,,ii #aaf? ,,congress #a/ ,session ,s4 #bfge ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,octob] #bc1 #bjai,mr4 ,book] introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to au?orize ! ,secret>y ( ,heal? & ,human ,s]vices to c>ry out activities relat+ to neglect$ diseases ( pov]ty4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,/udy1 ,treat1 ,obs]ve1 & ,prev5t ,neglect$ ,diseases ( ,pov]ty ,act or ! ,,/op ,neglect$ ,diseases ( ,pov]ty ,act4 #b4 ,f9d+s ,congress f9ds z foll[s3 7#a7 ,neglect$ diseases ( pov]ty1 _m ( :i* are also kn[n z neglect$ tropical diseases1 are a gr\p ( diseases t disproportionately affect vuln]able populations liv+ 9 extreme pov]ty4 7#b7 ,m ?an #a1jjj1jjj1jjj p worldwide are affect$ by neglect$ diseases ( pov]ty4 7#c7 ,neglect$ diseases ( pov]ty c be transmitt$-- 7,a7 ?r\gh contam9at$ food1 wat]1 & soil2 7,b7 ?r\gh p>asites1 insects1 blood transfusion1 & organ transplant2 & 7,c7 9 "s cases1 cong5itally4 7#d7 ,neglect$ diseases ( pov]ty h a high rate ( morbidity & mortality & c lead to heal? complications su* z he>t disease1 epilepsy1 a/hma1 bl9dness1 developm5tal delays1 /illbir?1 l[ bir?weight1 & ga/ro9te/9al disord]s4 7#e7 ,"s neglect$ diseases ( pov]ty c be asymptomatic at ! outset1 b debilitat+ or dang]\s symptoms c em]ge ov] "t or "u c]ta9 conditions1 su* z pregnancy4 ,x is e/imat$ t millions ( p are liv+ ) ^! diseases & are n aw>e t !y are infect$4 7#f7 ,= t5s ( ?\s&s ( individuals1 diseases ( pov]ty t are *ronic & neglect$ c manife/ into sev]e illness lat] 9 life4 7#g7 ,neglect$ diseases ( pov]ty place a significant f9ancial burd5 on affect$ individuals & communities due to ! heal? c>e co/s associat$ ) ^! diseases & because ^! diseases limit individuals' productivity & ability to be active contributors to _! communities4 ,?is burd5 c\ld l>gely be prev5t$ ?r\gh e>ly scre5+ & treatm5t1 :i* are highly co/ effective4 7#h7 ,s9ce its inception 9 #bjjf1 ! ,neglect$ ,tropical ,diseases ,program at ! ,unit$ ,/ates ,ag5cy = ,int]national ,developm5t & its p>tn]s1 includ+ ! ,c5t]s = ,disease ,control & ,prev5tion1 h deliv]$ m ?an #a1fjj1jjj1jjj treatm5ts to m ?an #gdc1jjj1jjj p4 7#i7 ,due to ! support provid$ by ! ,unit$ ,/ates ,ag5cy = ,int]national ,developm5t & its p>tn]s1 #adj1jjj1jjj p live 9 regions :]e !y are no long] at risk ( contract+ lymphatic fil>iasis1 & #fe1jjj1jjj p live 9 regions :]e !y are no long] at risk ( contract+ tra*oma4 7#aj7 ,al?\gh ! exact preval5ce & burd5 ( ^! diseases 9 ! ,unit$ ,/ates is unkn[n because ( /igma & limit$ report+1 surveillance1 & aw>5ess1 "o /udy e/imates t !re are #ab1jjj1jjj individuals liv+ ) a neglect$ disease ( pov]ty ?r\gh\t ! c\ntry4 ,^! diseases disproportionately affect racial & e?nic m9orities liv+ 9 pov]ty & 9 regions :]e wat] quality & sanitation are sub/&>d4 7#aa7 ,! major neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates t pr$om9antly occur among ^? liv+ 9 pov]ty are ! foll[+3 ,toxoc>iasis1 cy/ic]cosis1 ,*agas disease1 toxoplasmosis1 tri*omoniasis1 & ,d5gue ,fev]4 7#ab7 ,!re is a lack ( diagno/ic & treatm5t programs1 includ+ = e>ly diagnosis & treatm5t1 = neglect$ diseases ( pov]ty4 ,^! programs w\ld be highly co/ effective & w\ld significantly