,,ii #aafth ,,congress #ast ,session ,s4 #bhgi ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,november #ah1 #bjai,ms4 ,murkowski 7for herself and ,ms4 ,klobuchar7 introduced the following bill2 which was read twice and referred to the ,committee on ,health1 ,education1 ,labor1 and ,pensions ,a ,,bill ,to amend the ,public ,health ,service ,act to reauthorize and extend the ,fetal ,alcohol ,spectrum ,disorders ,prevention and ,services program1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,advancing ,,fasd ,research1 ,prevention1 and ,services ,act4 #b4 ,programs for fetal alcohol spectrum disorders 7a7 ,in general ,part ,o of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;f et seq47 is amended by striking section #cii;,h and inserting the following3 #cii;,h4 ,programs for fetal alcohol spectrum disorders 7a7 ,definition ,in this part1 the terms fetal alcohol spectrum disorders and ,,fasd mean the range of effects that can occur in an individual who is prenatally exposed to alcohol4 ,such effects may include physical1 mental1 behavioral1 and learning disabilities1 with possible lifelong implications4 7b7 ,research on fetal alcohol spectrum disorders and related conditions 7#a7 ,in general ,the ,secretary1 acting through the ,director of the ,national ,institutes of ,health and in coordination with the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders under section #cii;,h-#a1 shall-- 7,a7 establish a research agenda for ,,fasd2 and 7,b7 award grants1 contracts1 or cooperative agreements to public or private nonprofit entities to pay all or part of carrying out research under such agenda4 7#b7 ,types of research ,in carrying out paragraph 7#a71 the ,secretary1 acting through the ,director of the ,national ,institute of ,alcohol ,abuse and ,alcoholism 7referred to in this part as the ,director of the ,institute71 shall continue to conduct and expand national and international research in coordination with other ,federal agencies that includes-- 7,a7 the most promising avenues of research in ,,fasd diagnosis1 intervention1 and prevention2 7,b7 factors that may mitigate the effects of fetal alcohol exposure2 and 7,c7 other research that the ,director of the ,institute determines to be appropriate with respect to conditions that develop as a result of in-utero substance exposure4 7c7 ,surveillance1 public health research1 and prevention activities 7#a7 ,in general ,the ,secretary1 acting through the ,director of the ,national ,center on ,birth ,defects and ,developmental ,disabilities of the ,centers for ,disease ,control and ,prevention1 shall facilitate surveillance1 public health research1 and prevention of ,,fasd in accordance with this subsection4 7#b7 ,surveillance1 public health research1 and prevention ,in carrying out this subsection1 the ,secretary shall-- 7,a7 integrate into clinical practice the evidence-based standard case definition for diagnosis of fetal alcohol syndrome and1 in collaboration with the ,director of the ,institute1 the ,director of the ,centers for ,disease ,control and ,prevention1 the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders established under section #cii;,h-#a1 researchers1 and other experts in the field1 develop standard1 evidence-based clinical diagnostic guidelines1 and criteria for all other fetal alcohol spectrum disorders2 7,b7 conduct applied public health prevention research to identify evidence-based strategies for reducing alcohol-exposed pregnancies in women at high risk for alcohol-exposed pregnancies2 7,c7 disseminate and provide the necessary training and support to implement evidence-based strategies developed under subparagraph 7,b7 to-- 7i7 hospitals1 ,federally-qualified health centers1 residential and outpatient substance use treatment programs1 and other appropriate health care providers2 7ii7 educational settings2 7iii7 social work and child welfare offices2 7iv7 foster care providers and adoption agencies2 7v7 ,state offices and other agencies providing services to individuals with disabilities2 7vi7 mental health treatment facilities2 and 7vii7 other entities that the ,secretary determines to be appropriate2 7,d7 conduct activities related to risk factor surveillance1 including the biannual monitoring and reporting of alcohol consumption among pregnant women and women of childbearing age2 7,e7 disseminate and evaluate brief behavioral intervention strategies and referrals aimed at preventing alcohol-exposed pregnancies among women of childbearing age in special settings1 including clinical primary health centers1 outpatient clinics1 child welfare agencies1 and correctional facilities and