,,iii  #aag? ,,congress  #a/ ,session   
,s4 ,,res4 #dgg  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,decemb] #ac1         
#bjba,mr4 ,scott ( ,s\? ,c>ol9a 7=      
himself1 ,mr4 ,book]1 ,mrs4 ,hyde-,smi?1
 ,mrs4 ,blackburn1 ,mr4 ,rubio1 ,mr4    
,van ,holl51 ,mr4 ,br[n1 ,mr4 ,coons1   
,ms4 ,/ab5[1 ,mr4 ,lank=d1 ,mr4 ,"y1    
,ms4 ,w>r51 & ,mr4 ,w>nock7 submitt$ !  
foll[+ resolution2 :i* 0 consid]$ &     
agre$ to  ,,resolution  ,express+       
support = ! designation ( ,septemb]     
#bjba z ,sickle ,cell ,disease ,aw>5ess 
,mon? 9 ord] to educate communities     
across ! ,unit$ ,/ates ab\t sickle cell 
disease & ! ne$ = rese>*1 e>ly detection
 me?ods1 effective treatm5ts1 &         
prev5tative c>e programs ) respect to   
complications f sickle cell disease &   
conditions relat$ to sickle cell        
disease4  ,:]eas sickle cell disease    
7ref]r$ to 9 ?is preamble z ,,scd7 is an
 inh]it$ blood disord] t is a major     
heal? problem 9 ! ,unit$ ,/ates &       
worldwide2 ,:]eas ,,scd causes ! rapid  

de/ruction ( sickle cells1 :i* results 9
 multiple m$ical complications1 includ+ 
anemia1 jaundice1 gall/ones1 /rokes1    
re/rict$ blood fl[1 damag$ tissue 9 !   
liv]1 sple51 & kidneys1 & dea?2 ,:]eas  
,,scd causes acute & *ronic episodes (  
sev]e pa92 ,:]eas ,,scd affects an      
e/imat$ #ajj1jjj individuals 9 ! ,unit$ 
,/ates2 ,:]eas approximately #a1jjj     
babies are born ) ,,scd ea* ye> 9 !     
,unit$ ,/ates1 ) ! disease occurr+ 9    
approximately #a 9 #cfe newborn ,black  
or ,african-,am]ican infants & #a 9     
#af1cjj newborn ,hispanic-,am]ican      
infants1 & c be f\nd 9 individuals (    
,m$it]ranean1 ,middle ,ea/]n1 ,asian1 & 
,indian orig92 ,:]eas m ?an #c1jjj1jjj  
individuals 9 ! ,unit$ ,/ates h ! sickle
 cell trait & #a 9 #ac ,african         
,am]icans c>ries ! trait2 ,:]eas !re is 
a #a 9 #d *ance t a *ild born to p>5ts  
:o bo? h ! sickle cell trait w h !      
disease2 ,:]eas ! life expectancy ( an  
individual ) ,,scd 9 ! ,unit$ ,/ates is 
(t5 sev]ely limit$2 ,:]eas1 9 #bjbj1 !  

,national ,academies ( ,sci5ce1         
,eng9e]+1 & ,m$ic9e 7,,nasem7 develop$ a
 compreh5sive ,/rategic ,plan &         
,bluepr9t = ,action to ,address ,sickle 
,cell ,disease1 :i*1 among o!r ?+s1 cit$
 ! ne$ = new innovative !rapies z well z
 ! ne$ to address b>ri]s t may impact   
deliv]y & access to approv$ treatm5ts2  
,:]eas1 :ile hematopoietic /em cell     
transplantation 7commonly kn[n z ,,hsct7
 is curr5tly ! only cure = ,,scd &      
advances 9 treat+ ! associat$           
complications ( ,,scd h occurr$1 m      
rese>* is ne$$ to f9d widely available  
treatm5ts & cures to help individuals ) 
,,scd2 & ,:]eas ,septemb] #bjba has be5 
designat$ z ,sickle ,cell ,disease      
,aw>5ess ,mon? 9 ord] to educate        
communities across ! ,unit$ ,/ates ab\t 
,,scd1 includ+ e>ly detection me?ods1   
effective treatm5ts1 & prev5tative c>e  
programs ) respect to complications f   
,,scd & conditions relat$ to ,,scd3 ,n[1
 !re=e1 be x ,t ! ,s5ate-- 7#a7 supports
 ! goals & ideals ( ,sickle ,cell       

,disease ,aw>5ess ,mon?2 &  7#b7        
enc\rages ! p ( ! ,unit$ ,/ates to hold 
appropriate programs1 ev5ts1 &          
activities dur+ ,sickle ,cell ,disease  
,aw>5ess ,mon? to raise public aw>5ess (
 ! sickle cell trait1 prev5tative c>e   
programs1 treatm5ts1 & o!r pati5t       
s]vices = ^? suff]+ f ,,scd1            
complications f ,,scd1 & conditions     
relat$ to ,,scd4