,,ib ,union ,cal5d> ,no4 #bec #aah?     
,,congress  #a/ ,session  ,h4 ,r4 #bcfe 
,report ,no4 #aah-cac ,,9 ,,! ,,h\se ,,(
 ,,repres5tatives  ,m>* #bi1 #bjbc,mr4  
,bilirakis 7= himself1 ,mr4 ,tonko1     
,mrs4 ,h>%b>g]1 ,ms4 ,s*ak[sky1 ,mr4    
,fitzpatrick1 ,ms4 ,ku/]1 ,mrs4 ,kim (  
,cali=nia1 ,ms4 ,b>ragn1 ,mr4 ,valadao1 
& ,mr4 ,higg9s ( ,new ,york7 introduc$ !
 foll[+ bill2 :i* 0 ref]r$ to !         
,committee on ,en]gy & ,comm]ce         
,decemb] #ab1 #bjbc;,additional         
sponsors3 ,ms4 ,bonamici1 ,mrs4 ,trahan1
 ,mr4 ,quigley1 ,mr4 ,c>bajal1 ,mrs4    
,bice1 ,ms4 ,matsui1 ,mr4 ,norcross1    
,ms4 ,lois ,frankel ( ,florida1 ,ms4    
,*u1 ,mr4 ,grijalva1 ,ms4 ,dean (       
,p5nsylvania1 ,mr4 ,scott ,frankl9 (    
,florida1 ,mr4 ,smi? ( ,wa%+ton1 ,mr4   
,gomez1 ,mr4 ,swalwell1 ,mr4 ,pappas1   
,ms4 ,wexton1 ,mr4 ,bacon1 ,mr4 ,nadl]1 
,mrs4 ,napolitano1 ,mr4 ,kim ( ,new     
,j]sey1 ,ms4 ,sewell1 ,mrs4 ,d+ell1 ,mr4
 ,evans1 ,mr4 ,g>ca ( ,ill9ois1 ,mr4    
,connolly1 ,ms4 ,norton1 ,mr4 ,morelle1 

,mrs4 ,*]filus-,mc,cormick1 ,mr4        
,correa1 ,mr4 ,kilm]1 ,ms4 ,del,bene1   
,mr4 ,s*neid]1 ,ms4 ,port]1 ,mr4        
,smuck]1 ,mr4 ,mc,govern1 ,ms4 ,mace1   
,mr4 ,mooney1 ,mr4 ,davis ( ,nor?       
,c>ol9a1 ,mr4 ,ru!r=d1 ,mr4 ,crd5as1    
,ms4 ,titus1 ,mr4 ,mull91 ,mr4 ,c>ey1   
,mr4 ,johnson ( ,georgia1 ,ms4 ,blunt   
,ro*e/]1 ,mr4 ,van ,drew1 ,mr4          
,fleis*mann1 ,ms4 ,malliotakis1 ,mrs4   
,peltola1 ,ms4 ,wild1 ,mr4 ,bur*ett1    
,mr4 ,graves ( ,l\isiana1 ,mr4          
,luetkemey]1 ,mr4 ,la,hood1 ,mr4 ,rask91
 ,mr4 ,panetta1 ,mr4 ,lyn*1 ,mr4        
,edw>ds1 ,mr4 ,himes1 ,ms4 ,cl>ke ( ,new
 ,york1 ,mr4 ,wilson ( ,s\? ,c>ol9a1    
,mr4 ,dunn ( ,florida1 ,mrs4 ,h\*91 ,ms4
 ,craig1 ,mr4 ,lieu1 ,mr4 ,pet]s1 ,mrs4 
,mill] ( ,we/ ,virg9ia1 ,mr4 ,timmons1  
,mr4 ,neguse1 ,mr4 ,cr5%aw1 ,mrs4       
,flet*]1 ,mr4 ,allr$1 ,mr4 ,fro/1 ,mr4  
,pascrell1 ,ms4 ,%]rill1 ,ms4 ,m5g1 ,ms4
 ,lee ( ,nevada1 ,mrs4 ,sykes1 ,mr4     
,co/a1 ,mr4 ,turn]1 ,mr4 ,mc,garvey1    
,mr4 ,au/9 ,scott ( ,georgia1 ,ms4      

