,,ib ,union ,cal5d> ,no4 #dcb #aah?     
,,congress  #b;d ,session  ,h4 ,r4 #fhbi
 ,report ,no4 #aah-ebj ,,9 ,,! ,,h\se   
,,( ,,repres5tatives  ,decemb] #ad1     
#bjbc,mr4 ,pallone 7= himself & ,mr4    
,kim ( ,new ,j]sey7 introduc$ ! foll[+  
bill2 :i* 0 ref]r$ to ! ,committee on   
,en]gy & ,comm]ce  ,may #bb1            
#bjbd;,additional sponsors3 ,mr4 ,bi%op 
( ,georgia1 ,mr4 ,posey1 & ,mr4 ,doggett
  ,may #bb1 #bjbd,report$ ) an am5dm5t1 
committ$ to ! ,committee ( ! ,:ole ,h\se
 on ! ,/ate ( ! ,union1 & ord]$ to be   
printed,strike out all aft] ! enact+    
clause & ins]t ! "p pr9t$ 9 italic,for  
text ( introduc$ bill1 see copy ( bill z
 introduc$ on ,decemb] #ad1 #bjbc  ,a   
,,bill  ,to am5d ! ,public ,heal?       
,s]vice ,act to au?orize & support !    
creation & dissem9ation ( c>diomyopa?y  
education1 aw>5ess1 & risk assessm5t    
mat]ials & res\rces to id5tify m at-risk
 families1 to au?orize rese>* &         
surveillance activities relat+ to       
c>diomyopa?y1 & = o!r purposes4  #a4    

,%ort title ,?is ,act may be cit$ z !   
,c>diomyopa?y ,heal? ,education1        
,aw>5ess1 & ,rese>*1 & ,,a$ ,tra9+ 9 !  
,s*ools ,act ( #bjbd or ! ,,he>ts ,act (
 #bjbd4  #b4 ,c>diomyopa?y heal?        
education1 aw>5ess1 & rese>*1 & ,,a$    
tra9+ 9 s*ools  7a7 ,9 g5]al ,! ,public 
,heal? ,s]vice ,act is am5d$ by ins]t+  
aft] section #cab 7#db ,u4,s4,c4 #bdd7 !
 foll[+3  #cab;,a4 ,mat]ials & res\rces 
to increase education & aw>5ess (       
c>diomyopa?y among s*ool adm9i/rators1  
educators1 & families  7a7 ,mat]ials &  
res\rces ,n lat] ?an #ah mon?s aft] !   
date ( ! enactm5t ( ! ,,he>ts ,act (    
#bjbd1 ! ,secret>y1 9 consultation ) !  
,director ( ! ,c5t]s = ,disease ,control
 & ,prev5tion1 %all develop public      
education mat]ials & res\rces to be     
dissem9at$ to s*ool adm9i/rators1       
educators1 s*ool heal? pr(essionals1    
coa*es1 families1 gu>dians1 c>egiv]s1 & 
o!r appropriate individuals4 ,! mat]ials
 & res\rces %all include-- 7#a7         
in=mation on ! signs1 symptoms1 & risk  

factors associat$ ) high-risk c>diac    
conditions & g5etic he>t rhy?m          
abnormalities t may cause sudd5 c>diac  
arre/ 9 *ildr51 adolesc5ts1 & "y adults1
 includ+-- 7,a7 c>diomyopa?y2  7,b7 long
 ,,qt syndrome1 ,brugada syndrome1      
cate*olam9]gic polymorphic v5tricul>    
ta*yc>dia1 %ort ,,qt syndrome1 &        
,wolff-,p>k9son-,:ite syndrome2 &  7,c7 
o!r high-risk c>diac conditions1 z      
det]m9$ by ! ,secret>y2  7#b7 guidel9es 
reg>d+ ! placem5t ( automat$ ext]nal    
defibrillators 9 s*ools1 e>ly *ildhood  
education programs1 & *ild c>e c5t]s2   
7#c7 tra9+ in=mation on automat$ ext]nal
 defibrillators & c>diopulmon>y         
resuscitation2 &  7#d7 recomm5dations = 
h[ s*ools1 e>ly *ildhood education      
programs1 & *ild c>e c5t]s c develop &  
implem5t a c>diac em]g5cy response plan4
  7b7 ,dissem9ation ( mat]ials &        
res\rces ,n lat] ?an #cj mon?s aft] !   
date ( ! enactm5t ( ! ,,he>ts ,act (    
#bjbd1 ! ,secret>y %all dissem9ate !    
mat]ials & res\rces develop$ "u         

subsection 7a7 9 accordance ) ! foll[+3 
7#a7 ,di/ribution by ,/ate educational  
ag5cies ,! ,secret>y %all make available
 su* mat]ials & res\rces to ,/ate       
educational ag5cies to di/ribute-- 7,a7 
to s*ool adm9i/rators1 educators1 s*ool 
heal? pr(essionals1 coa*es1 families1   
gu>dians1 c>egiv]s1 & o!r appropriate   
individuals1 ! in=mation develop$ "u    
subsection 7a77#a72  7,b7 to p>5ts1     
gu>dians1 or o!r c>egiv]s1 !            
c>diomyopa?y risk assessm5t develop$    
pursuant to section #cab;,b7b77#a72 &   
7,c7 to s*ool adm9i/rators1 educators1  
s*ool heal? pr(essionals1 & coa*es-- 7i7
 ! guidel9es describ$ 9 subsection      
7a77#b72  7ii7 ! tra9+ in=mation        
describ$ 9 subsection 7a77#c72 &  7iii7 
! recomm5dations describ$ 9 subsection  
7a77#d74  7#b7 ,dissem9ation to heal?   
dep>tm5ts & pr(essionals ,! ,secret>y   
%all make available ! mat]ials &        
res\rces develop$ "u subsection 7a7 to  
,/ate & local heal? dep>tm5ts1          
p$iatricians1 hospitals1 & o!r heal?    

pr(essionals1 su* z nurses & fir/       
respond]s4  7#c7 ,po/+ on website  7,a7 
,,cdc  7i7 ,9 g5]al ,! ,secret>y1 ?r\gh 
! ,director1 %all po/ ! mat]ials &      
res\rces develop$ "u subsection 7a7 on !
 public ,int]net website ( ! ,c5t]s =   
,disease ,control & ,prev5tion4  7ii7   
,additional in=mation ,! ,director is   
enc\rag$ to ma9ta9 on su* public        
,int]net website su* additional         
in=mation reg>d+ c>diomyopa?y z deem$   
appropriate by ! ,director4  7,b7 ,/ate 
educational ag5cies ,/ate educational   
ag5cies are enc\rag$ to create public   
,int]net webpages d$icat$ to            
c>diomyopa?y & po/ ! mat]ials & res\rces
 develop$ "u subsection 7a7 on su*      
webpages4  7c7 ,def9itions ,9 ?is       
section3 7#a7 ,! t]m c>diomyopa?y means 
a he>t disease t affects ! he>t's muscle
 7myoc>dium7-- 7,a7 ! symptoms ( :i* may
 v>y f case to case1 includ+-- 7i7 cases
 9 :i* no symptoms are pres5t           
7asymptomatic72 &  7ii7 cases 9 :i* !re 
are symptoms ( a progressive condition t

 may result f an impair$ ability ( !    
he>t to pump blood1 su* z fatigue1      
irregul> he>tbeats 7arrhy?mia71 he>t    
failure1 &1 pot5tially1 sudd5 c>diac    
dea?2 &  7,b7 ! recogniz$ types ( :i*   
include dilat$1 hyp]trophic1 re/rictive1
 arrhy?mog5ic "r v5tricul> dysplasia1 & 
left v5tricul> non-compaction4  7#b7 ,! 
t]m ,director means ! ,director ( !     
,c5t]s = ,disease ,control & ,prev5tion4
  7#c7 ,! t]ms e>ly *ildhood education  
program1 elem5t>y s*ool1 & second>y     
s*ool h ! mean+s giv5 to ^? t]ms 9      
section #haja ( ! ,elem5t>y & ,second>y 
,education ,act ( #aife4  7#d7 ,! t]m   
s*ool adm9i/rator means a pr9cipal1     
director1 manag]1 or o!r sup]visor or   
lead] )9 an elem5t>y s*ool1 second>y    
s*ool1 ,/ate-bas$ e>ly *ildhood         
education program1 or *ild c>e c5t]4    
7#e7 ,! t]m s*ool heal? pr(essional     
means a heal? pr(essional s]v+ at an    
elem5t>y s*ool1 second>y s*ool1         
,/ate-bas$ e>ly *ildhood education      
program1 or *ild c>e c5t]4  #cab;,b4    

