,,iii  #aag? ,,congress  #a/ ,session   
,s4 ,,res4 #ccf  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,augu/ #d1 #bjba,mr4  
,ka9e 7= himself & ,ms4 ,klobu*>7       
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ! ,judici>y   
,,resolution  ,designat+ ,septemb] #ae1 
#bjba1 z ,int]national ,myotonic        
,dy/rophy ,aw>5ess ,day & support+ !    
goals & ideals ( ,int]national ,myotonic
 ,dy/rophy ,aw>5ess ,day4  ,:]eas       
myotonic dy/rophy is a r>e1             
multi-sy/emic1 inh]it$ disease t affects
 approximately #a 9 #b1ajj p & a total (
 #aej1jjj individuals 9 ! ,unit$ ,/ates2
 ,:]eas !re are well ov] #a1jjj1jjj p   
liv+ ) myotonic dy/rophy globally1 yet  
?\s&s ( p d n "k !y h ! disease & are 9 
ne$ ( c>e2 ,:]eas myotonic dy/rophy is !
 mo/ common =m ( adult muscul> dy/rophy 
& ! symptoms ( myotonic dy/rophy become 
m sev]e ) ea* g5]ation2 ,:]eas ! disease
 is caus$ by mutations 9 ! ,,dmpk g5e & 
! ,,cnbp g5e1 result+ 9 myotonic        
dy/rophy type #a & myotonic dy/rophy    

type #b1 respectively2 ,:]eas ^?        
mutations prev5t ! ,,dmpk g5e & ! ,,cnbp
 g5e f function+ prop]ly1 impact+       
multiple body sy/ems2 ,:]eas ! g5etic   
mutations are autosomal dom9ant         
mutations1 :]e a s+le copy ( ! alt]$ g5e
 is suffici5t to cause ! disord]1 &     
affect$ individuals h a #ej p]c5t *ance 
( pass+ on ! mutat$ g5e to _! *ildr52   
,:]eas1 ?r\gh ?is inh]it$ g5etic        
anomaly1 individuals ) myotonic dy/rophy
 exp]i5ce v>i$ & complex symptoms1      
includ+ skeletal muscle problems1       
excessive daytime sleep9ess1 e>ly       
cat>acts & he>t1 brea?+1 dige/ive1      
hormonal1 spee*1 swall[+1 diabetic1     
immune1 vision1 & cognitive             
difficulties2 ,:]eas myotonic dy/rophy  
is a highly v>iable & complicat$ disord]
 9 :i* ! y\ng] an individual is :5      
symptoms fir/ appe>1 ! m sev]e symptoms 
are likely to be1 ) progressively m     
sev]e symptoms occurr+ aft] ! e>li]     
symptoms are exp]i5c$2 ,:]eas           
misdiagnoses ( myotonic dy/rophy h      

p]si/$ = decades1 & delays 9 diagnos+   
myotonic dy/rophy are common2 ,:]eas !re
 are curr5tly no treatm5ts = myotonic   
dy/rophy approv$ by ! ,food & ,drug     
,adm9i/ration2 ,:]eas1 9 #bjjg1 !       
,myotonic ,dy/rophy ,f\ndation 0 f\nd$ )
 a mission to enhance ! quality ( life (
 p liv+ ) myotonic dy/rophy & to        
accel]ate rese>* focus$ on f9d+         
treatm5ts & a cure2 ,:]eas1 9 #bjad1    
,congress reau?oriz$ ! ,paul ,d4        
,well/one ,muscul> ,dy/rophy ,community 
,assi/ance1 ,rese>*1 & ,education       
,am5dm5ts ( #bjad 7,public ,law         
#aac-aff2 #db ,u4,s4,c4 #bja71 :i*      
increas$ muscul> dy/rophy rese>* fund+ &
 public heal? surveillance activities1  
includ+ = myotonic dy/rophy2 ,:]eas1 9  
,septemb] #bjag1 recogniz+ ! s]i\sness (
 myotonic dy/rophy & ! especially       
disabl+ impact ( myotonic dy/rophy on   
individuals ) cong5ital myotonic        
dy/rophy1 ! ,social ,security           
,adm9i/ration add$ cong5ital myotonic   
dy/rophy to ! ,compassionate ,all[ances 

program t all[s individuals to quickly  
qualify = disability b5efits1 includ+   
heal? insurance cov]age2 ,:]eas1 9      
#bjah1 ,congress add$ myotonic dy/rophy 
to ! li/ ( eligible conditions = rese>* 
fund+ "u ! ,pe] ,review$ ,m$ical ,rese>*
 ,program ( ! ,dep>tm5t ( ,def5se1 :i*  
result$ 9 m ?an #f1jjj1jjj 9 new rese>* 
aw>ds2 ,:]eas fund+ = myotonic dy/rophy 
rese>* support$ by ! ,national          
,in/itutes ( ,heal? rema9$ flat betwe5  
#bjaj & #bjbj ) ! ag5cy aw>d+           
#bd1jjj1jjj 9 rese>* grants 9 fiscal ye>
 #bjbj2 & ,:]eas increas$ ,f$]al fund+ =
 myotonic dy/rophy rese>* w improve     
heal? outcomes1 r$uce disability1 &     
increase life expectancy = individuals  
liv+ ) myotonic dy/rophy & holds great  
promise = help+ individuals ) simil>    
g5etic diseases3 ,n[1 !re=e1 be x ,t !  
,s5ate-- 7#a7 designates ,septemb] #ae1 
#bjba1 z ,int]national ,myotonic        
,dy/rophy ,aw>5ess ,day2 &  7#b7        
supports ! goals & ideals (             
,int]national ,myotonic ,dy/rophy       

,aw>5ess ,day1 includ+-- 7,a7 committ+  
to promot+ & advanc+ ! heal?1 well-be+1 
& inh]5t dignity ( all *ildr5 & adults )
 myotonic dy/rophy2  7,b7 support+ !    
advancem5t ( sci5tific & m$ical myotonic
 dy/rophy rese>* at ! ,national         
,in/itutes ( ,heal? & z "p ( ! ,pe]     
,review$ ,m$ical ,rese>* ,program ( !   
,dep>tm5t ( ,def5se2  7,c7 fo/]+        
bioph>maceutical innovation t w lead to 
treatm5ts approv$ by ! ,food & ,drug    
,adm9i/ration & ev5tually a cure =      
myotonic dy/rophy2  7,d7 advanc+        
programs & policies t assi/ individuals 
disabl$ by myotonic dy/rophy & !        
c>egiv]s ( ^? individuals2 &  7,e7      
enc\rag+ aw>5ess & education ( myotonic 
dy/rophy among pati5ts1 c>egiv]s1       
cl9icians1 & rese>*]s4