,,iv #aag? ,,congress #a/ ,session ,h4 ,,res4 #cce ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,april #bj1 #bjba,mr4 ,rupp]sb]g] submitt$ ! foll[+ resolution2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,,resolution ,express+ support = ! designation ( ,may z ,ehl]s-,danlos ,syndrome ,aw>5ess ,mon? to increase ! k ( ?is little-kn[n1 pot5tially fatal1 g5etic disease4 ,:]eas ,ehl]s-,danlos ,syndrome repres5ts multiple g5etic disord]s involv+ mutations 9 connective tissue t are *>act]iz$ by loos5ess1 in/ability1 & dislocation ( ! jo9ts & fragile sk9 t easily bruises & sc>s2 ,:]eas !re are #ac types ( ,ehl]s-,danlos ,syndrome caus$ by g5etic defects 9 collag51 "o ( ! major /ructural compon5ts ( ! body2 ,:]eas x is e/imat$ t ! preval5ce ( all types ( ! syndrome affect at lea/ #a 9 #e1jjj p worldwide2 ,:]eas a network ( ,ehl]s-,danlos ,syndrome support gr\ps c help connect ^? manag+ life ) ! disease z well z bett] in=m ! heal? c>e community & ! public2 ,:]eas e>ly & accurate diagnosis c provide ! opportunity to create lifesav+ m$ical plans & ensure ! quality ( life2 ,:]eas !re is curr5tly no treatm5t = ,ehl]s-,danlos ,syndrome & no kn[n cure2 ,:]eas fur!r m$ical rese>* & aw>5ess br+ hope = treatm5t & a cure2 & ,:]eas ! mon? ( ,may w\ld be an appropriate mon? to designate z ,ehl]s-,danlos ,syndrome ,aw>5ess ,mon?3 ,n[1 !re=e1 be x ,t ! ,h\se ( ,repres5tatives-- 7#a7 supports ! designation ( ,ehl]s-,danlos ,syndrome ,aw>5ess ,mon?2 7#b7 honors ^? bravely suff]+ f ,ehl]s-,danlos ,syndrome2 & 7#c7 enc\rages sci5tific rese>* & fund+ to f9d a cure = ,ehl]s-,danlos ,syndrome4