,,iii  #aag? ,,congress  #b;d ,session  
,s4 ,,res4 #fhc  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,june #af1 #bjbb ,mr4 
,book] 7= himself1 ,mr4 ,br[n1 & ,mr4   
,van ,holl57 submitt$ ! foll[+          
resolution2 :i* 0 ref]r$ to ! ,committee
 on ,=eign ,relations  ,,resolution     
,support+ ! goals & ideals ( ,_w ,sickle
 ,cell ,aw>5ess ,day4  ,:]eas sickle    
cell disease 7ref]r$ to 9 ?is preamble z
 ,,scd7 is a g5etically inh]it$         
condition pres5t at bir? t involves a   
gr\p ( r$ blood cell disord]s & is a    
major heal? problem 9 ! ,unit$ ,/ates & 
worldwide2 ,:]eas ! #bjbb !me ( ,_w     
,sickle ,cell ,aw>5ess ,day1 ,%9e !     
,light on ,sickle ,cell1 is an imm$iate 
call to action to improve ! heal? &     
quality ( life = individuals liv+ )     
,,scd & _! families2 ,:]eas1 9 #aigb1   
,dr4 ,*>les ,:itt5 e/abli%$ ! ,sickle   
,cell ,disease ,association ( ,am]ica1  
:i* is n[ headqu>t]$ 9 ,hanov]1 ,m>yl&1 
to improve rese>*1 education1 & heal?c>e
 = ,,scd pati5ts2 ,:]eas1 9 #aigb1      

,congress pass$ ! ,national ,sickle     
,cell ,anemia ,control ,act 7,public    
,law #ib-bid2 #hf ,/at4 #acf71 :i*      
provid$ au?ority to e/abli% education1  
in=mation1 scre5+1 te/+1 c\nsel+1       
rese>*1 & treatm5t programs = ,,scd     
pati5ts2 ,:]eas ,,scd is a g5etic       
mutation t causes a s+le misspell+ 9 !  
,,dna in/ructions = hemoglob91 a prote9 
t aids 9 c>ry+ oxyg5 9 ! blood1 :i* may 
result 9 *ronic complications relat$ to 
anemia1 /roke1 infections1 organ        
failure1 tissue damage1 int5se p]iods ( 
pa9 ref]r$ to z vaso-occlusive crisis1 &
 premature dea?2 ,:]eas sickle cell     
trait 7ref]r$ to 9 ?is preamble z ,,sct7
 occurs :5 an individual inh]its "o copy
 ( ! sickle cell g5e f "o p>5t1 & :5 bo?
 p>5ts h ,,sct1 !re is a #be p]c5t *ance
 t any ( _! *ildr5 w h ,,scd2 ,:]eas !re
 are an e/imat$ #c1jjj1jjj individuals )
 ,,sct 9 ! ,unit$ ,/ates1 ) _m unaw>e ( 
_! /atus2 ,:]eas an e/imat$ #ajj1jjj    
individuals h ,,scd 9 ! ,unit$ ,/ates1 )
 #a out ( #cfe ,african-,am]ican bir?s &

 #a out ( #af1cjj ,hispanic-,am]ican    
bir?s result+ 9 ,,scd1 & ne>ly #a out ( 
#ac ,african-,am]ican babies are born ) 
,,sct2 ,:]eas ,,scd affects millions ( p
 ?r\gh\t ! _w1 especially individuals ( 
g5etic desc5t f sub-,sah>an regions (   
,africa1 ,s\? ,am]ica1 ! ,c>ibbean1     
,c5tral ,am]ica1 ,saudi ,arabia1 ,india1
 ,turkey1 ,greece1 & ,italy2 ,:]eas !   
preval5ce ( ,,sct v>ies greatly by      
region1 ) rates z high z #dj p]c5t 9    
c]ta9 regions ( sub-,sah>an ,africa1    
ea/]n ,saudi ,arabia1 & c5tral ,india2  
,:]eas1 9 _m c\ntries t are poor 9      
res\rces1 m ?an #ij p]c5t ( *ildr5 )    
,,scd d n live to see adul?ood2 ,:]eas  
approximately #a1jjj *ildr5 9 ,africa   
are born ) ,,scd ea* day1 m ?an half (  
:om w die be=e _! fif? bir?day2 ,:]eas !
 high preval5ce ( ,,scd 9 ! c5tral &    
we/]n regions ( ,india results 9        
approximately #bj p]c5t ( babies        
diagnos$ ) ,,scd dy+ be=e ! age ( #b2   
,:]eas1 9 #bjjf1 ! ,_w ,heal? ,assembly 
pass$ a resolution1 adopt$ by ! ,unit$  