,hoyle ( ,oregon1 ,mr4 ,l&sman1 ,ms4    
,tlaib1 ,mr4 ,/anton1 ,mr4 ,got!im]1    
,mr4 ,%]man1 ,mr4 ,walb]g1 ,mr4 ,ezell1 
,mr4 ,blum5au]1 ,ms4 ,lee ( ,cali=nia1  
,mr4 ,kildee1 ,ms4 ,scanlon1 ,mr4 ,lev91
 ,mr4 ,bald]son1 ,ms4 ,c>aveo1 ,ms4     
,sal9as1 ,mr4 ,l>s5 ( ,wa%+ton1 ,mr4    
,magaz9]1 ,mr4 ,trone1 ,mr4 ,cleav]1    
,ms4 ,br[nley1 ,ms4 ,leg] ,f]n&ez1 ,mr4 
,veasey1 ,mr4 ,g>am5di1 ,mr4 ,?ompson ( 
,p5nsylvania1 ,mr4 ,jackson ( ,nor?     
,c>ol9a1 ,mr4 ,la,turner1 ,ms4 ,h\lahan1
 ,mr4 ,huiz5ga1 ,mr4 ,c>l1 ,mr4 ,m55dez1
 ,mr4 ,mann1 ,mr4 ,mool5a>1 ,ms4        
,pett]s51 ,ms4 ,mc,clellan1 ,ms4 ,p]ez1 
,mr4 ,cr[1 ,ms4 ,davids ( ,kansas1 ,ms4 
,/rickl&1 ,ms4 ,/ev5s1 ,ms4 ,adams1 ,mr4
 ,takano1 ,ms4 ,l(gr51 ,ms4 ,slotk91    
,mr4 ,bean ( ,florida1 ,mr4 ,ciscomani1 
,mr4 ,ca/ro ( ,texas1 ,ms4 ,mann+1 ,mr4 
,f9/ad1 ,mrs4 ,sp>tz1 ,ms4 ,hageman1    
,mr4 ,kelly ( ,p5nsylvania1 ,mr4 ,lawl]1
 ,mr4 ,g>b>9o1 ,mr4 ,p5ce1 ,mr4         
,la,malfa1 ,mr4 ,ku/(f1 ,mr4 ,meeks1    
,ms4 ,moore ( ,wiscons91 ,mr4 ,scott (  

,virg9ia1 ,mr4 ,kri%namoor?i1 ,mr4      
,b[man1 ,ms4 ,om>1 ,ms4 ,de ,la ,cruz1  
,ms4 ,/ansbury1 ,ms4 ,escob>1 ,ms4      
,crockett1 ,ms4 ,tokuda1 ,mr4 ,johnson (
 ,ohio1 ,mr4 ,ca/51 ,ms4 ,salaz>1 ,mrs4 
,/eel1 ,mr4 ,mrvan1 ,mr4 ,langwor?y1    
,mr4 ,kean ( ,new ,j]sey1 ,mr4 ,r\z]1   
,mr4 ,pocan1 ,mr4 ,mc,caul1 ,mrs4       
,cammack1 & ,mr4 ,ryan  ,decemb] #ab1   
#bjbc,report$ ) am5dm5ts1 committ$ to ! 
,committee ( ! ,:ole ,h\se on ! ,/ate ( 
! ,union1 & ord]$ to be printed,strike  
out all aft] ! enact+ clause & ins]t !  
"p pr9t$ 9 italic,for text ( introduc$  
bill1 see copy ( bill z introduc$ on    
,m>* #bi1 #bjbc  ,a ,,bill  ,to direct !
 ,secret>y ( ,heal? & ,human ,s]vices to
 c>ry out a national project to prev5t &
 cure ,p>k9son's1 to be kn[n z !        
,national ,p>k9son's ,project1 & = o!r  
purposes4  #a4 ,%ort title ,?is ,act may
 be cit$ z ! ,dr4 ,emmanuel ,bilirakis  
,national ,plan to ,end ,p>k9son's ,act4
  #b4 ,national ,p>k9son's ,project     
,title ,,iii ( ! ,public ,heal? ,s]vice 

