,i #aag? ,,congress #b;d ,session ,h4 ,r4 #gbfe ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,m>* #bi1 #bjbb ,mr4 ,coh5 7= himself1 ,mr4 ,fitzpatrick1 & ,mr4 ,cleav]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to au?orize ! ,secret>y ( ,heal? & ,human ,s]vices to c>ry out a program ( rese>* relat$ to c]ebral palsy1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,c]ebral ,palsy ,rese>* ,program ,au?orization ,act ( #bjbb4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,c]ebral palsy is ! mo/ common motor disability 9 *ildr51 affect+ m ?an #a1jjj1jjj ,am]icans1 #a 9 #cde *ildr51 & ov] #ag1jjj1jjj p worldwide4 7#b7 ,9 ! ,unit$ ,/ates1 m ?an #aj1jjj babies are diagnos$ ) c]ebral palsy ea* ye>4 7#c7 ,c]ebral palsy is a broad gr\p ( disord]s disrupt+ a p]son's ability to move1 sit1 /&1 walk1 talk1 & use _! h&s4 7#d7 ,9 m ?an #hj p]c5t ( cases1 ! cause ( c]ebral palsy is unkn[n4 7#e7 ,sev5ty-five p]c5t ( individuals ) c]ebral palsy also h #a or m additional developm5tal disabilities includ+ epilepsy1 intellectual disabilities1 communication problems1 le>n+ & att5tion disord]s1 *ronic pa91 autism1 he>+ disord]s1 & visual impairm5ts or bl9dness4 7#f7 ,*ildr5 ) c]ebral palsy are m likely to die f ! flu & relat$ viruses1 includ+ ,,covid-#ai1 ?an *ildr5 )\t neurologic disord]s4 7#g7 ,!re is no cons5sus ( be/ practices = a p]son ) c]ebral palsy at ! "t ( diagnosis or ?r\gh ! lifespan4 7#h7 ,x is e/imat$ t ! lifetime c>e & m$ical co/s = all p ) c]ebral palsy :o 7 born 9 #bjjj alone w total m ?an #ac1ejj1jjj1jjj4 ,! loss ( productivity & lo/ wages ( ! individual ) c]ebral palsy & _! family memb]s is m ?an #ce1jjj1jjj1jjj4 7#i7 ,!re is no kn[n cure = c]ebral palsy1 & 9 mo/ cases1 x is n prev5table4 #c4 ,c]ebral palsy rese>* ,title ,,iii ( ! ,public ,heal? ,s]vice ,act is am5d$ by ins]t+ aft] section #cag;,c ( su* ,act 7#db ,u4,s4,c4 #bdg;b-#d7 ! foll[+ new section3 #cag;,c-#a4 ,c]ebral palsy rese>* 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 & 9 consultation ) o!r ,f$]al ag5cies & p>tn]s1 %all c>ry out 7directly or ?r\gh grants or contracts7 a program ( rese>* relat$ to c]ebral palsy1 includ+-- 7#a7 rese>* on-- 7,a7 ! mo/ promis+ av5ues ( c]ebral palsy diagnosis & treatm5t2 7,b7 factors t may mitigate ! preval5ce ( c]ebral palsy2 & 7,c7 ! heal? c>e & societal co/s ( c]ebral palsy2 7#b7 public heal? surveillance2 & 7#c7 o!r rese>* t ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion det]m9es to be appropriate to provide education & tra9+ = heal? pr(essionals & ! g5]al public = purposes ( diagnos+1 treat+1 & expla9+ ! causes1 preval5ce1 & lifelong effects ( c]ebral palsy4 7b7 ,te*nical assi/ance ,! ,secret>y may 7directly or ?r\gh grants or contracts7 provide te*nical assi/ance to public & nonpr(it private entities 9 fur!rance ( rese>* "u ?is section4 7c7 ,evaluations ,! ,secret>y %all 7directly or ?r\gh grants or contracts7 provide = ! evaluation ( activities "u subsection 7a7 9 ord] to det]m9e ! ext5t to :i* su* activities h be5 effective1 includ+ evaluation ( ! effects ( su* activities on v>i\s demographic populations4 7d7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #e1jjj1jjj = ea* ( fiscal ye>s #bjbc ?r\gh #bjbh4 4 #d4 ,updat+ ,/rategic ,plan = ,c]ebral ,palsy ,rese>* 7a7 ,9 g5]al ,n lat] ?an #a ye> aft] ! date ( enactm5t ( ?is ,act1 ! ,director ( ! ,national ,in/itutes ( ,heal?1 act+ ?r\gh ! ,director ( ! ,national ,in/itute ( ,neurological ,disord]s & ,/roke & ! ,director ( ! ,eunice ,k5n$y ,%riv] ,national ,in/itute ( ,*ild ,heal? & ,human ,developm5t-- 7#a7 %all conduct a /rategic work%op ) key /akehold]s to provide updates on promis+ rese>* p]=m$ to date ) ! goal ( fur!r ref9+ ! specific opportunities t 7 id5tifi$ 9 ! ,,n9ds_/,,ni*d ,/rategic ,plan = ,c]ebral ,palsy ,rese>* dat$ ,septemb] #cj1 #bjag 7or any successor /rategic plan72 7#b7 %all update su* /rategic plan 7or any successor /rategic plan7 to include-- 7,a7 new rese>* opportunities t are id5tifi$ 9 ! work%op "u p>agraph 7#a72 7,b7 a process & timel9e = solicit+ proposals = rese>* on c]ebral palsy2 7,c7 implem5tation & cl9ical /udies aim$ at e>ly detection & int]v5tion1 comp>ative effectiv5ess1 & functional outcomes2 & 7,d7 surveillance2 7#c7 may include 9 su* updat$ /rategic plan a focus on basic & translational discov]ies1 includ+ ) respect to-- 7,a7 neuroprotective m$ic9e2 7,b7 reg5]ative m$ic9e & me*anisms ( neuropla/icity2 & 7,c7 g5omics2 & 7#d7 %all publi% ! updat$ /rategic plan4 7b7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ejj1jjj = ea* ( fiscal ye>s #bjbc & #bjbd4