,,iv  #aah? ,,congress  #a/ ,session    
,h4 ,,res4 #dhe  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,june #i1 #bjbc,mr4   
,bean ( ,florida 7= himself1 ,ms4 ,mace1
 ,mr4 ,moore ( ,alabama1 ,mrs4          
,gonzlez-,coln1 ,mr4 ,rog]s ( ,alabama1 
,mr4 ,ru!r=d1 ,mr4 ,posey1 ,mr4 ,payne1 
,mr4 ,tonko1 ,mr4 ,bacon1 & ,mr4        
,grijalva7 submitt$ ! foll[+ resolution2
 :i* 0 ref]r$ to ! ,committee on        
,ov]sight & ,acc\ntability  ,,resolution
  ,express+ support = ! designation (   
,batt5 ,disease ,aw>5ess ,day on ,june  
#i4  ,:]eas ,batt5 disease is a fatal   
r>e disease ( ! n]v\s sy/em t usually   
beg9s 9 *ildhood1 & is ! mo/ common =m (
 a gr\p ( disord]s call$ neuronal c]oid 
lip(usc9oses1 or ,n,c,ls = %ort2 ,:]eas 
!re are approximately #ac kn[n mutations
 ( ,batt5 disease1 typically ref]r$ to z
 ,,cln#a ?r\gh ,,cln#ad1 :i* are all    
v>iants ( lysosomal /orage disord]s2    
,:]eas ,batt5 disease is an inh]it$     
g5etic 7autosomal recessive7 disord]    
:]eby bra9 cells are miss+ an enzyme :i*

 creates a buildup ( metabolic wa/e1 & z
 a result1 ! cells gradually lose _!    
function2 ,:]eas ,batt5 disease is kn[n 
z a r>e disease1 & its preval5ce occurs 
9 approximately #b to #d out ( e        
#ajj1jjj bir?s 9 ! ,unit$ ,/ates ea*    
ye>2 ,:]eas symptoms ( ! disord] v>y    
significantly1 & !y (t5 include pati5ts 
exhibit+ developm5tal delays1 exp]i5c+  
seizures1 vision loss lead+ to bl9dness1
 & loss ( motor skills & ! ability to   
walk1 talk1 or communicate1 & "s *ildr5 
also endure cognitive decl9e1 p]sonality
 & behavioral *anges1 dem5tia1 & o!r    
sev]ely debilitat+ physical ailm5ts2    
,:]eas dep5d+ ^u ! age ( onset (        
symptoms initially pres5t+1 x c take f a
 few mon?s to sev]al ye>s = a *ild to   
obta9 an accurate diagnosis ( ,batt5    
disease1 & un=tunately1 misdiagnosis    
frequ5tly occurs on ! family's j\rney   
?r\gh ! diagno/ic odyssey2 ,:]eas ,batt5
 disease curr5tly has v few treatm5t    
options available1 & x results 9        
premature dea? occurr+ betwe5 e>ly      

*ildhood & e>ly adul?ood2 ,:]eas !re    
pres5tly is no kn[n cure = any =m (     
,batt5 disease2 & ,:]eas we recognize   
,june #i z ,batt5 ,disease ,aw>5ess     
,day3 ,n[1 !re=e1 be x ,t ! ,h\se (     
,repres5tatives supports ! designation (
 a ,batt5 ,disease ,aw>5ess ,day4