r$uce ! burd5 ( morbidity & mortality ( ^! diseases4 7#ac7 ,fund+ = rese>*1 prev5tive /rategies1 & ! developm5t ( treatm5ts & diagno/ic te/s = neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates is limit$4 #c4 ,s5se ( ,congress ,x is ! s5se ( ,congress t !re is a ne$ to /udy ! preval5ce & incid5ce ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates1 id5tify prev5tive me?ods to combat neglect$ diseases ( pov]ty1 conduct rese>* t w lead to m treatm5ts & diagno/ic te/s = neglect$ diseases ( pov]ty1 & supply heal? c>e provid]s1 public heal? pr(essionals1 & affect$ individuals & communities ) educational res\rces on neglect$ diseases ( pov]ty4 #d4 ,def9ition ( neglect$ diseases ( pov]ty ,9 ?is ,act1 ! t]m neglect$ diseases ( pov]ty has ! mean+ giv5 su* t]m 9 section #cii,,oo7e7 ( ! ,public ,heal? ,s]vice ,act1 z add$ by section #e4 #e4 ,programs relat+ to neglect$ diseases ( pov]ty ,title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bda et seq47 is am5d$ by add+ at ! end ! foll[+3 ,w ,programs relat+ to neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates #cii,,oo4 ,int]ag5cy ,task ,=ce on ,neglect$ ,diseases ( ,pov]ty 9 ! ,unit$ ,/ates 7a7 ,e/abli%m5t ,n lat] ?an #ahj days aft] ! date ( enactm5t ( ! ,/udy1 ,treat1 ,obs]ve1 & ,prev5t ,neglect$ ,diseases ( ,pov]ty ,act1 ! ,secret>y %all e/abli% an ,int]ag5cy ,task ,=ce on ,neglect$ ,diseases ( ,pov]ty 9 ! ,unit$ ,/ates to provide advice & recomm5dations to ! ,secret>y & ,congress to prev5t1 treat1 & diagnose neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates4 7b7 ,memb]s ,! task =ce %all be compris$ ( repres5tatives (-- 7#a7 ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 includ+ ! ,assi/ant ,secret>y = ,heal? & repres5tatives f ! ,c5t]s = ,disease ,control & ,prev5tion1 ! ,food & ,drug ,adm9i/ration1 ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 ! ,national ,in/itutes ( ,heal?1 & ! ,biom$ical ,advanc$ ,rese>* & ,developm5t ,au?ority2 7#b7 ! ,dep>tm5t ( ,/ate2 7#c7 ! ,unit$ ,/ates ,ag5cy = ,int]national ,developm5t2 7#d7 ! ,dep>tm5t ( ,agriculture2 7#e7 ! ,dep>tm5t ( ,h\s+ & ,urban ,developm5t2 7#f7 ! ,environm5tal ,protection ,ag5cy2 & 7#g7 any o!r ,f$]al ag5cy t has jurisdiction ov]1 or is affect$ by1 neglect$ diseases ( pov]ty policies & projects1 z det]m9$ by ! ,secret>y4 7c7 ,initial report 7#a7 ,9 g5]al ,n lat] ?an #ahj days aft] ! date ( enactm5t ( ! ,/udy1 ,treat1 ,obs]ve1 & ,prev5t ,neglect$ ,diseases ( ,pov]ty ,act1 ! task =ce %all submit a report to ! ,secret>y bas$ on a review ( relevant lit]ature to id5tify gaps 9 ef=ts1 & guide future ef=ts1 to prev5t1 id5tify1 & treat neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates1 p>ticul>ly toxoc>iasis1 cy/ic]cosis1 ,*agas disease1 toxoplasmosis1 tri*omoniasis1 & ,d5gue ,fev]4 ,! report %all include a summ>y ( f9d+s ) respect to-- 7,a7 e/imat$ preval5ce ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,b7 geographic di/ribution & major di/ribution r\tes ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,c7 disp>ities ) respect to ! burd5 ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,d7 risk factors = neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,e7 exi/+ tools = surveillance1 prev5tion1 diagnosis1 & treatm5t ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,f7 b>ri]s to access to in=mation & tools = surveillance1 prev5tion1 diagnosis1 & treatm5t ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,g7 comorbidities associat$ ) neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,h7 aw>5ess among heal? c>e provid]s & public heal? pr(essionals reg>d+ neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7,i7 public aw>5ess ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates1 p>ticul>ly among high-risk gr\ps2 7,j7 ! economic burd5 ( neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 & 7,k7 /rategies & lessons le>n$ f ! ,unit$ ,/ates ,ag5cy = ,int]national ,developm5t ,neglect$ ,tropical ,diseases ,program1 p>ticul>ly ^? t are mo/ applicable to ef=ts to prev5t1 diagnose1 & treat neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates4 7#b7 ,consultation ,9 develop+ ! initial report "u p>agraph 7#a71 ! task =ce %all consult ) appropriate ext]nal p>ties1 includ+ ,/ates1 local communities1 sci5ti/s1 rese>*]s1 heal? c>e provid]s & public heal? pr(essionals1 & national & int]national nongov]m5tal organizations4 7d7 ,duties ,! task =ce %all-- 7#a7 review & evaluate ! curr5t actions & future plans ( ea* applicable ag5cy repres5t$ on ! task =ce z describ$ 9 subsection 7b7 to prev5t1 diagnose1 & treat neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7#b7 id5tify curr5t & pot5tial areas ( p>tn]%ip & coord9ation betwe5 ,f$]al ag5cies & develop a unifi$ implem5tation plan to prev5t1 diagnose1 & treat neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates2 7#c7 make ef=ts to apply applicable /rategies & lessons le>n$ f ! ,unit$ ,/ates ,ag5cy = ,int]national ,developm5t ,neglect$ ,tropical ,diseases ,program :5 develop+ ! implem5tation plan "u p>agraph 7#b72 7#d7 e/abli% specific goals )9 & across ,f$]al ag5cies to prev5t1 diagnose1 & treat neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates1 includ+ metrics to assess progress t[>ds rea*+ ^? goals2 7#e7 coord9ate plans to communicate rese>* & relevant accompli%m5ts across ,f$]al ag5cies & ) ,/ates & local communities relat+ to ! prev5tion1 diagnosis1 & treatm5t ( neglect$ diseases ( pov]ty2 7#f7 develop cons5sus guidel9es = heal? c>e provid]s & public heal? pr(essionals = ! prev5tion1 diagnosis1 & treatm5t ( toxoc>iasis1 cy/ic]cosis1 ,*agas disease1 toxoplasmosis1 tri*omoniasis1 ,d5gue ,fev]1 & o!r neglect$ diseases ( pov]ty2 7#g7 biannually make recomm5dations to ,congress on /rategies = ! developm5t ( af=dable tools to prev5t1 diagnose1 & treat neglect$ diseases ( pov]ty1 includ+ drugs1 diagno/ics1 & vacc9es2 & 7#h7 9 develop+ ! guidel9es & recomm5dations "u p>agraphs 7#f7 & 7#g71 consult ) ext]nal p>ties1 includ+ ,/ates1 local communities1 sci5ti/s1 rese>*]s1 heal? c>e provid]s & public heal? pr(essionals1 national & int]national nongov]nm5tal organizations1 & c5t]s ( excell5ce ) exp]tise 9 neglect$ diseases ( pov]ty1 includ+ ! c5t]s ( excell5ce describ$ 9 section #cii,,oo-#e4 7e7 ,def9ition ( neglect$ diseases ( pov]ty ,9 ?is "p1 ! t]m neglect$ diseases ( pov]ty-- 7#a7 means *ronic & disabl+ diseases t are caus$ by p>asites1 