,,iii  #aag? ,,congress  #a/ ,session   
,s4 ,,res4 #bee  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,may #bh 7legislative 
day1 ,may #bg71 #bjba,mr4 ,coons 7=     
himself & ,mr4 ,braun7 submitt$ ! foll[+
 resolution2 :i* 0 consid]$ & agre$ to  
,,resolution  ,designat+ ,may #bjba z   
,,als ,aw>5ess ,mon?4  ,:]eas           
amyotrophic lat]al scl]osis 7ref]r$ to 9
 ?is preamble z ,,als7 is a progressive 
neurodeg5]ative disease t affects n]ve  
cells 9 ! bra9 & ! sp9al cord2 ,:]eas ! 
life expectancy = an individual ) ,,als 
is betwe5 #b & #e ye>s aft] ! date on   
:i* ! individual receives an ,,als      
diagnosis2 ,:]eas ,,als occurs ?r\gh\t !
 _w ) no racial1 e?nic1 g5d]1 or        
socioeconomic b\nd>ies2 ,:]eas ,,als may
 affect any individual 9 any location2  
,:]eas ! cause ( ,,als is unkn[n 9 up to
 #ij p]c5t ( cases2 ,:]eas approximately
 #aj p]c5t ( cases h a /rong kn[n g5etic
 driv]2 ,:]eas1 on av]age1 ! p]iod      
betwe5 ! date on :i* an individual fir/ 
exp]i5ces symptoms ( ,,als & ! date on  

:i* ! individual is diagnos$ ) ,,als is 
m ?an #a ye>2 ,:]eas ! onset ( ,,als (t5
 involves muscle weakness or /iffness1 &
 ! progression ( ,,als results 9 ! fur!r
 weak5+1 wa/+1 & p>alysis (-- 7#a7 !    
muscles ( ! limbs & trunk2 &  7#b7 !    
muscles t control vital functions1 su* z
 spee*1 swall[+1 & brea?+2 ,:]eas ,,als 
c /rike individuals ( any age1 b x      
pr$om9antly /rikes adults2 ,:]eas x is  
e/imat$ t t5s ( ?\s&s ( individuals 9 ! 
,unit$ ,/ates h ,,als at any giv5 "t2   
,:]eas1 bas$ on /udies ( ! population ( 
! ,unit$ ,/ates1 slightly m ?an #e1fjj  
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* ye>1 & #ae         
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* day2 ,:]eas1 betwe5
 #bjae & #bjdj1 ! numb] ( ,,als cases   
ar\nd ! _w is expect$ to increase by    
ne>ly #gj p]c5t2 ,:]eas ! majority (    
individuals ) ,,als die ( respiratory   
failure2 ,:]eas1 9 ! ,unit$ ,/ates1     
milit>y vet]ans may be up to twice z    
likely to be diagnos$ ) ,,als ?an !     

g5]al public2 ,:]eas1 z ( ! date (      
introduction ( ?is resolution1 !re is no
 cure = ,,als2 ,:]eas ! sp\ses1 *ildr51 
& family memb]s ( individuals liv+ )    
,,als provide support to ^? individuals 
) love1 day-to-day c>e1 & m2 & ,:]eas an
 individual ) ,,als1 & ! c>egiv]s ( su* 
an individual1 c be requir$ to be>      
significant co/s = m$ical c>e1 equipm5t1
 & home c>e s]vices = ! individual z !  
disease progresses3 ,n[1 !re=e1 be x ,t 
! ,s5ate-- 7#a7 designates ,may #bjba z 
,,als ,aw>5ess ,mon?2  7#b7 affirms !   
d$ication ( ! ,s5ate to-- 7,a7 ensur+   
individuals ) amyotrophic lat]al        
scl]osis 7ref]r$ to 9 ?is resolv+ clause
 z ,,als7 h access to effective         
treatm5ts z soon z possible2  7,b7      
id5tify+ risk factors & causes ( ,,als  
to prev5t new cases2  7,c7 emp[]+       
individuals ) ,,als to engage ) ! _w 9 !
 way !y want2  7,d7 r$uc+ ! physical1   
emotional1 & f9ancial burd5s ( liv+ )   
,,als2 &  7,e7 ensur+ all individuals ) 
,,als & _! c>egiv]s receive high quality

 s]vices & supports t b5efit !m2 &  7#c7
 comm5ds ! d$ication ( ! family memb]s1 
fri5ds1 organizations1 volunte]s1       
rese>*]s1 & c>egiv]s across ! ,unit$    
,/ates t are work+ to improve ! quality 
& l5g? ( life ( ,,als pati5ts & !       
developm5t ( treatm5ts & cures t rea*   
pati5ts z soon z possible4