,,ii  #aah? ,,congress  #a/ ,session    
,s4 #ajfd  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,m>* #bi1 #bjbc,mrs4   
,capito 7= h]self1 ,mr4 ,murphy1 ,mr4   
,m>%all1 ,ms4 ,smi?1 ,mr4 ,scott (      
,florida1 & ,mrs4 ,gillibr&7 introduc$ !
 foll[+ bill2 :i* 0 read twice & ref]r$ 
to ! ,committee on ,heal?1 ,education1  
,labor1 & ,p5sions  ,a ,,bill  ,to      
direct ! ,secret>y ( ,heal? & ,human    
,s]vices to c>ry out a national project 
to prev5t & cure ,p>k9son's1 to be kn[n 
z ! ,national ,p>k9son's ,project1 & =  
o!r purposes4  #a4 ,%ort title ,?is ,act
 may be cit$ z ! ,national ,plan to ,end
 ,p>k9son's ,act4  #b4 ,national        
,p>k9son's ,project  7a7 ,def9ition (   
,p>k9son's ,9 ?is section1 ! t]m        
,p>k9son's means-- 7#a7 ,p>k9son's      
disease2 &  7#b7 o!r neurodeg5]ative    
,p>k9sonisms1 includ+1 b n limit$ to1   
multiple sy/em atrophy1 ,lewy body      
disease1 corticobasal deg5]ation1       
progressive supranucle> palsy1 &        
,p>k9son's-relat$ dem5tia4  7b7         

,e/abli%m5t ,! ,secret>y ( ,heal? &     
,human ,s]vices 79 ?is section ref]r$ to
 z ! ,secret>y7 %all c>ry out a national
 project to prev5t & cure ,p>k9son's1   
ameliorate its symptoms1 & sl[ or /op   
its progression1 to be kn[n z !         
,national ,p>k9son's ,project 7ref]r$ to
 9 ?is section z ! ,project74  7c7      
,activities c>ri$ out ?r\gh ,project ,9 
c>ry+ out ! ,project1 ! ,secret>y %all--
 7#a7 create1 ma9ta91 & p]iodically     
update an integrat$ national plan to    
prev5t & cure ,p>k9son's1 ameliorate its
 symptoms1 & sl[ or /op its progression2
  7#b7 c>ry out ! annual assessm5t "u   
subsection 7d72  7#c7 provide in=mation 
7includ+ an e/imate ( ! level ( ,f$]al  
inve/m5t necess>y to prev5t & cure      
,p>k9son's1 ameliorate its symptoms1 &  
sl[ or /op its progression71 &          
coord9ation ( ,p>k9son's rese>* &       
s]vices1 across all ,f$]al ag5cies2     
7#d7 enc\rage ! developm5t ( safe &     
effective treatm5ts1 /rategies1 & o!r   
approa*es to prev5t1 halt1 or sl[ !     

c\rse ( ,p>k9son's or to enhance        
function+ & improve quality ( life2     
7#e7 promote !-- 7,a7 e>ly diagnosis (  
,p>k9son's2 &  7,b7 coord9ation ( ! c>e 
& treatm5t ( individuals ) ,p>k9son's2  
7#f7 review ! impact ( ,p>k9son's on !  
physical1 m5tal1 & social heal? ( ^?    
liv+ ) ,p>k9son's & _! c>e p>tn]s2  7#g7
 coord9ate ) int]national bodies1 to !  
degree possible1 to integrate & in=m !  
global mission to prev5t & cure         
,p>k9son's1 ameliorate its symptoms1 &  
sl[ or /op its progression2 &  7#h7 c>ry
 out o!r su* activities z ! ,secret>y   
deems appropriate4  7d7 ,annual         
assessm5t ,n lat] ?an #bd mon?s aft] !  
date ( enactm5t ( ?is ,act1 & annually  
!reaft]1 ! ,secret>y %all c>ry out an   
assessm5t ( ! ,nation's progress 9      
prep>+ = & respond+ to ! escalat+ burd5 
( ,p>k9son's1 includ+-- 7#a7 ! =mulation
 ( recomm5dations = priority actions    
bas$ on ! assessm5t2  7#b7 a description
 ( ! /eps t h be5 or %\ld be tak5 to    
implem5t ! recomm5dations2 &  7#c7 su*  

