,i #aag? ,,congress #a/ ,session ,h4 ,r4 #abce ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #bc1 #bjba,ms4 ,h]r]a ,beutl] 7= h]self & ,ms4 ,port]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to prohibit discrim9ation on ! basis ( m5tal or physical disability 9 cases ( anatomical gifts & organ transplants4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,*>lotte ,woodw>d ,organ ,transplant ,discrim9ation ,prev5tion ,act4 #b4 ,f9d+s ,congress f9ds z foll[s3 7#a7 ,! ,am]icans ) ,disabilities ,act1 section #ejd ( ! ,rehabilitation ,act ( #aigc1 & section #aeeg ( ! ,pati5t ,protection & ,af=dable ,c>e ,act 7,,aca7 prohibit discrim9ation aga9/ individuals ) disabilities 9 organ transplantation & ! ration+ ( organs4 7#b7 ,despite ^! protections1 !re are f9d+s & cases t %[ t individuals ) disabilities are be+ d5i$ organ transplants & relat$ s]vices solely bas$ on ! fact t !y h a disability1 z is docum5t$ by ! ,national ,c\ncil on ,disability & o!rs4 7#c7 ,sixte5 ,/ates h craft$ /ate level policy to prohibit organ transplant discrim9ation aga9/ individuals ) disabilities1 h[ev]1 ,f$]al action is requir$ to protect ,am]icans ) disabilities & to en=ce exi/+ law reg>dless ( ! /ate 9 :i* !y live4 7#d7 ,cont9u+ cases ( discrim9ation aga9/ individuals ) disabilities calls = fur!r cl>ity by ,congress to :i* actions con/itute discrim9ation )9 ! exi/+ legal context1 :i* entities are cov]$1 & ! rem$ies available to individuals exp]i5c+ pot5tial discrim9ation4 7#e7 ,lic5s$ provid]s ( heal? c>e s]vices :o p]=m organ transplants & relat$ s]vices 9 ex*ange = m$ical fees are engag+ 9 an economic transaction ) pati5ts t occurs 9 or sub/antially impacts int]/ate comm]ce4 7#f7 ,!re are #aa geographic regions t are us$ = ,u4,s4 organ allocation ) organs be+ transport$ across /ate l9es = transplantation proc$ures4 7#g7 ,discrim9ation 9 organ transplantation limits individuals ) disabilities f p>ticipat+ 9 a mann] t all[s equal access to int]/ate comm]ce4 7#h7 ,! exi/5ce ( arbitr>y discrim9ation aga9/ individuals ) disabilities 9 organ transplantation & relat$ s]vices burd5s ! fl[ ( organs ?r\gh legal *annels ( int]/ate comm]ce4 7#i7 ,congress is emp[]$ to regulate & protect ! in/rum5talities ( int]/ate comm]ce1 p]sons1 or ?+s 9 int]/ate comm]ce1 ev5 ?\gh ! ?reat may come only f intra/ate activities4 7#aj7 ,congress' comm]ce au?ority includes ! p[] to regulate ^? activities hav+ sub/antial relation to int]/ate comm]ce & activities t sub/antially affect int]/ate comm]ce4 7#aa7 ,no?+ 9 ?is bill %all be con/ru$ to limit or replace ! scope ( obligations impos$ by ! ,am]icans ) ,disabilities ,act1 section #ejd ( ! ,rehabilitation ,act ( #aigc1 section #aeeg ( ! ,af=dable ,c>e ,act1 or any o!r applicable law4 #c4 ,def9itions ,= purposes ( ?is ,act3 7#a7 ,anatomical gift ,! t]m anatomical gift means a donation ( all or "p ( a human body t takes effect aft] ! dea? ( ! donor = ! purpose ( transplantation or transfusion4 7#b7 ,auxili>y aids & s]vices ,! t]m auxili>y aids & s]vices includes-- 7,a7 qualifi$ int]pret]s or o!r effective me?ods ( mak+ aurally deliv]$ mat]ials available to individuals ) he>+ impairm5ts2 7,b7 qualifi$ read]s1 tap$ texts1 or o!r effective me?ods ( mak+ visually deliv]$ mat]ials available to individuals ) visual impairm5ts2 7,c7 provision ( in=mation 9 a =mat t is accessible = individuals ) cognitive1 neurological1 developm5tal1 or intellectual disabilities2 7,d7 provision ( support$ decision-mak+ s]vices2 & 7,e7 acquisition or modification ( equipm5t or devices4 7#c7 ,cov]$ entity ,! t]m cov]$ entity means-- 7,a7 any lic5s$ provid] ( heal? c>e s]vices1 includ+ lic5s$ heal? c>e practition]s1 hospitals1 nurs+ facilities1 laboratories1 int]m$iate c>e facilities1 