,,ib ,union ,calendar ,no4 #eah #aahth ,,congress #b;d ,session ,h4 ,r4 #gbac ,report ,no4 #aah-fbj ,,in ,,the ,,house ,,of ,,representatives ,february #a1 #bjbd,mr4 ,smith of ,new ,jersey 7for himself and ,mr4 ,cuellar7 introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,july #cj1 #bjbd;,additional sponsors3 ,mr4 ,carter of ,georgia1 ,mrs4 ,dingell1 ,mr4 ,molinaro1 ,ms4 ,kuster1 ,mr4 ,fitzpatrick1 ,mr4 ,moulton1 ,mr4 ,kean of ,new ,jersey1 ,mr4 ,soto1 ,mr4 ,kiley1 ,mr4 ,gottheimer1 ,mr4 ,davis of ,north ,carolina1 ,ms4 ,matsui1 ,mr4 ,stauber1 ,ms4 ,clarke of ,new ,york1 ,mr4 ,bacon1 ,ms4 ,spanberger1 ,mr4 ,harder of ,california1 ,ms4 ,tlaib1 ,mr4 ,moore of ,utah1 ,ms4 ,slotkin1 ,ms4 ,omar1 ,mr4 ,joyce of ,pennsylvania1 ,mr4 ,kim of ,new ,jersey1 ,ms4 ,blunt ,rochester1 ,ms4 ,kaptur1 ,ms4 ,salazar1 ,ms4 ,tenney1 ,mr4 ,harris1 ,mr4 ,van ,drew1 ,mrs4 ,miller of ,west ,virginia1 ,mr4 ,graves of ,louisiana1 ,mr4 ,larson of ,connecticut1 ,ms4 ,waters1 ,ms4 ,sewell1 ,mr4 ,suozzi1 ,mr4 ,panetta1 ,mrs4 ,peltola1 ,mr4 ,ryan1 ,mr4 ,lawler1 ,mr4 ,pappas1 ,ms4 ,adams1 ,mr4 ,kelly of ,pennsylvania1 ,mr4 ,van ,orden1 ,mr4 ,neguse1 ,ms4 ,stevens1 ,ms4 ,budzinski1 ,mr4 ,bilirakis1 ,ms4 ,pingree1 ,ms4 ,tokuda1 ,ms4 ,pettersen1 ,mr4 ,courtney1 ,mr4 ,landsman1 ,mr4 ,jackson of ,illinois1 ,mr4 ,thompson of ,pennsylvania1 ,mr4 ,pocan1 ,mr4 ,schneider1 ,ms4 ,lee of ,nevada1 ,mr4 ,williams of ,new ,york1 ,mr4 ,meuser1 and ,mr4 ,crow ,july #cj1 #bjbd,reported with amendments1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed,strike out all after the enacting clause and insert the part printed in italic,for text of introduced bill1 see copy of bill as introduced on ,february #a1 #bjbd ,a ,,bill ,to amend the ,public ,health ,service ,act to enhance activities of the ,national ,institutes of ,health with respect to research on autism spectrum disorder and enhance programs relating to autism _/ reauthorize certain programs with respect to autism spectrum disorder81 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,autism ,collaboration1 ,accountability1 ,research1 ,education1 and ,support ,act of #bjbd or the ,autism ,,cares ,act of #bjbd4 #b4 ,national ,institutes of ,health activities 7a7 ,expansion of activities ,paragraph 7#a7 of section #dji;,c7a7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7a77 is amended to read as follows3 7#a7 ,expansion of activities ,the ,director of ,,nih 7in this section referred to as the ,director71 in coordination and consultation with the ,administrator of the ,administration for ,community ,living1 and other agencies as appropriate1 shall-- 7,a7 subject to the availability of appropriations1 expand1 intensify1 and coordinate the activities of the ,national ,institutes of ,health with respect to research on autism spectrum disorder1 including-- 7i7 basic and clinical research in fields including pathology1 developmental neurobiology1 genetics1 epigenetics1 pharmacology1 nutrition1 immunology1 neuroimmunology1 neurobehavioral development1 endocrinology1 gastroenterology1 toxicology1 speech1 language and hearing science1 psychiatry1 psychology1 developmental behavioral pediatrics1 and gerontology2 and 7ii7 research on interventions to maximize outcomes for individuals with autism spectrum disorder2 and 7,b7 ensure that research referred to in subparagraph 7,a7-- 7i7 investigates the causes 7including possible environmental causes71 diagnosis or ruling out1 early and ongoing detection1 prevention1 intervention1 services1 supports across the lifespan for autistic individuals and caregivers1 and treatment for autism spectrum disorder and co-occurring conditions1 including dissemination and implementation of clinical care1 supports1 interventions1 and treatments2 and 7ii7 reflects the entire population of individuals with autism spectrum disorder1 including the full range of cognitive1 communicative1 behavioral1 and adaptive functioning1 as well as co-occurring conditions and needs for support and services1 including care necessary for physical safety4 4 7b7 ,centers of excellence ,section #dji;,c7b7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7b77 is amended-- 7#a7 in paragraph 7#b7-- 7,a7 by striking prevention1 and treatment and inserting prevention1 services1 and treatment2 7,b7 by striking including the fields and inserting including in the fields2 and 7,c7 by striking behavioral psychology1 and clinical psychology and inserting behavioral psychology1 clinical psychology1 and gerontology2 7#b7 in paragraph 7#e77;,a71 by striking not less than five centers and inserting not fewer than six centers2 and 7#c7 in paragraph 7#e77;,b71 by striking period of not to exceed and inserting period not to exceed4 7c7 ,public input ,section #dji;,c7d7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7d77 is amended to read as follows3 7d7 ,public input 7#a7 ,in general ,the ,director shall under subsection 7a77#a7 provide for means through which the public can obtain information on the existing and planned programs and activities of the ,national ,institutes of ,health with respect to autism spectrum disorder and through which the ,director can receive comments from the public regarding such programs and activities4 7#b7 ,opportunities ,such public input opportunities may include encouraging the centers under subsection 7b77#a7 to establish an external advisory board or adopting a comprehensive plan to ensure individuals with various backgrounds and perspectives are represented1 among other activities4 ,such opportunities should consider including1 as appropriate1 individuals1 family members1 and caregivers of individuals with autism spectrum disorder who represent the entire population of individuals with autism spectrum disorder1 including the full range of cognitive1 communicative1 behavioral1 and adaptive functioning1 to better inform research findings and future studies4 4 #c4 ,programs relating to autism 7a7 ,developmental disabilities surveillance and research program ,section #cii;,,aa of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i7 is amended-- 7#a7 in subsection 7b77#a71 by striking and causes and inserting causes1 and life course2 and 7#b7 in subsection 7e71 by striking #bjbd and inserting #bjbi4 7b7 ,autism education1 early detection1 and intervention ,section #cii;,,bb of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#a7 is amended-- 7#a7 in subsection 7a77#b71 by striking subsequent interventions and inserting subsequent interventions and services2 7#b7 in subsection 7b77#a71 by striking culturally competent information and inserting culturally and linguistically responsive information2 7#c7 in subsection 7b77#b7-- 7,a7 by striking promote research and inserting promote research1 which may include community-based participatory research12 and 7,b7 by striking screening tools each place it appears and inserting screening and diagnostic tools2 7#d7 in subsection 7b77#c71 by striking at higher risk and inserting at increased likelihood2 7#e7 in subsection 7b77#d71 by inserting 1 which may include such individuals utilizing parents and guardians trained to provide interventions1 services1 and supports before the semicolon at the end2 7#f7 in subsection 7c77#a71 by striking culturally competent information and inserting culturally and linguistically responsive information2 7#g7 in subsection 7c77#b77;,a77ii7-- 7,a7 by striking advocates1 and inserting advocates1 self-advocates12 and 7,b7 by striking culturally competent information and inserting culturally and linguistically responsive information2 7#h7 by amending paragraph 7#a7 of subsection 7e7 to read as follows3 7#a7 ,training ,the ,secretary1 in coordination with activities conducted under title ,v of the ,social ,security ,act1 shall1 subject to the availability of appropriations1 strengthen the capacity of existing training programs and expand existing interdisciplinary training opportunities or opportunities to increase the number of programs that address the health and well-being of individuals who have or are at increased likelihood for autism spectrum disorder and other neurodevelopmental disabilities across their lifespan4 ,activities under the preceding sentence shall include-- 7,a7 awarding competitive grants or cooperative agreements to public or nonprofit agencies1 including institutions of higher education1 to expand existing or develop new maternal and child health interdisciplinary leadership education in neurodevelopmental and related disabilities programs 7similar to the programs developed under section #eja7;a77#b7 of the ,social ,security ,act7 in ,states that do not have such a program2 7,b7 ensuring that trainees under such training programs-- 7i7 receive an appropriate balance of academic1 clinical1 and community opportunities2 7ii7 are culturally and linguistically responsive2 7iii7 are from various backgrounds2 7iv7 demonstrate a capacity to evaluate1 diagnose or rule out1 develop1 and provide evidence-based interventions and programs to individuals with autism spectrum disorder and other developmental disabilities across their lifespan2 and 7v7 demonstrate an ability to use a person- and family-centered approach1 which may include collaborating with research centers or networks to provide training for providers of respite care 7as defined in section #bija72 7,c7 ensuring that program sites provide culturally and linguistically responsive services2 and 7,d7 encouraging training programs to partner with appropriate entities to build community capacity4 2 7#i7 in subsection 7e77#b71 by adding at the end the following new subparagraph3 7,c7 ,report ,not later than #b years after ,september #cj1 #bjbd1 the ,comptroller ,general of the ,united ,states shall prepare and submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate a report examining how to increase the number of developmental-behavioral pediatricians1 including through the developmental behavioral pediatrician training program4 2 7#aj7 in subsection 7f7-- 7,a7 by striking promote research and inserting promote research1 including community-based participatory research12 7,b7 by striking physical and behavioral health of individuals and inserting physical and behavioral health1 and communication needs1 of individuals2 and 7,c7 by striking disseminate information related to such research and guidelines and inserting disseminate information relating to such research and guidelines to improve the quality of life and long-term