,,iv  #aahth ,,congress  #ast ,session  
,h4 ,,res4 #hac  ,,in ,,the ,,house ,,of
 ,,representatives  ,october #be1       
#bjbc,mr4 ,murphy 7for himself and ,mr4 
,lynch7 submitted the following         
resolution2 which was referred to the   
,committee on ,energy and ,commerce     
,,resolution  ,supporting the           
designation of ,october #bc1 #bjbc1 as  
,,aadc ,deficiency ,awareness ,day4     
,whereas a rare disease is a disease or 
disorder that affects a small number of 
patients1 currently defined as a        
condition that affects fewer than       
#bjj1jjj people in the ,united ,states  
at any given time2 ,whereas there are   
more than #g1jjj rare diseases that     
altogether affect an estimated          
#be1jjj1jjj to #cj1jjj1jjj ,americans2  
,whereas children make up more than half
 of the estimated #be1jjj1jjj to        
#cj1jjj1jjj ,americans living with a    
rare disease2 ,whereas ,aromatic        
,l-,amino ,acid ,decarboxylase 7,,aadc7 
,deficiency is a genetic neurologic rare

 disease that severely debilitates a    
patient's development1 motor skills1    
growth1 and cognitive and language      
skills and limits a patient's life2     
,whereas ,,aadc ,deficiency results from
 an inherited genetic disease where     
patients lack the ,,aadc enzyme required
 to create dopamine and1 without        
dopamine1 patients will never achieve   
motor milestones1 such as holding their 
heads up1 sitting1 and standing1 or     
develop the ability to communicate or   
perform basic life functions2 ,whereas  
patients are diagnosed with ,,aadc      
,deficiency through genetic and other   
biochemical tests2 ,whereas patients    
suffering from ,,aadc ,deficiency often 
have unexplained low muscle tone and    
experience other symptoms like          
developmental delays and involuntary eye
 movements2 ,whereas there have been    
approximately #bjj cases of ,,aadc      
,deficiency reported worldwide2 ,whereas
 ,,aadc ,deficiency is often mistaken   
for other diseases like cerebral palsy1 

epilepsy1 or even autism2 ,whereas      
,congress can raise awareness of ,,aadc 
,deficiency in the public and medical   
community in the ,united ,states2       
,whereas awareness of ,,aadc ,deficiency
 will help patients who may be          
experiencing the symptoms of ,,aadc     
,deficiency recognize their disease and 
pursue appropriate treatment2 and       
,whereas improved awareness and         
education around ,,aadc ,deficiency will
 increase medical representation for    
individuals suffering from ,,aadc       
,deficiency3 ,now1 therefore1 be it     
,that the ,house of ,representatives--  
7#a7 supports the designation of ,,aadc 
,deficiency ,awareness ,day2 and  7#b7  
recognizes the importance of1 with      
respect to ,aromatic ,l-,amino ,acid    
,decarboxylase 7,,aadc7 ,deficiency1    
improving awareness and education around
 ,,aadc ,deficiency4