,i #aag? ,,congress #b;d ,session ,h4 ,r4 #gdhc ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,april #g1 #bjbb,mr4 ,res*5?al] 7= himself & ,mr4 ,trone7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to direct ! ,secret>y ( ,heal? & ,human ,s]vices to conduct a /udy on ! direct & indirect co/s ( s]i\s m5tal illness = nongov]nm5tal entities1 ! ,f$]al ,gov]nm5t1 & ,/ate1 local1 & ,tribal gov]nm5ts1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ,co/ ( ,m5tal ,illness ,act ( #bjbb4 #b4 ,/udy on ! co/s ( s]i\s m5tal illness 7a7 ,9 g5]al ,n lat] ?an #ahj days aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices1 9 consultation ) ! ,assi/ant ,secret>y = ,plann+ & ,evaluation1 ! ,attorney ,g5]al ( ! ,unit$ ,/ates1 ! ,secret>y ( ,labor1 & ! ,secret>y ( ,h\s+ & ,urban ,developm5t1 %all conduct a /udy on ! direct & indirect co/s ( s]i\s m5tal illness ) respect to-- 7#a7 nongov]nm5tal entities2 & 7#b7 ! ,f$]al ,gov]nm5t & ,/ate1 local1 & ,tribal gov]nm5ts4 7b7 ,cont5t ,! /udy "u subsection 7a7 %all consid] ea* ( ! foll[+3 7#a7 ,! co/s ( ! heal? c>e sy/em = all facilities & heal? s]vices1 includ+-- 7,a7 public & private inpati5t hospitals1 outpati5t heal? c>e1 & home heal? c>e2 7,b7 (fice-bas$ physician visits2 7,c7 prescription drugs & digital !rapeutics2 7,d7 em]g5cy room visits2 7,e7 sub/ance use treatm5t2 7,f7 skill$ nurs+ & long-t]m c>e facilities = resid5tial1 cu/odial1 & g5]al heal? c>e2 7,g7 ) respect to ! co/s describ$ 9 subp>agraphs 7,a7 ?r\gh 7,f71 out-(-pocket co/s & co/s = diff]5t types ( behavioral heal? & psy*iatric illness2 & 7,h7 o!r pr(essional heal? s]vices4 7#b7 ,! co/s ( homelessness1 includ+-- 7,a7 homeless %elt]s2 7,b7 /reet outrea* activities2 7,c7 crisis response c5t] visits2 & 7,d7 o!r supportive s]vices4 7#c7 ,! co/s ( /ructur$ resid5tial facilities & o!r supportive h\s+ = resid5tial & cu/odial c>e s]vices4 7#d7 ,! co/s ( law en=cem5t enc\nt]s & enc\nt]s ) ! crim9al ju/ice sy/em1 includ+-- 7,a7 enc\nt]s t d & d n result 9 an arre/2 7,b7 inve/igat+ a crime & judicial proce$+s1 includ+ ! process ( s5t5c+2 7,c7 s]vices provid$ by police (fic]s1 %]iff deputies1 police dep>tm5ts & %]iff (fices1 & judicial /aff 7includ+ public def5d]s1 prosecutors1 & private attorneys72 7,d7 s]vices provid$ by public in/itutions 7includ+ local & c\nty jails1 ,/ate prisons1 & paid legal gu>dians72 7,e7 public safety co/s to transport an individual ) a s]i\s m5tal illness to receive m5tal heal? or sub/ance use treatm5t s]vices or be inc>c]at$ 7includ+ vehicle miles & p]sonnel exp5ses72 7,f7 ) respect to inmates ) a s]i\s m5tal illness1 inc>c]ation co/s 9 ,f$]al prison1 ,/ate prison1 & local jails 7includ+ resid5tial1 cu/odial1 & on-site & (f-site heal? c>e72 & 7,g7 solit>y conf9em5t1 security1 & o!r simil> co/s4 7#e7 ,! co/s ( address+ s]i\s m5tal illness z a disability 9 ! workplace1 includ+-- 7,a7 r$uc$ wages = individuals ) a s]i\s m5tal illness :o are employ$2 & 7,b7 ! e/imat$ co/s attributable to-- 7i7 ! nationwide unemploym5t rate = individuals ) a s]i\s m5tal illness2 7ii7 b5efits payable on ! basis ( disability to individuals ) a s]i\s m5tal illness-- 7,i7 "u title ,,ii or ,,xvi ( ! ,social ,security ,act 7#db ,u4,s4,c4 #dja et seq41 #acha et seq472 or 7,,ii7 f