,i  #aag? ,,congress  #b;d ,session  ,h4
 ,r4 #hehe  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,july #bh1 #bjbb,mr4  
,tonko 7= himself1 ,mr4 ,bilirakis1     
,mrs4 ,c>olyn ,b4 ,maloney ( ,new ,york1
 ,mr4 ,upton1 ,mr4 ,higg9s ( ,new ,york1
 & ,mr4 ,mc,kinley7 introduc$ ! foll[+  
bill2 :i* 0 ref]r$ to ! ,committee on   
,en]gy & ,comm]ce  ,a ,,bill  ,to direct
 ! ,secret>y ( ,heal? & ,human ,s]vices 
to c>ry out a national project to prev5t
 & cure ,p>k9son's1 to be kn[n z !      
,national ,p>k9son's ,project1 & = o!r  
purposes4  #a4 ,%ort title ,?is ,act may
 be cit$ z ! ,national ,plan to ,end    
,p>k9son's ,act4  #b4 ,national         
,p>k9son's ,project  7a7 ,def9ition (   
,p>k9son's ,9 ?is section1 ! t]m        
,p>k9son's means-- 7#a7 ,p>k9son's      
disease2 &  7#b7 ,p>k9sonisms1 includ+  
multiple sy/em atrophy1 ,lewy body      
disease1 corticobasal deg5]ation1       
progressive supranucle> palsy1 &        
,p>k9son's-relat$ dem5tia4  7b7         
,e/abli%m5t ,! ,secret>y ( ,heal? &     

,human ,s]vices 79 ?is section ref]r$ to
 z ! ,secret>y7 %all c>ry out a national
 project to prev5t & cure ,p>k9son's1 to
 be kn[n z ! ,national ,p>k9son's       
,project 7ref]r$ to 9 ?is section z !   
,project74  7c7 ,activities c>ri$ out   
?r\gh project ,9 c>ry+ out ! ,project1 !
 ,secret>y %all-- 7#a7 create1 ma9ta91 &
 p]iodically update an integrat$        
national plan to prev5t & cure          
,p>k9son's2  7#b7 c>ry out ! annual     
assessm5t "u subsection 7d72  7#c7      
evaluate all ,f$]al programs relat$ to  
,p>k9son's1 includ+ budget reque/s &    
approvals2  7#d7 provide in=mation      
7includ+ an e/imate ( ! level ( ,f$]al  
inve/m5t necess>y to prev5t & cure      
,p>k9son's71 & coord9ation ( ,p>k9son's 
rese>* & s]vices1 across all ,f$]al     
ag5cies2  7#e7 accel]ate ! developm5t ( 
treatm5ts & o!r approa*es to prev5t1    
halt1 or rev]se ! c\rse (1 ,p>k9son's2  
7#f7 improve !-- 7,a7 e>ly diagnosis (  
,p>k9son's2 &  7,b7 coord9ation ( ! c>e 
& treatm5t ( individuals ) ,p>k9son's2  

7#g7 ensure ! inclusion ( populations at
 high] risk = ,p>k9son's1 or lea/ likely
 to receive a diagnosis or c>e ) respect
 to ,p>k9son's1 9 cl9ical1 rese>*1 &    
implem5t s]vice ef=ts to decrease heal? 
disp>ities ) respect to ,p>k9son's2     
7#h7 review ! impact ( ,p>k9son's on !  
physical1 m5tal1 & social heal? ( ^?    
liv+ ) ,p>k9son's & _! c>e p>tn]s2  7#i7
 review social det]m9ants ( heal?1      
div]sity1 equity1 & inclusion associat$ 
) ,p>k9son's2 &  7#aj7 coord9ate )      
int]national bodies to integrate & in=m 
! global mission to prev5t & cure       
,p>k9son's4  7d7 ,annual assessm5t ,n   
lat] ?an #ah mon?s aft] ! date (        
enactm5t ( ?is ,act1 & annually !reaft]1
 ! ,secret>y %all c>ry out an assessm5t 
( ! ,nation's progress 9 prep>+ = &     
respond+ to ! escalat+ burd5 (          
,p>k9son's1 includ+-- 7#a7 ! =mulation (
 recomm5dations = priority actions bas$ 
on ! assessm5t2  7#b7 a description ( ! 
/eps t h be5 or %\ld be tak5 to implem5t
 ! recomm5dations2 &  7#c7 su* o!r items

