,,ib ,union ,cal5d> ,no4 #eah #aah? ,,congress #b;d ,session ,h4 ,r4 #gbac ,report ,no4 #aah-fbj ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #a1 #bjbd,mr4 ,smi? ( ,new ,j]sey 7= himself & ,mr4 ,cuell>7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,july #cj1 #bjbd;,additional sponsors3 ,mr4 ,c>t] ( ,georgia1 ,mrs4 ,d+ell1 ,mr4 ,mol9>o1 ,ms4 ,ku/]1 ,mr4 ,fitzpatrick1 ,mr4 ,m\lton1 ,mr4 ,kean ( ,new ,j]sey1 ,mr4 ,soto1 ,mr4 ,kiley1 ,mr4 ,got!im]1 ,mr4 ,davis ( ,nor? ,c>ol9a1 ,ms4 ,matsui1 ,mr4 ,/aub]1 ,ms4 ,cl>ke ( ,new ,york1 ,mr4 ,bacon1 ,ms4 ,spanb]g]1 ,mr4 ,h>d] ( ,cali=nia1 ,ms4 ,tlaib1 ,mr4 ,moore ( ,utah1 ,ms4 ,slotk91 ,ms4 ,om>1 ,mr4 ,joyce ( ,p5nsylvania1 ,mr4 ,kim ( ,new ,j]sey1 ,ms4 ,blunt ,ro*e/]1 ,ms4 ,kaptur1 ,ms4 ,salaz>1 ,ms4 ,t5ney1 ,mr4 ,h>ris1 ,mr4 ,van ,drew1 ,mrs4 ,mill] ( ,we/ ,virg9ia1 ,mr4 ,graves ( ,l\isiana1 ,mr4 ,l>son ( ,connecticut1 ,ms4 ,wat]s1 ,ms4 ,sewell1 ,mr4 ,suozzi1 ,mr4 ,panetta1 ,mrs4 ,peltola1 ,mr4 ,ryan1 ,mr4 ,lawl]1 ,mr4 ,pappas1 ,ms4 ,adams1 ,mr4 ,kelly ( ,p5nsylvania1 ,mr4 ,van ,ord51 ,mr4 ,neguse1 ,ms4 ,/ev5s1 ,ms4 ,budz9ski1 ,mr4 ,bilirakis1 ,ms4 ,p+ree1 ,ms4 ,tokuda1 ,ms4 ,pett]s51 ,mr4 ,c\rtney1 ,mr4 ,l&sman1 ,mr4 ,jackson ( ,ill9ois1 ,mr4 ,?ompson ( ,p5nsylvania1 ,mr4 ,pocan1 ,mr4 ,s*neid]1 ,ms4 ,lee ( ,nevada1 ,mr4 ,williams ( ,new ,york1 ,mr4 ,meus]1 & ,mr4 ,cr[ ,july #cj1 #bjbd,report$ ) am5dm5ts1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be printed,strike out all aft] ! enact+ clause & ins]t ! "p pr9t$ 9 italic,for text ( introduc$ bill1 see copy ( bill z introduc$ on ,febru>y #a1 #bjbd ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to enhance activities ( ! ,national ,in/itutes ( ,heal? ) respect to rese>* on autism spectrum disord] & enhance programs relat+ to autism _/ reau?orize c]ta9 programs ) respect to autism spectrum disord]81 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,autism ,collaboration1 ,acc\ntability1 ,rese>*1 ,education1 & ,support ,act ( #bjbd or ! ,autism ,,c>es ,act ( #bjbd4 #b4 ,national ,in/itutes ( ,heal? activities 7a7 ,expansion ( activities ,p>agraph 7#a7 ( section #dji;,c7a7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd;g7a77 is am5d$ to read z foll[s3 7#a7 ,expansion ( activities ,! ,director ( ,,nih 79 ?is section ref]r$ to z ! ,director71 9 coord9ation & consultation ) ! ,adm9i/rator ( ! ,adm9i/ration = ,community ,liv+1 & o!r ag5cies z appropriate1 %all-- 7,a7 subject to ! availability ( appropriations1 exp&1 int5sify1 & coord9ate ! activities ( ! ,national ,in/itutes ( ,heal? ) respect to rese>* on autism spectrum disord]1 includ+-- 7i7 basic & cl9ical rese>* 9 fields includ+ pa?ology1 developm5tal neurobiology1 g5etics1 epig5etics1 ph>macology1 nutrition1 immunology1 neuroimmunology1 neurobehavioral developm5t1 endocr9ology1 ga/ro5t]ology1 toxicology1 spee*1 language & he>+ sci5ce1 psy*iatry1 psy*ology1 developm5tal behavioral p$iatrics1 & g]ontology2 & 7ii7 rese>* on int]v5tions to maximize outcomes = individuals ) autism spectrum disord]2 & 7,b7 ensure t rese>* ref]r$ to 9 subp>agraph 7,a7-- 7i7 inve/igates ! causes 7includ+ possible environm5tal causes71 diagnosis or rul+ out1 e>ly & ongo+ detection1 prev5tion1 int]v5tion1 s]vices1 supports across ! lifespan = auti/ic individuals & c>egiv]s1 & treatm5t = autism spectrum disord] & co-occurr+ conditions1 includ+ dissem9ation & implem5tation ( cl9ical c>e1 supports1 int]v5tions1 & treatm5ts2 & 7ii7 reflects ! entire population ( individuals ) autism spectrum disord]1 