#aag? ,,congress  #b;d ,session  ,s4    
#dabj  ,,an ,,act  ,to maximize         
discov]y1 & accel]ate developm5t &      
availability1 ( promis+ *ildhood canc]  
treatm5ts1 & = o!r purposes4  #a4 ,%ort 
title ,?is ,act may be cit$ z !         
,*ildhood ,canc] ,survivor%ip1          
,treatm5t1 ,access1 & ,rese>*           
,reau?orization ,act ( #bjbb or !       
,*ildhood ,canc] ,,/> ,reau?orization   
,act4  #b4 ,reau?oriz+ & improv+ !      
,*ildhood ,,/> ,act  7a7 ,*ildr5's canc]
 biorepositories ,section #dag;,e ( !   
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #bhe;a-#aa7 is am5d$-- 7#a7 9 
subsection 7a7-- 7,a7 9 p>agraph        
7#b77;,a71 by ins]t+ be=e ! p]iod at !  
end ( ! second s5t5ce ! foll[+3 1 su* z 
collect$ samples ( bo? solid tumor canc]
 & pair$ samples2  7,b7 9 p>agraph 7#i71
 by /rik+ ,*ildhood ,canc] ,survivor%ip1
 ,treatm5t1 ,access1 & ,rese>* ,act (   
#bjah & ins]t+ ,*ildhood ,canc]         
,survivor%ip1 ,treatm5t1 ,access1 &     
,rese>* ,reau?orization ,act ( #bjbb2   

7,c7 by r$esignat+ p>agraph 7#aj7 z     
p>agraph 7#aa72 &  7,d7 by ins]t+ aft]  
p>agraph 7#i7 ! foll[+3  7#aj7 ,report  
on rese>*] access to *ildr5's canc]     
biorepository samples ,n lat] ?an #b    
ye>s aft] ! date ( enactm5t ( !         
,*ildhood ,canc] ,survivor%ip1          
,treatm5t1 ,access1 & ,rese>*           
,reau?orization ,act ( #bjbb1 !         
,director ( ,,nih %all-- 7,a7 conduct a 
review ( ! proc$ures e/abli%$ "u        
p>agraph 7#b77;,c7 & o!r policies or    
proc$ures relat$ to rese>*] access to   
su* biospecim5s to id5tify any          
opportunities to r$uce adm9i/rative     
burd51 consi/5t ) p>agraph 7#b77;,d71 9 
a mann] t protects p]sonal privacy to ! 
ext5t requir$ by applicable ,f$]al &    
,/ate privacy law1 at a m9imum2 &  7,b7 
submit to ! ,committee on ,heal?1       
,education1 ,labor1 & ,p5sions ( !      
,s5ate & ! ,committee on ,en]gy &       
,comm]ce ( ! ,h\se ( ,repres5tatives a  
report on ! f9d+s ( ! review "u         
subp>agraph 7,a7 & :e!r ! ,director (   

,,nih plans to make any *anges to !     
policies or proc$ures consid]$ 9 su*    
review1 bas$ on su* f9d+s4  2 &  7#b7 9 
subsection 7d71 by /rik+ #bjai ?r\gh    
#bjbc & ins]t+ #bjbd ?r\gh #bjbh4  7b7  
,canc] survivor%ip programs ,section    
#bja ( ! ,*ildhood ,canc] ,survivor%ip1 
,treatm5t1 ,access1 & ,rese>* ,act (    
#bjah 7,public ,law #aae-ahj7 is am5d$--
 7#a7 9 subsection 7a7-- 7,a7 9 !       
subsection head+1 by /rik+ ,pilot       
programs to explore & ins]t+ ,rese>* to 
evaluate  7,b7 9 p>agraph 7#a7-- 7i7 by 
/rik+ may make aw>ds to eligible        
entities to e/abli% pilot programs &    
ins]t+ %all1 z appropriate1 make aw>ds  
to eligible entities to conduct or      
support rese>*2  7ii7 by /rik+ model    
sy/ems & ins]t+ approa*es2  7iii7 by    
ins]t+ & adolesc5t aft] *ildhood2 &     
7iv7 by /rik+ evaluation ( models =2    
7,c7 9 p>agraph 7#b7-- 7i7 9 subp>agraph
 7,a71 9 ! matt] prec$+ clause 7i71 by  
ins]t+ )9 ! exi/+ pe] review process1   
aft] practicable12 &  7ii7 9 subp>agraph

 7,b77v71 by /rik+ 9 treat+ survivors ( 
*ildhood canc]s & ins]t+ 9 c>ry+ out !  
activities describ$ 9 p>agraph 7#a72 &  
7,d7 9 p>agraph 7#c77;,b77v71 by /rik+  
design ( sy/ems = ! effective transf] ( 
treatm5t in=mation & c>e summ>ies f     
canc] c>e provid]s to o!r heal? c>e     
provid]s & ins]t+ design tools to       
support ! secure electronic transf] (   
treatm5t in=mation & c>e summ>ies betwe5
 heal? c>e provid]s or1 z applicable &  
appropriate1 longitud9al *ildhood canc] 
survivor%ip cohorts2 &  7#b7 9          
subsection 7b7-- 7,a7 9 ea* ( p>agraphs 
7#a7 & 7#b71 by /rik+ date ( enactm5t ( 
?is ,act & ins]t+ date ( enactm5t ( !   
,*ildhood ,canc] ,survivor%ip1          
,treatm5t1 ,access1 & ,rese>*           
,reau?orization ,act ( #bjbb2 &  7,b7 9 
p>agraph 7#a7-- 7i7 by /rik+            
subp>agraphs 7,a7 & 7,c72  7ii7 by      
r$esignat+ subp>agraph 7,b7 z           
subp>agraph 7,a72 &  7iii7 by add+ at ! 
end ! foll[+3  7,b7 recomm5dations =    
enhanc+ or promot+ activities ( !       

,dep>tm5t ( ,heal? & ,human ,s]vices    
relat$ to work=ce developm5t = heal? c>e
 provid]s :o provide psy*osocial c>e to 
p$iatric canc] pati5ts & survivors4  4  
,pass$ ! ,s5ate ,decemb] #bj1           
#bjbb4,secret>y