,,ii #aafth ,,congress #ast ,session ,s4 #cach ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,december #ai1 #bjai,mr4 ,lee 7for himself1 ,mr4 ,hawley1 ,mr4 ,lankford1 ,mr4 ,cramer1 and ,mr4 ,braun7 introduced the following bill2 which was read twice and referred to the ,committee on ,finance ,a ,,bill ,to amend titles ,,xix and ,,xxi of the ,social ,security ,act to require hospitals and certain other participating providers under ,medicaid or the ,children's ,health ,insurance ,program to disclose the provider's policy on parental consent for the provision1 withdrawal1 or denial of life-sustaining treatment for minors1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,parental ,accessibility ,rights for ,emergency and ,negligent ,treatment ,act4 #b4 ,life-sustaining treatment parental consent policy under ,medicaid and ,,chip 7a7 ,medicaid ,section #aijb7w7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7w77 is amended-- 7#a7 by striking the implementation of such rights2 and all that precedes it through 7w77#a7 and inserting the following3 7w7 7#a7 ,for purposes of subsection 7a77#eg7 and sections #aijc7m77#a77;,a7 and #aiai7;c77#b77;,e71 the requirements of this subsection are that a provider or organization 7as the case may be7 maintain written policies and procedures with respect to all individuals1 and in the case of any minor individuals 7as defined in paragraph 7#d77;,b77 with respect to the parents and legal guardians of such individuals1 receiving medical care by or through the provider or organization-- 7,a7 to provide1 on an ,internet website of the provider or organization1 and upon request of an individual or1 in the case of a minor individual1 at least #a parent or legal guardian of the minor individual1 written information to each such individual1 parent1 or legal guardian concerning-- 7i7 an individual's rights under ,state law 7whether statutory or as recognized by the courts of the ,state7 to make decisions concerning such medical care1 including the right to accept1 withdraw1 or refuse1 a medical or surgical treatment or life-sustaining procedures1 including hydration and sustenance1 and the right to formulate advance directives 7as defined in paragraph 7#d77;,a772 7ii7 the provider's or organization's written policies respecting the implementation of such rights2 7iii7 in the case of a minor individual-- 7,i7 the disclosure of whether or not the consent of at least #a parent or legal guardian of the minor individual is required for the provision1 withdrawal1 or denial of life-sustaining procedures1 including hydration and sustenance1 or prior to a do-not-resuscitate order or similar physician's order being instituted2 7,,ii7 notice that the requirement to provide such disclosure must be noted in the minor individual's medical records2 and 7,,iii7 if any such consent is required1 the procedures for how the consent is obtained and recorded2 2 7#b7 in paragraph 7#b71 by striking adult individual and inserting individual1 and in the case of a minor individual1 to at least #a parent or legal guardian of the minor individual2 7#c7 in paragraph 7#c71 by striking section and inserting subsection2 and 7#d7 in paragraph 7#d7-- 7,a7 by striking subsection1 the term and inserting 8subsection-- 7,a7 the term 2 and 7,b7 by adding at the end the following3 7,b7 the term minor individual means an individual who is an unemancipated individual who has not attained #ah years of age4 4 7b7 ,application to ,,chip ,section #bajg7;e77#a7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;gg7e77#a77 is amended-- 7#a7 by redesignating subparagraphs 7,d7 through 7,s7 as subparagraphs 7,e7 through 7,t71 respectively2 and 7#b7 by inserting after subparagraph 7,c7 the following3 7,d7 ,subsections 7a77#eg7 and 7w7 of section #aijb 7relating to maintenance of written policies and procedures respecting advance directives and parental consent for the denial of life-sustaining procedures for minor individuals74 4 7c7 ,effective date 7#a7 ,in general ,subject to paragraph 7#b71 the amendments made by this section shall apply to provider agreements entered into or renewed on or after ,january #a1 #bjbj4 7#b7 ,exception for state legislation ,in the case of a ,state plan under title ,,xix or ,,xxi of the ,social ,security ,act which the ,secretary of ,health and ,human ,services determines requires ,state legislation 7other than legislation appropriating funds7 in order for the plan to meet the additional requirements imposed by the amendments made by this section1 the ,state plan shall not be regarded as failing to comply with the requirements of such title solely on the basis of its failure to meet these additional requirements before the first day of the first calendar quarter beginning after the close of the first regular session of the ,state legislature that begins after the date of the enactment of this ,act4