,,ii  #aag? ,,congress  #a/ ,session    
,s4 #bddd  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,july #bb1 #bjba,mr4   
,book] 7= himself & ,mrs4 ,capito7      
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to provide = rese>* &       
education ) respect to ut]9e fibroids1 &
 = o!r purposes4  #a4 ,%ort title ,?is  
,act may be cit$ z ! ,/ephanie ,tubbs   
,jones ,ut]9e ,fibroid ,rese>* &        
,education ,act ( #bjba4  #b4 ,f9d+s    
,congress f9ds z foll[s3 7#a7 ,x is     
e/imat$ t #bj p]c5t to #ej p]c5t ( wom5 
( reproductive age curr5tly h ut]9e     
fibroids1 & up to #gg p]c5t ( wom5 w    
develop fibroids be=e m5opause4  7#b7 ,9
 ! ,unit$ ,/ates1 an e/imat$ #bf1jjj1jjj
 wom5 betwe5 ! ages ( #ae & #ej h ut]9e 
fibroids1 & approximately #ae1jjj1jjj ( 
^! individuals exp]i5ce symptoms4 ,ut]9e
 fibroids may cause significant         
morbidity ?r\gh _! pres5ce 9 ! ut]us &  
pelvic cavity1 & symptoms c include     

pelvic pa91 sev]e m5/rual ble$+1        
iron-defici5cy anemia1 fatigue1 bladd]  
or b[el dysfunction1 inf]tility1 &      
pregnancy complications & loss4  7#c7 ,!
 pa91 discom=t1 /ress1 & o!r physical & 
emotional symptoms ( liv+ ) fibroids may
 significantly int]f]e ) a woman's      
quality ( life1 compromis+ h] ability to
 function normally or "w or c>e = h]    
family1 & may lead to m sev]e heal? &   
wellness issues4  7#d7 ,mo/ wom5 w      
exp]i5ce ut]9e fibroids by ! age ( #ej1 
yet few data exi/ describ+ ! ov]all     
pati5t exp]i5ce ) fibroids4  7#e7 ,_m p 
) fibroids are likely undiagnos$4       
,pati5ts wait on av]age #c4f ye>s be=e  
seek+ treatm5t1 & ov] #dj p]c5t (       
pati5ts see #b or m heal? c>e provid]s  
prior to receiv+ a diagnosis1 und]scor+ 
! ne$ = improv$ aw>5ess & education4    
7#f7 ,p ( color are m likely to develop 
ut]9e fibroids4 ,x is e/imat$ t m ?an   
#hj p]c5t ( ,black wom5 & ab\t #gj p]c5t
 ( ,:ite wom5 develop fibroids by ! "t  
!y rea* m5opause4 ,black individuals )  

fibroids also h be5 %[n to h m sev]e    
symptoms & develop e>ly-onset ut]9e     
fibroids t develop into l>g] tumors4    
7#g7 ,curr5t rese>* & available data d n
 provide adequate in=mation on !        
preval5ce & incid5ce ( fibroids 9       
,asian1 ,hispanic1 & ,black individuals4
  7#h7 ,symptomatic ut]9e fibroids c    
cause reproductive problems1 includ+    
inf]tility4 ,p ) ut]9e fibroids are mu* 
m likely to misc>ry dur+ e>ly pregnancy 
?an p )\t !m4  7#i7 ,accord+ to !       
,evid5ce ,report ,summ>y on ! ,managem5t
 ( ,ut]9e ,fibroids1 z compil$ by !     
,ag5cy = ,heal?c>e ,rese>* & ,quality1  
!re is a rem>kable lack ( high-quality  
evid5ce support+ ! effectiv5ess ( mo/   
int]v5tions = symptomatic fibroids4     
7#aj7 ,mo/ m$ical options = manag+      
fibroid symptoms regulate or suppress   
m5/ruation & prev5t pregnancy4 ,!re is a
 great ne$ = m9imally invasive1         
f]tility-fri5dly !rapies1 z well z      
biom>k]s1 imag+ assessm5ts1 or risk-bas$
 algori?ms t c help pr$ict pati5t       