outcomes2 and 7#aa7 in subsection 7g71 by striking #bjbd and inserting #bjbi4 7c7 ,interagency ,autism ,coordinating ,committee ,section #cii;,,cc of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#b7 is amended-- 7#a7 in subsection 7b7-- 7,a7 in paragraph 7#b71 by striking develop a summary and inserting develop and update a summary2 7,b7 in paragraphs 7#c7 and 7#d71 by striking make recommendations and inserting make and update recommendations2 and 7,c7 by striking paragraphs 7#e7 and 7#f7 and inserting the following3 7#e7 develop and update a strategic plan for the conduct of1 and support for1 autism spectrum disorder research1 including as practicable for services and supports1 for individuals with an autism spectrum disorder across the lifespan of such individuals and the families of such individuals1 and across the entire population of individuals with autism spectrum disorder1 including the full range of cognitive1 communicative1 behavioral1 and adaptive functioning1 as well as co-occurring conditions and needs for support and services1 including care necessary for physical safety1 which such plan shall include proposed budgetary requirements and recommendations to ensure that autism spectrum disorder research1 and services and support activities to the extent practicable1 of the ,department of ,health and ,human ,services and of other ,federal departments and agencies are not unnecessarily duplicative2 and 7#f7 submit to the ,congress and ,president-- 7,a7 an annual update on the summary of advances described in paragraph 7#b72 and 7,b7 each update to the strategic plan described in paragraph 7#e71 including any steps that have already been taken to implement the recommendations in such updated strategic plan and progress made in achieving the goals outlined in such updated strategic plan4 2 and 7#b7 in subsection 7f71 by striking #bjbd and inserting #bjbi4 7d7 ,reports to ,congress ,section #cii;,,dd of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#c7 is amended-- 7#a7 by striking ,autism ,,cares ,act of #bjai each place it appears and inserting ,autism ,,cares ,act of #bjbd2 7#b7 in subsection 7a71 by amending paragraph 7#a7 to read as follows3 7#a7 ,in general ,not later than #d years after ,september #cj1 #bjbd1 the ,secretary1 in consultation and coordination with other ,federal departments and agencies that serve individuals with autism spectrum disorder1 shall prepare and submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives1 and make publicly available1 including through posting on the internet website of the ,department of ,health and ,human ,services1 a progress report on activities related to autism spectrum disorder and other developmental disabilities4 ,such report shall include activities and research related to the entire population of individuals with autism spectrum disorder1 including the full range of cognitive1 communicative1 behavioral1 and adaptive functioning1 as well as co-occurring conditions and needs for support and services1 including care necessary for physical safety4 2 and 7#c7 by adding at the end the following3 7c7 ,update on young adults and youth transitioning to adulthood ,not later than #b years after the date of enactment of the ,autism ,,cares ,act of #bjbd1 the ,secretary1 in coordination with other ,federal departments and agencies that serve individuals with autism spectrum disorder1 shall prepare and submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate an update to the report required pursuant to section #f of the ,autism ,cares ,act of #bjad 7,public ,law #aac-aeg7 concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood4 7d7 ,professional judgment budget ,for each fiscal year through fiscal year #bjbi1 the ,director of the ,national ,institutes of ,health1 in coordination with other relevant agencies1 as appropriate1 shall prepare and submit1 directly to the ,president for review and transmittal to ,congress1 after reasonable opportunity for comment1 but without change1 by the ,secretary and the ,interagency ,autism ,coordinating ,committee established under section #cii;,,cc7a71 an annual budget estimate for carrying out the strategic plan developed and updated under section #cii;,,cc7b77#e74 4 7e7 ,authorization of appropriations ,section #cii;,,ee of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#d7 is amended-- 7#a7 in subsection 7a71 by striking #bc1ajj1jjj for each of fiscal years #bjbj through #bjbd and inserting #bh1ajj1jjj for each of fiscal years #bjbe through #bjbi2 7#b7 in subsection 7b71 by striking #ej1eii1jjj for each of fiscal years #bjbj through #bjbd and inserting #ef1cdd1jjj for each of fiscal years #bjbe through #bjbi2 and 7#c7 in subsection 7c71 by striking there are authorized to be appropriated #bif1jjj1jjj for each of fiscal years #bjbj through #bjbd and inserting there is authorized to be appropriated #cda1jjj1jjj for each of fiscal years #bjbe through #bjbi4 ,amend the title so as to read3 ,a bill to amend the ,public ,health ,service ,act to enhance and reauthorize activities and programs relating to autism spectrum disorder1 and for other purposes44 ,july #cj1 #bjbd,reported with amendments1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed