,i  #aagth ,,congress  #b;d ,session    
,h4 ,r4 #gfcj  ,,in ,,the ,,house ,,of  
,,representatives  ,april #bh1 #bjbb,mr4
 ,mc,caul 7for himself1 ,ms4 ,speier1   
,mr4 ,butterfield1 and ,mr4 ,kelly of   
,pennsylvania7 introduced the following 
bill2 which was referred to the         
,committee on ,energy and ,commerce  ,a 
,,bill  ,to maximize discovery1 and     
accelerate development and availability1
 of promising childhood cancer          
treatments1 and for other purposes4  #a4
 ,short title ,this ,act may be cited as
 the ,childhood ,cancer ,survivorship1  
,treatment1 ,access1 and ,research      
,reauthorization ,act of #bjbb or the   
,childhood ,cancer ,,star               
,reauthorization ,act of #bjbb4  #b4    
,reauthorizing and improving the        
,childhood ,,star ,act  7a7 ,children's 
cancer biorepositories ,section #dag;,e 
of the ,public ,health ,service ,act    
7#db ,u4,s4,c4 #bhe;a-#aa7 is amended-- 
7#a7 in subsection 7a7-- 7,a7 in        
paragraph 7#b77;,a71 by inserting before

 the period at the end of the second    
sentence the following3 1 and providing 
sample collection incentives for both   
solid tumor cancer and paired tissues   
for all pediatric cancers2  7,b7 in     
paragraph 7#i71 by striking ,childhood  
,cancer ,survivorship1 ,treatment1      
,access1 and ,research ,act of #bjah and
 inserting ,childhood ,cancer           
,survivorship1 ,treatment1 ,access1 and 
,research ,reauthorization ,act of      
#bjbb2  7,c7 by redesignating paragraph 
7#aj7 as paragraph 7#aa72 and  7,d7 by  
inserting after paragraph 7#i7 the      
following3  7#aj7 ,report on researcher 
access to children's cancer             
biorepository samples ,the ,director of 
,,nih shall1 not later than #b years    
after the date of enactment of the      
,childhood ,cancer ,survivorship1       
,treatment1 ,access1 and ,research      
,reauthorization ,act of #bjbb1 submit  
to ,congress a report on policy changes 
that would facilitate streamlining the  
approval process for researcher access  

to children's cancer biorepository      
samples1 with a special focus on        
lowering the regulatory burden before   
samples can be sent to investigators4  2
 and  7#b7 in subsection 7d71 by        
striking #bjai through #bjbc and        
inserting #bjbd through #bjbh4  7b7     
,cancer survivorship programs ,section  
#bja of the ,childhood ,cancer          
,survivorship1 ,treatment1 ,access1 and 
,research ,act of #bjah 7,public ,law   
#aae-ahj7 is amended-- 7#a7 in          
subsection 7a7-- 7,a7 in paragraph 7#a71
 by striking may make awards and        
inserting shall make awards2 and  7,b7  
by adding at the end the following3     
7#d7 ,consideration ,in developing1     
studying1 and evaluating model systems  
pursuant to this subsection1 recipients 
of awards under this subsection shall   
give particular consideration to the    
report issued by the ,agency for        
,healthcare ,research and ,quality in   
,february #bjbb1 titled ,models of ,care
 ,that ,include ,primary ,care for      

,adult ,survivors of ,childhood ,cancer3
 ,a ,realist ,review4  2 and  7#b7 in   
subsection 7b71 in paragraphs 7#a7 and  
7#b71 by striking date of enactment of  
this ,act each place it appears and     
inserting date of enactment of the      
,childhood ,cancer ,survivorship1       
,treatment1 ,access1 and ,research      
,reauthorization ,act of #bjbb4  7c7    
,survivorship electronic health records 
,the ,secretary of ,health and ,human   
,services shall coordinate with the     
,office of the ,national ,coordinator   
for ,health ,information to prepare a   
report on the role that tailored        
survivorship electronic health records  
can play in life-long health care for   
childhood cancer survivors1 with a      
special focus on survivors who face     
unique lifelong health needs and late   
effects as they transition to primary   
care4 ,such report shall be submitted to
 ,congress not later than #b years after
 the date of enactment of this ,act4    
7d7 ,sense of ,congress regarding the   

creation of a childhood cancer medical  
code ,it is the sense of ,congress that 
the ,national ,center for ,health       
,statistics at the ,centers for ,disease
 ,control and ,prevention and the       
,centers for ,medicare  ,medicaid       
,services should consider adding a new  
,childhood ,cancer ,code to the         
,international ,classification of       
,diseases 7,,icd7 system for the purpose
 of facilitating access to existing     
insurance coverage of childhood cancer  
patients and survivors1 as appropriate4