response to !rapy4  7#aa7 ,! pres5ce (  
symptomatic ut]9e fibroids is ! mo/     
common reason = hy/]ectomies1 acc\nt+ = 
#ci p]c5t ( hy/]ectomies annually 9 !   
,unit$ ,/ates4 ,approximately #db p]    
#a1jjj wom5 are hospitaliz$ annually    
because ( ut]9e fibroids1 b ,black      
pati5ts h high] rates ( hospitalization1
 hy/]ectomies1 & myomectomies comp>$ to 
,:ite wom54 ,ut]9e fibroids are also !  
lead+ cause ( hospitalization relat$ to 
a gynecological disord]4  7#ab7 ,!      
p]sonal & societal co/s ( ut]9e fibroids
 9 ! ,unit$ ,/ates are significant4     
,ut]9e fibroid tumors h be5 e/imat$ to  
co/ ! ,unit$ ,/ates #e1ijj1jjj1jjj to   
#cd1djj1jjj1jjj annually4 ,! annual     
direct co/s1 includ+ surg]y1 hospital   
admissions1 outpati5t visits1 &         
m$ications1 7 e/imat$ at #d1ajj1jjj1jjj 
to #i1djj1jjj1jjj annually4 ,e/imat$ lo/
 "w-h\r co/s rang$ f #a1eej1jjj1jjj to  
#ag1bjj1jjj1jjj annually4 ,ob/etric     
outcomes t 7 attribut$ to fibroid tumors
 result$ 9 co/s ( #bch1jjj1jjj to       

#g1gfj1jjj1jjj annually4  7#ac7 ,at !   
,f$]al level1 ut]9e fibroid rese>*      
rema9s dra/ically und]fund$ z comp>$ to 
pati5t disease burd54 ,9 #bjai1 fibroid 
rese>* receiv$ ab\t #ag1jjj1jjj 9 fund+ 
f ! ,national ,in/itutes ( ,heal?1 putt+
 x 9 ! bottom #ej ( #bib fund$          
conditions4  #c4 ,rese>* ) respect to   
ut]9e fibroids  7a7 ,rese>* ,! ,secret>y
 ( ,heal? & ,human ,s]vices 7ref]r$ to 9
 ?is ,act z ! ,secret>y7 %all exp&1     
int5sify1 & coord9ate programs = !      
conduct & support ( rese>* ) respect to 
ut]9e fibroids4  7b7 ,adm9i/ration &    
coord9ation ,! ,secret>y %all c>ry out !
 conduct & support ( rese>* pursuant to 
subsection 7a71 9 coord9ation ) !       
appropriate in/itutes1 (fices1 & c5t]s (
 ! ,national ,in/itutes ( ,heal? & any  
o!r relevant ,f$]al ag5cy1 z det]m9$ by 
! ,secret>y & ! ,director ( ! ,national 
,in/itutes ( ,heal?4  7c7 ,au?orization 
( appropriations ,= ! purpose ( c>ry+   
out ?is section1 !re are au?oriz$ to be 
appropriat$ #cj1jjj1jjj = ea* ( fiscal  

ye>s #bjbb ?r\gh #bjbf4  #d4 ,rese>* )  
respect to ,m$icaid cov]age ( ut]9e     
fibroids treatm5t  7a7 ,rese>* ,!       
,secret>y 7or ! ,secret>y's designee7   
%all e/abli% a rese>* database1 or exp& 
an exi/+ rese>* database1 to collect    
data on s]vices furni%$ to individuals  
diagnos$ ) ut]9e fibroids "u a ,/ate    
plan 7or a waiv] ( su* a plan7 "u !     
,m$icaid program "u title ,,xix ( !     
,social ,security ,act 7#db ,u4,s4,c4   
#acif et seq47 or "u a ,/ate *ild heal? 
plan 7or a waiv] ( su* a plan7 "u !     
,*ildr5's ,heal? ,insurance ,program "u 
title ,,xxi ( su* ,act 7#db ,u4,s4,c4   
#acig;aa et seq47 = ! treatm5t ( su*    
fibroids = purposes ( assess+ ! frequ5cy
 at :i* su* individuals are furni%$ su* 
s]vices4  7b7 ,report  7#a7 ,9 g5]al ,n 
lat] ?an ! date t is #b ye>s aft] ! date
 ( enactm5t ( ?is ,act1 ! ,secret>y %all
 submit to ,congress a report on ! am\nt
 ( ,f$]al & ,/ate exp5ditures ) respect 
to s]vices furni%$ = ! treatm5t ( ut]9e 
fibroids "u ,/ate plans 7or waiv]s ( su*

