,i #aah? ,,congress #b;d ,session ,h4 ,r4 #ibcc ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,july #cj1 #bjbd,ms4 ,wexton 7= h]self & ,mr4 ,bilirakis7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to require ! ,secret>y ( ,heal? & ,human ,s]vices to e/abli% a program = ! conduct & support ( rese>*1 tra9+1 & heal? in=mation dissem9ation ) respect to environm5tal risk factors ( neurodeg5]ative diseases1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,h>moniz+ ,environm5tal ,analyses & ,laun*+ ,!rapeutic ,hubs to ,yield ,bol/]$ ,rese>* ,& ,innovation 9 ,neurological ,sci5ce ,act ( #bjbd or ! ,,heal?y ,,bra9s ,act ( #bjbd4 #b4 ,rese>* into environm5tal risk factors t may contribute to neurodeg5]ative disease ,"p ,b ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd et seq47 is am5d$ by add+ at ! end ! foll[+3 #dji,k4 ,neurodeg5]ative disease environm5tal rese>* 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ,,nih1 %all e/abli% a program = ! conduct & support ( rese>*1 tra9+1 & heal? in=mation dissem9ation ) respect to environm5tal risk factors 7includ+ environm5tal toxicant exposures7 ( neurodeg5]ative diseases4 7b7 ,scope ( rese>* ,rese>* conduct$ or support$ "u ?is section %all-- 7#a7 be focus$ on-- 7,a7 pot5tial environm5tal toxicants1 includ+ environm5tal /ressors su* z volatile organic comp\nds1 p>ticulate matt]1 p]- & polyfluor9at$ sub/ances1 & heavy metals 9 environm5tal m$ia su* z air1 wat]1 food1 & soil2 7,b7 ! me*ani/ic int]actions ( su* toxicants ) neurodeg5]ative disease outcomes2 7,c7 ! presymptomatic m>k]s ( neurodeg5]ative disease2 & 7,d7 advanc+ developm5t ( environm5tal heal? /rategies to prev5t1 manage1 treat1 or sl[ ! progression ( neurodeg5]ative disease2 & 7#b7 may include rese>*-- 7,a7 exam9+ environm5tal exposures1 includ+ occupational risk factors1 sociobehavioral factors1 & social det]m9ants ( heal?2 7,b7 us+ fundam5tal approa*es to id5tify hi/orical1 exi/+1 & em]g+ environm5tal risks & factors t affect disease progression2 7,c7 exam9+ multifactorial causation f *emical & non*emical exposures2 7,d7 exam9+ preval5ce ( ! disease 9 relation to ! di/ribution ( exposures across communities & populations2 7,e7 exam9+ ! expression ( disease traits t result f ! int]play ( g5es & environm5t2 & 7,f7 explor+ physiological me*anisms driv+ neurodeg5]ation f toxicant exposures4 7c7 ,coord9ation )9 ,,nih 7#a7 ,9 g5]al ,9 c>ry+ out ! program "u subsection 7a71 ! ,secret>y %all-- 7,a7 provide = coord9ation across ! programs & activities ( ! ,national ,in/itutes ( ,heal? to avoid duplication2 & 7,b7 exp& ! fund+ ( environm5tal heal? rese>* by lead+ an ongo+1 coord9at$1 & focus$ ef=t to fund new & exi/+ c5t]s = ! /udy & evaluation ( environm5tal risk factors 7includ+ environm5tal toxicants7 ( neurodeg5]ative diseases4 7#b7 ,bi5nial report ,9 c>ry+ out p>agraph 7#a71 ! ,secret>y %all-- 7,a7 submit a bi5nial report detail+ ! f9d+s & conclusions ( rese>* "u ?is section to-- 7i7 ! ,committees on ,appropriations ( ! ,h\se ( ,repres5tatives & ! ,s5ate2 7ii7 ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives2 & 7iii7 ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate2 7,b7 po/ ea* report "u subp>agraph 