 z ! ,secret>y deems appropriate4  7e7  
,advisory c\ncil  7#a7 ,9 g5]al ,!      
,secret>y %all e/abli% & ma9ta9 an      
,advisory ,c\ncil on ,p>k9son's ,rese>*1
 ,c>e1 & ,s]vices 7ref]r$ to 9 ?is      
section z ! ,advisory ,c\ncil74  7#b7   
,memb]%ip  7,a7 ,f$]al memb]s ,!        
,advisory ,c\ncil %all be compris$ (    
div]se & inclusive repres5tatives f--   
7i7 ! ,c5t]s = ,disease ,control &      
,prev5tion2  7ii7 ! ,adm9i/ration on    
,ag+2  7iii7 ! ,c5t]s = ,m$ic>e         
,m$icaid ,s]vices2  7iv7 ! ,indian      
,heal? ,s]vice2  7v7 ! ,(fice ( !       
,director ( ! ,national ,in/itutes (    
,heal?2  7vi7 ! ,national ,in/itute (   
,neurological ,disord]s & ,/roke2  7vii7
 ! ,national ,in/itute ( ,environm5tal  
,heal? ,sci5ces2  7viii7 ! ,national    
,in/itute on ,ag+2  7ix7 ! ,national    
,sci5ce ,f\ndation2  7x7 ! ,dep>tm5t (  
,vet]ans ,affairs2  7xi7 ! ,food & ,drug
 ,adm9i/ration2  7xii7 ! ,dep>tm5t (    
,def5se2  7xiii7 ! ,environm5tal        
,protection ,ag5cy2  7xiv7 ! ,(fice (   

,m9ority ,heal?2 &  7xv7 o!r relevant   
ag5cies z det]m9$ by ! ,secret>y4  7,b7 
,non-,f$]al memb]s ,9 addition to !     
memb]s li/$ 9 subp>agraph 7,a71 !       
,advisory ,c\ncil %all include #ag exp]t
 memb]s f outside ! ,f$]al ,gov]nm5t1 to
 be appo9t$ by ! ,secret>y1 :i* memb]s  
%all include-- 7i7 #d ,p>k9son's pati5t 
advocates1 "o ( :om is liv+ ) "y-onset  
,p>k9son's2  7ii7 #b ,p>k9son's family  
c>egiv]s2  7iii7 #b heal? c>e provid]s2 
7iv7 #b repres5tatives ( ,/ate heal?    
dep>tm5ts2  7v7 #b biom$ical rese>*]s ) 
,p>k9son's-relat$ exp]tise 9 basic1     
translational1 cl9ical1 or drug         
developm5t sci5ce2  7vi7 #a movem5t     
disord] speciali/ :o treats ,p>k9son's  
pati5ts2  7vii7 #a dem5tia speciali/ :o 
treats ,p>k9son's pati5ts2 &  7viii7 #c 
repres5tatives1 "o f ea* ( #c nonpr(it  
organizations t h demon/rat$ exp]i5ce 9 
,p>k9son's rese>* or ,p>k9son's pati5t  
c>e & o!r s]vices4  7#c7 ,meet+s  7,a7  
,qu>t]ly meet+s ,! ,advisory ,c\ncil    
%all meet at lea/ once ea* qu>t]4  7,b7 