recovery campuses2 7,f7 disseminate comprehensive alcohol and pregnancy and ,,fasd information1 resources1 and services to families and caregivers1 professionals1 and the public2 and 7,g7 coordinate with affiliated ,state and local systems and organizations on activities with respect to the prevention of ,,fasd and related conditions for pregnant mothers4 7d7 ,building ,state ,,fasd systems 7#a7 ,in general ,the ,secretary1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 shall award grants1 contracts1 or cooperative agreements to ,states for the purpose of developing and implementing a statewide ,,fasd strategic plan1 establishing or expanding statewide programs of surveillance1 screening and diagnosis1 prevention1 and clinical intervention and support for individuals with ,,fasd and their families4 7#b7 ,eligibility ,to be eligible to receive a grant1 contract1 or cooperative agreement under paragraph 7#a71 a ,state shall prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may require4 ,the application shall include-- 7,a7 evidence of the establishment of a ,state advisory group composed of ,state agencies1 local governmental entities1 and ,indian ,tribes and ,tribal organizations2 and 7,b7 private sector stakeholders whose purpose is to develop a statewide strategic plan and make recommendations for the prevention of ,,fasd1 screening and diagnosis1 and clinical intervention and support for individuals with ,,fasd and their families4 7#c7 ,strategic plan ,the statewide strategic plan required under paragraph 7#a7 shall include-- 7,a7 identification of existing ,state and local programs and systems that could be used to identify and assist individuals with ,,fasd1 related conditions1 and prevent alcohol consumption during pregnancy2 7,b7 identification of barriers to access to ,,fasd diagnostic services or to programs to assist individuals with ,,fasd or women at risk for substance abuse and alcohol-exposed pregnancies2 and 7,c7 proposals to eliminate barriers to prevention and treatment programs4 7#d7 ,restrictions on and use of funds ,amounts received under a grant1 contract1 or cooperative agreement under paragraph 7#a7 shall be used for one or more of the following activities3 7,a7 ,providing educational and supportive services to families of individuals and families with ,,fasd4 7,b7 ,establishing a statewide surveillance system4 7,c7 ,including ,,fasd education in ,state1 medical1 and health care 7including mental health care7 university programs4 7,d7 ,collecting1 analyzing1 and interpreting data4 7,e7 ,developing1 implementing1 and evaluating population-based and targeted prevention programs for ,,fasd1 including public awareness campaigns4 7,f7 ,referring individuals with ,,fasd to appropriate support services4 7,g7 ,implementing recommendations from relevant agencies and organizations1 including the ,state advisory group1 on the identification and prevention of ,,fasd1 and intervention programs or services for individuals with ,,fasd4 7,h7 ,providing training to health care 7including mental health care7 providers on the prevention1 identification1 and treatment of ,,fasd4 7,i7 ,disseminating information about ,,fasd and the availability of support services to families and individuals with ,,fasd4 7,j7 ,other activities1 as the ,secretary determines appropriate4 7#e7 ,other contracts and agreements ,a ,state may carry out activities under paragraph 7#d7 through contracts or cooperative agreements with public and private nonprofit entities with a demonstrated expertise in ,,fasd prevention and intervention services4 7e7 ,promoting community partnerships 7#a7 ,in general ,the ,secretary1 acting through the ,administrator of ,health and ,resource ,services and ,administration1 shall award grants1 contracts1 or cooperative agreements to eligible entities to enable such entities to establish1 enhance1 or improve community partnerships for the purpose of collaborating on common objectives and integrating the services available to individuals with ,,fasd such as surveillance1 screening1 prevention1 treatment1 and support services4 7#b7 ,eligible entities ,to be eligible to receive a grant1 contract1 or cooperative agreement under paragraph 7#a71 a entity shall-- 7,a7 be a public or private nonprofit entity1 which may be-- 7i7 a health care provider or health professional2 7ii7 a primary or secondary school2 7iii7 a social work or child welfare office2 7iv7 an incarceration1 detainment facility1 or judicial system for juveniles and adults2 7v7 an ,,fasd organization1 parent-led group1 or other organization that supports and advocates for individuals with ,,fasd2 7vi7 an ,indian ,tribe or ,tribal organization2 7vii7 an early childhood intervention facility2 7viii7 any other entity the ,secretary determines to be appropriate2 or 7ix7 a consortium of any of the entities described in clauses 7i7 through 7viii72 and 7,b7 prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may require1 including assurances that the entity submitting the application does1 at the time of application1 or will1 within a reasonable amount of time from the date of application1 include substantive participation of a broad range of entities that work with or provide services for individuals with ,,fasd4 7#c7 ,activities ,an eligible entity shall use amounts received under a grant1 contract1 or cooperative agreement under this subsection to carry out one or more of the following activities3 7,a7 ,integrating ,,fasd services into existing programs and services available in the community4 7,b7 ,conducting a needs assessment to identify services that are not available in a community4 7,c7 ,developing and implementing community-based initiatives to prevent1 screen1 diagnose1 treat1 and provide support services to individuals with ,,fasd and their families4 7,d7 ,disseminating information about ,,fasd and the availability of support services4 7,e7 ,developing and implementing a community-wide public awareness and outreach campaign focusing on the dangers of drinking alcohol while pregnant4 7,f7 ,providing mentoring or other support to families of individuals with ,,fasd4 7,g7 ,other activities1 as the ,secretary determines appropriate4 7f7 ,development of best practices and models of care 7#a7 ,in general ,the ,secretary1 in coordination with the ,administrator of ,health ,resources ,services ,administration1 shall award grants to ,states1 ,indian ,tribes and ,tribal organizations1 nongovernmental organizations1 and institutions of higher education for the establishment of pilot projects to identify and implement best practices for-- 7,a7 providing early childhood intervention or educating children with ,,fasd1 including-- 7i7 activities and programs designed specifically for the identification1 treatment1 and education of such children2 and 7ii7 curricula development and credentialing of teachers1 administrators1 and social workers who implement such programs and provide early childhood intervention2 7,b7 educating judges1 attorneys1 probation officers1 social workers1 child advocates1 law enforcement officers1 prison wardens1 alternative incarceration administrators1 and incarceration officials on how to screen1 identify1 treat1 and support individuals with ,,fasd within the child welfare1 juvenile1 and criminal justice systems1 including-- 7i7 programs designed specifically for the identification1 treatment1 and education of individuals with ,,fasd2 and 7ii7 curricula development and credentialing within the justice and child welfare systems for individuals who implement such programs2 7,c7 educating adoption or foster care agency officials about available and necessary services for children with ,,fasd1 including-- 7i7 programs designed specifically for screening and identification1 treatment1 and education of individuals with ,,fasd2 and 7ii7 education and training for potential adoptive or foster parents of a child with ,,fasd2 and 7,d7 educating health and mental health1 and substance use1 providers about available and necessary services for children with ,,fasd1 including-- 7i7 programs designed specifically for screening and identification1 and both health and mental health treatment1 of individuals with ,,fasd2 and 7ii7 curricula development and credentialing within the health and mental health and substance abuse systems for individuals who implement such programs4 7#b7 ,application ,to be eligible for a grant under paragraph 7#a71 an entity shall prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may reasonably require4 7g7 ,transitional services 7#a7 ,in general ,the ,secretary1 in coordination with the ,administrator of the ,health ,resources and ,services ,administration1 shall award demonstration grants1 contracts1 and cooperative agreements to ,states1 ,indian ,tribes and ,tribal organizations1 and nongovernmental organizations for the purpose of establishing integrated systems for providing transitional services for adults affected by prenatal alcohol exposure and evaluating the effectiveness of such services4 7#b7 ,application ,to be eligible for a grant1 contract1 or cooperative agreement under paragraph 7#a71 an entity shall prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may reasonably require1 including specific credentials relating to education1 