#aahth ,,congress #b;d ,session ,h4 ,r4 #gbac ,,an ,,act ,to amend the ,public ,health ,service ,act to enhance and reauthorize activities and programs relating to autism spectrum disorder1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,autism ,collaboration1 ,accountability1 ,research1 ,education1 and ,support ,act of #bjbd or the ,autism ,,cares ,act of #bjbd4 #b4 ,national ,institutes of ,health activities 7a7 ,expansion of activities ,section #dji;,c7a77#a7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7a77#a77 is amended-- 7#a7 by striking 7 shall1 subject to the availability and inserting the following3 71 in consultation with relevant ,federal departments and agencies1 as appropriate1 shall-- 7,a7 subject to the availability 2 7#b7 by striking basic and clinical research in fields including pathology and inserting the following3 basic and clinical research-- 7i7 in fields1 such as pathology 2 7#c7 by striking toxicology1 and interventions and inserting the following3 toxicology1 psychiatry1 psychology1 developmental behavioral pediatrics1 audiology1 and gerontology2 and 7ii7 on interventions 2 7#d7 by striking disorder4 ,such research shall investigate and inserting the following3 disorder2 and 7,b7 ensure that research referred to in subparagraph 7,a7-- 7i7 investigates 2 7#e7 by striking prevention1 services across the lifespan1 supports1 intervention1 and treatment of autism spectrum disorder and inserting prevention1 services and supports across the lifespan1 intervention1 and treatment of autism spectrum disorder and co-occurring conditions2 and 7#f7 by striking treatments4 and inserting the following3 treatments2 7ii7 examines supports for caregivers2 and 7iii7 reflects the entire population of individuals with autism spectrum disorder1 including those individuals with co-occurring conditions and the full range of needs for supports and services1 including such supports and services to ensure the safety1 and promote the well-being1 of such individuals4 4 7b7 ,centers of excellence ,section #dji;,c7b7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7b77 is amended-- 7#a7 in paragraph 7#b7-- 7,a7 by striking including the fields of and inserting in fields such as2 and 7,b7 by striking behavioral psychology1 and clinical psychology and inserting behavioral psychology1 clinical psychology1 and gerontology2 7#b7 in paragraph 7#e77;,a71 by striking five and inserting seven2 and 7#c7 in paragraph 7#e77;,b71 by striking period of not to exceed and inserting period not to exceed4 7c7 ,public input ,section #dji;,c7d7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7d77 is amended to read as follows3 7d7 ,public input 7#a7 ,in general ,the ,director shall under subsection 7a77#a7 provide for means through which the public can obtain information on the existing and planned programs and activities of the ,national ,institutes of ,health with respect to autism spectrum disorder and through which the ,director can receive comments from the public regarding such programs and activities4 7#b7 ,guidance ,the ,director may provide guidance to centers under subsection 7b77#a7 on strategies1 activities1 and opportunities to promote engagement with1 and solicit input from1 individuals with autism spectrum disorder and their family members1 guardians1 advocates or authorized representatives1 providers1 or other appropriate individuals to inform the activities of the center4 ,such strategies1 activities1 and opportunities should consider including1 as appropriate1 individuals1 family members1 and caregivers of individuals with autism spectrum disorder who represent the entire population of individuals with autism spectrum disorder1 including those individuals with co-occurring conditions and the full range of needs for supports and services1 including such supports and services to ensure the safety1 and promote the well-being1 of such individuals1 to inform the activities of the center4 4 7d7 ,budget estimate ,section #dji;,c of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhd;g7 is amended by adding at the end the following3 7e7 ,budget estimate ,for each of fiscal years #bjbf through #bjbi1 the ,director shall prepare and submit1 directly to the ,president for review and transmittal to ,congress1 an annual budget estimate for the initiatives of the ,national ,institutes of ,health pursuant to the strategic plan developed under section #cii;,,cc7b77#e7 and updated under section #cii;,,cc7b77#f77;,b71 after reasonable opportunity for comment 7but without change7 by the ,secretary and the ,interagency ,autism ,coordinating ,committee established under section #cii;,,cc4 4 #c4 ,programs relating to autism 7a7 ,developmental disabilities surveillance and research program ,section #cii;,,aa of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i7 