,,ib ,union ,cal5d> ,no4 #dbi #aah? ,,congress #b;d ,session ,h4 ,r4 #gahi ,report ,no4 #aah-eag ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #a1 #bjbd,mr4 ,bilirakis 7= himself1 ,mr4 ,soto1 ,mr4 ,c>t] ( ,georgia1 ,mr4 ,s*iff1 ,ms4 ,salaz>1 & ,mr4 ,crd5as7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,may #bb1 #bjbd,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be printed,strike out all aft] ! enact+ clause & ins]t ! "p pr9t$ 9 italic,for text ( introduc$ bill1 see copy ( bill z introduc$ on ,febru>y #a1 #bjbd ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to reau?orize a national cong5ital he>t disease rese>*1 surveillance1 & aw>5ess program1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,cong5ital ,he>t ,futures ,reau?orization ,act ( #bjbd4 #b4 ,reau?orization ( national cong5ital he>t disease rese>*1 surveillance1 & aw>5ess program ,section #cii,v-#b ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;g-#ac7 is am5d$-- 7#a7 by r$esignat+ subsections 7f7 & 7g7 z subsections 7g7 & 7h71 respectively2 7#b7 by ins]t+ aft] subsection 7e7 ! foll[+3 7f7 ,report & /rategy 7#a7 ,report ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ! ,cong5ital ,he>t ,futures ,reau?orization ,act ( #bjbd1 ! ,secret>y %all issue a report to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate includ+ ! foll[+3 7,a7 ,a description ( pa/ & pres5t activities ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices to increase aw>5ess & k ( ! public ) respect to cong5ital he>t disease1 includ+ ef=ts to address ! lifelong ne$s ( cong5ital he>t disease pati5ts4 7,b7 ,an assessm5t ( pa/ & pres5t activities ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices to increase education & tra9+ ( heal? c>e provid]s ) respect to cong5ital he>t disease1 includ+ ef=ts to address ! lifelong ne$s ( cong5ital he>t disease pati5ts4 7,c7 ,a description ( ! curr5t work=ce capacity 9 ! ,unit$ ,/ates ( heal? c>e provid]s :o treat adult pati5ts liv+ ) cong5ital he>t disease4 7#b7 ,/rategy 7,a7 ,developm5t2 submission to ,congress ,n lat] ?an #a ye> aft] submitt+ ! report requir$ by p>agraph 7#a71 ! ,secret>y %all develop & submit to ,congress a /rategy = improv+ ef=ts to increase aw>5ess & k ( ! public & education & tra9+ ( heal? c>e provid]s ) respect to cong5ital he>t disease4 ,su* /rategy %all include f9d+s & recomm5dations to-- 7i7 address any public aw>5ess & rese>* gaps & opportunities relat$ to ! lifelong ne$s ( cong5ital he>t disease pati5ts1 includ+ long-t]m heal? outcomes1 quality ( life1 m5tal heal?1 & heal? c>e utilization2 7ii7 address any %ortages 9 ! curr5t work=ce ( heal? c>e provid]s :o treat adult pati5ts liv+ ) cong5ital he>t disease1 :i* may include /rategies to enhance fell[%ip tra9+ programs or o!r cont9u+ education programs2 & 7iii7 fo/] collaboration & dissem9ation ( in=mation across ,f$]al ag5cies1 heal? c>e provid]s1 rese>*]s1 & pati5t organizations4 7,b7 ,consultation ,9 develop+ ! /rategy "u subp>agraph 7,a71 ! ,secret>y %all1 z appropriate1 consult ) qualifi$ /akehold] gr\ps1 includ+ pati5t organizations1 heal? c>e pr(essionals1 rese>* entities1 heal? insurance provid]s1 accr$it+ organizations1 & relevant ,f$]al ag5cies1 includ+ ! ,c5t]s = ,disease ,control & ,prev5tion1 ! ,national ,in/itutes ( ,heal?1 & ! ,heal? ,res\rces & ,s]vices ,adm9i/ration4 2 & 7#c7 9 subsection 7h71 z s r$esignat$1 by /rik+ #bjbj ?r\gh #bjbd & ins]t+ #bjbe ?r\gh #bjbi4 ,may #bb1 #bjbd,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$