skills1 training1 and continuing educational requirements relating to ,,fasd4 7#c7 ,allowable uses ,an entity shall use amounts received under a grant1 contract1 or cooperative agreement under paragraph 7#a7 to carry out one or more of the following activities3 7,a7 ,provide housing assistance to1 or specialized housing for1 adults with ,,fasd4 7,b7 ,provide vocational training and placement services for adults with ,,fasd4 7,c7 ,provide medication monitoring services for adults with ,,fasd4 7,d7 ,provide training and support to organizations providing family services or mental health programs and other organizations that work with adults with ,,fasd4 7,e7 ,establish and evaluate housing models specially designed for adults with ,,fasd4 7,f7 ,other services or programs1 as the ,secretary determines appropriate4 7h7 ,authorization of appropriations ,there are authorized to be appropriated to carry out this section1 such sums as may be necessary for each of fiscal years #bjbj through #bjbe4 4 7b7 ,services for individuals with ,fetal ,alcohol ,spectrum ,disorders ,subpart #b of part ,b of title ,v of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bij;bb-#ba et seq47 is amended by inserting after section #eai;,b the following3 #eai;,c4 ,services for individuals with fetal alcohol syndrome 7a7 ,in general ,the ,secretary may make awards of grants1 cooperative agreements1 or contracts to public and nonprofit private entities1 including ,indian tribes and tribal organizations1 to provide services to individuals diagnosed with fetal alcohol syndrome or alcohol-related birth defects4 7b7 ,use of funds ,an award under subsection 7a7 may1 subject to subsection 7d71 be used to-- 7#a7 screen and test individuals to determine the type and level of services needed2 7#b7 develop a comprehensive plan for providing services to the individual2 7#c7 provide mental health counseling2 7#d7 provide substance abuse prevention services and treatment1 if needed2 7#e7 coordinate services with other social programs including social services1 justice system1 educational services1 health services1 mental health and substance abuse services1 financial assistance programs1 vocational services and housing assistance programs2 7#f7 provide vocational services2 7#g7 provide health counseling2 7#h7 provide housing assistance2 7#i7 parenting skills training2 7#aj7 overall case management2 7#aa7 supportive services for families of individuals with ,fetal ,alcohol ,syndrome and other prenatal alcohol-related disorders2 7#ab7 provide respite care for caretakers of individuals with ,fetal ,alcohol ,syndrome and other prenatal alcohol-related disorders2 7#ac7 recruit and train mentors for individuals with ,fetal ,alcohol ,syndrome and other prenatal alcohol-related disorders2 7#ad7 provide educational and supportive services to families of individuals with ,fetal ,alcohol ,spectrum ,disorders2 and 7#ae7 provide other services and programs1 to the extent authorized by the ,secretary after consideration of recommendations made by the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders4 7c7 ,requirements ,to be eligible to receive an award under subsection 7a71 an applicant shall-- 7#a7 demonstrate that the program will be part of a coordinated1 comprehensive system of care for such individuals2 7#b7 demonstrate an established communication with other social programs in the community including social services1 justice system1 financial assistance programs1 health services1 educational services1 mental health and substance abuse services1 vocational services and housing assistance services2 7#c7 show a history of working with individuals with fetal alcohol syndrome or alcohol-related birth defects2 7#d7 provide assurance that the services will be provided in a culturally and linguistically appropriate manner2 and 7#e7 provide assurance that at the end of the #e-year award period1 other mechanisms will be identified to meet the needs of the individuals and families served under such award4 7d7 ,relationship to payments under other programs ,an award may be made under subsection 7a7 only if the applicant involved agrees that the award will not be expended to pay the expenses of providing any service under this section to an individual to the extent that payment has been made1 or can reasonably be expected to be made1 with respect to such expenses-- 7#a7 under any ,state compensation program1 under an insurance policy1 or under any ,federal or ,state health benefits program2 or 7#b7 by an entity that provides health services on a prepaid basis4 7e7 ,duration of awards ,with respect to an award under subsection 7a71 the