o!r items z ! ,secret>y deems           
appropriate4  7e7 ,advisory ,c\ncil     
7#a7 ,9 g5]al ,! ,secret>y %all e/abli% 
& ma9ta9 an ,advisory ,c\ncil on        
,p>k9son's ,rese>*1 ,c>e1 & ,s]vices    
7ref]r$ to 9 ?is section z ! ,advisory  
,c\ncil74  7#b7 ,memb]%ip  7,a7 ,f$]al  
memb]s ,! ,advisory ,c\ncil %all be     
compris$ ( div]se & inclusive           
repres5tatives f-- 7i7 ! ,c5t]s =       
,disease ,control & ,prev5tion2  7ii7 ! 
,adm9i/ration on ,community ,liv+2      
7iii7 ! ,c5t]s = ,m$ic>e  ,m$icaid      
,s]vices2  7iv7 ! ,(fice ( ! ,director (
 ! ,national ,in/itutes ( ,heal?2  7v7 !
 ,national ,in/itute ( ,neurological    
,disord]s & ,/roke2  7vi7 ! ,national   
,in/itute ( ,environm5tal ,heal?        
,sci5ces2  7vii7 ! ,dep>tm5t ( ,vet]ans 
,affairs2  7viii7 ! ,food & ,drug       
,adm9i/ration2  7ix7 ! ,dep>tm5t (      
,def5se2  7x7 ! ,environm5tal           
,protection ,ag5cy2  7xi7 ! ,(fice (    
,m9ority ,heal?2  7xii7 ! ,indian ,heal?
 ,s]vice2 &  7xiii7 o!r relevant ,f$]al 

dep>tm5ts & ag5cies z det]m9$ by !      
,secret>y4  7,b7 ,non-,f$]al memb]s ,9  
addition to ! memb]s li/$ 9 subp>agraph 
7,a71 ! ,advisory ,c\ncil %all include  
#aj exp]t memb]s f outside ! ,f$]al     
,gov]nm5t1 to be appo9t$ by ! ,secret>y1
 :i* memb]s %all include-- 7i7 #b       
,p>k9son's pati5t advocates1 at lea/ #a 
( :om is liv+ ) "y-onset ,p>k9son's2    
7ii7 #a ,p>k9son's family c>egiv]2      
7iii7 #a heal? c>e provid]2  7iv7 #b    
biom$ical rese>*]s ) ,p>k9son's-relat$  
exp]tise 9 basic1 translational1        
cl9ical1 or drug developm5t sci5ce2  7v7
 #a movem5t disord] speciali/ :o treats 
,p>k9son's pati5ts2  7vi7 #a dem5tia    
speciali/ :o treats ,p>k9son's pati5ts2 
&  7vii7 #b repres5tatives f nonpr(it   
organizations t h demon/rat$ exp]i5ce 9 
,p>k9son's rese>* or ,p>k9son's pati5t  
c>e & o!r s]vices4  7#c7 ,meet+s  7,a7  
,qu>t]ly meet+s ,! ,advisory ,c\ncil    
%all meet at lea/ once ea* qu>t]4  7,b7 
,biannual rese>* meet+ ,n lat] ?an #bd  
mon?s aft] ! date ( enactm5t ( ?is ,act1