is amended-- 7#a7 in subsection 7a77#c71 by striking an ,indian tribe1 or a tribal organization and inserting an ,indian ,tribe1 or a ,tribal organization2 7#b7 in subsection 7b77#a71 by inserting across the lifespan before the period at the end2 7#c7 in subsection 7d77#a7-- 7,a7 in the paragraph heading1 by striking tribe2 tribal and inserting ,tribe2 ,tribal2 7,b7 by striking tribe and inserting ,tribe2 and 7,c7 by striking tribal and inserting ,tribal2 and 7#d7 in subsection 7e71 by striking #bjbd and inserting #bjbi4 7b7 ,autism education1 early detection1 and intervention ,section #cii;,,bb of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#a7 is amended-- 7#a7 in subsection 7b77#a71 by striking culturally competent information and inserting culturally and linguistically appropriate information2 7#b7 in subsection 7b77#b7-- 7,a7 by striking promote research and inserting promote research1 which may include research that takes a community-based approach12 and 7,b7 by striking screening tools each place it appears and inserting screening and diagnostic tools2 7#c7 in subsection 7b77#c71 by striking at higher risk and inserting at increased likelihood2 7#d7 in subsection 7b77#d71 by inserting 1 which may give consideration to the perspectives of parents and guardians before the semicolon at the end2 7#e7 in subsection 7b77#g71 by striking at higher risk and inserting at increased likelihood2 7#f7 in subsection 7c77#a71 by striking culturally competent information and inserting culturally and linguistically appropriate information2 7#g7 in subsection 7c77#b77;,a77ii71 by striking culturally competent information and inserting culturally and linguistically appropriate information2 7#h7 by amending paragraph 7#a7 of subsection 7e7 to read as follows3 7#i7 in subsection 7e77#a7-- 7,a7 in the matter preceding subparagraph 7,a71 by inserting 1 and strengthen the capacity of1 after expand2 and 7,b7 in subparagraph 7,a7-- 7i7 by striking expand existing or develop new and inserting expand and strengthen the capacity of existing1 or1 in ,states that do not have such a program1 develop new12 and 7ii7 by striking ,act7 in ,states that do not have such a program and inserting ,act72 7,c7 in subparagraph 7,b77v71 by inserting or other providers1 as applicable before the semicolon at the end2 and 7,d7 by amending subparagraph 7,c7 to read as follows3 7,c7 program sites-- 7i7 provide culturally and linguistically appropriate services2 7ii7 take a multidisciplinary approach and have experience working with underserved populations2 and 7iii7 identify opportunities to partner with community-based organizations to expand the capacity of communities to serve individuals with autism spectrum disorder or other developmental disabilities4 2 7#aj7 in subsection 7e77#b71 by adding at the end the following new subparagraph3 7,c7 ,report ,not later than #b years after the date of the enactment of the ,autism ,,cares ,act of #bjbd1 the ,secretary shall submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate a report that examines the need for1 and feasibility of1 expanding the developmental-behavioral pediatrician training programs described in subparagraph 7,a74 2 7#aa7 by amending subsection 7f7 to read as follows3 7f7 ,intervention ,the ,secretary shall promote research through grants or contracts1 which may include grants or contracts to research centers or networks1 to-- 7#a7 develop and evaluate evidence-based practices and interventions to improve outcomes for individuals with autism spectrum disorder or other developmental disabilities by addressing physical and behavioral health and communication needs of such individuals across the lifespan2 7#b7 develop guidelines for such evidence-based practices and interventions2 and 7#c7 disseminate information related to such evidence-based practices and interventions and guidelines4 2 and 7#ab7 in subsection 7g71 by striking #bjbd and inserting #bjbi4 7c7 ,interagency ,autism ,coordinating ,committee ,section #cii;,,cc of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#b7 is amended-- 7#a7 in subsection 7b7-- 7,a7 in the matter preceding paragraph 7#a71 by inserting 1 on a regular basis after shall2 7,b7 in paragraph 7#b71 by striking develop a summary and inserting summarize2 and 7,c7 by striking paragraphs 7#e7 and 7#f7 and inserting the following3 7#e7 develop a strategic plan for the conduct of1 and support for1 autism spectrum disorder research1 as described in section #dji;,c7a77#a71 which shall include-- 7,a7 proposed budgetary requirements2 and 7,b7 recommendations to ensure that autism spectrum disorder research1 and services and support activities to the extent practicable1 of the ,department of ,health and ,human ,services and of other ,federal departments and agencies