,act 7#db ,u4,s4,c4 #bda et seq47 is    
am5d$ by add+ at ! end3  ,w ,p>k9son's &
 ,relat$ ,disord]s  #cii,,oo4 ,national 
,p>k9son's ,project  7a7 ,def9ition (   
,p>k9son's ,9 ?is section1 ! t]m        
,p>k9son's means-- 7#a7 ,p>k9son's      
disease2 &  7#b7 all o!r neurodeg5]ative
 ,p>k9sonisms1 includ+ multiple sy/em   
atrophy1 corticobasal deg5]ation1       
progressive supranucle> palsy1 &        
,p>k9son's-relat$ dem5tia4  7b7         
,e/abli%m5t ,! ,secret>y %all c>ry out a
 national project1 to be kn[n z !       
,national ,p>k9son's ,project 7ref]r$ to
 9 ?is section z ! ,project71 to prev5t1
 diagnose1 treat1 & cure ,p>k9son's4    
7c7 ,activities c>ri$ out ?r\gh ,project
 ,9 c>ry+ out ! ,project1 ! ,secret>y   
%all-- 7#a7 create1 ma9ta91 &           
p]iodically update an integrat$ national
 plan to prev5t1 diagnose1 treat1 & cure
 ,p>k9son's1 ameliorate symptoms1 & sl[ 
or /op progression2  7#b7 c>ry out !    
annual assessm5t "u subsection 7d72     
7#c7 provide in=mation1 includ+-- 7,a7  

an e/imate ( ! level ( curr5t ,f$]al    
inve/m5t 9 prev5t+1 diagnos+1 treat+1 & 
cur+ ,p>k9son's1 ameliorat+ symptoms1 & 
sl[+ or /opp+ progression2 &  7,b7 if   
applicable1 an e/imate ( ! inve/m5t     
necess>y to prev5t1 diagnose1 treat1 &  
cure ,p>k9son's1 ameliorate symptoms1 & 
sl[ or /op progression2  7#d7 coord9ate 
rese>* & s]vices across all ,f$]al      
ag5cies relat$ to ,p>k9son's2  7#e7     
enc\rage ! developm5t ( safe & effective
 treatm5ts1 /rategies1 & o!r approa*es  
to prev5t1 diagnose1 treat1 & cure      
,p>k9son's1 ameliorate symptoms1 & sl[  
or /op progression2  7#f7 improve !--   
7,a7 e>ly diagnosis ( ,p>k9son's2 &     
7,b7 coord9ation ( ! c>e & treatm5t (   
individuals ) ,p>k9son's2  7#g7 review !
 impact ( ,p>k9son's on ! physical1     
m5tal1 & social heal? ( individuals liv+
 ) ,p>k9son's & _! c>egiv]s & families2 
7#h7 coord9ate ) int]national bodies1 to
 ! ext5t possible1 to integrate & in=m !
 mission to prev5t1 diagnose1 treat1 &  
cure ,p>k9son's1 ameliorate symptoms1 & 

sl[ or /op progression globally2 &  7#i7
 to ! ext5t practicable1 collaborate )  
o!r entities to prev5t duplication (    
exi/+ rese>* activities = relat$        
disord]s4  7d7 ,annual assessm5t ,n lat]
 ?an #bd mon?s aft] ! date ( enactm5t ( 
?is section1 & annually !reaft]1 !      
,secret>y %all c>ry out an assessm5t ( !
 ,nation's progress 9 prep>+ =1 &       
respond+ to1 ! escalat+ burd5 (         
,p>k9son's1 includ+-- 7#a7              
recomm5dations = priority actions bas$  
on ! assessm5t2  7#b7 a description (   
any /eps t are plann$ or h already be5  
tak5 to implem5t su* recomm5dations1    
includ+ :e!r su* recomm5dations c be    
implem5t$ "u exi/+ law2 &  7#c7 su* o!r 
items z ! ,secret>y det]m9es            
appropriate4  7e7 ,advisory ,c\ncil     
7#a7 ,9 g5]al ,! ,secret>y %all e/abli% 
& ma9ta9 an ,advisory ,c\ncil on        
,p>k9son's ,rese>*1 ,c>e1 & ,s]vices    
7ref]r$ to 9 ?is section z ! ,advisory  
,c\ncil7 to advise ! ,secret>y on       
,p>k9son's-relat$ issues4  7#b7         