a ,/ate or o!r gov]nm5tal entity2 or 7iii7 to ! ext5t feasible1 lo/ lifetime productivity due to disability4 7#f7 ,) respect to family memb]s & c>egiv]s1 ! co/s ( c>+ = an individual ) a s]i\s m5tal illness1 includ+-- 7,a7 ! co/ ( unpaid labor2 7,b7 additional heal? c>e co/s associat$ ) provid+ ongo+ c>e = an individual ) a s]i\s m5tal illness1 includ+ high] heal? c>e co/s result+ f /ress & anxiety2 7,c7 tak+ leave f "w2 & 7,d7 out-(-pocket co/s incurr$ :ile c>+ = su* individual4 7#g7 ,co/s ) respect to fund+ = grants or coop]ative agreem5ts = programs or s]vices = basic1 translational1 & appli$ rese>* = individuals ) a s]i\s m5tal illness4 7#h7 ,! co/s ( work=ce developm5t & tra9+ = p]sonnel t int]act ) individuals ) a s]i\s m5tal illness1 & insurance = su* developm5t & tra9+1 includ+ heal? c>e work]s1 social s]vice employees1 law en=cem5t1 & fir/ respond]s4 7#i7 ,o!r co/s = programs & s]vices adm9i/]$ by ! ,f$]al ,gov]nm5t or ,/ate1 ,tribal1 or local gov]nm5ts4 7c7 ,data disaggregation ,9 conduct+ ! /udy "u subsection 7a71 ! ,secret>y %all 7to ! ext5t feasible7-- 7#a7 disaggregate data by-- 7,a7 co/s to nongov]nm5tal entities1 ! ,f$]al ,gov]nm5t1 & ,/ate1 local1 & ,tribal gov]nm5ts2 7,b7 types ( s]i\s m5tal illnesses & m$ical *ronic diseases common 9 pati5ts ) a s]i\s m5tal illness2 & 7,c7 demographic *>act]i/ics1 includ+ race1 e?nicity1 sex1 age 7includ+ p$iatric subgr\ps71 & o!r *>act]i/ics det]m9$ by ! ,secret>y2 & 7#b7 include an e/imate (-- 7,a7 ! total numb] ( individuals ) a s]i\s m5tal illness 9 ! ,unit$ ,/ates1 includ+ 9 traditional & nontraditional h\s+2 & 7,b7 tak+ into acc\nt ! in=mation collect$ pursuant to section #c7;b77#c71 ! p]c5tage ( su* individuals 9-- 7i7 homeless %elt]s2 7ii7 p5al facilities1 includ+ ,f$]al prisons1 ,/ate prisons1 & c\nty & municipal jails2 & 7iii7 nurs+ facilities4 7d7 ,report ,n lat] ?an #b ye>s aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y %all-- 7#a7 submit to ! ,congress a report conta9+ ! results ( ! /udy conduct$ "u ?is section2 & 7#b7 make su* report publicly available4 7e7 ,def9itions ,9 ?is section3 7#a7 ,secret>y ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices4 7#b7 ,s]i\s m5tal illness ,! t]m s]i\s m5tal illness means a m5tal1 behavioral1 or emotional disord] result+ 9 a s]i\s functional impairm5t t sub/antially int]f]es ) or limits "o or m major life activities1 includ+ ! foll[+3 7,a7 ,s*izophr5ia1 includ+ s*izoaffective disord] & o!r relat$ psy*osis4 7,b7 ,s*izoaffective disord]4 7,c7 ,p]si/5t mood disord]1 includ+ bipol> disord] ,i & ,,ii4 7,d7 ,major depressive disord]4 7,e7 ,any o!r su* m5tal1 behavioral1 or emotional disord]1 z det]m9$ by ! ,secret>y4 7f7 ,au?orization ( appropriations ,!re is au?oriz$ to be appropriat$ to ! ,secret>y to c>ry out ?is section #c1ejj1jjj = ea* ( fiscal ye>s #bjbc & #bjbd4 #c4 ,s*izophr5ia surveillance survey 7a7 ,9 g5]al ,! ,secret>y ( ,heal? & ,human ,s]vices 79 ?is section ref]r$ to z ! ,secret>y71 act+ ?r\gh ! ,assi/ant ,secret>y = ,m5tal ,heal? & ,sub/ance ,use1 & 9 coord9ation ) ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,director ( ! ,national ,in/itute ( ,m5tal ,heal?1 %all-- 7#a7 conduct a surveillance survey to collect ! in=mation describ$ 9 subsection 7b7 