are not unnecessarily duplicative2 and 7#f7 submit to the ,congress and the ,president-- 7,a7 an annual update on the summary of advances described in paragraph 7#b72 and 7,b7 a biennial update on the strategic plan described in paragraph 7#e71 including progress made in achieving the goals outlined in such strategic plan and any specific measures taken pursuant to such strategic plan4 2 and 7#b7 in subsection 7f71 by striking #bjbd and inserting #bjbi4 7d7 ,reports to ,congress ,section #cii;,,dd of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#c7 is amended-- 7#a7 by striking #bjai each place it appears and inserting #bjbd2 and 7#b7 in subsection 7a71 by amending paragraph 7#a7 to read as follows3 7#a7 ,in general ,not later than #d years after ,september #cj1 #bjbd1 the ,secretary1 in consultation with other relevant ,federal departments and agencies1 shall prepare and submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives1 and make publicly available1 including through posting on the website of the ,department of ,health and ,human ,services1 a progress report on activities related to autism spectrum disorder and other developmental disabilities4 ,such report shall include activities and research related to the entire population of individuals with autism spectrum disorder1 including those individuals with co-occurring conditions and the full range of needs for supports and services1 including such supports and services to ensure the safety1 and promote the well-being1 of such individuals4 2 7#c7 in subsection 7b7-- 7,a7 in the heading of subsection 7b71 by striking ,health and ,well-,being and inserting ,mental ,health ,needs2 7,b7 in paragraph 7#a71 by striking health and well-being and inserting mental health needs2 and 7,c7 by amending paragraph 7#b7 to read as follows3 7#b7 ,contents ,the report submitted under paragraph 7#a7 shall contain-- 7,a7 an overview of policies and programs relevant to the mental health of individuals with autism spectrum disorder across their lifespan1 including an identification of existing ,federal laws1 regulations1 policies1 research1 and programs2 and 7,b7 recommendations to improve mental health outcomes and address related disparities in mental health care for individuals with autism spectrum disorder1 including prevention1 care coordination1 and community-based services4 2 7#d7 by adding at the end the following3 7c7 ,update on young adults and youth transitioning to adulthood ,not later than #b years after the date of enactment of the ,autism ,,cares ,act of #bjbd1 the ,secretary1 in coordination with other relevant ,federal departments and agencies1 as appropriate1 shall prepare and submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate an update to the report required pursuant to subsection 7b7 of this section1 as added by section #f of the ,autism ,cares ,act of #bjad 7,public ,law #aac-aeg71 and in effect before the date of enactment of the ,autism ,,cares ,act of #bjai 7,public ,law #aaf-fj71 concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood4 4 7e7 ,authorization of appropriations ,section #cii;,,ee of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;i-#d7 is amended-- 7#a7 in subsection 7a71 by striking #bc1ajj1jjj for each of fiscal years #bjbj through #bjbd and inserting #bh1ajj1jjj for each of fiscal years #bjbe through #bjbi2 7#b7 in subsection 7b71 by striking #ej1eii1jjj for each of fiscal years #bjbj through #bjbd and inserting #ef1cdd1jjj for each of fiscal years #bjbe through #bjbi2 and 7#c7 in subsection 7c71 by striking there are authorized to be appropriated #bif1jjj1jjj for each of fiscal years #bjbj through #bjbd and inserting there is authorized to be appropriated #cjf1jjj1jjj for each of fiscal years #bjbe through #bjbi4 #d4 ,technical assistance to improve access to communication tools 7a7 ,in general ,the ,secretary of ,health and ,human ,services 7referred to in this section as the ,secretary7 may1 at the request of a ,state1 ,indian ,tribe1 ,tribal organization1 locality1 or territory1 provide training and technical assistance to such jurisdiction on the manner in which ,federal funding administered by the ,secretary may be used to provide individuals with autism spectrum disorder and other developmental disabilities with access to evidence-based services1 tools1 and technologies that support communication needs4 7b7 ,annual report ,the ,secretary shall annually prepare and submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives a report summarizing any technical assistance provided by the ,secretary in the preceding fiscal year under subsection 7a7 and any advancements in the development or evaluation of such evidence-based services1 tools1 and technologies4 ,passed the ,house of ,representatives ,september #ah1 #bjbd4;,clerk4