period during which payments under such award are made to the recipient may not exceed #e years4 7f7 ,evaluation ,the ,secretary shall evaluate each project carried out under subsection 7a7 and shall disseminate the findings with respect to each such evaluation to appropriate public and private entities4 7g7 ,funding 7#a7 ,authorization of appropriations ,for the purpose of carrying out this section1 there are authorized to be appropriated such sums as may be necessary for each of fiscal years #bjbj through #bjbe4 7#b7 ,allocation ,of the amounts appropriated under paragraph 7#a7 for a fiscal year1 not less than #cjj1jjj shall1 for purposes relating to fetal alcohol syndrome and alcohol-related birth defects1 be made available for collaborative1 coordinated interagency efforts with the ,national ,institute on ,alcohol ,abuse and ,alcoholism1 the ,eunice ,kennedy ,shriver ,national ,institute of ,child ,health and ,human ,development1 the ,health ,resources and ,services ,administration1 the ,agency for ,healthcare ,research and ,quality1 the ,centers for ,disease ,control and ,prevention1 the ,department of ,education1 and the ,department of ,justice4 4 7c7 ,prevention1 intervention1 and services in the education system 7#a7 ,general ,rule ,the ,secretary of ,education shall be the lead ,federal official with responsibility over education-related issues with respect to children with fetal alcohol spectrum disorders4 7#b7 ,specific responsibilities ,the ,secretary of ,education shall direct the ,office of ,special ,education and ,rehabilitative ,services to-- 7,a7 conduct and disseminate training on a nationwide fetal alcohol spectrum disorders surveillance campaign to local educational agencies 7as defined in section #haja of the ,elementary and ,secondary ,education ,act of #aife 7#bj ,u4,s4,c4 #ghja77 and early childhood education providers in collaboration with the ,national ,center on ,birth ,defects and ,developmental ,disabilities under section #cii;,h7b7 of the ,public ,health ,service ,act 7as amended by subsection 7a772 7,b7 collect1 collate1 and disseminate 7through the internet website of the ,department of ,education1 at teacher-to-teacher workshops1 and through other means7 evidence-based practices that are effective in the education and support of children with fetal alcohol syndrome disorders 7including any special techniques on how to assist children with fetal alcohol spectrum disorders in both special and traditional educational settings1 and including such practices that incorporate information concerning the identification1 behavioral supports1 teaching1 and learning associated with fetal alcohol spectrum disorders7 to-- 7i7 education groups such as the ,national ,association of ,school ,boards1 the ,national ,education ,association1 the ,american ,federation of ,teachers1 the ,national ,association of ,elementary ,school ,principals1 and the ,national ,association of ,secondary ,school ,principals2 7ii7 recipients of a grant under the #bast ,century ,community ,learning ,center program established under part ,b of title ,,iv of the ,elementary and ,secondary ,education ,act of #aife 7#bj ,u4,s4,c4 #gaga et seq47 and other after school program personnel2 and 7iii7 ,parent ,teacher ,associations1 ,parent ,information and ,training ,centers1 and other appropriate education organizations2 7,c7 ensure that1 in administering the ,individuals with ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adjj et seq471 parents1 educators1 and advocates for children with disabilities are aware that children with fetal alcohol spectrum disorders have the right to access general curriculum under the least restrictive environment2 7,d7 collaborate with other ,federal agencies to include information or activities relating to fetal alcohol spectrum disorders in programs related to maternal health1 health education1 and sex education2 7,e7 collaborate with the ,secretary of ,health and ,human ,services to ensure that fetal alcohol spectrum disorders prevention grants under section #cii;,h of the ,public ,health ,service ,act 7as amended by subsection 7a77 include education concerning fetal alcohol spectrum disorders in the sexual and health education curricula of schools2 and 7,f7 support efforts by peer advisory networks of adolescents in schools to discourage the use of alcohol while pregnant or considering getting pregnant4 7#c7 ,definition ,for purposes of this subsection1 the term fetal alcohol spectrum disorders has the meaning given such term in section #cii;,h7a7 of the ,public ,health ,service ,act1 as amended by subsection 7a74 7d7 ,prevention1 intervention1 and services