,i #aagth ,,congress #ast ,session ,h4 ,r4 #igf ,,in ,,the ,,house ,,of ,,representatives ,february #aa1 #bjba,ms4 ,castor of ,florida 7for herself and ,ms4 ,underwood7 introduced the following bill2 which was referred to the ,committee on ,oversight and ,reform1 and in addition to the ,committee on ,energy and ,commerce1 for a period to be subsequently determined by the ,speaker1 in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned ,a ,,bill ,to amend the ,public ,health ,service ,act to expand1 enhance1 and improve applicable public health data systems used by the ,centers for ,disease ,control and ,prevention1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,ensuring ,transparent ,honest ,information on ,,covid-#ai ,act or the ,,ethic ,act4 #b4 ,required reporting by ,state1 local1 ,tribal1 or ,territorial governments regarding ,,covid-#ai 7a7 ,in general ,as a condition on receipt of funds through a covered grant or cooperative agreement1 a ,state1 local1 ,tribal1 or ,territorial government shall agree to direct the appropriate ,state1 local1 ,tribal1 or ,territorial governmental entity 7including any public health department thereof7 to report to the ,centers for ,disease ,control and ,prevention1 with respect to the jurisdiction involved and ,,covid-#ai-- 7#a7 on a daily basis1 the information listed in subsection 7d72 and 7#b7 on a weekly basis1 the information listed in subsection 7e74 7b7 ,tribal waiver 7#a7 ,review and disposition ,upon the receipt of a written request from a ,tribal government1 or consortia thereof1 for a waiver of the conditions specified in paragraphs 7#a7 and 7#b7 of subsection 7a71 the ,director of the ,centers for ,disease ,control and ,prevention shall1 not later than #cj days after receipt of such request1 approve or deny it4 7#b7 ,denials ,in the case of a denial of a request under paragraph 7#a71 the ,director of the ,centers for ,disease ,control and ,prevention shall-- 7,a7 provide to the requestor a written explanation of the reasons for the denial2 and 7,b7 provide the requestor with an opportunity to correct any deficiencies in the request4 7c7 ,covered grant or cooperative agreement ,for purposes of this section1 a covered grant or cooperative agreement is any grant or cooperative agreement awarded under any of the following laws 7including any amendment made thereby73 7#a7 ,the ,coronavirus ,preparedness and ,response ,supplemental ,appropriations ,act1 #bjbj 7,public ,law #aaf-abc74 7#b7 ,the ,families ,first ,coronavirus ,response ,act 7,public ,law #aaf-abg74 7#c7 ,the ,,cares ,act 7,public ,law #aaf-acf74 7#d7 ,the ,paycheck ,protection ,program and ,health ,care ,enhancement ,act 7,public ,law #aaf-aci74 7#e7 ,the ,consolidated ,appropriations ,act1 #bjba 7,public ,law #aaf-bfj74 7d7 ,daily reporting ,the information to be reported daily pursuant to subsection 7a77#a7 consists of the following1 disaggregated to the county level if applicable3 7#a7 ,demographic characteristics1 including1 in a de-identified1 disaggregated1 and stratified manner1 race1 ethnicity1 age1 sex1 geographic region1 and other relevant factors of individuals tested for or diagnosed with ,,covid-#ai1 to the extent such information is available4 7#b7 ,the number of adults with a confirmed case of ,,covid-#ai who are hospitalized in an intensive care bed4 7#c7 ,the number of adults with a suspected case of ,,covid-#ai who are hospitalized in an intensive care bed4 7#d7 ,the number of adults with a confirmed case of ,,covid-#ai who are hospitalized in an inpatient care bed4 7#e7 ,the number of adults with a suspected case of ,,covid-#ai who are hospitalized in an inpatient care bed4 7#f7 ,the number of children with a confirmed case of ,,covid-#ai who are hospitalized in an intensive care bed4 7#g7 ,the number of children with a suspected case of ,,covid-#ai who are hospitalized in an intensive care bed4 7#h7 ,the number of children with a confirmed case of ,,covid-#ai who are hospitalized in an inpatient care bed4 7#i7 ,the number of children with a suspected case of ,,covid-#ai who are hospitalized in an inpatient care bed4 7#aj7 ,out of the maximum number of beds for which hospitals are licensed to operate1 the percentage occupied by confirmed or suspected ,,covid-#ai patients4 7#aa7 ,total staffed hospital beds4 7#ab7 ,the numbers of diagnostic and serological tests administered for ,,covid-#ai1 disaggregated and stratified by-- 7,a7 the type of test 7molecular and antigen72 and 7,b7 the testing positivity rate of each type of test4 7#ac7 ,the median turnaround time for diagnostic tests stratified by molecular and antigen tests4 7#ad7 ,the percentage of new cases of ,,covid-#ai linked to at least one other case and1 if such new cases are part of a known outbreak1 identification of such outbreak4 7#ae7 ,the rate of transmission of ,,covid-#ai4 7#af7 ,the number of confirmed and probable deaths as a result of ,,covid-#ai1 de-identified and stratified by race1 ethnicity1 age1 sex1 geographic region1 and other relevant factors4 7#ag7 ,the number of residents in nursing homes and assisted living facilities with a suspected or confirmed case of ,,covid-#ai4 7#ah7 ,the number of residents in nursing homes and assisted living facilities who have died from ,,covid-#ai4 7#ai7 ,the number of staff in nursing homes and assisted living facilities with a suspected or confirmed case of ,,covid-#ai4 7#bj7 ,such other information as the ,director of the ,centers for ,disease ,control and ,prevention deems to be relevant4 7e7 ,weekly reporting ,the information to be reported weekly pursuant to subsection 7a77#b7 consists of the following1 disaggregated to the county level if applicable3 7#a7 ,new infections of health care workers not confirmed to have contracted ,,covid-#ai outside of the workplace4 