity1 ! di/rict    
c\rt 9 :i* su* action is br\ght %all    
advance on its docket & exp$ite review &
 disposition ( su* action4  7#d7 ,rule (
 con/ruction ,no?+ 9 ?is subsection is  
int5d$ to limit or replace available    
rem$ies "u ! ,am]icans ) ,disabilities  
,act ( #aiij 7#db ,u4,s4,c4 #abaja et   
seq47 or any o!r applicable law4  #f4   
,application to ea* "p ( process ,!     
provisions ( ?is ,act-- 7#a7 t apply to 
an organ transplant1 also apply to !    
evaluation & li/+ ( a qualifi$          
individual1 & to ! organ transplant &   
po/-organ-transplant treatm5t ( su* an  
individual2 &  7#b7 t apply to relat$   
s]vices1 also apply to ! process =      
receipt ( relat$ s]vices by su* an      
individual4  #g4 ,effect on o!r laws    

,no?+ 9 ?is ,act %all be con/ru$ to     
sup]s$e any provision ( any ,/ate or    
local law t provides great] rights to   
qualifi$ individuals ) respect to organ 
transplants ?an ! rights e/abli%$ "u ?is
 ,act4