in the justice system ,the ,attorney ,general shall direct the ,office of ,juvenile ,justice and ,delinquency ,prevention to-- 7#a7 develop screening procedures for juveniles who violate laws as described in section #ejca of title #ah1 ,united ,states ,code1 juveniles with chronic truancy1 and other individuals1 and conduct training on a nationwide fetal alcohol spectrum disorders surveillance campaign for the ,department of ,justice in collaboration with the efforts of the ,national ,center on ,birth ,defects and ,developmental ,disabilities under section #cii;,h7b7 of the ,public ,health ,service ,act 7as amended by subsection 7a772 7#b7 introduce training curricula on how to most effectively identify and interact with individuals with fetal alcohol spectrum disorders in both the juvenile and adult justice systems1 and investigate incorporating information about the identification1 prevention1 and treatment of the disorders into justice professionals' credentialing requirements2 7#c7 promote the tracking of individuals entering the juvenile justice system with at-risk backgrounds that indicates them as high probability for having a fetal alcohol spectrum disorder1 especially individuals whose mothers have a record of heavy or binge drinking during pregnancy as reported by the appropriate child protection agency2 7#d7 educate judges1 attorneys1 probation officers1 child advocates1 law enforcement officers1 prison wardens1 alternative incarceration administrators1 and incarceration officials on how to treat1 respond to1 and support individuals suffering from fetal alcohol spectrum disorders within the juvenile and adult justice systems1 including-- 7,a7 programs designed specifically for the identification1 treatment1 and education of such children2 7,b7 curricula development and credentialing of teachers1 administrators1 and social workers who implement such programs2 and 7,c7 how fetal alcohol spectrum disorders impact an individual's interaction with law enforcement and whether diversionary sentencing options or fetal-alcohol-spectrum-disorder-informed interventions and programs for such individuals are appropriate2 7#e7 conduct a study on the inadequacies of how the current system processes children with certain developmental delays and subsequently implement alternative methods of incarceration and treatment that are more effective for youth offenders identified to have a fetal alcohol spectrum disorder2 and 7#f7 collaborate with fetal alcohol spectrum disorders professionals and implement transition programs for juveniles and adults with fetal alcohol spectrum disorders who are released from incarceration4 7e7 ,sunset provision ,section #cii,k of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;f-#c7 is amended-- 7#a7 by striking ,national ,task ,force have been appointed under section #cii;,h7d77#a7 and inserting ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders under section #cii;,h-#a7;c72 and 7#b7 by adding at the end the following3 ,not later than the date that is #d years after all such members have been appointed1 the ,secretary shall issue to ,congress recommendations on whether the programs under this part should be extended44 #c4 ,interagency coordinating committee on fetal alcohol spectrum disorders ,part ,o of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;,f et seq471 as amended by section #b7;a71 is further amended by inserting after section #cii;,h the following3 #cii;,h-#a4 ,interagency coordinating committee on fetal alcohol spectrum disorders 7a7 ,in general ,the ,secretary1 acting through the ,director of the ,national ,institute of ,alcohol ,abuse and ,alcoholism1 shall maintain the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders 7referred to in this section as the ,committee7 with both ,federal and non-,federal members and a chairperson appointed by the ,director1 to coordinate and recommend efforts within the ,department of ,health and ,human ,services and other relevant ,federal departments and agencies concerning ,,fasd4 7b7 ,responsibilities ,in carrying out its duties under this section1 the ,committee shall-- 7#a7 monitor ,,fasd research and services and1 to the extent practicable1 services and support activities across all relevant ,federal departments and agencies1 including coordination of ,federal activities with respect to ,,fasd2 7#b7 develop a summary of advances in ,,fasd research related to prevention1 treatment1 early screening1 diagnosis1 and interventions2 7#c7 make recommendations for the ,,fasd research agenda to the ,director of the ,national ,institute of ,alcohol ,abuse and ,alcoholism1 as described