,annual rese>* meet+ ,! ,advisory       
,c\ncil %all conv5e an annual meet+ (   
,f$]al & non-,f$]al organizations to    
discuss ,p>k9son's rese>*4  7,c7 ,op5   
meet+s ,! meet+s ( ! ,advisory ,c\ncil  
%all be op5 to ! public4  7#d7 ,advice  
,! ,advisory ,c\ncil %all advise !      
,secret>y on ,p>k9son's-relat$ issues4  
7#e7 ,annual report ,n lat] ?an #ae     
mon?s aft] ! date ( enactm5t ( ?is ,act 
& annually !reaft]1 ! ,advisory ,c\ncil 
%all provide to ! ,secret>y & ,congress 
a report conta9+-- 7,a7 an evaluation ( 
all f$]ally fund$ ef=ts 9 ,p>k9son's    
rese>*1 prev5tion1 cl9ical c>e1 &       
in/itutional-1 home-1 & community-bas$  
programs & ! outcomes ( su* ef=ts2  7,b7
 recomm5dations = priority actions to   
exp&1 elim9ate1 coord9ate1 refocus1 or  
cond5se ,f$]al programs bas$ on ea*     
program's p]=mance1 mission1 & purpose2 
7,c7 recomm5dations to-- 7i7 r$uce !    
f9ancial impact ( ,p>k9son's on-- 7,i7 !
 ,m$ic>e program & o!r f$]ally fund$    
programs2 &  7,,ii7 families liv+ )     

,p>k9son's2  7ii7 improve heal?         
outcomes2  7iii7 prev5t ,p>k9son's2 &   
7iv7 elim9ate exposure to environm5tal  
trigg]s ( ,p>k9son's2 &  7,d7 an        
evaluation ( ! implem5tation1 includ+   
outcomes1 ( ! national plan "u          
subsection 7c77#a74  7#f7 ,t]m9ation ,! 
,advisory ,c\ncil %all t]m9ate at ! end 
( cal5d> ye> #bjce4  7f7 ,data %>+ ,!   
,secret>y may secure directly f any     
dep>tm5t or ag5cy ( ! ,unit$ ,/ates     
in=mation necess>y to enable ! ,secret>y
 to complete ! report "u subsection 7g74
 ,^u reque/ ( ! ,secret>y1 ! head ( t   
dep>tm5t or ag5cy %all furni% t         
in=mation to ! ,secret>y4  7g7 ,annual  
report ,! ,secret>y %all submit to !    
,congress-- 7#a7 an annual report t     
includes an evaluation ( all f$]ally    
fund$ ef=ts 9 ,p>k9son's rese>*1        
prev5tion1 diagnosis1 treatm5t1 cl9ical 
c>e1 & in/itutional-1 home-1 &          
community-bas$ programs & ! outcomes (  
su* ef=ts2  7#b7 an evaluation ( all su*
 programs bas$ on p]=mance1 mission1 &  

purpose2  7#c7 recomm5dations =-- 7,a7  
priority actions bas$ on ! evaluation   
conduct$ by ! ,secret>y & ! ,advisory   
,c\ncil to-- 7i7 r$uce ! f9ancial impact
 ( ,p>k9son's on-- 7,i7 ! ,m$ic>e       
program & o!r f$]ally fund$ programs2 & 
7,,ii7 families liv+ ) ,p>k9son's       
disease2  7ii7 improve heal? outcomes2  
7iii7 prev5t ,p>k9son's2 &  7iv7        
elim9ate exposure to environm5tal       
trigg]s ( ,p>k9son's2  7,b7 priority    
actions to improve all f$]ally fund$    
ef=ts 9 ,p>k9son's rese>*1 prev5tion1   
diagnosis1 treatm5t1 cl9ical c>e1 &     
in/itutional-1 home-1 & community-bas$  
programs2 &  7,c7 implem5tation /eps to 
address priority actions describ$ 9     
subp>agraphs 7,a7 & 7,b72 &  7#d7 an    
up-to-date v]sion ( ! national plan "u  
subsection 7c77#a74  7h7 ,sunset ,!     
section %all cease to be effective at ! 
end ( cal5d> ye> #bjce4