,activities relat+ to c>diomyopa?y  7a7 
,report on ,,cdc national c>diomyopa?y  
activities  7#a7 ,9 g5]al ,n lat] ?an   
#ah mon?s aft] ! date ( ! enactm5t ( !  
,,he>ts ,act ( #bjbd1 ! ,secret>y1 act+ 
?r\gh ! ,director ( ! ,c5t]s = ,disease 
,control & ,prev5tion1 %all submit to   
,congress a report on f9d+s g5]at$ f    
exi/+ activities conduct$ by ! ,c5t]s = 
,disease ,control & ,prev5tion to       
improve ! und]/&+ ( ! preval5ce &       
epidemiology ( c>diomyopa?y across !    
lifespan1 f bir? to adul?ood1 ) p>ticul>
 int]e/ 9 ! foll[+3 7,a7 ,! natural     
hi/ory ( individuals ) c>diomyopa?y1 9  
bo? ! p$iatric & adult population4  7,b7
 ,e/imates ( c>diomyopa?y-relat$ em]g5cy
 dep>tm5t visits & hospitalizations1 9  
bo? ! p$iatric & adult population4  7#b7
 ,public access ,subject to p>agraph    
7#c71 ! report submitt$ "u ?is          
subsection %all be made available to !  
public4  7#c7 ,privacy protections ,!   
,secret>y %all ensure t ?is subsection  
is c>ri$ out 9 a mann] t complies ) all 

applicable privacy laws "u ,f$]al &     
,/ate law4  7b7 ,improv+ risk assessm5ts
 = individuals ) c>diomyopa?y  7#a7 ,9  
g5]al ,! ,secret>y %all develop & make  
publicly available a c>diomyopa?y risk  
assessm5t = heal? c>e provid]s &        
individuals4 ,su* risk assessm5t %all1  
at a m9imum1 include ! foll[+3 7,a7     
,backgr\nd in=mation on ! preval5ce1    
incid5ce1 & heal? impact ( c>diomyopa?y1
 includ+ all =ms ( c>diomyopa?y & _!    
effects on p$iatric1 adolesc5t1 & adult 
individuals4  7,b7 ,a work%eet )        
v>iables & conditions = an individual or
 heal? c>e provid] to use 9 assess+ :e!r
 an individual is at risk =             
c>diomyopa?y4  7,c7 ,a work%eet )       
v>iables & /ages ( progression = an     
individual or heal? c>e provid] to use 9
 assess+ :e!r & to :at ext5t            
c>diomyopa?y has progress$ 9 an         
individual4  7,d7 ,guidel9es on         
c>diomyopa?y scre5+s = individuals :o   
are at risk =1 or h a family hi/ory (1  
c>diomyopa?y4  7#b7 ,/akehold] ,input ,9

 c>ry+ out p>agraph 7#a71 ! ,director ( 
! ,c5t]s = ,disease ,control &          
,prev5tion %all seek input f ext]nal    
/akehold]s includ+-- 7,a7 repres5tatives
 f national pati5t advocacy             
organizations exp]t 9 all =ms (         
c>diomyopa?y2  7,b7 repres5tatives f    
m$ical pr(essional societies t          
specialize 9 ! c>e ( adults & p$iatrics 
) c>diomyopa?y2 &  7,c7 repres5tatives f
 o!r relevant ,f$]al ag5cies4  7c7      
,def9ition ,9 ?is section1 ! t]m        
c>diomyopa?y has ! mean+ giv5 to su* t]m
 9 section #cab;,a4  #cab;,c4           
,c>diomyopa?y rese>*  7a7 ,9 g5]al ,!   
,secret>y1 9 consultation ) ! ,director 
( ! ,national ,in/itutes ( ,heal?1 may  
exp& & coord9ate rese>* & relat$        
activities ( ! ,national ,in/itutes (   
,heal? ) respect to c>diomyopa?y1 :i*   
may include rese>* ) respect to-- 7#a7  
causation ( c>diomyopa?y1 includ+ g5etic
 causes & molecul> biom>k]s2  7#b7      
long-t]m heal? outcomes 9 individuals ) 
c>diomyopa?y1 includ+ infants1 *ildr51  

te5ag]s1 adults1 & eld]ly individuals2 &
  7#c7 /udies us+ longitud9al data &    
retrospective analysis to id5tify       
effective treatm5ts & outcomes =        
individuals ) c>diomyopa?y4  7b7        
,nonduplication ,! ,secret>y %all ensure
 t any rese>* & activities relat$ to    
c>diomyopa?y "u ?is section d n         
unnecess>ily duplicate activities1      
programs1 or ef=ts ( o!r ag5cies &      
(fices )9 ! ,dep>tm5t ( ,heal? & ,human 
,s]vices4  7c7 ,,nih report ,n lat] ?an 
#ah mon?s aft] ! date ( ! enactm5t ( !  
,,he>ts ,act ( #bjbd1 ! ,secret>y1 9    
consultation ) ! ,director ( ! ,national
 ,in/itutes ( ,heal?1 %all submit to    
,congress a report-- 7#a7 outl9+ ! ongo+
 rese>* ef=ts ( ! ,national ,in/itutes (
 ,heal? reg>d+ c>diomyopa?y2 &  7#b7    
id5tify+-- 7,a7 a rese>* ag5da reg>d+   
adult =ms ( c>diomyopa?y2  7,b7 plans = 
rese>*+ c>diomyopa?y affect+ ! p$iatric 
population2 &  7,c7 ! areas ( greate/   
ne$ = su* rese>*4  7d7 ,c>diomyopa?y    
def9$ ,9 ?is section1 ! t]m c>diomyopa?y

