,,iv  #aah? ,,congress  #a/ ,session    
,h4 ,,res4 #djd  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #ae1 #bjbc,mr4   
,tonko 7= himself & ,ms4 ,salaz>7       
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,,resolution  ,express+       
support = ! designation ( ,may #ae1     
#bjbc1 z ,prad]-,willi ,syndrome        
,aw>5ess ,day to raise aw>5ess ( &      
promote rese>* on ! disord]4  ,:]eas    
,prad]-,willi syndrome 7,,pws7 is a r>e 
g5etic disord] & ! mo/ common ( ! g5etic
 disord]s t cause life-?reat5+ obesity 9
 *ildr52 ,:]eas ,,pws usually results f 
problems on *romosome #ae2 ,:]eas ,,pws 
is a complex g5etic disord] t occurs 9  
approximately #a out ( e #ae1jjj bir?s2 
,:]eas1 9 ! ,unit$ ,/ates1 !re are      
approximately #aj1jjj to #bj1jjj liv+   
individuals ) ,,pws2 ,:]eas ,,pws       
affects-- 7#a7 males & females ) equal  
frequ5cy2 &  7#b7 all races &           
e?nicities2 ,:]eas ,,pws causes an      
extreme & insatiable appetite1 (t5      

result+ 9 sev]e obesity2 ,:]eas sev]e   
obesity is ! major cause ( dea? =       
individuals ) ,,pws2 ,:]eas "o ( ! ma9  
symptoms ( ,,pws is ! inability to      
control eat+ & con/ant hung]1 & o!r     
symptoms include l[ muscle tone & poor  
fe$+ z an infant1 delays 9 intellectual 
developm5t1 & difficulty controll+      
emotions2 ,:]eas ,,pws causes cognitive 
& le>n+ disabilities & behavioral       
difficulties1 includ+                   
obsessive-compulsive disord] &          
difficulty controll+ emotions2 ,:]eas   
,,pws affects _m aspects ( ! p]son's    
life1 includ+ eat+1 behavior & mood1    
physical gr[?1 & intellectual           
developm5t2 ,:]eas ,,pws c affect       
hormone production & cause o!r heal?    
complications2 ,:]eas ,,pws c lead to   
obesity & relat$ complications su* z    
he>t issues1 diabetes1 & high blood     
pressure2 ,:]eas /udies h %[n t         
individuals ) ,,pws h a high morbidity &
 mortality rate2 ,:]eas individuals )   
,,pws1 l _m o!r r>e disord]s1 exp]i5ce  

*all5ges ) obta9+ a diagnosis1 limit$   
treatm5t options1 & difficulty f9d+ &   
access+ treatm5t c5t]s & physicians )   
exp]tise 9 ,,pws2 ,:]eas !re is no kn[n 
cure = ,,pws2 ,:]eas e>ly diagnosis (   
,,pws all[s families to access treatm5t1
 int]v5tion s]vices1 & support f heal?  
pr(essionals1 advocacy organizations1 & 
o!r families :o are deal+ ) ,,pws2      
,:]eas discov]$ treatm5ts1 includ+ ! use
 ( human gr[? hormone1 are improv+ !    
quality ( life = individuals ) !        
syndrome & (f] new hope to families1 b  
_m difficult symptoms associat$ ) ,,pws 
rema9 untreat$2 ,:]eas increas$ rese>*  
into ,,pws-- 7#a7 may lead to a bett]   
und]/&+ ( ! disord]1 m effective        
treatm5ts1 & an ev5tual cure = ,,pws2 & 
7#b7 is likely to lead to a bett]       
und]/&+ ( common public heal? conc]ns1  
includ+ *ildhood obesity & m5tal heal?2 
,:]eas !re is a critical ne$ = rese>* & 
developm5t to advance treatm5ts = ,,pws2
 ,:]eas /udies h %[n t individuals )    
,,pws h a high morbidity & mortality    

rate2 ,:]eas ! ,prad]-,willi ,syndrome  
,association1 a nonpr(it organization   
e/abli%$ 9 #aige1 provides p>5ts & heal?
 c>e pr(essionals ) a national &        
int]national network ( in=mation1       
support s]vices1 & rese>* endeavors to  
expressly meet ! ne$s ( *ildr5 & adults 
) ,,pws & _! families2 ,:]eas !         
organization comprises p>5ts1           
pr(essionals1 & o!r int]e/$ individuals 
:o are tak+ active roles 9 improv+ !    
lives ( p ) ,,pws2 ,:]eas ! goals ( !   
organization include-- 7#a7 normaliz+   
life = p ) ,,pws & _! families2  7#b7   
improv+ communication & education2 &    
7#c7 act+ z a lifetime advocate =       
affect$ individuals2 ,:]eas !           
association also supports rese>*1       
int]discipl9>y communication1 & increas$
 pr(essional k ( treatm5ts2 & ,:]eas    
,prad]-,willi ,syndrome ,aw>5ess ,day is
 expect$ to be obs]v$ 9 ! ,unit$ ,/ates 
= ye>s to come1 provid+ hope & in=mation
 = pati5ts1 c>egiv]s1 & families ar\nd !
 c\ntry3 ,n[1 !re=e1 be x ,t ! ,h\se (  

,repres5tatives-- 7#a7 supports !       
designation ( ,prad]-,willi ,syndrome   
,aw>5ess ,day2  7#b7 applauds ! ef=ts ( 
advocates & organizations t enc\rage    
aw>5ess1 promote rese>*1 & provide      
education1 support1 & hope to ^? impact$
 by ,prad]-,willi syndrome2  7#c7       
recognizes ! commitm5t ( p>5ts1         
families1 rese>*]s1 heal? pr(essionals1 
& o!rs d$icat$ to f9d+ an effective     
treatm5t & ev5tual cure = ,prad]-,willi 
syndrome2 &  7#d7 recognizes !          
importance (1 ) respect to ,prad]-,willi
 syndrome-- 7,a7 improv+ aw>5ess &      
educat+ ! public2  7,b7 enc\rag+        
accurate & e>ly diagnosis2  7,c7 advanc+
 rese>*2  7,d7 develop+ new treatm5ts1  
diagno/ics1 & cures2 &  7,e7 id5tify+   
regulatory pa?ways = drug developm5t (  
r>e diseases l ,prad]-,willi syndrome4