in section #cii;,h7b77#a77;,a72 7#d7 review the #bjji report of the ,national ,task ,force on ,,fas entitled1 ,a ,call to ,action1 and other reports on ,,fasd and make recommendations on a national strategic plan to reduce the prevalence and the associated impact of ,,fasd and improve the quality of life for individuals living with ,,fasd1 which shall include-- 7,a7 proposed ,federal budgetary requirements for ,,fasd research and related services and support activities for individuals with ,,fasd2 7,b7 recommendations to ensure that ,,fasd research1 and services and support activities to the extent practicable1 of the ,department of ,health and ,human ,services and of other ,federal departments and agencies are not unnecessarily duplicative2 7,c7 identification of gaps or barriers for individuals living with1 or impacted by1 ,,fasd in accessing diagnostic1 early intervention1 and support services2 7,d7 identification of prevention strategies1 including education campaigns and options1 such as product warnings and other mechanisms to raise awareness of the risks associated with prenatal alcohol consumption2 7,e7 identification of best practice approaches to reduce the incidence of ,,fasd2 and 7,f7 identification of best practice approaches and models of care to increase support and treat individuals with ,,fasd1 and their families2 and 7#e7 submit to ,congress and the ,president-- 7,a7 an update on the summary of advances described in paragraph 7#c71 one year after the date of enactment of the ,advancing ,,fasd ,research1 ,prevention1 and ,services ,act2 7,b7 an update to the national strategic plan described in paragraph 7#d71 including any progress made in achieving the objectives outlined in such strategic plan1 one year after the date of enactment of the ,advancing ,,fasd ,research1 ,prevention1 and ,services ,act2 and 7,c7 a final report that provides a summary of advances described in paragraph 7#c7 and an update to the national strategic plan described in paragraph 7#d71 not later than ,september #cj1 #bjbe4 7c7 ,membership ,the ,committee shall be composed of representatives as described in paragraphs 7#a7 and 7#b74 7#a7 ,federal membership ,members of the ,committee shall include representatives of the following ,federal agencies3 7,a7 ,the ,national ,institute on ,alcohol ,abuse and ,alcoholism4 7,b7 ,the ,centers for ,disease ,control and ,prevention4 7,c7 ,the ,health ,resources and ,services ,administration4 7,d7 ,other agencies with responsibilities for ,,fasd1 substance use prevention and treatment1 maternal health1 child health and welfare1 and rehabilitative services1 which may include ,federal agencies that interact with individuals with ,,fasd in the educational and correctional systems4 7#b7 ,non-,federal members ,additional non-,federal public and private sector members of the ,committee shall be appointed by the ,director of the ,national ,institute on ,alcohol ,abuse and ,alcoholism1 including-- 7,a7 one individual with ,,fasd or a parent or legal guardian of an individual with ,,fasd2 7,b7 one representative of the ,national ,organization on ,fetal ,alcohol ,syndrome and one representative of a leading statewide advocacy and service organization for individuals with ,,fasd2 7,c7 one representative of the ,,fasd ,center of ,excellence established under section #cii;,h-#b1 and one representative of a ,state advisory group engaged in building a ,state ,,fasd system pursuant to section #cii;,h7d72 and 7,d7 multiple individuals with expertise on ,,fasd who will serve as representatives of private sector organizations that engage on ,,fasd issues on behalf of pediatricians1 obstetricians and gynecologists1 mental health care providers1 family court judges1 juvenile judges and justice programming and services1 and special education and social work professionals4 7d7 ,authorization of appropriations ,there are authorized to be appropriated to carry out this section such sums as may be necessary for each of fiscal years #bjbj through #bjbe4 4 #d4 ,,fasd ,center ,of ,excellence 7a7 ,in general ,part ,o of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;f et seq471 as amended by section #c1 is further amended by inserting after section #cii;,h-#a the following3 #cii;,h-#b4 ,,fasd ,center of ,excellence 7a7 ,in general ,the ,secretary1 in consultation with the ,assistant ,secretary for ,mental ,health and ,substance ,use1 the ,administrator of the ,health ,research and ,services ,administration1 and the ,director of the ,centers for ,disease ,control and ,prevention1 shall make an award of a grant1 cooperative agreement1 or contract to a public or nonprofit entity