psy*iatric resid5tial treatm5t facilities1 in/itutions = individuals ) intellectual or developm5tal disabilities1 & prison heal? c5t]s2 or 7,b7 any entity responsible = mat*+ anatomical gift donors to pot5tial recipi5ts4 7#d7 ,disability ,! t]m disability has ! same mean+ give su* t]m 9 section #d ( ! ,am]icans ) ,disabilities ,act ( #aiij4 7#e7 ,organ transplant ,! t]m organ transplant means ! transplantation or transfusion ( a "p ( a human body into ! body ( ano!r = ! purpose ( treat+ or cur+ a m$ical condition4 7#f7 ,qualifi$ individual ,! t]m qualifi$ individual means an individual :o1 ) or )\t a support network1 provision ( auxili>y aids & s]vices1 or reasonable modifications to policies or practices1 meets eligibility requirem5ts = ! receipt ( an anatomical gift4 7#g7 ,reasonable modifications to policies or practices ,! t]m reasonable modifications to policies or practices include-- 7,a7 communication ) individuals responsible = support+ an individual ) po/surgical & po/-transplantation c>e1 includ+ m$ication2 & 7,b7 consid]ation ( support networks available to ! individual1 includ+ family1 fri5ds1 & home & community-bas$ s]vices1 includ+ home & community-bas$ s]vices fund$ ?r\gh m$icaid1 m$ic>e1 ano!r heal? plan 9 :i* ! individual is enroll$1 or any program or s\rce ( fund+ available to ! individual1 9 det]m9+ :e!r ! individual is able to comply ) po/transplant m$ical requirem5ts4 7#h7 ,secret>y ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices4 7#i7 ,support$ decision mak+ ,! t]m support$ decision mak+ means ! use ( a support p]son to assi/ an individual 9 mak+ m$ical decisions1 communicate in=mation to ! individual1 or asc]ta9 an individual's wi%es4 ,su* t]m may include-- 7,a7 ! inclusion ( ! individual's attorney-9-fact1 heal? c>e proxy1 or any p]son ( ! individual's *oice 9 communications ab\t ! individual's m$ical c>e2 7,b7 p]mitt+ ! individual to designate a p]son ( _! *oice = ! purposes ( support+ t individual 9 communicat+1 process+ in=mation1 or mak+ m$ical decisions2 7,c7 provid+ auxili>y aids & s]vices to facilitate ! individual's ability to communicate & process heal?-relat$ in=mation1 includ+ use ( assi/ive communication te*nology2 7,d7 provid+ in=mation to p]sons designat$ by ! individual1 consi/5t ) ! provisions ( ! ,heal? ,insurance ,portability & ,acc\ntability ,act ( #aiif1 7#d ,u4,s4,c4 #ac et seq471 & o!r applicable laws & regulations gov]n+ disclosure ( heal? in=mation2 7,e7 provid+ heal? in=mation 9 a =mat t is readily und]/&able by ! individual2 & 7,f7 work+ ) a c\rt-appo9t$ gu>dian or o!r individual responsible = mak+ m$ical decisions on behalf ( ! individual1 to ensure t ! individual is includ$ 9 decisions involv+ ! heal? c>e ( ! individual & t m$ical decisions are 9 accordance ) ! individual's own express$ int]e/s4 7#aj7 ,support network ,! t]m support network means1 ) respect to a p]son1 "o or m individuals select$ by ! p]son or by ! p]son & ! gu>dian ( ! p]son1 to provide assi/ance to t p]son or guidance to t p]son 9 und]/&+ issues1 mak+ plans = ! future1 or mak+ complex decisions1 includ+ ! p]son's family1 fri5ds1 unpaid support]s1 religi\s congregations1 & community c5t]s4 #d4 ,prohibition ( discrim9ation 7a7 ,9 g5]al ,subject to subsection 7b71 a cov]$ entity may n1 solely on ! basis ( a qualifi$ individual's m5tal or physical disability-- 7#a7 deem su* individual ineligible to receive an anatomical gift or organ transplant2 7#b7 d5y su* individual m$ical or relat$ organ transplantation s]vices1 includ+ evaluation1 surg]y1 c\nsel+1 & po/op]ative treatm5t & c>e2 7#c7 refuse to ref] ! individual to a transplant c5t] or o!r relat$ speciali/ = ! purpose ( evaluation or receipt ( an organ transplant2 7#d7 refuse