bact]ia1 & o!r pa?og5s & t prim>ily impact p liv+ 9 extreme pov]ty2 & 7#b7 includes ! foll[+3 7,a7 ,*agas disease4 7,b7 ,cy/ic]cosis4 7,c7 ,toxoc>iasis4 7,d7 ,toxoplasmosis4 7,e7 ,tri*omoniasis4 7,f7 ,d5gue ,fev]4 7,g7 ,o!r neglect$ tropical diseases1 includ+ ^? def9$ by ! ,_w ,heal? ,organization1 su* z ! foll[+3 7i7 ,buruli ulc]4 7ii7 ,*ikungunya4 7iii7 ,dracunculiasis4 7iv7 ,e*9ococcosis4 7v7 ,foodborne trematodiases4 7vi7 ,human ,african trypanosomiasis4 7vii7 ,lei%maniases4 7viii7 ,leprosy4 7ix7 ,lymphatic fil>iasis4 7x7 ,mycetoma4 7xi7 ,on*oc]ciasis4 7xii7 ,rabies4 7xiii7 ,s*i/osomiasis4 7xiv7 ,soil-transmitt$ helm9?iases4 7xv7 ,ta5iasis & neurocystic]cosis4 7xvi7 ,tra*oma4 7xvii7 ,yaws4 #cii,,oo-#a4 ,surveillance reg>d+ neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all aw>d grants to ,/ates to c>ry out activities relat+ to implem5t+ a surveillance sy/em to det]m9e ! preval5ce1 incid5ce1 & di/ribution ( neglect$ diseases ( pov]ty1 p>ticul>ly ^? t mo/ impact individuals 9 ! ,unit$ ,/ates1 includ+ toxoc>iasis1 cy/ic]cosis1 ,*agas disease1 toxoplasmosis1 tri*omoniasis1 & ,d5gue ,fev]4 7b7 ,consid]ations ,9 aw>d+ grants "u subsection 7a71 ! ,secret>y %all use ! f9d+s 9 ! initial report ( ! ,int]ag5cy ,task ,=ce on ,neglect$ ,diseases ( ,pov]ty 9 ! ,unit$ ,/ates "u section #cii,,oo7c7 to id5tify & prioritize geographic locations & communities t h ! highe/ e/imat$ preval5ce (1 or h populations at greate/ risk ( acquir+1 neglect$ diseases ( pov]ty1 p>ticul>ly ^? describ$ 9 subsection 7a74 #cii,,oo-#b4 ,support = individuals at risk = neglect$ diseases ( pov]ty 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all aw>d grants or coop]ative agreem5ts to ,f$]ally qualifi$ heal? c5t]s to implem5t & analyze ! guidel9es develop$ "u section #cii,,oo7d77#f74 7b7 ,initial aw>ds ,! ,secret>y %all-- 7#a7 us+ ! f9d+s 9 ! initial report ( ! ,int]ag5cy ,task ,=ce on ,neglect$ ,diseases ( ,pov]ty 9 ! ,unit$ ,/ates "u section #cii,,oo7c71 id5tify ! geographic locations 9 ! ,unit$ ,/ates t h ! highe/ e/imat$ preval5ce (1 or h populations at greate/ risk ( acquir+1 neglect$ diseases ( pov]ty1 p>ticul>ly ^? t mo/ impact individuals 9 ! ,unit$ ,/ates1 includ+ toxoc>iasis1 cy/ic]cosis1 ,*agas disease1 toxoplasmosis1 tri*omoniasis1 & ,d5gue ,fev]2 & 7#b7 prioritize ,f$]ally qualifi$ heal? c5t]s locat$ 9 su* geographic locations 9 aw>d+ initial grants or coop]ative agreem5ts "u subsection 7a74 7c7 ,def9ition ( f$]ally qualifi$ heal? c5t] ,9 ?is section1 ! t]m ,f$]ally qualifi$ heal? c5t] has ! mean+ giv5 ! t]m 9 section #ahfa7;aa7 ( ! ,social ,security ,act4 #cii,,oo-#c4 ,education ( m$ical & public heal? p]sonnel & ! public reg>d+ neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates ,! ,secret>y %all consult ) ! ,assi/ant ,secret>y = ,heal?1 ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 & ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 pr(essional organizations & societies1 & su* o!r public heal? (ficials z may be necess>y1 includ+ ! c5t]s ( excell5ce describ$ 9 section #cii,,oo-#e1 to-- 7#a7 develop & implem5t educational programs to increase ! aw>5ess ( heal? c>e provid]s & public heal? pr(essionals ) respect to ! risk factors1 signs1 & symptoms ( neglect$ diseases ( pov]ty & /rategies to prev5t1 diagnose1 & treat su* diseases2 & 7#b7 develop & implem5t educational programs to increase ! aw>5ess ( ! public ) respect to ! risk factors1 signs1 & symptoms ( neglect$ diseases ( pov]ty & /rategies to prev5t su* diseases4 #cii,,oo-#d4 ,rese>* & developm5t ( new drugs1 vacc9es1 & diagno/ics ,consi/5t ) ! recomm5dations ( ! ,int]ag5cy ,task ,=ce on ,neglect$ ,diseases ( ,pov]ty 9 ! ,unit$ ,/ates e/abli%$ "u section #cii,,oo1 ! ,secret>y %all1 directly or ?r\gh aw>ds ( grants or coop]ative agreem5ts to public or private entities1 provide = ! conduct ( rese>*1 inve/igations1 exp]im5ts1 demon/rations1 & /udies1 includ+ late-/age & translational rese>*1 9 ! heal? sci5ces t are relat$ to-- 7#a7 ! developm5t ( af=dable !rapeutics1 includ+ vacc9es1 aga9/ neglect$ diseases ( pov]ty2 & 7#b7 ! developm5t ( af=dable m$ical po9t-(-c>e diagno/ics to detect neglect$ diseases ( pov]ty4 #cii,,oo-#e4 ,neglect$ ,diseases ( ,pov]ty ,c5t]s ( ,excell5ce 7a7 ,e/abli%m5t ,! ,secret>y1 act+ jo9tly ?r\gh ! ,director ( ! ,national ,in/itutes ( ,heal?1 may ent] into coop]ative agreem5ts )1 & make grants to1 public or private nonpr(it entities to pay all or "p ( ! co/ ( plann+1 e/abli%+1 or /r5g!n+1 & provid+ basic op]at+ support =1 "o or m c5t]s ( excell5ce = rese>* into1 tra9+ 91 & developm5t ( diagnosis1 prev5tion1 control1 & treatm5t me?ods = neglect$ diseases ( pov]ty 9 ! ,unit$ ,/ates1 includ+ tools to support prev5tion4 7b7 ,eligibility ,to be eligible to receive a coop]ative agreem5t or grant "u subsection 7a71 an entity %all h a demon/rat$ record ( rese>* on neglect$ diseases ( pov]ty4 7c7 ,coord9ation ,! ,secret>y %all ensure t activities "u ?is section are coord9at$ ) simil> activities ( ! ,f$]al ,gov]nm5t relat+ to neglect$ diseases ( pov]ty1 includ+ ! task =ce e/abli%$ "u section #cii,,oo4 7d7 ,use ( funds ,a coop]ative agreem5t or grant aw>d$ "u subsection 7a7 may be us$ =-- 7#a7 /aff+1 adm9i/rative1 & o!r basic op]at+ co/s1 includ+ su* pati5t c>e co/s z are requir$ = rese>*2 7#b7 cl9ical tra9+1 includ+ tra9+ = alli$ heal? pr(essionals1 cont9u+ education = heal? pr(essionals & alli$ heal? pr(essions p]sonnel1 & in=mation programs = ! public ) respect to neglect$ diseases ( pov]ty2 7#c7 rese>* & developm5t programs1 includ+ ! end-to-end rese>* & developm5t ( new treatm5ts1 diagno/ics1 & vacc9es2 7#d7 epidemiological surveillance & transmission /udies capabilities2 & 7#e7 heal? education programs to raise aw>5ess & r$uce /igma ( neglect$ diseases ( pov]ty among high-risk populations4 7e7 ,p]iod ( ,support2 ,additional ,p]iods 7#a7 ,9 g5]al ,a coop]ative agreem5t or grant "u ?is section may be provid$ = a p]iod ( n m ?an #e ye>s4 7#b7 ,ext5sions ,! p]iod specifi$ 9 p>agraph 7#a7 may be ext5d$ by ! ,secret>y = additional p]iods ( n m ?an #e ye>s if-- 7,a7 ! op]ations ( ! c5t] ( excell5ce involv$ h be5 review$ by an appropriate te*nical & sci5tific pe] review gr\p2 & 7,b7 su* gr\p has recomm5d$ to ! ,secret>y t su* p]iod be ext5d$4 #cii,,oo-#f4 ,au?orization ( appropriations ,to c>ry out ?is "p1 !re are au?oriz$ to be appropriat$ su* sums z may be necess>y = fiscal ye> #bjba & ea* fiscal ye> !reaft]4 4