 plans7 "u ! ,m$icaid program "u su*    
title ,,xix & ,/ate *ild heal? plans 7or
 waiv]s ( su* plans7 "u ! ,*ildr5's     
,heal? ,insurance ,program "u su* title 
,,xxi4  7#b7 ,coord9ation ,! ,secret>y  
%all coord9ate ! developm5t & submission
 ( ! report requir$ "u p>agraph 7#a7 )  
any o!r relevant ,f$]al ag5cy1 z det]m9$
 by ! ,secret>y4  #e4 ,education &      
dissem9ation ( in=mation ) respect to   
ut]9e fibroids  7a7 ,ut]9e fibroids     
public education program ,! ,secret>y   
%all develop & dissem9ate to ! public   
in=mation reg>d+ ut]9e fibroids1 includ+
 in=mation on-- 7#a7 ! aw>5ess1         
incid5ce1 & preval5ce ( ut]9e fibroids  
among individuals1 includ+ all m9ority  
individuals2  7#b7 ! elevat$ risk =     
m9ority individuals to develop ut]9e    
fibroids2 &  7#c7 ! availability1 z     
m$ically appropriate1 ( ! range (       
treatm5t options = symptomatic ut]9e    
fibroids1 includ+ non-hy/]ectomy        
treatm5ts & proc$ures4  7b7             
,dissem9ation ( in=mation ,! ,secret>y  

may dissem9ate in=mation "u subsection  
7a7 directly or ?r\gh arrangem5ts )     
intra-ag5cy initiatives1 nonpr(it       
organizations1 consum] gr\ps1           
in/itutions ( high] education 7z def9$ 9
 section #aja ( ! ,high] ,education ,act
 ( #aife 7#bj ,u4,s4,c4 #ajja771 or     
,f$]al1 ,/ate1 or local public private  
p>tn]%ips4  7c7 ,au?orization (         
appropriations ,= ! purpose ( c>ry+ out 
?is section1 !re are au?oriz$ to be     
appropriat$ su* sums z may be necess>y =
 ea* ( fiscal ye>s #bjbb ?r\gh #bjbf4   
#f4 ,in=mation to heal? c>e provid]s )  
respect to ut]9e fibroids  7a7          
,dissem9ation ( in=mation ,! ,secret>y (
 ,heal? & ,human ,s]vices %all1 9       
consultation & 9 accordance ) guidel9es 
f relevant m$ical societies1 "w ) heal? 
c>e-relat$ specialty societies & heal?  
sy/ems to promote evid5ce-bas$ c>e =    
individuals ) fibroids4 ,su* ef=ts %all 
include m9ority individuals :o h an     
elevat$ risk to develop ut]9e fibroids &
 ! range ( available options = !        

treatm5t ( symptomatic ut]9e fibroids1  
includ+ non-hy/]ectomy drugs & devices  
approv$ "u ! ,f$]al ,food1 ,drug1 &     
,cosmetic ,act 7#ba ,u4,s4,c4 #cja et   
seq474  7b7 ,au?orization (             
appropriations ,= ! purpose ( c>ry+ out 
?is section1 !re are au?oriz$ to be     
appropriat$ su* sums z may be necess>y =
 ea* ( ! fiscal ye>s #bjbb ?r\gh #bjbf4 
#g4 ,def9ition ,9 ?is ,act1 ! t]m       
m9ority individuals means individuals :o
 are memb]s ( a racial & e?nic m9ority  
gr\p1 z def9$ 9 section #agjg7;g7 ( !   
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #cjju-#f7;g774