,i  #aag? ,,congress  #a/ ,session  ,h4 
,r4 #bged  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,april #bb1 #bjba,mr4 
,bey] 7= himself & ,mr4 ,b]gman7        
introduc$ ! foll[+ bill2 :i* 0 ref]r$ to
 ! ,committee on ,en]gy & ,comm]ce1 & 9 
addition to ! ,committee on ,ways &     
,means1 = a p]iod to be subsequ5tly     
det]m9$ by ! ,speak]1 9 ea* case =      
consid]ation ( su* provisions z fall )9 
! jurisdiction ( ! committee conc]n$  ,a
 ,,bill  ,to au?orize ! ,pati5t-,c5t]$  
,outcomes ,rese>* ,tru/ ,fund to fund   
rese>* ( ! symptoms ( ,,covid-#ai1 & =  
o!r purposes4  #a4 ,%ort title ,?is ,act
 may be cit$ z ! ,,covid-#ai ,long      
,haul]s ,act4  #b4 ,au?orization ,to    
,fund ,rese>* ,( ,! ,long-,t]m ,symptoms
 ,( ,,covid-#ai ,by ,! ,pati5t-,c5t]$   
,outcomes ,rese>* ,tru/ ,fund  7a7 ,9   
g5]al ,! ,pati5t-,c5t]$ ,outcomes       
,rese>* ,tru/ ,fund "u section #aaha ( !
 ,social ,security ,act 7#db ,u4,s4,c4  
#acbj;e7b77 %all fund rese>* describ$ 9 
subsection 7b74  7b7 ,rese>* describ$ ,=

 purposes ( subsection 7a71 rese>*      
describ$ 9 ?is subsection %all include--
 7#a7 prior to creat+ a pati5t regi/ry  
describ$ 9 p>agraph 7#b71 survey exi/+  
pati5t regi/ries t include individuals  
exp]i5c+ po/-acute sequelae (           
,,covid-#ai 79 ?is section1 ref]r$ to z 
,,pasc72  7#b7 creat+ a pati5t regi/ry =
 ^? ) ,,covid-#ai ) in=mation t-- 7,a7  
conta9s !-- 7i7 symptoms t arise :ile an
 individual is initially infect$ )      
,,covid-#ai & t resolve ov] "t2  7ii7   
symptoms t arise :ile an individual is  
initially infect$ ) ,,covid-#ai & t     
ext5d beyond ! resolution ( initial     
symptoms2  7iii7 symptoms t arise aft]  
an individual is initially infect$ )    
,,covid-#ai & t endure & t ! cl9ician ( 
su* individual has reason to suspect 7  
relat$ to ! ,,covid-#ai diagnosis2  7iv7
 symptoms t arise 9 an individual t may 
be relat$ to ,,covid-#ai b a diagnosis (
 ,,covid-#ai 0 n obta9$ & _c be id5tifi$
 due to a lack ( antibodies1 false      
negative te/ results1 or lack ( access  

to timely te/+2  7v7 treatm5ts (        
individuals aft] prim>y diagnosis to    
,,covid-#ai & ! effectiv5ess ( su*      
treatm5ts disaggregat$ by age1 g5d]1    
race or e?nicity1 & co-morbidities &    
relat$ po/-viral illnesses ov]lapp+ )   
,,pasc2 &  7vi7 any o!r relevant        
que/ions or issues relat$ to individuals
 :o exp]i5ce a diagnosis (1 treatm5t =1 
& managem5t ( c>e ) ,,covid-#ai1 ,,pasc1
 or relat$ po/-viral illnesses ov]lapp+ 
) ,,pasc2 &  7,b7 syn!sizes in=mation   
relat+ to individuals exp]i5c+ po/-acute
 sequelae ( ,,covid-#ai id5tifi$ f !    
survey describ$ 9 p>agraph 7#a7 &       
in=mation "u ! pati5t regi/ry describ$ 9
 p>agraph 7#b72 &  7#c7 outrea* &       
inclusion 7z appropriate7 individuals f 
communities ) ,,pasc1 traditional heal? 
#c disp>ities & inequities & relat$     
po/-viral illnesses ov]lapp+ ) ,,pasc4  
7c7 ,report ,n lat] ?an #a ye> aft] !   
e/abli%m5t ( ! syn!siz$ pati5t regi/ry  
describ$ 9 subsection 7a77#b71 &        
annually !reaft]1 ! ,pati5t-,c5t]$      