ab\t individuals ) s*izophr5ia 9 ! ,unit$ ,/ates2 & 7#b7 n less ?an e #e ye>s1 update su* survey4 7b7 ,cont5t ,9 c>ry+ out subsection 7a71 ! ,secret>y %all collect-- 7#a7 to ! ext5t practicable1 in=mation relat+ to individuals ) s*izophr5ia1 su* z-- 7,a7 demographics1 su* z age1 race1 e?nicity1 sex1 geographic location1 family hi/ory1 & o!r in=mation z appropriate2 7,b7 risk factors t may be associat$ ) s*izophr5ia su* z environm5tal risk factors & o!r in=mation z appropriate2 & 7,c7 av]age age at ! "t ( initial diagnosis & "t lapses1 if any1 betwe5 ! initial diagnosis & ! initiation ( m5tal heal? c>e2 7#b7 to ! ext5t practicable1 in=mation on ! heal? /atus ( individuals ) s*izophr5ia1 includ+-- 7,a7 mortality & morbidity rates2 7,b7 incid5ces ( comorbid *ronic diseases1 includ+ diabetes1 c>diac conditions1 emphysema1 cirrhosis1 ,,hiv_/,,aids1 & hepatitis ,c2 & 7,c7 ! frequ5cy ( hospital em]g5cy dep>tm5t utilization2 & 7#c7 ! p]c5tage ( individuals ) s*izophr5ia 9-- 7,a7 homeless %elt]s2 7,b7 p5al facilities1 includ+ ,f$]al prisons1 ,/ate prisons1 & c\nty & municipal jails2 7,c7 nurs+ facilities2 & 7,d7 inpati5t hospitals4 7c7 ,consultation ,9 c>ry+ out ?is section1 ! ,secret>y %all consult ) individuals ) appropriate exp]tise1 :i* may include-- 7#a7 epidemiologi/s ) exp]i5ce 9 m5tal heal? conditions surveillance2 & 7#b7 repres5tatives ( national volunt>y heal? association & nonpr(it citiz5s organizations t-- 7,a7 focus on s*izophr5ia & relat$ psy*otic conditions2 & 7,b7 h exp]i5ce 9 rese>*1 c>e1 & pati5t s]vices4 7d7 ,coord9ation ,9 c>ry+ out ?is section1 ! ,secret>y %all-- 7#a7 coord9ate ) ! ,national ,neurological ,conditions ,surveillance ,sy/em "u section #cii,s-#a ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;g-#g;a7 to det]m9e any ov]lap betwe5-- 7,a7 individuals ) s*izophr5ia c\nt$ = purposes ( ! survey "u ?is section2 & 7,b7 individuals ) neurological conditions id5tifi$ by ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion = purposes ( ! ,national ,neurological ,conditions ,surveillance ,sy/em2 & 7#b7 coord9ate ) o!r ,f$]al ag5cies1 includ+ ! ,social ,security ,adm9i/ration1 ! ,dep>tm5t ( ! ,treasury1 & ! ,dep>tm5t ( ,labor1 to use adm9i/rative data1 to ! ext5t feasible1 to provide in=mation = ! survey au?oriz$ by subsection 7a74 7e7 ,grants ,! ,secret>y may aw>d grants to1 or ent] into contracts or coop]ative agreem5ts )1 public or private nonpr(it entities to c>ry out activities 9 fur!rance ( ! surveillance survey "u ?is section1 includ+ ! conv5+ ( /akehold] meet+s4 7f7 ,report+ 7#a7 ,9 g5]al ,! ,secret>y %all submit to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate-- 7,a7 n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 a report conta9+ f9d+s ( ! surveillance survey "u ?is section1 includ+ aggregate in=mation collect$ & epidemiological analyses1 z appropriate2 & 7,b7 n less ?an e #e ye>s :5 an updat$ survey is conduct$ pursuant to subsection 7a77#b71 an updat$ report4 7#b7 ,po/+ ,! ,secret>y %all po/ ! report "u p>agraph 7#a7 & ea* update "u p>agraph 7#b7 on ! public website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices4 7g7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ej1jjj1jjj = ! p]iod ( fiscal ye>s #bjbc ?r\gh #bjbg4