,,ib ,union ,cal5d> ,no4 #aea #aag? ,,congress #a/ ,session ,h4 ,r4 #edhg ,report ,no4 #aag-baj ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,octob] #e1 #bjba,ms4 ,h]r]a ,beutl] 7= h]self1 ,ms4 ,roybal-,all>d1 ,ms4 ,ca/or ( ,florida1 & ,mr4 ,mull97 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,decemb] #h1 #bjba;,additional sponsors3 ,mr4 ,griffi?1 ,mr4 ,fitzpatrick1 ,ms4 ,kelly ( ,ill9ois1 ,mr4 ,payne1 ,ms4 ,jacobs ( ,cali=nia1 ,mr4 ,cr[1 ,mr4 ,gonzalez ( ,ohio1 ,ms4 ,craig1 ,ms4 ,cl>ke ( ,new ,york1 ,mr4 ,bacon1 ,ms4 ,norton1 ,mrs4 ,h9son1 ,mr4 ,kilm]1 ,mr4 ,delgado1 ,mrs4 ,axne1 ,mr4 ,got!im]1 ,ms4 ,williams ( ,georgia1 & ,ms4 ,wexton ,decemb] #h1 #bjba,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be printed,strike out all aft] ! enact+ clause & ins]t ! "p pr9t$ 9 italic,for text ( introduc$ bill1 see copy ( bill z introduc$ on ,octob] #e1 #bjba ,a ,,bill ,to improve rese>* & data collection on /illbir?s1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,/illbir? ,heal? ,improvem5t & ,education = ,autumn ,act ( #bjba or ! ,,%9e = ,autumn ,act ( #bjba4 #b4 ,/illbir? rese>* & data collection improvem5ts ,title ,,iii ( ! ,public ,heal? ,s]vice ,act is am5d$ by ins]t+ aft] section #cag,l-#a ( su* ,act 7#db ,u4,s4,c4 #bdg;b-#ac;a7 ! foll[+3 #cag,l-#b4 ,/illbir? rese>* & data collection improvem5ts 7a7 ,/illbir? surveillance & risk factor /udies 7#a7 ,9 g5]al ,! ,secret>y may aw>d grants to ,/ates = purposes (-- 7,a7 conduct+ surveillance & collect+ data ) respect to /illbir?s2 7,b7 build+ ,/ate & local public heal? capacity to assess /illbir? data2 & 7,c7 collect+ & report+ data on /illbir? risk factors1 includ+ any quantifiable outcomes ) respect to su* risk factors4 7#b7 ,au?orization ( appropriations ,to c>ry out ?is subsection1 !re is au?oriz$ to be appropriat$ #e1jjj1jjj = ea* ( fiscal ye>s #bjbb ?r\gh #bjbf4 7b7 ,guidel9es & educational aw>5ess mat]ials 7#a7 ,9 g5]al ,! ,secret>y %all-- 7,a7 issue guidel9es to ,/ate dep>tm5ts ( heal? & ,/ate & local vital /ati/ics units on-- 7i7 collect+ data on /illbir? f heal? c>e provid]s1 & ) ! cons5t ( ! family involv$1 includ+ any su* data ) respect to ! cl9ical hi/ory1 po/mortem exam9ation1 & plac5tal pa?ology2 7ii7 %>+ su* data ) ,f$]al ag5cies det]m9$ appropriate by ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion2 & 7iii7 improv+ processes & tra9+ relat$ to /illbir? data collection & report+ to ensure /&>dization & complet5ess ( data2 & 7,b7 develop1 & make publicly available1 educational aw>5ess mat]ials on /illbir?s4 7#b7 ,consultation ,9 c>ry+ out p>agraph 7#a71 ! ,secret>y may consult )-- 7,a7 national heal? c>e pr(essional associations2 7,b7 national associations repres5t+ ,/ate & local public heal? (ficials2 7,c7 organizations t assi/ families ) burial support & b]eavem5t s]vices2 7,d7 nurses & nurse practition]s2 7,e7 ob/etricians & gynecologi/s2 7,f7 p$iatricians2 7,g7 mat]nal-fetal m$ic9e speciali/s2 7,h7 midwives2 7,i7 m5tal heal? pr(essionals2 7,j7 /ati/icians2 7,k7 individuals :o h exp]i5c$ a /illbir?2 & 7,l7 advocacy organizations repres5t+ su* individuals4 7#c7 ,au?orization ( appropriations ,to c>ry out ?is subsection1 !re is au?oriz$ to be appropriat$ #a1jjj1jjj = ea* ( fiscal ye>s #bjbb ?r\gh #bjbf4 7c7 ,vital /ati/ics unit def9$ ,9 ?is section1 ! t]m vital /ati/ics unit means ! entity t is responsible = ma9ta9+ vital records = a ,/ate1 or a political subdivision ( su* ,/ate1 includ+ (ficial records ( live bir?s1 dea?s1 fetal dea?s1 m>riages1 divorces1 & annulm5ts4 4 #c4 ,p]9atal pa?ology fell[%ips ,! ,public ,heal? ,s]vice ,act is am5d$ by ins]t+ aft] section #aabb ( su* ,act 7#db ,u4,s4,c4 #cjj;c-#ab7 ! foll[+3 #aabc4 ,improv+ p]9atal pa?ology 7a7 ,9 g5]al ,! ,secret>y %all e/abli% & implem5t1 or incorporate into an exi/+ tra9+ program1 a ,p]9atal ,pa?ology ,fell[%ip ,program or a ,po/doctoral ,rese>* ,fell[%ip on ,factors ,associat$ ) ,/illbir? ,program to-- 7#a7 provide tra9+ 9 p]9atal autopsy pa?ology2 7#b7 conduct rese>* on1 & improve data collection ?r\gh fetal autopsies ) respect to1 /illbir?2 & 7#c7 address *all5ges 9 /illbir? education1 rese>*1 & data collection4 7b7 ,au?orization ( appropriations ,!re are au?oriz$ to be appropriat$ to c>ry out ?is section #c1jjj1jjj = ea* ( fiscal ye>s #bjbb ?r\gh #bjbf4 4 #d4 ,reports 7a7 ,educational guidel9es report 7#a7 ,9 g5]al ,n lat] ?an five ye>s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all publi% on a public website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices a report ) educational guidel9es on /illbir? & /illbir? risk factors4 7#b7 ,cont5ts ,su* report %all include1 to ! ext5t practicable & appropriate1 ! guidel9es issu$ & educational aw>5ess mat]ials develop$ "u section #cag,l-#b ( ! ,public ,heal? ,s]vice ,act1 z add$ by section #b ( ?is ,act4 7b7 ,progress report ,n lat] ?an five ye>s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all submit to ! ,congress a compreh5sive report on ! progress & effectiv5ess ( ! ,p]9atal ,pa?ology ,fell[%ip ,program e/abli%$ "u section #aabc ( ! ,public ,heal? ,s]vice ,act1 z add$ by section #c ( ?is ,act4 ,decemb] #h1 #bjba,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$