 has ! mean+ giv5 to su* t]m 9 section  
#cab;,a4  #cab;,d4 ,promot+ /ud5t access
 to ,a,e,ds & ,,cpr  7a7 ,9 g5]al ,!    
,secret>y %all aw>d grants to eligible  
entities to develop & implem5t a        
compreh5sive program to promote /ud5t   
access to automat$ ext]nal              
defibrillators 79 ?is section ref]r$ to 
z ,a,e,ds7 & c>diopulmon>y resuscitation
 79 ?is section ref]r$ to z ,,cpr7 9    
public elem5t>y s*ools & second>y       
s*ools4  7b7 ,use ( funds ,an eligible  
entity receiv+ a grant "u subsection 7a7
 may use funds receiv$ ?r\gh su* grant  
to c>ry out any ( ! foll[+ activities3  
7#a7 ,develop+ & provid+ compreh5sive   
mat]ials to e/abli% ,,a$ & ,,cpr        
programs 9 public elem5t>y s*ools &     
second>y s*ools4  7#b7 ,provid+ support 
= ,,cpr & ,,a$ tra9+ programs 9 su*     
s*ools = /ud5ts1 /aff1 & relat$ sports  
volunte]s4  7#c7 ,provid+ support =     
develop+ a c>diac em]g5cy response plan 
)9 su* s*ools4  7#d7 ,pur*as+ ,a,e,ds t 
h be5 approv$ "u section #eae ( ! ,f$]al

 ,food1 ,drug1 & ,cosmetic ,act1 cle>$  
"u section #eaj7k7 ( su* ,act1 or       
classifi$ "u section #eac7;f77#b7 ( su* 
,act4  7#e7 ,pur*as+ necess>y ,,a$      
batt]ies & p]=m+ necess>y ,,a$ ma9t5ance
 7su* z by replac+ ,,a$ pads7 9         
accordance ) ! label+ ( ! ,,a$ involv$4 
7#f7 ,replac+ old & outdat$ ,,a$ & ,,cpr
 equipm5t1 ma*9]y1 & educational        
mat]ials4  7c7 ,eligibility2 application
 ,to be eligible = a grant "u subsection
 7a71 an entity %all-- 7#a7 be a local  
educational ag5cy 7includ+ a public *>t]
 s*ool op]at+ z a local educational     
ag5cy "u ,/ate law71 9 consultation ) a 
qualifi$ heal? c>e entity2 &  7#b7      
submit to ! ,secret>y an application at 
su* "t1 9 su* mann]1 & conta9+ su*      
in=mation z ! ,secret>y may reasonably  
require4  7d7 ,def9itions ,9 ?is        
section3 7#a7 ,,esea t]ms ,! t]ms       
elem5t>y s*ool1 local educational ag5cy1
 & second>y s*ool h ! mean+s giv5 su*   
t]ms 9 section #haja ( ! ,elem5t>y &    
,second>y ,education ,act ( #aife4  7#b7

 ,qualifi$ heal? c>e entity ,! t]m      
qualifi$ heal? c>e entity means a heal? 
c>e entity t-- 7,a7 is-- 7i7 a public   
entity2 or  7ii7 an organization t is   
describ$ 9 section #eja7;c7 ( ! ,int]nal
 ,rev5ue ,code ( #aihf & exempt f       
taxation "u section #eja7;a7 ( su*      
,code2  7,b7 demon/rates an ability to  
develop1 tra91 & implem5t a compreh5sive
 program to promote /ud5t access to     
defibrillation 9 public elem5t>y &      
second>y s*ools2 &  7,c7 is qualifi$ 9  
provid+ te*nical assi/ance 9 ,,a$ &     
,,cpr tra9+4  4  7b7 ,au?orization (    
appropriations ,section #cab7;e7 ( !    
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #bdd7;e77 is am5d$ by /rik+ ! 
fir/ s5t5ce & ins]t+ ! foll[+3 ,= !     
purpose ( c>ry+ out ?is section &       
sections #cab;,a1 #cab;,b1 #cab;,c1 &   
#cab;,d1 !re is au?oriz$ to be          
appropriat$ #be1jjj1jjj = ea* ( fiscal  
ye>s #bjbe ?r\gh #bjbi44  ,may #bb1     
#bjbd,report$ ) an am5dm5t1 committ$ to 
! ,committee ( ! ,:ole ,h\se on ! ,/ate 

( ! ,union1 & ord]$ to be pr9t$