includ+ ! full range ( cognitive1 communicative1 behavioral1 & adaptive function+1 z well z co-occurr+ conditions & ne$s = support & s]vices1 includ+ c>e necess>y = physical safety4 4 7b7 ,c5t]s ( excell5ce ,section #dji;,c7b7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd;g7b77 is am5d$-- 7#a7 9 p>agraph 7#b7-- 7,a7 by /rik+ prev5tion1 & treatm5t & ins]t+ prev5tion1 s]vices1 & treatm5t2 7,b7 by /rik+ includ+ ! fields & ins]t+ includ+ 9 ! fields2 & 7,c7 by /rik+ behavioral psy*ology1 & cl9ical psy*ology & ins]t+ behavioral psy*ology1 cl9ical psy*ology1 & g]ontology2 7#b7 9 p>agraph 7#e77;,a71 by /rik+ n less ?an five c5t]s & ins]t+ n few] ?an six c5t]s2 & 7#c7 9 p>agraph 7#e77;,b71 by /rik+ p]iod ( n to exce$ & ins]t+ p]iod n to exce$4 7c7 ,public input ,section #dji;,c7d7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd;g7d77 is am5d$ to read z foll[s3 7d7 ,public input 7#a7 ,9 g5]al ,! ,director %all "u subsection 7a77#a7 provide = means ?r\gh :i* ! public c obta9 in=mation on ! exi/+ & plann$ programs & activities ( ! ,national ,in/itutes ( ,heal? ) respect to autism spectrum disord] & ?r\gh :i* ! ,director c receive comm5ts f ! public reg>d+ su* programs & activities4 7#b7 ,opportunities ,su* public input opportunities may include enc\rag+ ! c5t]s "u subsection 7b77#a7 to e/abli% an ext]nal advisory bo>d or adopt+ a compreh5sive plan to ensure individuals ) v>i\s backgr\nds & p]spectives are repres5t$1 among o!r activities4 ,su* opportunities %\ld consid] includ+1 z appropriate1 individuals1 family memb]s1 & c>egiv]s ( individuals ) autism spectrum disord] :o repres5t ! entire population ( individuals ) autism spectrum disord]1 includ+ ! full range ( cognitive1 communicative1 behavioral1 & adaptive function+1 to bett] in=m rese>* f9d+s & future /udies4 4 #c4 ,programs relat+ to autism 7a7 ,developm5tal disabilities surveillance & rese>* program ,section #cii;,,aa ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;i7 is am5d$-- 7#a7 9 subsection 7b77#a71 by /rik+ & causes & ins]t+ causes1 & life c\rse2 & 7#b7 9 subsection 7e71 by /rik+ #bjbd & ins]t+ #bjbi4 7b7 ,autism education1 e>ly detection1 & int]v5tion ,section #cii;,,bb ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;i-#a7 is am5d$-- 7#a7 9 subsection 7a77#b71 by /rik+ subsequ5t int]v5tions & ins]t+ subsequ5t int]v5tions & s]vices2 7#b7 9 subsection 7b77#a71 by /rik+ culturally compet5t in=mation & ins]t+ culturally & l+ui/ically responsive in=mation2 7#c7 9 subsection 7b77#b7-- 7,a7 by /rik+ promote rese>* & ins]t+ promote rese>*1 :i* may include community-bas$ p>ticipatory rese>*12 & 7,b7 by /rik+ scre5+ tools ea* place x appe>s & ins]t+ scre5+ & diagno/ic tools2 7#d7 9 subsection 7b77#c71 by /rik+ at high] risk & ins]t+ at increas$ likelihood2 7#e7 9 subsection 7b77#d71 by ins]t+ 1 :i* may include su* individuals utiliz+ p>5ts & gu>dians tra9$ to provide int]v5tions1 s]vices1 & supports be=e ! semicolon at ! end2 7#f7 9 subsection 7c77#a71 by /rik+ culturally compet5t in=mation & ins]t+ culturally & l+ui/ically responsive in=mation2 7#g7 9 subsection 7c77#b77;,a77ii7-- 7,a7 by /rik+ advocates1 & ins]t+ advocates1 self-advocates12 & 7,b7 by /rik+ culturally compet5t in=mation & ins]t+ culturally & l+ui/ically responsive in=mation2 7#h7 by am5d+ p>agraph 7#a7 ( subsection 7e7 to read z foll[s3 7#a7 ,tra9+ ,! ,secret>y1 9 coord9ation ) activities conduct$ "u title ,v ( ! ,social ,security ,act1 %all1 subject to ! availability ( appropriations1 /r5g!n ! capacity ( exi/+ tra9+ programs & exp& exi/+ int]discipl9>y tra9+ opportunities or opportunities to increase ! numb] ( programs t address ! heal? & well-be+ ( individuals :o h or are at increas$ likelihood = autism spectrum disord] & o!r neurodevelopm5tal disabilities across _! lifespan4 ,activities "u ! prec$+ s5t5ce %all include-- 7,a7 aw>d+ competitive grants or coop]ative agreem5ts to public or nonpr(it ag5cies1 includ+ in/itutions ( high] education1 to exp& exi/+ or develop new mat]nal & *ild heal? int]discipl9>y lead]%ip education 9 neurodevelopm5tal & relat$ disabilities programs 7simil> to ! programs develop$ "u section #eja7;a77#b7 ( ! ,social ,security ,act7 9 ,/ates t d n h su* a program2 7,b7 ensur+ t tra9ees "u su* tra9+ programs-- 7i7 receive an appropriate balance ( academic1 cl9ical1 & community opportunities2 7ii7 are culturally & l+ui/ically responsive2 7iii7 are f v>i\s backgr\nds2 7iv7 demon/rate a capacity to evaluate1 diagnose or rule out1 develop1 & provide evid5ce-bas$ int]v5tions & programs to individuals ) autism spectrum disord] & o!r developm5tal disabilities across _! lifespan2 & 7v7 demon/rate an ability to use a p]son- & family-c5t]$ approa*1 :i* may include collaborat+ ) rese>* c5t]s or networks to provide tra9+ = provid]s ( respite c>e 7z def9$ 9 section #bija72 7,c7 ensur+ t program sites provide culturally & l+ui/ically responsive s]vices2 & 7,d7 enc\rag+ tra9+ programs to p>tn] ) appropriate entities to build community capacity4 2 7#i7 9 subsection 7e77#b71 by add+ at ! end ! foll[+ new subp>agraph3 7,c7 ,report ,n lat] ?an #b ye>s aft] ,septemb] #cj1 #bjbd1 ! ,comptroll] ,g5]al ( ! ,unit$ ,/ates %all prep>e & submit to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate a report exam9+ h[ to increase ! numb] ( developm5tal-behavioral p$iatricians1 includ+ ?r\gh ! developm5tal behavioral p$iatrician tra9+ program4 2 7#aj7 9 subsection 7f7-- 7,a7 by /rik+ promote rese>* & ins]t+ promote rese>*1 includ+ community-bas$ p>ticipatory rese>*12 7,b7 by /rik+ physical & behavioral heal? ( individuals & ins]t+ physical & behavioral heal?1 & communication ne$s1 ( individuals2 & 7,c7 by /rik+ dissem9ate in=mation relat$ to su* rese>* & guidel9es & ins]t+ dissem9ate in=mation relat+ to su* rese>* & guidel9es to improve ! quality ( life & long-t]m outcomes2 & 7#aa7 9 subsection 7g71 by /rik+ #bjbd & ins]t+ #bjbi4 7c7 ,int]ag5cy ,autism ,coord9at+ ,committee ,section #cii;,,cc ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;i-#b7 is am5d$-- 7#a7 9 subsection 7b7-- 7,a7 9 p>agraph 7#b71 by /rik+ develop a summ>y & ins]t+ develop & update a summ>y2 7,b7 9 p>agraphs 7#c7 & 7#d71 by /rik+ make recomm5dations & ins]t+ make & update recomm5dations2 & 7,c7 by /rik+ p>agraphs 7#e7 & 7#f7 & ins]t+ ! foll[+3 7#e7 develop & update a /rategic plan = ! conduct (1 & support =1 autism spectrum disord] rese>*1 includ+ z practicable = s]vices & supports1 = individuals ) an autism spectrum disord] across ! lifespan ( su* individuals & ! families ( su* individuals1 & across ! entire population ( individuals ) autism spectrum disord]1 includ+ ! full range ( cognitive1 communicative1 behavioral1 & adaptive function+1 z well z co-occurr+ conditions & ne$s = support & s]vices1 includ+ c>e necess>y = physical safety1 :i* su* plan %all include propos$ budget>y requirem5ts & recomm5dations to ensure t autism spectrum disord] rese>*1 & s]vices & support activities to ! ext5t practicable1 ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices & ( o!r ,f$]al