,,ii  #aag? ,,congress  #b;d ,session   
,s4 #dabj  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,april #bh1 #bjbb,mr4  
,re$ 7= himself1 ,mrs4 ,capito1 ,mr4    
,van ,holl51 & ,ms4 ,murk[ski7 introduc$
 ! foll[+ bill2 :i* 0 read twice &      
ref]r$ to ! ,committee on ,heal?1       
,education1 ,labor1 & ,p5sions  ,a      
,,bill  ,to maximize discov]y1 &        
accel]ate developm5t & availability1 (  
promis+ *ildhood canc] treatm5ts1 & =   
o!r purposes4  #a4 ,%ort title ,?is ,act
 may be cit$ z ! ,*ildhood ,canc]       
,survivor%ip1 ,treatm5t1 ,access1 &     
,rese>* ,reau?orization ,act ( #bjbb or 
! ,*ildhood ,canc] ,,/> ,reau?orization 
,act4  #b4 ,reau?oriz+ & improv+ !      
,*ildhood ,,/> ,act  7a7 ,*ildr5's canc]
 biorepositories ,section #dag;,e ( !   
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #bhe;a-#aa7 is am5d$-- 7#a7 9 
subsection 7a7-- 7,a7 9 p>agraph        
7#b77;,a71 by ins]t+ be=e ! p]iod at !  
end ( ! second s5t5ce ! foll[+3 1 &     
provid+ sample collection inc5tives =   

bo? solid tumor canc] & pair$ tissues = 
all p$iatric canc]s2  7,b7 9 p>agraph   
7#i71 by /rik+ ,*ildhood ,canc]         
,survivor%ip1 ,treatm5t1 ,access1 &     
,rese>* ,act ( #bjah & ins]t+ ,*ildhood 
,canc] ,survivor%ip1 ,treatm5t1 ,access1
 & ,rese>* ,reau?orization ,act ( #bjbb2
  7,c7 by r$esignat+ p>agraph 7#aj7 z   
p>agraph 7#aa72 &  7,d7 by ins]t+ aft]  
p>agraph 7#i7 ! foll[+3  7#aj7 ,report  
on rese>*] access to *ildr5's canc]     
biorepository samples ,! ,director (    
,,nih %all1 n lat] ?an #b ye>s aft] !   
date ( enactm5t ( ! ,*ildhood ,canc]    
,survivor%ip1 ,treatm5t1 ,access1 &     
,rese>* ,reau?orization ,act ( #bjbb1   
submit to ,congress a report on policy  
*anges t w\ld facilitate /reaml9+ !     
approval process = rese>*] access to    
*ildr5's canc] biorepository samples1 ) 
a special focus on l[]+ ! regulatory    
burd5 be=e samples c be s5t to          
inve/igators4  2 &  7#b7 9 subsection   
7d71 by /rik+ #bjai ?r\gh #bjbc & ins]t+
 #bjbd ?r\gh #bjbh4  7b7 ,canc]         

survivor%ip programs ,section #bja ( !  
,*ildhood ,canc] ,survivor%ip1          
,treatm5t1 ,access1 & ,rese>* ,act (    
#bjah 7,public ,law #aae-ahj7 is am5d$--
 7#a7 9 subsection 7a7-- 7,a7 9 p>agraph
 7#a71 by /rik+ may make aw>ds & ins]t+ 
%all make aw>ds2 &  7,b7 by add+ at !   
end ! foll[+3  7#d7 ,consid]ation ,9    
develop+1 /udy+1 & evaluat+ model sy/ems
 pursuant to ?is subsection1 recipi5ts (
 aw>ds "u ?is subsection %all give      
p>ticul> consid]ation to ! report issu$ 
by ! ,ag5cy = ,heal?c>e ,rese>* &       
,quality 9 ,febru>y #bjbb1 titl$ ,models
 ( ,c>e ,t ,include ,prim>y ,c>e =      
,adult ,survivors ( ,*ildhood ,canc]3 ,a
 ,reali/ ,review4  2 &  7#b7 9          
subsection 7b71 9 p>agraphs 7#a7 & 7#b71
 by /rik+ date ( enactm5t ( ?is ,act ea*
 place x appe>s & ins]t+ date ( enactm5t
 ( ! ,*ildhood ,canc] ,survivor%ip1     
,treatm5t1 ,access1 & ,rese>*           
,reau?orization ,act ( #bjbb4  7c7      
,survivor%ip electronic heal? records ,!
 ,secret>y ( ,heal? & ,human ,s]vices   

%all coord9ate ) ! ,(fice ( ! ,national 
,coord9ator = ,heal? ,in=mation to      
prep>e a report on ! role t tailor$     
survivor%ip electronic heal? records c  
play 9 life-long heal? c>e = *ildhood   
canc] survivors1 ) a special focus on   
survivors :o face unique lifelong heal? 
ne$s & late effects z !y transition to  
prim>y c>e4 ,su* report %all be submitt$
 to ,congress n lat] ?an #b ye>s aft] ! 
date ( enactm5t ( ?is ,act4  7d7 ,s5se (
 ,congress reg>d+ ! creation ( a        
*ildhood canc] m$ical code ,x is ! s5se 
( ,congress t ! ,national ,c5t] = ,heal?
 ,/ati/ics at ! ,c5t]s = ,disease       
,control & ,prev5tion & ! ,c5t]s =      
,m$ic>e  ,m$icaid ,s]vices %\ld consid] 
add+ a new ,*ildhood ,canc] ,code to !  
,int]national ,classification (         
,diseases 7,,icd7 sy/em = ! purpose (   
facilitat+ access to exi/+ insurance    
cov]age ( *ildhood canc] pati5ts &      
survivors1 z appropriate4