,,iii  #aag? ,,congress  #b;d ,session  
,s4 ,,res4 #ggb  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,septemb] #ai1        
#bjbb,mr4 ,ka9e 7= himself1 ,ms4        
,lummis1 ,ms4 ,klobu*>1 & ,ms4 ,smi?7   
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ,heal?1       
,education1 ,labor1 & ,p5sions          
,,resolution  ,recogniz+ ! s]i\sness (  
myotonic dy/rophy & express+ support = !
 designation ( ,septemb] #ae1 #bjbb1 z  
,int]national ,myotonic ,dy/rophy       
,aw>5ess ,day4  ,:]eas myotonic dy/rophy
 is a r>e1 multi-sy/emic1 inh]it$       
disease t affects approximately #a 9    
#b1ajj individuals & m ?an #aej1jjj     
individuals 9 ! ,unit$ ,/ates2 ,:]eas #a
 9 #h1jjj individuals are liv+ )        
myotonic dy/rophy globally1 yet ?\s&s ( 
individuals d n "k !y h ! disease & are 
9 ne$ ( c>e2 ,:]eas myotonic dy/rophy is
 ! mo/ common =m ( adult-onset muscul>  
dy/rophy1 & ! symptoms ( ! disease      
become m sev]e ) ea* g5]ation2 ,:]eas ! 
disease is caus$ by a mutation 9 !      

,,dmpk g5e1 result+ 9 myotonic dy/rophy 
type #a1 or ! ,,cnbp g5e1 result+ 9     
myotonic dy/rophy type #b2 ,:]eas ^?    
mutations prev5t ^? g5es f function+    
prop]ly1 impact+ multiple body sy/ems2  
,:]eas ^? mutations are autosomal       
dom9ant mutations1 9 :i* "o copy ( !    
alt]$ g5e is suffici5t to cause !       
disord]1 & affect$ individuals h a #ej  
p]c5t *ance ( pass+ on ! mutat$ g5e to  
_! *ildr52 ,:]eas1 ?r\gh ?is inh]it$    
g5etic anomaly1 individuals ) myotonic  
dy/rophy exp]i5ce v>i$ & complex        
symptoms1 rang+ f skeletal muscle       
problems1 e>ly cat>acts1 & excessive    
daytime sleep9ess to he>t1 brea?+1      
dige/ive1 hormonal1 spee*1 swall[+1     
diabetic1 immune1 vision1 & cognitive   
difficulties2 ,:]eas myotonic dy/rophy  
is a highly v>iable & complicat$        
disord]1 & ! y\ng] an individual is :5  
symptoms fir/ appe>1 ! m sev]e symptoms 
are likely to be2 ,:]eas misdiagnoses h 
p]si/$ = decades1 & delays 9 diagnos+   
myotonic dy/rophy are common2 ,:]eas !re

 are curr5tly no treatm5ts approv$ by ! 
,food & ,drug ,adm9i/ration = myotonic  
dy/rophy2 ,:]eas ! ,myotonic ,dy/rophy  
,f\ndation 0 f\nd$ 9 #bjjg ) a mission  
to enhance ! quality ( life (           
individuals liv+ ) myotonic dy/rophy &  
accel]ate rese>* focus$ on f9d+         
treatm5ts & a cure2 ,:]eas1 9 #bjad1    
,congress enact$ ! ,paul ,d4 ,well/one  
,muscul> ,dy/rophy ,community           
,assi/ance1 ,rese>* & ,education        
,am5dm5ts ( #bjad 7,public ,law         
#aac-aff2 #abh ,/at4 #ahgi71 :i* advanc$
 muscul> dy/rophy rese>* & public heal? 
surveillance activities1 includ+ =      
myotonic dy/rophy2 ,:]eas1 9 ,septemb]  
#bjag1 recogniz+ ! s]i\sness ( ! disease
 & ! especially disabl+ impact (        
myotonic dy/rophy on individuals )      
cong5ital myotonic dy/rophy1 ! ,social  
,security ,adm9i/ration add$ cong5ital  
myotonic dy/rophy to ! ,compassionate   
,all[ance ,program1 :i* all[s           
individuals to quickly qualify =        
disability b5efits1 includ+ heal?       

insurance cov]age2 ,:]eas1 9 #bjah1     
,congress add$ myotonic dy/rophy to !   
li/ ( eligible conditions = rese>* fund+
 "u ! ,pe] ,review$ ,m$ical ,rese>*     
,program ( ! ,dep>tm5t ( ,def5se1 :i*   
result$ 9 m ?an #f1jjj1jjj 9 new rese>* 
aw>ds2 & ,:]eas a m robu/ sci5tific     
inve/m5t 9 myotonic dy/rophy rese>* w   
improve heal? outcomes1 r$uce           
disability1 & increase life expectancy =
 individuals liv+ ) myotonic dy/rophy1 &
 holds great promise = help+ individuals
 ) simil> g5etic diseases3 ,n[1 !re=e1  
be x ,t ! ,s5ate-- 7#a7 expresses       
support = ! designation ( ,septemb] #ae1
 #bjbb1 z ,int]national ,myotonic       
,dy/rophy ,aw>5ess ,day2  7#b7          
recognizes ! s]i\sness ( myotonic       
dy/rophy2 &  7#c7 supports ! goals &    
ideals ( ,int]national ,myotonic        
,dy/rophy ,aw>5ess ,day1 :i* include--  
7,a7 committ+ to promot+ & advanc+ !    
heal?1 well-be+1 & inh]5t dignity ( all 
*ildr5 & adults ) myotonic dy/rophy2    
7,b7 support+ ! advancem5t ( sci5tific &

 m$ical myotonic dy/rophy rese>*2  7,c7 
fo/]+ bioph>maceutical innovation t w   
lead to ,food & ,drug                   
,adm9i/ration-approv$ treatm5ts &       
ev5tually a cure = myotonic dy/rophy2   
7,d7 advanc+ programs & policies t assi/
 individuals liv+ ) myotonic dy/rophy & 
! c>egiv]s ( su* individuals2 &  7,e7   
enc\rag+ aw>5ess & education ( myotonic 
dy/rophy = pati5ts1 c>egiv]s1 cl9icians1
 & rese>*]s4