7,a7 on ! public website ( ! ,national ,in/itutes ( ,heal?2 & 7,c7 include ! in=mation report$ pursuant to subp>agraph 7,a7 9 ! tri5nial report "u section #djc4 7d7 ,collaborative ,c5t]s = ,neurodeg5]ative ,disease ,environm5tal ,rese>* 7#a7 ,9 g5]al ,9 c>ry+ out ! program "u subsection 7a71 ! ,secret>y %all provide = ! e/abli%m5t ( rese>* c5t]s1 to be kn[n z ,collaborative ,c5t]s = ,neurodeg5]ative ,disease ,environm5tal ,rese>* 79 ?is section ea* ref]r$ to z a ,,ccnd]7 at in/itutions ( high] education1 m$ical c5t]s1 & o!r appropriate entities4 7#b7 ,requirem5ts ,) respect to neurodeg5]ative disease1 ea* ,,ccnd] %all-- 7,a7 conduct & support basic1 appli$1 & cl9ical rese>* on ! effects ( environm5tal risk factors 7includ+ environm5tal toxicants71 includ+ ) respect to disease progression2 7,b7 use ! facilities ( a s+le in/itution or a consortium ( coop]at+ in/itutions to adm9i/] ! ,,ccnd] & meet su* qualifications z may be prescrib$ by ! ,secret>y2 7,c7 focus on population-bas$1 environm5tal heal? rese>*2 7,d7 ensure t ! rese>* conduct$ & support$ pursuant to ?is section is int]discipl9>y & collaborative2 7,e7 coord9ate ) exi/+ intramural & extramural ef=ts ( ! ,national ,in/itutes ( ,heal?2 & 7,f7 collaborate ) relevant p>tn]s & /akehold]s1 includ+ rese>*]s1 heal? pr(essionals1 nonpr(it organizations1 pati5ts1 & c>egiv]s1 to und]/& ! effects ( environm5tal risk factors 7includ+ environm5tal toxicants7 ( neurodeg5]ative disease & progression !re(4 7#c7 ,discretion>y activities ,) respect to neurodeg5]ative diseases1 ea* ,,ccnd] may-- 7,a7 provide c>e] enhancem5t & tra9+ opportunities = sci5ti/s1 rese>*]s1 environm5tal pr(essionals1 & heal? pr(essionals1 includ+ ?r\gh ! provision ( /ip5ds2 7,b7 conduct programs to provide in=mation & cont9u+ education to heal? pr(essionals1 includ+ ?r\gh ! provision ( /ip5ds2 7,c7 conduct programs = ! dissem9ation ( in=mation to ! public reg>d+ rese>* f9d+s & propos$ prev5tion /rategies :5 appropriate2 7,d7 sep>ately or 9 collaboration ) o!r ,c,c,n,d,e,rs or gov]nm5tal ag5cies1 e/abli% a nationwide data sy/em t-- 7i7 includes data d]iv$ f compreh5sive & repres5tative pati5t populations ) neurodeg5]ative diseases2 & 7ii7 :]e possible1 comp>es relevant data involv+ g5]al populations2 7,e7 sep>ately or 9 collaboration ) o!r ,c,c,n,d,e,rs1 e/abli% a cle>+h\se1 to be kn[n z ! ,environm5tal ,contributions to ,neurodeg5]ative ,disease ,in=mation ,cle>+h\se1 to facilitate & enhance k & und]/&+ ( environm5tal risk factors ( neurodeg5]ative diseases2 & 7,f7 sep>ately or 9 collaboration ) o!r ,c,c,n,d,e,rs1 e/abli% a national education program t fo/]s a national focus on environm5tal risk factors ( neurodeg5]ative diseases4 7#d7 ,duration ( support ,! p]iod ( support = a ,,ccnd] "u ?is section %all n exce$ #e ye>s1 except t su* p]iod may be ext5d$ by ! ,secret>y = "o or m additional p]iods ( n m ?an #e ye>s if-- 7,a7 ! op]ations ( su* ,,ccnd] h be5 review$ by an appropriate te*nical & sci5tific pe] review gr\p e/abli%$ by ! ,secret>y2 & 7,b7 su* gr\p has recomm5d$ to ! ,secret>y t su* p]iod %\ld be ext5d$4 7e7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ej1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 4