,memb]%ip  7,a7 ,f$]al memb]s ,!        
,advisory ,c\ncil %all be compris$ (    
exp]ts1 to be appo9t$ by ! ,secret>y1 :o
 collectively are f v>i\s backgr\nds &  
p]spectives1 includ+ at lea/ "o memb] f 
ea* (-- 7i7 ! ,c5t]s = ,disease ,control
 & ,prev5tion2  7ii7 ! ,adm9i/ration on 
,community ,liv+2  7iii7 ! ,c5t]s =     
,m$ic>e  ,m$icaid ,s]vices2  7iv7 !     
,national ,in/itutes ( ,heal?2  7v7 !   
,ag5cy = ,heal?c>e ,rese>* & ,quality2  
7vi7 ! ,dep>tm5t ( ,vet]ans ,affairs2   
7vii7 ! ,food & ,drug ,adm9i/ration2    
7viii7 ! ,national ,sci5ce ,f\ndation2  
7ix7 ! ,dep>tm5t ( ,def5se2  7x7 !      
,environm5tal ,protection ,ag5cy2  7xi7 
! ,(fice ( ,m9ority ,heal?2  7xii7 !    
,indian ,heal? ,s]vice2  7xiii7 !       
,surgeon ,g5]al ( ! ,public ,heal?      
,s]vice2 &  7xiv7 o!r relevant ,f$]al   
dep>tm5ts & ag5cies z det]m9$ by !      
,secret>y4  7,b7 ,non-,f$]al memb]s ,9  
addition to ! memb]s li/$ 9 subp>agraph 
7,a71 ! ,advisory ,c\ncil %all include  
#aj exp]t memb]s1 to be appo9t$ by !    

,secret>y1 :o %all include              
repres5tatives ( m9ority communities1   
communities disproportionately affect$  
by ,p>k9son's1 & communities            
und]repres5t$ 9 ,p>k9son's rese>*1 :o   
%all ea* be f outside ! ,f$]al          
,gov]nm5t1 & :o %all include-- 7i7 #b   
,p>k9son's pati5t advocates1 at lea/ #a 
( :om is liv+ ) "y-onset ,p>k9son's2    
7ii7 #a ,p>k9son's family c>egiv]2      
7iii7 #a heal? c>e provid]2  7iv7 #b    
biom$ical rese>*]s ) ,p>k9son's-relat$  
exp]tise 9 basic1 translational1        
cl9ical1 or drug developm5t sci5ce2  7v7
 #a movem5t disord] speciali/ :o treats 
,p>k9son's pati5ts2  7vi7 #a dem5tia    
speciali/ :o treats ,p>k9son's pati5ts2 
&  7vii7 #b repres5tatives f nonpr(it   
organizations t h demon/rat$ exp]i5ce 9 
,p>k9son's-relat$ rese>* or             
,p>k9son's-relat$ pati5t c>e & o!r      
s]vices4  7,c7 ,repres5tation ,!        
,secret>y %all ensure t ! memb]s ( !    
,advisory ,c\ncil are collectively      
repres5tative ( ag5cies1 pr(essions1    

