,,iv #aahth ,,congress #ast ,session ,h4 ,,res4 #hba ,,in ,,the ,,house ,,of ,,representatives ,october #bf1 #bjbc,mr4 ,valadao 7for himself1 ,mr4 ,costa1 ,ms4 ,brown1 ,ms4 ,slotkin1 ,mr4 ,joyce of ,ohio1 and ,mr4 ,mc,carthy7 submitted the following resolution2 which was referred to the ,committee on ,energy and ,commerce ,,resolution ,supporting the goals and ideals of ,creutzfeldt-,jakob ,disease 7,,cjd7 ,awareness ,day4 ,whereas ,creutzfeldt-,jakob ,disease 7referred to in this resolution as ,,cjd7 is a rare1 fatal brain disorder within a group of illnesses called prion diseases2 ,whereas ,,cjd occurs in approximately #a to #b cases per million individuals each year1 resulting in approximately #ejj cases annually in the ,united ,states1 #he percent of which are designated as sporadic1 with no known causes1 while #aj to #ae percent are deemed genetic and fewer than #a percent are deemed acquired2 ,whereas1 in the early stages of the disease1 ,,cjd patients may exhibit failing memory1 behavioral changes1 impaired coordination1 and visual disturbances1 and as the illness progresses1 and mental deterioration becomes more pronounced while involuntary movements1 blindness1 weakness of extremities1 and ultimately coma may occur2 ,whereas ,,cjd typically leads to death within a few months to #a year following the onset of symptoms2 ,whereas comprehensive prion disease surveillance is critical in order to develop more efficient detection methods1 and to determine whether humans can acquire the disease through the consumption of prion contaminated beef 7known to cause ,bovine ,spongiform ,encephalopathy 7,,bse7 or mad cow disease7 or meat from elk and deer affected by ,chronic ,wasting ,disease 7,,cwd72 ,whereas continued prion disease surveillance1 particularly through examination of postmortem human brain tissue1 is imperative to evaluate whether ,,cwd has or can spread to humans2 ,whereas ,alzheimer's ,disease and ,related ,dementias 7,,adrd7 research could benefit from the study of prion diseases1 like ,,cjd2 ,whereas caregiver and health services research of ,,adrd should be applied to prion diseases1 like ,,cjd1 which shares many of the same challenges2 ,whereas the families and communities affected by ,,cjd have a compelling story due to the rarity and rapid effects of the disease2 ,whereas from the time of diagnosis ,,cjd presents unique challenges and burdens for patients1 their family members and caregivers given the rapidly progressive nature of this devastating disease2 and ,whereas the establishment of ,november #ab1 #bjbc1 as ,creutzfeldt-,jakob ,disease 7,,cjd7 ,awareness ,day would raise awareness about this rare1 rapidly progressive1 and invariably fatal disease3 ,now1 therefore1 be it ,that the ,house of ,representatives-- 7#a7 supports the goals and ideals of ,creutzfeldt-,jakob ,disease 7,,cjd7 ,awareness ,day2 and 7#b7 recognizes the importance of raising awareness of this rare brain disorder4