,,ii  #aaf? ,,congress  #b;d ,session   
,s4 #diij  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,decemb] #i1 #bjbj,mr4 
,cassidy introduc$ ! foll[+ bill2 :i* 0 
read twice & ref]r$ to ! ,committee on  
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to require ! ,(fice = ,civil
 ,rights ( ! ,dep>tm5t ( ,heal? & ,human
 ,s]vices to conduct a /udy & issue a   
report on ! de-id5tification ( data     
pursuant to privacy regulations4  #a4   
,%ort title ,?is ,act may be cit$ z !   
,heal? ,data ,de-id5tification ,report  
,act4  #b4 ,/udy & report by ! ,,hhs    
,(fice = ,civil ,rights  7a7 ,9 g5]al ,!
 ,(fice = ,civil ,rights ( ! ,dep>tm5t (
 ,heal? & ,human ,s]vices1 9 coop]ation 
) ! ,national ,in/itute ( ,/&>ds &      
,te*nology1 %all conduct a /udy t       
consid]s & comp>es ! effectiv5ess &     
validity ( safe h>bor & exp]t           
det]m9ation z me?ods ( c>ry+ out !      
de-id5tification ( data requir$ "u      
section #afd4ead ( title #de1 ,code (   
,f$]al ,regulations 7z 9 effect on !    

date ( enactm5t ( ?is ,act71 & %all     
submit to ,congress a report on su* /udy
 n lat] ?an #bgj days ( ! date (        
enactm5t ( ?is ,act4  7b7 ,cont5t ( /udy
 & report ,! /udy & report "u subsection
 7a7 %all consid]-- 7#a7 any kn[n       
in/ances :]e data t 0 de-id5tifi$ z     
requir$ "u section #afd4ead ( title #de1
 ,code ( ,f$]al ,regulations 7z 9 effect
 on ! date ( enactm5t ( ?is ,act7 became
 re-id5tifi$1 ev5 p>tially1 &1 ) respect
 to ea* su* in/ance1 h[ su*             
re-id5tification occurr$ & any h>m      
incurr$ by any individual ^: data 0     
re-id5tifi$2  7#b7 ! frequ5cy by :i* ea*
 ( ! safe h>bor me?od & ! exp]t         
det]m9ation me?od is us$ = !            
de-id5tification ( data z describ$ 9    
subsection 7a71 & ! sizes ( ! data sets 
on :i* ea* su* me?od is us$2  7#c7 !    
co/s ( ea* su* me?od ( de-id5tification1
 & ! relative utility ( ! data t is     
de-id5tifi$ ?r\gh ea* su* me?od2  7#d7  
:i* ( ! #b me?ods ( de-id5tification    
r5d]s data less likely to be easily     

re-id5tifiable2  7#e7 :e!r ei!r su*     
me?od removes in=mation t w\ld help     
address heal? c>e disp>ities1 !reby mak+
 x m difficult to address su*           
disp>ities2  7#f7 :i* ( ! #b me?ods is  
mo/ commonly us$ = purposes ( m$ical    
rese>*1 & ! b5efits & disadvantages (   
us+ ea* su* me?od = su* purpose2  7#g7 !
 risk ( re-id5tification by ea* ( ! #b  
me?ods1 especially :5 ! result+         
de-id5tifi$ dataset w be accessible by  
entities t h access to additional data2 
7#h7 :e!r or n !re are use cases t _c be
 p]=m$ us+ data de-id5tifi$ by ei!r ( ! 
#b me?ods2 &  7#i7 ! ease or difficulty 
( exp]t det]m9ation1 tak+ into          
consid]ation co/1 accessibility1 &      
qualifications ( exp]ts4