,,ii #aag? ,,congress #a/ ,session ,s4 #heb ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,m>* #ah1 #bjba,mr4 ,blum5?al introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to provide = fur!r compreh5sive rese>* at ! ,national ,in/itute ( ,neurological ,disord]s & ,/roke on unruptur$ intracranial aneurysms4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,ellie ,helton1 ,lisa ,colagrossi1 ,kri/5 ,%af] ,engl]t1 ,t]esa ,anne ,lawr5ce1 & ,j5nif] ,s$ney ,focus$ ,rese>* ,act or ,ellie's ,law4 #b4 ,f9d+s ,! ,congress makes ! foll[+ f9d+s3 7#a7 ,an e/imat$ #f1ejj1jjj p 9 ! ,unit$ ,/ates1 or #a 9 #ej p1 h an unruptur$ bra9 aneurysm4 7#b7 ,ea* ye>1 an e/imat$ #cj1jjj p 9 ! ,unit$ ,/ates suff] a bra9 aneurysm rupture4 ,ruptur$ bra9 aneurysms are fatal 9 ab\t #ej p]c5t ( cases4 ,( ^? :o survive1 ab\t #ff p]c5t suff] "s p]man5t neurological deficit4 7#c7 ,bra9 aneurysms are m likely to occur 9 wom5 ?an 9 m51 by a #c to #b ratio4 ,ellie's ,law repres5ts all ^? :o h be5 affect$ & di$ due to a ruptur$ bra9 aneurysm1 & _! lov$ ones4 ,p :o exp]i5c$ a bra9 aneurysm rupture include ! foll[+3 7,a7 ,ellie ,helton4 ,on ,july #af1 #bjad1 ,ellie ,helton1 a vibrant1 lov+ #ad-ye>-old f ,apex1 ,nor? ,c>ol9a1 pass$ away z a result ( a ruptur$ aneurysm1 /unn+ h] p>5ts1 #b si/]s1 & _m1 _m lov$ ones4 ,a day e>li]1 on h] second day ( high s*ool1 %e woke up ) a t]rible heada*e aft] a plum-siz$ aneurysm on h] bra9 /em ruptur$4 ,:ile %e suff]$ heada*es ?r\gh\t h] life1 %e 0 nev] diagnos$4 ,ellie 0 an avid read] & excell5t /ud5t1 lov$ ! arts1 & 0 incr$ibly creative4 ,%e _h an unwav]+1 con/ant love = ! family & fri5ds 9 h] life4 7,b7 ,lisa ,colagrossi4 ,on ,m>* #bj1 #bjae1 ,lisa ,colagrossi--,,wabc ,eyewitness ,news report]1 wife ( #ag ye>s1 & "m ( #b sons--unexpect$ly pass$ away at ! age ( #di ye>s aft] suff]+ a massive ruptur$ bra9 aneurysm4 ,despite exp]i5c+ "o ( ! classic w>n+ signs ( a bra9 aneurysm 7! wor/ heada*e ( my life71 ,lisa's pass+ came z a trem5d\s %ock to h] family & fri5ds1 :o did n "k :at a bra9 aneurysm 01 let alone its signs & symptoms4 ,%e is rememb]$ = be+ a lov+ wife1 a "m1 & a successful report]1 & = h] love ( ! ,new ,york ,rang]s4 7,c7 ,kri/5 ,%af] ,engl]t4 ,on ,novemb] #bd1 #bjac1 ,kri/5 ,%af] ,engl]t1 a devot$ wife1 "m1 daught]1 si/]1 aunt1 & fri5d pass$ away f a ruptur$ bra9 aneurysm at ! age ( #be1 j weeks aft] giv+ bir? to h] son4 ,prior to h] pass+1 %e w5t to ! em]g5cy room ) symptoms ( a bra9 aneurysm & 0 s5t home )\t a scan4 ,kri/5 0 a d$icat$ tea*] :o lov$ *ildr54 ,%e 0 ?rill$ to become a "m4 ,sadly1 %e