dep>tm5ts & ag5cies are n unnecess>ily duplicative2 & 7#f7 submit to ! ,congress & ,presid5t-- 7,a7 an annual update on ! summ>y ( advances describ$ 9 p>agraph 7#b72 & 7,b7 ea* update to ! /rategic plan describ$ 9 p>agraph 7#e71 includ+ any /eps t h already be5 tak5 to implem5t ! recomm5dations 9 su* updat$ /rategic plan & progress made 9 a*iev+ ! goals outl9$ 9 su* updat$ /rategic plan4 2 & 7#b7 9 subsection 7f71 by /rik+ #bjbd & ins]t+ #bjbi4 7d7 ,reports to ,congress ,section #cii;,,dd ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;i-#c7 is am5d$-- 7#a7 by /rik+ ,autism ,,c>es ,act ( #bjai ea* place x appe>s & ins]t+ ,autism ,,c>es ,act ( #bjbd2 7#b7 9 subsection 7a71 by am5d+ p>agraph 7#a7 to read z foll[s3 7#a7 ,9 g5]al ,n lat] ?an #d ye>s aft] ,septemb] #cj1 #bjbd1 ! ,secret>y1 9 consultation & coord9ation ) o!r ,f$]al dep>tm5ts & ag5cies t s]ve individuals ) autism spectrum disord]1 %all prep>e & submit to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives1 & make publicly available1 includ+ ?r\gh po/+ on ! int]net website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 a progress report on activities relat$ to autism spectrum disord] & o!r developm5tal disabilities4 ,su* report %all include activities & rese>* relat$ to ! entire population ( individuals ) autism spectrum disord]1 includ+ ! full range ( cognitive1 communicative1 behavioral1 & adaptive function+1 z well z co-occurr+ conditions & ne$s = support & s]vices1 includ+ c>e necess>y = physical safety4 2 & 7#c7 by add+ at ! end ! foll[+3 7c7 ,update on "y adults & y\? transition+ to adul?ood ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ! ,autism ,,c>es ,act ( #bjbd1 ! ,secret>y1 9 coord9ation ) o!r ,f$]al dep>tm5ts & ag5cies t s]ve individuals ) autism spectrum disord]1 %all prep>e & submit to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate an update to ! report requir$ pursuant to section #f ( ! ,autism ,c>es ,act ( #bjad 7,public ,law #aac-aeg7 conc]n+ "y adults ) autism spectrum disord] & ! *all5ges relat$ to ! transition f exi/+ s*ool-bas$ s]vices to ^? s]vices available dur+ adul?ood4 7d7 ,pr(essional judgm5t budget ,= ea* fiscal ye> ?r\gh fiscal ye> #bjbi1 ! ,director ( ! ,national ,in/itutes ( ,heal?1 9 coord9ation ) o!r relevant ag5cies1 z appropriate1 %all prep>e & submit1 directly to ! ,presid5t = review & transmittal to ,congress1 aft] reasonable opportunity = comm5t1 b )\t *ange1 by ! ,secret>y & ! ,int]ag5cy ,autism ,coord9at+ ,committee e/abli%$ "u section #cii;,,cc7a71 an annual budget e/imate = c>ry+ out ! /rategic plan develop$ & updat$ "u section #cii;,,cc7b77#e74 4 7e7 ,au?orization ( appropriations ,section #cii;,,ee ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;i-#d7 is am5d$-- 7#a7 9 subsection 7a71 by /rik+ #bc1ajj1jjj = ea* ( fiscal ye>s #bjbj ?r\gh #bjbd & ins]t+ #bh1ajj1jjj = ea* ( fiscal ye>s #bjbe ?r\gh #bjbi2 7#b7 9 subsection 7b71 by /rik+ #ej1eii1jjj = ea* ( fiscal ye>s #bjbj ?r\gh #bjbd & ins]t+ #ef1cdd1jjj = ea* ( fiscal ye>s #bjbe ?r\gh #bjbi2 & 7#c7 9 subsection 7c71 by /rik+ !re are au?oriz$ to be appropriat$ #bif1jjj1jjj = ea* ( fiscal ye>s #bjbj ?r\gh #bjbd & ins]t+ !re is au?oriz$ to be appropriat$ #cda1jjj1jjj = ea* ( fiscal ye>s #bjbe ?r\gh #bjbi4 ,am5d ! title s z to read3 ,a bill to am5d ! ,public ,heal? ,s]vice ,act to enhance & reau?orize activities & programs relat+ to autism spectrum disord]1 & = o!r purposes44 ,july #cj1 #bjbd,report$ ) am5dm5ts1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$