,outcomes ,rese>* ,in/itute %all submit 
data1 f9d+s1 & in=mation ) respect to ! 
/atus ( ! pati5t regi/ry 7includ+       
progress1 b>ri]s1 & issues7 to ,congress
 & ! ,presid5t4  7d7 ,au?orization (    
appropriations ,!re is h]eby au?oriz$   
#cj1jjj1jjj = fiscal ye> #bjbb to c>ry  
out ?is section1 :i* %all rema9         
available until exp5d$4  #c4 ,rese>* ,on
 ,unit$ ,/ates ,heal? ,c>e ,sy/em's     
,response ,to ,long-,t]m ,symptoms ,(   
,covid-#ai  7a7 ,9 g5]al ,! ,secret>y ( 
,heal? & ,human ,s]vices1 act+ ?r\gh !  
,director ( ! ,ag5cy = ,heal?c>e ,rese>*
 & ,quality1 %all conduct or support    
rese>* relat$ to ! ,unit$ ,/ates heal?  
c>e sy/em's response to long-t]m        
symptoms ( ,,covid-#ai1 includ+ )       
respect to-- 7#a7 ! expansion & efficacy
 ( po/-infecti\s disease treatm5t1      
includ+-- 7,a7 id5tify+ ob/acles to     
access = vet]ans1 ! eld]ly1 disabl$1 &  
l[-income communities2  7,b7 evaluat+ & 
id5tify+ pot5tial gaps or o!r weaknesses
 t be> on g5d]1 geographic1 racial &    

e?nic disp>ities on ,,covid-#ai         
infection rates1 sev]ity & l5g? (       
symptoms1 & outcomes2  7,c7 id5tify+    
gaps 9 compliance ) heal? c>e privacy & 
security rules2 &  7,d7 evaluat+ :e!r   
diagnosis1 access to1 or treatm5t       
associat$ ) m$ical provid]s & c>e       
deliv]$ 9 diff]5t sett+s v>i$ by g5d]1  
disability1 geographic1 racial & e?nic  
gr\p2 &  7#b7 conduct+ & support rapid  
turn>\nd rese>* to-- 7,a7 id5tify heal? 
c>e /rategies t help mitigate g5d]1     
geographic1 disability1 racial & e?nic  
disp>ities 9 ,,covid-#ai infection      
rates1 sev]ity & l5g? ( symptoms1       
second>y illnesses1 & outcomes2  7,b7   
id5tify heal? c>e-relat$ factors        
contribut+ to su* disp>ities 9          
,,covid-#ai infection rates1            
hospitalizations1 sev]ity & l5g? (      
disease1 second>y illnesses1 & outcomes2
 &  7,c7 provide recomm5dations on      
ensur+ equity 9 diagnosis & access to   
quality po/-infecti\s treatm5ts t may be
 advanc$ to mitigate su* disp>ities1 go+

 =w>d4  7b7 ,protocols on ,,pasc pati5ts
 ,! ,secret>y ( ,heal? & ,human         
,s]vices1 act+ ?r\gh ! ,director ( !    
,ag5cy = ,heal?c>e ,rese>* & ,quality1  
%all coord9ate cross-ag5cy engagem5t )  
lead]s f communities ) ,,pasc1          
traditional heal? disp>ities &          
inequities & relat$ po/-viral illnesses 
ov]lapp+ ) ,,pasc-- 7#a7 to develop     
protocols t ensure ,,pasc pati5ts h     
access to m$ical pr(essionals educat$   
ab\t po/-infecti\s disease & treatm5ts2 
&  7#b7 to provide guidance on ,,pasc   
diagno/ics1 treatm5ts1 & c>e t takes    
into acc\nt g5d]1 geographic1 racial &  
e?nic disp>ities4  7c7 ,au?orization (  
,appropriations ,!re is au?oriz$ to be  
appropriat$ to c>ry out ?is section     
#cj1jjj1jjj = fiscal ye> #bjbb to c>ry  
out ?is section1 :i* %all rema9         
available until exp5d$4  #d4 ,education 
& dissem9ation ( in=mation ) respect to 
long-t]m symptoms ( covid-#ai  7a7      
,po/-,acute sequelae ( ,,covid-#ai      
7,,pasc7 public education program ,!    