,nations 9 #bjji1 recogniz+ ,,scd z a   
public heal? priority ) a call to action
 t ea* c\ntry implem5t measures to      
tackle ! disease2 ,:]eas scre5+ newborns
 = ,,scd is a crucial fir/ /ep =        
families to obta9 a timely diagnosis &  
compreh5sive c>e & to decrease !        
mortality rate ( *ildr5 ) ,,scd2 ,:]eas 
approv$ treatm5ts = ,,scd are limit$1 ) 
! ,food & ,drug ,adm9i/ration approv+   
only #d ,,scd !rapies s9ce #bjag1 b !re 
are m ?an #dj ,,scd !rapies 9           
developm5t2 ,:]eas !re is an imm$iate   
ne$ = lifesav+ !rapeutics t c improve ! 
duration & quality ( life ( individuals 
) ,,scd2 ,:]eas1 9 #bjbj1 ! ,national   
,academies ( ,sci5ces1 ,eng9e]+1 &      
,m$ic9e develop$ a compreh5sive /rategic
 plan & bluepr9t = action to address    
,,scd1 :i* highlights ! ne$ to develop  
new innovative !rapies & to address     
b>ri]s to ! equitable access ( approv$  
treatm5ts2 ,:]eas1 9 #bjbj1 ! ,dep>tm5t 
( ,heal? & ,human ,s]vices1 9 p>tn]%ip )
 ! ,am]ican ,society ( ,hematology & !  

,sickle 9 ,africa ,consortium & 9       
collaboration ) ! ,_w ,heal?            
,organization1 ho/$ a web9> = a jo9t    
ef=t to /r5g!n ef=ts to combat ,,scd    
dur+ ! coronavirus disease 7commonly    
kn[n z ,,covid-#ai7 p&emic & beyond2    
,:]eas ! late ,kwaku ,oh5e-,frempong1   
,m4,d41 ,pr(essor ,em]itus ( ,p$iatrics 
at ! ,p]elman ,s*ool ( ,m$ic9e at !     
,univ]sity ( ,p5nsylvania1 an ,am]ican  
,society ( ,hematology memb] :o s]v$ on 
! ,global ,coalition on ,,scd1 has be5 a
 lead] 9 advanc+ ! body ( k 9 ,,scd     
rese>*1 public heal?1 & m$ic9e1 & is    
recogniz$ z immeasurably b5efitt+ ?\s&s 
( *ildr5 worldwide2 ,:]eas !re are em]g+
 g5etic !rapy te*nologies1 includ+ g5e  
edit+1 t c modify a pati5t's own        
hematopoietic /em cells to enable !m to 
g5]ate heal?y r$ blood cells to prev5t  
sickle cell crises2 ,:]eas :ile         
hematopoietic /em cell transplantation  
7commonly kn[n z ,,hsct7 is curr5tly !  
only cure = ,,scd1 & :ile advancem5ts 9 
treatm5t = complications associat$ )    

,,scd h be5 made1 m rese>* is ne$$ to   
f9d widely available & accessible       
treatm5ts & cures to help individuals ) 
,,scd2 & ,:]eas1 al?\gh ,june #ai1      
#bjbb1 has be5 designat$ z ,_w ,sickle  
,cell ,aw>5ess ,day to increase public  
al]tness across ! ,unit$ ,/ates & global
 community ab\t ,,scd1 !re rema9s a     
cont9u$ ne$ = empirical rese>*1 e>ly    
detection scre5+s = ,,scd trait c>ri]s1 
novel effective treatm5ts lead+ to a    
cure1 & prev5tative c>e programs )      
respect to complications f sickle cell  
anemia & conditions relat$ to ,,scd3    
,n[1 !re=e1 be x ,t ! ,s5ate--  7#a7    
supports ! goals & ideals ( ,_w ,sickle 
,cell ,aw>5ess ,day2  7#b7 commits to   
ensur+ equitable access to new sickle   
cell disease 7ref]r$ to 9 ?is resolution
 z ,,scd7 treatm5ts by %9+ ! light among
 all economic1 racial1 & e?nic gr\ps to 
improve heal? outcomes = ^? liv+ )      
,,scd2  7#c7 calls on ! ,dep>tm5t (     
,heal? & ,human ,s]vices to create      
global policy solutions aim$ at provid+ 

support = ! global community & ! dome/ic
 res\rces ne$$ to provide access to     
newborn scre5+ programs1 !rapeutic      
int]v5tions1 & support s]vices 9        
p>tn]%ip ) local gov]nm5ts2  7#d7       
supports elim9at+ b>ri]s to equitable   
access = innovative ,,scd !rapies1      
includ+ cell1 g5e1 & g5e-edit+ !rapies 9
 ! ,m$ic>e & ,m$icaid sy/ems = ! mo/    
vuln]able pati5ts2  7#e7 enc\rages ! p (
 ! ,unit$ ,/ates & ! _w to hold         
appropriate programs1 ev5ts1 &          
activities on ,sickle ,cell ,aw>5ess    
,day to raise public aw>5ess ( ,,scd    
traits1 prev5tative c>e programs1       
treatm5ts1 & o!r pati5t s]vices = ^?    
suff]+ f ,,scd1 complications f ,,scd1 &
 conditions relat$ to ,,scd2 &  7#f7    
urges t ! options to be consid]$ to     
combat ,,scd n only address access to   
pot5tial future curative treatm5ts1 b   
also address ! bias t ! population mo/  
affect$ by ,,scd cont9ues to face )9 !  
,unit$ ,/ates & global heal?c>e sy/ems4