 & e #b ye>s !reaft]1 ! ,advisory       
,c\ncil %all conv5e a meet+ ( ,f$]al &  
non-,f$]al organizations to discuss     
,p>k9son's rese>*4  7,c7 ,op5 meet+s ,! 
meet+s ( ! ,advisory ,c\ncil %all be op5
 to ! public4  7#d7 ,advice ,! ,advisory
 ,c\ncil %all advise ! ,secret>y on     
,p>k9son's-relat$ issues4  7#e7         
,biannual report ,n lat] ?an #ah mon?s  
aft] ! date ( enactm5t ( ?is ,act1 & e  
#b ye>s !reaft]1 ! ,advisory ,c\ncil    
%all provide to ! ,secret>y & ,congress 
a report conta9+-- 7,a7 an evaluation ( 
all f$]ally fund$ ef=ts 9 ,p>k9son's    
rese>*1 prev5tion1 cl9ical c>e1 &       
in/itutional-1 home-1 & community-bas$  
programs & ! outcomes ( su* ef=ts2  7,b7
 recomm5dations = priority actions to   
exp&1 elim9ate1 coord9ate1 refocus1 or  
cond5se ,f$]al programs bas$ on ea*     
program's p]=mance1 mission1 & purpose2 
7,c7 recomm5dations to-- 7i7 r$uce !    
f9ancial impact ( ,p>k9son's on-- 7,i7 !
 ,m$ic>e program & o!r f$]ally fund$    
programs2 &  7,,ii7 families liv+ )     

,p>k9son's2  7ii7 improve heal? outcomes
 & quality ( life2  7iii7 prev5t        
,p>k9son's2 &  7iv7 rese>* ! association
 betwe5 environm5tal trigg]s &          
,p>k9son's to help r$uce exposure to    
pot5tial trigg]s2 &  7,d7 an evaluation 
( ! implem5tation1 includ+ outcomes1 ( !
 national plan "u subsection 7c77#a74   
7#f7 ,t]m9ation ,! ,advisory ,c\ncil    
%all t]m9ate at ! end ( cal5d> ye>      
#bjce4  7f7 ,data %>+ ,ag5cies bo? )9 ! 
,dep>tm5t ( ,heal? & ,human ,s]vices &  
outside ( ! ,dep>tm5t t h data relat+ to
 ,p>k9son's %all %>e su* data ) !       
,secret>y ( ,heal? & ,human ,s]vices1 or
 ! ,secret>y's designee1 consi/5t ) !   
/atutory obligations regrad+ disclosure 
( in=mation = t dep>tm5t or ag5cy1 to   
enable ! ,secret>y1 or ! ,secret>y's    
designee1 to complete ! report describ$ 
9 subsection 7g74  7g7 ,biannual report 
,! ,secret>y %all submit to !           
,congress-- 7#a7 a ,biannual report t   
includes an evaluation ( all f$]ally    
fund$ ef=ts 9 ,p>k9son's rese>*1        

prev5tion1 diagnosis1 treatm5t1 cl9ical 
c>e1 & in/itutional-1 home-1 &          
community-bas$ programs & ! outcomes (  
su* ef=ts2  7#b7 an evaluation ( all su*
 programs bas$ on p]=mance1 mission1 &  
purpose2  7#c7 recomm5dations =-- 7,a7  
priority actions bas$ on ! evaluation   
conduct$ by ! ,secret>y & ! ,advisory   
,c\ncil to-- 7i7 r$uce ! f9ancial impact
 ( ,p>k9son's on-- 7,i7 ! ,m$ic>e       
program & o!r f$]ally fund$ programs2 & 
7,,ii7 families liv+ ) ,p>k9son's       
disease2  7ii7 improve heal? outcomes & 
quality ( life2  7iii7 prev5t           
,p>k9son's2 &  7iv7 rese>* ! association
 betwe5 environm5tal trigg]s &          
,p>k9son's to help r$uce exposure to    
pot5tial trigg]s2  7,b7 priority actions
 to improve all f$]ally fund$ ef=ts 9   
,p>k9son's rese>*1 prev5tion1 diagnosis1
 treatm5t1 cl9ical c>e1 & in/itutional-1
 home-1 & community-bas$ programs2 &    
7,c7 implem5tation /eps to address      
priority actions describ$ 9 subp>agraphs
 7,a7 & 7,b72 &  7#d7 an up-to-date     

v]sion ( ! national plan "u subsection  
7c77#a74  7h7 ,sunset ,! section %all   
cease to be effective at ! end ( cal5d> 
ye> #bjce4