7#b7 ,the median time between collection of specimens for diagnostic tests for ,,covid-#ai and isolation of cases4 7#c7 ,the percentage of new cases of ,,covid-#ai among quarantined contacts4 7#d7 ,the following information1 in a manner that is de-identified1 and is disaggregated and stratified by race1 ethnicity1 age1 sex1 geographic region1 and other relevant factors1 to the extent such information is available3 7,a7 ,new suspected and confirmed cases of ,,covid-#ai per #ajj1jjj individuals4 7,b7 ,the percent change in new suspected and confirmed cases of ,,covid-#ai per #ajj1jjj individuals4 7,c7 ,the number of ,,covid-#ai vaccine doses administered4 7,d7 ,the number of individuals receiving a first dose of ,,covid-#ai vaccine4 7,e7 ,the number of individuals completing a vaccination course for ,,covid-#ai4 7#e7 ,the number of ,,covid-#ai vaccine doses received by the reporting ,state1 local1 ,tribal1 or ,territorial government1 disaggregated by supplier4 7#f7 ,the number of nursing home and assisted living residents who have received a first dose of ,,covid-#ai vaccine4 7#g7 ,the number of nursing home and assisted living residents who have completed a vaccination course for ,,covid-#ai4 7#h7 ,such other information as the ,director of the ,centers for ,disease ,control and ,prevention deems to be relevant4 7f7 ,public posting of reported data ,on a daily basis1 the ,director of the ,centers for ,disease ,control and ,prevention shall make the information reported pursuant to this section1 excluding personally identifiable information1 publicly available on the website of the ,centers for ,disease ,control and ,prevention4 7g7 ,applicability ,the condition on funding in subsection 7a7 applies with respect to the obligation and expenditure by the ,federal ,government of funds through a covered grant or cooperative agreement on or after the date of enactment of this ,act1 including with respect to covered grants and cooperative agreements awarded before such date4 #c4 ,study examining public health data and infrastructure necessary during and after the ,,covid-#ai public health emergency 7a7 ,in general ,the ,secretary of ,health and ,human ,services 7in this section referred to as the ,secretary7 shall seek to enter into a contract with the ,national ,academies of ,sciences1 ,engineering1 and ,medicine 7referred to in this section as the ,national ,academies7 not later than #cj days after the date of enactment of this ,act1 under which the ,national ,academies agree to conduct a study with stakeholders from ,federal agencies1 ,state1 ,tribal1 ,territorial1 and local governments1 research institutions1 industry1 and nonprofit organizations that would review the current system for public health data infrastructure and reporting and provide recommendations on needed data and system improvements for future pandemics and ongoing public health needs4 7b7 ,submission of report ,the contract under subsection 7a7 shall require that the study under such subsection be completed1 and a report on the resulting recommendations be submitted to the ,secretary1 the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives1 not later than #ab months after the date the contract was executed4 7c7 ,study topics ,the contract under subsection 7a7 shall require the study under such subsection to-- 7#a7 review the current public health data systems and the reporting structure for ,federal1 ,state1 ,tribal1 ,territorial1 and local public health information1 including vital records2 7#b7 review current standards for reporting1 quality controls1 and transparency of the data2 7#c7 examine data gaps and barriers to timely and accurate reporting and identify ways to fill those gaps2 7#d7 examine how systems can be accessed and used by a wide range of users1 including external researchers2 7#e7 examine how different data systems interact and how different data sources can be integrated2 7#f7 examine nontraditional data sources or alternative data gathering methods that could be used to complement traditionally collected data2 7#g7 identify needed improvements to the public health data systems and structure1 especially with regard to the needs of ,tribal systems2 7#h7 identify core elements of a minimum data set that might be used for ,state population surveillance1 including demographic components that are necessary to ensure health equity in public health decision making2 7#i7 examine how surveillance systems can be explicitly designed to ensure underserved populations 7which may include racial and ethnic minorities1 immigrants1 individuals in nursing homes1 other institutionalized populations1 and individuals experiencing homelessness7 are included in reporting2 7#aj7 consider how traditional and nontraditional data might be used to promote health equity across the ,united ,states and reduce racial1 ,tribal1 and other demographic disparities2 7#aa7 examine data gaps and barriers to collecting1 analyzing1 and using demographic data to characterize the ,,covid-#ai pandemic for public health action and research to improve public health actions and identify ways to fill those gaps2 and 7#ab7 report on what is known based on existing data about how ,,covid-#ai is impacting subgroups of the population with respect to access to testing1 treatment1 and vaccination 7hospitalization and access to drugs and medical equipment71 and health outcomes 7morbidity and mortality74 7d7 ,disaggregation of data ,to the extent feasible1 the contract under subsection 7a7 shall require data to be disaggregated by race1 ethnicity1 age1 gender1 disability1 geography1 language1 socioeconomic status1 and other factors4 7e7 ,authorization of appropriations ,to carry out this section1 there is authorized to be appropriated #a1jjj1jjj1 to remain available until expended4