with demonstrated expertise in ,,fasd awareness1 prevention and intervention services4 ,such award shall be for the purpose of establishing an ,,fasd ,center of ,excellence to build local1 ,state1 and national capacities to prevent the occurrence of ,,fasd1 including disorders and birth defects related to combined abuse of alcohol and other substances1 and to respond to the needs of individuals and their families that carry out the following3 7#a7 ,initiating or expanding diagnostic capacity of ,,fasd by increasing screening1 identification1 and diagnosis of individuals with ,,fasd in clinical practices1 educational settings1 child welfare1 and juvenile and correctional systems4 7#b7 ,providing an internet-based resource center that disseminates ongoing technical assistance1 resource development1 and peer and cross-,state training on ,,fasd4 7#c7 ,conducting media outreach and media training to raise public awareness of the risks associated with alcohol consumption during pregnancy with the purpose of reducing the prevalence of ,,fasd4 7#d7 ,acting as a clearinghouse on ,,fasd prevention and intervention practices and services and maintaining a national resource directory4 7#e7 ,developing and disseminating information and resources for training community leaders1 mental health and substance abuse professionals1 families1 law enforcement personnel1 judges1 health professionals1 persons working in financial assistance programs1 social service personnel1 child welfare professionals1 and other service providers on the implications of ,,fasd and the early identification of and referral for such conditions4 7#f7 ,building capacity for ,state and local affiliates dedicated to ,,fasd awareness and prevention efforts4 7#g7 ,supporting a speakers bureau and other public awareness activities1 including social media1 for enhanced ,,fasd awareness and prevention efforts4 7#h7 ,providing technical assistance to communities for replicating exemplary comprehensive systems of care for individuals with ,,fasd developed under section #cii;,h7e74 7#i7 ,providing technical assistance to communities for replicating best practice pilot projects developed under section #cii;,h7f74 7#aj7 ,providing technical assistance to ,states in developing statewide ,,fasd strategic plans1 establishing or expanding statewide programs of surveillance1 screening and diagnosis1 prevention1 and clinical intervention and support for individuals with ,,fasd and their families under section #cii;,h7d74 7#aa7 ,developing a comprehensive ,,fasd database of clinics across the ,united ,states1 in accordance with applicable privacy requirements4 7#ab7 ,carrying out other functions1 to the extent authorized by the ,secretary1 after consideration of recommendations of the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders in the national strategic plan under section #cii;,h-#a7;b77#d74 7b7 ,application ,to be eligible for a grant1 contract1 or cooperative agreement under paragraph 7#a71 an entity shall prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may reasonably require1 including specific credentials relating to ,,fasd resource development and dissemination1 care coordination and the coordination of clinical services1 technical assistance1 administration of partner networks1 and other such ,,fasd-specific expertise4 7c7 ,subcontracting ,a public or private nonprofit may carry out the activities under subsection 7a7 through contracts or cooperative agreements with other public and private nonprofit entities with demonstrated expertise in ,,fasd prevention and intervention services4 7d7 ,authorization of appropriations ,there are authorized to be appropriated to carry out this section such sums as may be necessary for each of fiscal years #bjbj through #bjbe4 4 7b7 ,conforming amendment ,section #eai;,d of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bij;bb-#be;d7 is repealed4 #e4 ,authorization of appropriations ,section #cii;,j of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;f-#b7 is amended-- 7#a7 in subsection 7a71 by striking #bg1jjj1jjj for each of the fiscal years #aiii through #bjjc and inserting #db1jjj1jjj for fiscal year #bjba and such sums as may be necessary for each of fiscal years #bjbb through #bjbe2 and 7#b7 by amending subsection 7b71 to read as follows3 7b7 ,interagency coordinating committee on fetal alcohol spectrum disorders ,from amounts appropriated for a fiscal year under subsection 7a71 the ,secretary may use not to exceed #b1jjj1jjj of such amounts for the operations of the ,interagency ,coordinating ,committee on ,fetal ,alcohol ,spectrum ,disorders under section #cii;,h-#a4 4