,,ii  #aaf? ,,congress  #a/ ,session    
,s4 #caaf  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,decemb] #ai1 #bjai,ms4
 ,coll9s 7= h]self1 ,mr4 ,jones1 ,ms4   
,mc,sally1 & ,mr4 ,m55dez7 introduc$ !  
foll[+ bill2 :i* 0 read twice & ref]r$  
to ! ,committee on ,f9ance  ,a ,,bill   
,to enable ,/ates to bett] provide      
access to :ole g5ome sequ5c+ cl9ical    
s]vices = c]ta9 undiagnos$ *ildr5 "u !  
,m$icaid program1 & = o!r purposes4  #a4
 ,%ort title ,?is ,act may be cit$ z !  
,end+ ! ,diagno/ic ,odyssey ,act (      
#bjai4  #b4 ,/ate option to provide :ole
 g5ome sequ5c+ cl9ical s]vices = c]ta9  
*ildr5 ,title ,,xix ( ! ,social         
,security ,act 7#db ,u4,s4,c4 #acif et  
seq47 is am5d$ by ins]t+ aft] section   
#aidf ! foll[+ new section3  #aidg4     
,/ate option to provide :ole g5ome      
sequ5c+ cl9ical s]vices = c]ta9 *ildr5  
7a7 ,9 g5]al ,not)/&+ section           
#aijb7;a77#a7 7relat+ to /atewid5ess71  
section #aijb7;a77#aj77;,b7 7relat+ to  
comp>ability71 & any o!r provision ( ?is

 title :i* ! ,secret>y det]m9es is      
necess>y to waive 9 ord] to implem5t ?is
 section1 beg9n+ ,janu>y #a1 #bjbj1 a   
,/ate1 at its option z a ,/ate plan     
am5dm5t1 may provide = m$ical assi/ance 
"u ?is title to an eligible individual =
 purposes ( provid+ ! individual ) :ole 
g5ome sequ5c+ cl9ical s]vices4  7b7     
,paym5ts  7#a7 ,9 g5]al ,a ,/ate %all   
provide a heal? c>e provid] 7z def9$ by 
! ,/ate7 ) paym5ts = ! provision ( :ole 
g5ome sequ5c+ cl9ical s]vices to any    
eligible individual4 ,paym5ts made to a 
heal? c>e provid] = su* s]vices %all be 
treat$ z m$ical assi/ance = purposes (  
section #aijc7;a71 except t1 dur+ ! fir/
 #ab fiscal ye> qu>t]s t ! ,/ate plan   
am5dm5t is 9 effect1 ! ,f$]al m$ical    
assi/ance p]c5tage applicable to su*    
paym5ts %all be equal to #ge p]c5t4     
7#b7 ,me?odology ,! ,/ate %all specify 9
 ! ,/ate plan am5dm5t ! me?odology !    
,/ate w use = det]m9+ paym5t = !        
provision ( :ole g5ome sequ5c+ cl9ical  
s]vices4 ,su* me?odology = det]m9+      

paym5t %all be e/abli%$ consi/5t )      
section #aijb7;a77#cj77;,a74  7#c7      
,plann+ grants  7,a7 ,9 g5]al ,beg9n+   
,janu>y #a1 #bjbj1 ! ,secret>y may aw>d 
plann+ grants to ,/ates = purposes (    
develop+ a ,/ate plan am5dm5t "u ?is    
section4 ,a plann+ grant aw>d$ to a     
,/ate "u ?is p>agraph %all rema9        
available until exp5d$4  7,b7 ,/ate     
contribution ,a ,/ate aw>d$ a plann+    
grant %all contribute an am\nt equal to 
! ,/ate p]c5tage det]m9$ "u section     
#aije7;b7 = ea* fiscal ye> = :i* ! grant
 is aw>d$4  7c7 ,hospital ref]rals ,a   
,/ate %all include 9 ! ,/ate plan       
am5dm5t a requirem5t = any hospital t is
 a p>ticipat+ provid] "u ! ,/ate plan   
7or a waiv] ( su* plan7 to e/abli%      
proc$ures = ref]r+ any eligible         
individual :o seeks or ne$s treatm5t 9 a
 hospital em]g5cy dep>tm5t to a heal?   
c>e provid] :o is qualifi$ 7z det]m9$ by
 ! ,/ate7 to provide :ole g5ome sequ5c+ 
cl9ical s]vices4  7d7 ,reports by ,/ates
 ,n lat] ?an #c ye>s aft] ! date on :i* 

a ,/ate plan am5dm5t "u ?is section is  
approv$1 ! ,/ate %all submit a report to
 ! ,adm9i/rator ( ! ,c5t]s = ,m$ic>e    
,m$icaid ,s]vices & ! ,adm9i/rator ( !  
,heal? ,res\rces & ,s]vices             
,adm9i/ration on--  7#a7 ! ext5t to :i* 
:ole g5ome sequ5c+ cl9ical s]vices r$uce
 heal? disp>ities2 &  7#b7 ! ext5t to   
:i* cov]age "u ! ,/ate plan 7or a waiv] 
( su* plan7 imp$es ! use ( g5etic &     
g5omic te/+ t may improve cl9ical       
outcomes = eligible individuals enroll$ 
9 ! ,/ate plan 7or "u a waiv] ( su*     
plan74  7e7 ,reports by heal? c>e       
provid]s ,ea* ,/ate t provides m$ical   
assi/ance = :ole g5ome sequ5c+ cl9ical  
s]vices "u ?is section %all require t1 z
 a condition = receiv+ paym5t = :ole    
g5ome sequ5c+ cl9ical s]vices provid$ to
 an eligible individual1 a heal? c>e    
provid] %all report to ! ,/ate1 9       
accordance ) su* requirem5ts z !        
,secret>y %all specify1 on all          
applicable measures = det]m9+ ! quality 
( su* s]vices4  7f7 ,def9itions ,9 ?is  

section3 7#a7 ,eligible individual ,!   
t]m eligible individual means an        
individual--  7,a7 :o is eligible =     
m$ical assi/ance "u ! ,/ate plan 7or a  
waiv] ( su* plan72  7,b7 :o is "u ! age 
( #ba 7or1 at ! option ( ! ,/ate1 "u !  
age ( #bj1 #ai1 or #ah z ! ,/ate may    
*oose71 or 9 ! case ( an individual     
describ$ 9 section                      
#aijb7;a77#aj77;,a77i77,,ix71 "u ! age (
 #bf2 &  7,c7 :o-- 7i7 has be5 ref]r$ or
 admitt$ to an int5sive c>e unit1 or has
 be5 se5 by at lea/ #a m$ical speciali/1
 = a suspect$ g5etic or undiagnos$      
disease2 or  7ii7 is suspect$ by at lea/
 #a m$ical speciali/ to h a neonatal- or
 p$iatric-onset g5etic disease4  7#b7   
,:ole g5ome sequ5c+ cl9ical s]vices ,!  
t]m :ole g5ome sequ5c+ cl9ical s]vices1 
) respect to an eligible individual--   
7,a7 means ! unbias$ sequ5c+ ( all      
deoxyribonucleic acid bases 9 ! g5ome ( 
su* individual &1 if = ! sole b5efit ( !
 individual1 a biological p>5t ( su*    
individual = ! purpose ( det]m9+ :e!r "o

 or m pot5tially disease-caus+ g5etic   
v>iants are pres5t 9 ! g5ome ( su*      
individual or su* biological p>5t2 &    
7,b7 includes any analysis1             
int]pretation1 & data report d]iv$ f su*
 sequ5c+4  4