got to exp]i5ce mo!rhood only = a few %ort days4 ,kri/5's family memb]s h be5 d$icat$ advocates = bra9 aneurysm aw>5ess & rese>* s9ce h] pass+4 7,d7 ,t]esa ,anne ,lawr5ce4 ,on ,decemb] #h1 #aihc1 ,t]esa ,anne ,lawr5ce1 devot$ "m ( #c1 belov$ wife1 & /aple ( h] community1 collaps$ :ile visit+ h] son's s*ool4 ,%e _h be5 /ruggl+ ) & tak+ m$ication = hyp]t5sion = sev]al ye>s4 ,at age #cd1 aft] be+ unconsci\s = #d days1 %e pass$ away z a result ( a bra9 aneurysm4 ,h] lov+ husb& & ext5d$ family 7 left to raise _! *ildr51 :om ,t]esa *]i%$ s mu*4 7,e7 ,j5nif] ,s$ney4 ,on ,decemb] #be1 #bjac1 ,j5nif] ,s$ney1 a beautiful1 accompli%$ "y woman1 pass$ away sudd5ly at ! age ( #bg f a ruptur$ bra9 aneurysm4 ,h] only symptom 0 ! wor/ heada*e ( h] life1 :i* none ( h] fri5ds or family realiz$ 0 a symptom ( a pot5tially fatal condition4 ,j5ny 0 a jogg]1 a discipl9$ ex]cis]1 & a successful heal? c>e consultant & _h rec5tly laun*$ a heal? blog f\nd$ on #c pr9ciples--bee curi\s1 bee radiant1 bee well4 ,h] bro!r1 "m1 fa!r1 & a l>ge devot$ network ( fri5ds & relatives rememb] h] e day4 7#d7 ,bra9 aneurysm ruptures h a significant fiscal impact on survivors1 c>etak]s1 & ! heal? c>e community4 ,! annual e/imat$ pre-insurance direct co/ ( bra9 aneurysm ruptures to pati5ts 9 ! ,unit$ ,/ates is approximately #a1djj1jjj1jjj1 & ! e/imat$ direct co/ to hospitals ea* ye> is approximately #b1gjj1jjj1jjj4 ,! int5sive c>e unit l5g? ( /ay is ! l>ge/ driv] ( co/ = bra9 aneurysm ruptures1 & e/imates d n reflect indirect co/s1 :i* include travel1 food1 *ildc>e1 & wage losses = pati5t & c>etak]s4 7#e7 ,despite ! widespread preval5ce ( ?is condition & ! high societal co/ x imposes on ! ,nation1 ! ,f$]al ,gov]nm5t only sp5ds approximately #b4jh p] ye> on bra9 aneurysm rese>* = ea* p]son afflict$ ) a bra9 aneurysm4 7#f7 ,! fir/ #c it]ations ( ! ,int]national ,/udy on ,unruptur$ ,intracranial ,aneurysms 7,,isuia7 h advanc$ rese>*]s' & cl9icians' und]/&+ ( h[ to mo/ effectively manage & treat unruptur$ intracranial aneurysms4 #c4 ,fund+ 7a7 ,au?orization ( appropriations ,to conduct or support fur!r compreh5sive rese>* on unruptur$ intracranial aneurysms1 /udy+ a broad] pati5t population div]sifi$ by age1 sex1 & race1 !re is au?oriz$ to be appropriat$ to ! ,national ,in/itute ( ,neurological ,disord]s & ,/roke #aj1jjj1jjj = ea* ( fiscal ye>s #bjbb ?r\gh #bjbf1 to rema9 available ?r\gh ,septemb] #cj1 #bjbi4 7b7 ,supplem5t1 n supplant ,any funds made available pursuant to ?is section %all supplem5t1 n supplant1 o!r fund+ made available = rese>* on bra9 aneurysms4