,,iv  #aag? ,,congress  #a/ ,session    
,h4 ,,res4 #dbd  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #bj1 #bjba,mr4   
,g>cia ( ,cali=nia submitt$ ! foll[+    
resolution2 :i* 0 ref]r$ to ! ,committee
 on ,en]gy & ,comm]ce  ,,resolution     
,express+ support = ! designation (     
,june #a1 #bjba1 z ,batt5 ,disease      
,aw>5ess ,day4  ,:]eas ,batt5 disease is
 a family ( r>e g5etic disord]s ( !     
n]v\s sy/em t typically beg9s 9         
*ildhood2 ,:]eas !re are _m =ms ( ,batt5
 disease1 & ! mutations ( at lea/ #ad   
diff]5t g5es are kn[n to cause !        
disease2 ,:]eas symptoms ( ! fatal      
disease include vision loss lead+ to    
bl9dness1 p]sonality & behavioral       
*anges1 seizures1 intellectual decl9e1  
disruption & loss ( spee*1 dem5tia1 &   
o!r debilitat+ ailm5ts2 ,:]eas dep5d+ on
 ! age ( onset1 ,batt5 disease usually  
leads to premature dea? :5 ! pati5t is 9
 8 or h] late te5s or e>ly tw5ties2     
,:]eas ,batt5 disease occurs 9 an       
e/imat$ #b to #d ( e #ajj1jjj bir?s 9 ! 

,unit$ ,/ates2 ,:]eas due to ! _m       
diff]5t =ms ( ! disease1 !re is         
significant v>iability 9 ! age ( onset &
 symptom progression = ea* case2 ,:]eas 
on av]age1 ! process to rea* ! correct  
diagnosis = a pati5t ) a r>e disease    
c\ld take up to #g4f ye>s1 visits )     
num]\s physicians1 & multiple           
misdiagnoses2 ,:]eas !re is no kn[n cure
 = ,batt5 disease1 & ! lack ( ess5tial  
fund+ has h9d]$ sci5ti/s' ability to f9d
 a pot5tial treatm5t or cure2 & ,:]eas !
 ,f$]al ,gov]nm5t has n done en\gh to   
provide fund+ = r>e diseases1 & #ie     
p]c5t ( ! #g1jjj r>e diseases /ill h no 
,,fda-approv$ treatm5t3 ,n[1 !re=e1 be x
 ,t ! ,h\se ( ,repres5tatives--  7#a7   
supports ! designation ( a ,batt5       
,disease ,aw>5ess ,day2 &  7#b7 calls = 
m fund+ = rese>* to be done on pot5tial 
treatm5t & cures = r>e diseases4