,,ii  #aahth ,,congress  #b;d ,session  
,h4 ,r4 #gahi  ,,in ,,the ,,senate ,,of 
,,the ,,united ,,states  ,september #bd1
 #bjbd,received  ,,an ,,act  ,to amend  
the ,public ,health ,service ,act to    
reauthorize a national congenital heart 
disease research1 surveillance1 and     
awareness program1 and for other        
purposes4  #a4 ,short title ,this ,act  
may be cited as the ,congenital ,heart  
,futures ,reauthorization ,act of #bjbd4
  #b4 ,reauthorization of national      
congenital heart disease research1      
surveillance1 and awareness program     
,section #cii,v-#b of the ,public       
,health ,service ,act 7#db ,u4,s4,c4    
#bhj;g-#ac7 is amended-- 7#a7 by        
redesignating subsections 7f7 and 7g7 as
 subsections 7g7 and 7h71 respectively2 
7#b7 by inserting after subsection 7e7  
the following3  7f7 ,report and strategy
  7#a7 ,report ,not later than #b years 
after the date of enactment of the      
,congenital ,heart ,futures             
,reauthorization ,act of #bjbd1 the     

,secretary shall issue a report to the  
,committee on ,energy and ,commerce of  
the ,house of ,representatives and the  
,committee on ,health1 ,education1      
,labor1 and ,pensions of the ,senate    
including the following3 7,a7 ,a        
description of past and present         
activities of the ,department of ,health
 and ,human ,services to increase       
awareness and knowledge of the public   
with respect to congenital heart        
disease1 including efforts to address   
the lifelong needs of congenital heart  
disease patients4  7,b7 ,an assessment  
of past and present activities of the   
,department of ,health and ,human       
,services to increase education and     
training of health care providers with  
respect to congenital heart disease1    
including efforts to address the        
lifelong needs of congenital heart      
disease patients4  7,c7 ,a description  
of the current workforce capacity in the
 ,united ,states of health care         
providers who treat adult patients      

living with congenital heart disease4   
7#b7 ,strategy  7,a7 ,development2      
submission to ,congress ,not later than 
#a year after submitting the report     
required by paragraph 7#a71 the         
,secretary shall develop and submit to  
,congress a strategy for improving      
efforts to increase awareness and       
knowledge of the public and education   
and training of health care providers   
with respect to congenital heart        
disease4 ,such strategy shall include   
findings and recommendations to-- 7i7   
address any public awareness and        
research gaps and opportunities related 
to the lifelong needs of congenital     
heart disease patients1 including       
long-term health outcomes1 quality of   
life1 mental health1 and health care    
utilization2  7ii7 address any shortages
 in the current workforce of health care
 providers who treat adult patients     
living with congenital heart disease1   
which may include strategies to enhance 
fellowship training programs or other   

continuing education programs2 and      
7iii7 foster collaboration and          
dissemination of information across     
,federal agencies1 health care          
providers1 researchers1 and patient     
organizations4  7,b7 ,consultation ,in  
developing the strategy under           
subparagraph 7,a71 the ,secretary shall1
 as appropriate1 consult with qualified 
stakeholder groups1 including patient   
organizations1 health care              
professionals1 research entities1 health
 insurance providers1 accrediting       
organizations1 and relevant ,federal    
agencies1 including the ,centers for    
,disease ,control and ,prevention1 the  
,national ,institutes of ,health1 and   
the ,health ,resources and ,services    
,administration4  2 and  7#c7 in        
subsection 7h71 as so redesignated1 by  
striking #bjbj through #bjbd and        
inserting #bjbe through #bjbi4  ,passed 
the ,house of ,representatives          
,september #bc1 #bjbd4,kevin ,f4        
,mc,cumber1,clerk4