individuals1 & entities conc]n$ )1 or   
affect$ by1 activities "u ?is section4  
7#c7 ,meet+s  7,a7 ,frequ5cy ,!         
,advisory ,c\ncil %all meet-- 7i7 at    
lea/ once ea* qu>t] dur+ ! #b-ye> p]iod 
beg9n+ on ! date on :i* ! ,advisory     
,c\ncil is e/abli%$2 &  7ii7 at !       
,secret>y's discretion aft] su* p]iod4  
7,b7 ,annual rese>* meet+ ,n lat] ?an   
#bd mon?s aft] ! date ( enactm5t ( ?is  
section1 & e ye> !reaft]1 ! ,advisory   
,c\ncil %all conv5e a meet+ ( ,f$]al &  
non-,f$]al organizations to discuss     
,p>k9son's rese>*4  7,c7 ,op5 meet+s ,! 
meet+s "u subp>agraphs 7,a7 & 7,b7 %all 
be op5 to ! public4  7#d7 ,annual report
 ,n lat] ?an #ah mon?s aft] ! date (    
enactm5t ( ?is section1 & e ye> !reaft]1
 ! ,advisory ,c\ncil %all provide to !  
,secret>y & ,congress a report conta9+--
 7,a7 a li/ ( all f$]ally-fund$ ef=ts 9 
,p>k9son's rese>*1 prev5tion1 diagnosis1
 treatm5t1 cl9ical c>e1 & in/itutional-1
 home-1 & community-bas$ programs & !   
outcomes ( su* ef=ts2  7,b7             

recomm5dations = priority actions to    
exp&1 elim9ate1 coord9ate1 refocus1     
/reaml9e1 or cond5se ,f$]al programs    
bas$ on ea* program's p]=mance1 mission1
 scope1 & purpose2  7,c7 recomm5dations 
to-- 7i7 r$uce ! f9ancial impact (      
,p>k9son's on families liv+ )           
,p>k9son's2  7ii7 improve heal? outcomes
 =1 & ! quality ( life (1 individuals   
liv+ ) ,p>k9son's2  7iii7 prev5t        
,p>k9son's1 ameliorate symptoms1 & sl[  
or /op progression2  7iv7 improve !     
quality ( c>e provid$ to b5efici>ies )  
,p>k9son's :o receive cov]age ?r\gh a   
f$]ally-fund$ heal? c>e program1 su* z !
 ,m$ic>e program "u title ,,xviii ( !   
,social ,security ,act or ! ,m$icaid    
program "u title ,,xix ( su* ,act2  7v7 
rese>* ! association betwe5 environm5tal
 trigg]s & ,p>k9son's to help r$uce     
exposure to pot5tial trigg]s2 &  7vi7   
rese>* & bett] und]/& ! und]ly+ factors 
contribut+ to ,p>k9son's2  7,d7 priority
 actions to improve all f$]ally-fund$   
ef=ts 9 ,p>k9son's rese>*1 prev5tion1   

diagnosis1 treatm5t1 cl9ical c>e1 &     
in/itutional-1 home-1 & community-bas$  
programs2  7,e7 an evaluation ( !       
implem5tation1 includ+ outcomes1 ( !    
national plan "u subsection 7c77#a72 &  
7,f7 implem5tation /eps to address !    
recomm5dations & priority actions "u    
subp>agraphs 7,b71 7,c71 & 7,d71 bas$ 9 
"p on ! evaluation "u subp>agraph 7,e74 
7#e7 ,t]m9ation ,! ,advisory ,c\ncil    
%all t]m9ate at ! end ( cal5d> ye>      
#bjce4  7f7 ,in=mation %>+ ,ea* ,f$]al  
dep>tm5t & ag5cy t has in=mation relat+ 
to ,p>k9son's %all %>e su* in=mation ) !
 ,secret>y consi/5t ) ! /atutory        
obligations ( su* dep>tm5t or ag5cy     
reg>d+ disclosure ( in=mation1 z        
necess>y to enable ! ,secret>y to       
complete a report "u subsection 7e77#d74
  7g7 ,sunset ,! section %all cease to  
be effective at ! end ( cal5d> ye>      
#bjce4  4  ,am5d ! title s z to read3 ,a
 bill to direct ! ,secret>y ( ,heal? &  
,human ,s]vices to c>ry out a national  
project to prev5t1 diagnose1 treat1 &   

cure ,p>k9son's1 to be kn[n z !         
,national ,p>k9son's ,project1 & = o!r  
purposes44 ,decemb] #ab1 #bjbc,report$ )
 am5dm5ts1 committ$ to ! ,committee ( ! 
,:ole ,h\se on ! ,/ate ( ! ,union1 &    
ord]$ to be pr9t$