,secret>y ( ,heal? & ,human ,s]vices1   
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all    
develop & dissem9ate to ! public        
in=mation reg>d+ ,,pasc1 includ+        
in=mation on-- 7#a7 ! aw>5ess1 incid5ce1
 & common symptoms ( ,,pasc among       
,,covid-#ai pati5ts2  7#b7 illnesses    
relat$ & (t5 comorbid ) ,,pasc1 includ+ 
b n limit$ to1 7,a7 myalgic             
encephalomyelitis_/*ronic fatigue       
syndrome 7,,me_/,,cfs7 & fibromyalgia   
7,,fm72  7,b7 po/ural or?o/atic         
ta*yc>dia syndrome 7,,pots7 & o!r =ms ( 
dysautonomia2  7,c7 autoimmune diseases 
associat$ ) viral trigg]s2  7,d7        
connective tissue diseases exac]bat$ or 
trigg]$ by infections2 &  7,e7 ma/ cell 
activation syndrome 7,,mcas72 &  7#c7 ! 
availability1 z m$ically appropriate1 ( 
treatm5t options = ,,pasc & relat$      
po/-viral illnesses ov]lapp+ ) ,,pasc1 z
 id5tifi$ 9 section 7#b7 above4  7b7    
,po/-,acute sequelae ( ,,covid-#ai      
7,,pasc7 provid] education program ,!   

,secret>y ( ,heal? & ,human ,s]vices1   
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all 9  
consultation ) communities ) ,,pasc1    
traditional heal? disp>ities &          
inequities & relat$ po/-viral illnesses 
ov]lapp+ ) ,,pasc1 develop & dissem9ate 
to heal? c>e provid]s in=mation on      
,,pasc = ! purpose ( ensur+ t heal? c>e 
provid]s rema9 in=m$ ab\t curr5t        
in=mation on ?is em]g+ illness & relat$ 
po/-infecti\s illnesses1 :i* h be5 %[n  
to be closely relat$ to ,,pasc includ+  
in=mation on-- 7#a7 myalgic             
encephalomyelitis_/*ronic fatigue       
syndrome 7,,me_/,,cfs7 & fibromyalgia   
7,,fm72  7#b7 po/ural or?o/atic         
ta*yc>dia syndrome 7,,pots7 & o!r =ms ( 
dysautonomia2  7#c7 autoimmune diseases 
associat$ ) viral trigg]s2  7#d7        
connective tissue diseases exac]bat$ or 
trigg]$ by infections2 &  7#e7 ma/ cell 
activation syndrome 7,,mcas74  7c7      
,dissem9ation ( in=mation ,! ,secret>y  
may dissem9ate in=mation "u subsection  

7a7 & subsection 7b7 directly or ?r\gh  
arrangem5ts ) intra-ag5cy initiatives1  
nonpr(it organizations1 consum] gr\ps1  
in/itutions ( high] le>n+ 7z def9$ 9    
section #aja ( ! ,high] ,education ,act 
( #aife 7#bj ,u4,s4,c4 #ajja771 or      
,f$]al1 ,/ate1 or local public private  
p>tn]%ips4  7d7 ,au?orization (         
appropriations ,!re is au?oriz$ to be   
appropriat$ to c>ry out ?is section     
#cj1jjj1jjj = fiscal ye> #bjbb to c>ry  
out ?is section1 :i* %all rema9         
available until exp5d$4  #e4 ,rese>* )  
respect to m$icaid cov]age ( long-t]m   
symptoms ( covid-#ai  7a7 ,rese>* ,!    
,adm9i/rator ( ! ,c5t]s = ,m$ic>e       
,m$icaid ,s]vices 7ref]r$ to 9 ?is      
section z ! ,adm9i/rator7 %all exp& !   
,*ronic ,conditions ,data ,w>eh\se      
rese>* database ( su* ,c5t]s = ,m$ic>e &
 ,m$icaid ,s]vices to collect data on   
items & s]vices furni%$ to individuals  
exp]i5c+ po/-acute sequelae (           
,,covid-#ai "u a ,/ate plan 7or a waiv] 
( su* a plan7 "u ! ,m$icaid program "u  

title ,,xix ( ! ,social ,security ,act  
7#db ,u4,s4,c4 #acif et seq47 or "u a   
,/ate *ild ,heal? plan 7or a waiv] ( su*
 a plan7 "u ! ,*ildr5's ,heal?          
,insurance ,program "u title ,,xxi ( su*
 ,act 7#db ,u4,s4,c4 #acig;aa et seq47 =
 ! treatm5t ( po/-acute sequelae (      
,,covid-#ai = purposes ( assess+ !      
frequ5cy at :i* ,,covid-#ai survivors   
are furni%$ su* items & s]vices4  7b7   
,au?orization ( appropriations ,!re is  
au?oriz$ to be appropriat$ to c>ry out  
?is section #c1jjj1jjj = fiscal ye>s    
#bjbb to c>ry out ?is section1 :i* %all 
rema9 available until exp5d$4