to place an individual on an organ transplant wait+ li/1 or placem5t ( ! individual at a l[]-priority position on ! li/ ?an ! position at :i* ! individual w\ld h be5 plac$ if n = ! disability ( ! individual2 or 7#e7 decl9e insurance cov]age = su* individual = any proc$ure associat$ ) ! receipt ( an anatomical gift1 includ+ po/-transplantation c>e if su* proc$ure w\ld be cov]$ "u su* cov]age = su* individual if n = ! disability ( ! individual4 7b7 ,exception 7#a7 ,9 g5]al ,not)/&+ subsection 7a71 a cov]$ entity may take an individual's disability into acc\nt :5 mak+ treatm5t or cov]age recomm5dations or decisions1 solely to ! ext5t t ! physical or m5tal disability has be5 f\nd by a physician1 foll[+ an individualiz$ evaluation ( ! pot5tial recipi5t1 to be m$ically significant to ! provision ( ! anatomical gift4 ,! previ\s s5t5ce %all n be treat$ z requir+ ref]rals or recomm5dations =1 or ! p]=mance (1 m$ically inappropriate organ transplants4 7#b7 ,cl>ification ,if an individual has ! necess>y support sy/em to provide reasonable assurance t ! individual w comply ) po/transplant m$ical requirem5ts1 ! individual's inability to indep5d5tly comply ) ^? requirem5ts may n be deem$ to be m$ically significant = purposes ( p>agraph 7#a74 7c7 ,reasonable modifications ,a cov]$ entity %all make reasonable modifications to policies1 practices1 or proc$ures ( su* entity if su* modifications are necess>y to make s]vices su* z transplantation-relat$ c\nsel+1 in=mation1 cov]age1 or treatm5t available to qualifi$ individuals ) disabilities1 unless ! entity c demon/rate t mak+ su* modifications w\ld fundam5tally alt] ! nature ( su* s]vices4 7d7 ,cl>ifications 7#a7 ,a cov]$ entity %all take su* /eps z may be necess>y to ensure t no qualifi$ individual ) a disability is d5i$ s]vices su* z transplantation-relat$ c\nsel+1 in=mation1 cov]age1 or treatm5t because ( ! abs5ce ( auxili>y aids & s]vices1 unless ! entity c demon/rate t tak+ su* /eps w\ld fundam5tally alt] ! nature ( ! s]vices be+ (f]$ or w\ld result 9 an undue burd54 7#b7 ,a cov]$ entity %all o!rwise comply ) ! requirem5ts ( titles ,,ii & ,,iii ( ! ,am]icans ) ,disabilities ,act ( #aiij & ! ,am]icans ) ,disabilities ,act ,am5dm5ts ,act ( #bjjh4 7#c7 ,! provisions ( ?is section apply to ea* "p ( ! organ transplant process4 #e4 ,en=cem5t 7a7 ,9 g5]al ,any individual ) a claim1 ) respect to a cov]$ entity1 to be 7or to h be57 subject to discrim9ation 9 violation ( section #c-- 7#a7 may br+ su* a claim to ! ,(fice = ,civil ,rights ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices = exp$it$ resolution2 & 7#b7 :e!r or n su* a claim is br\ght "u p>agraph 7#a7 or a violation is f\nd pursuant to p>agraph 7#a71 may br+ a civil action be=e ! appropriate ,f$]al c\rt = injunctive or o!r equitable relief1 includ+ ! relief describ$ 9 subsection 7b71 aga9/ su* cov]$ entity to en=ce compliance ( su* cov]$ entity ) su* section4 7b7 ,relief available ,! injunctive & equitable relief available 9 a civil action br\ght "u subsection 7a77#b71 ) respect to a cov]$ entity1 includes-- 7#a7 requir+ auxili>y aids or s]vices to be made available by su* entity2 7#b7 requir+ ! modification ( a policy1 practice1 or proc$ure ( su* entity2 or 7#c7 requir+ facilities ( su* entity be made readily accessible & usable4 7c7 ,exp$it$ review ,9 ! case ( a civil action br\ght "u subsection 7a77#b71 ) respect to a cov]$ entity1 ! ,f$]al c\rt be=e :i* su* action is br\ght %all advance on its docket & exp$ite review & disposition ( su* action4 7d7 ,rule ( con/ruction ,no?+ 9 ?is section is int5d$ to limit or replace available rem$ies "u ! ,am]icans ) ,disabilities ,act ( #aiij & ! ,am]icans ) ,disabilities ,act ,am5dm5ts ,act ( #bjjh or any o!r applicable law4