,,ii #aaf? ,,congress #a/ ,session ,s4 #afeg ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,may #bc 7legislative day1 ,may #bb71 #bjai,ms4 ,coll9s 7= h]self1 ,ms4 ,smi?1 & ,mr4 ,k+7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to provide assi/ance to combat ! escalat+ burd5 ( ,lyme disease & o!r tick & vector-borne diseases & disord]s4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,ticks3 ,id5tify1 ,control1 & ,knock\t ,act or ! ,,tick ,act4 #b4 ,(fice ( ,ov]sight & ,coord9ation = ,vector-,borne ,disease 7a7 ,e/abli%m5t ,! ,secret>y ( ,heal? & ,human ,s]vices 7ref]r$ to 9 ?is ,act z ! ,secret>y7 %all e/abli% 9 ! ,(fice ( ! ,secret>y an ,(fice ( ,ov]sight & ,coord9ation = ,vector-,borne ,diseases 7ref]r$ to 9 ?is ,act z ! ,(fice71 to be head$ by a director to be appo9t$ by ! ,secret>y4 7b7 ,duties ( ! ,(fice 7#a7 ,9 g5]al ,! ,director ( ! ,(fice %all-- 7,a7 ov]see ! creation & ma9t5ance ( a national /rategy to address ,lyme disease1 & o!r tick & vector-borne diseases z provid$ = 9 p>agraph 7#b72 & 7,b7 ov]see & coord9ate ,lyme disease & o!r tick & vector-borne disease & disord] programs & activities across ! ag5cies & (fices ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices & o!r ,f$]al ag5cies outside ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 z appropriate4 7#b7 ,national /rategy 7,a7 ,9 g5]al ,! ,director ( ! ,(fice %all provide = ! conduct ( an annual assessm5t ( ! progress ( ! ,unit$ ,/ates 9 prep>+ = ! escalat+ burd5 ( ,lyme disease & o!r tick & vector-borne diseases & disord]s1 includ+ an assessm5t ( all ,f$]ally fund$ programs & activities relat$ to surveillance1 diagnosis1 treatm5t1 education1 or prev5tion1 z well z implem5tation /eps1 & recomm5dations = priority actions1 ) appropriate b5*m>ks to measure progress1 bas$ on ! assessm5t4 7,b7 ,non-f$]al p]spectives ,9 develop+ ! /rategy "u subp>agraph 7,a71 & ma9ta9+ x1 ! ,director %all consult ) non-,f$]al individuals ) appropriate exp]tise1 :i* may include-- 7i7 epidemiologi/s ) exp]i5ce 9 surveillance1 treatm5t1 education1 or prev5tion ( vector-borne diseases2 7ii7 repres5tatives ( national pati5t advocacy & rese>* organizations t focus on vector-borne diseases1 & ^? t focus specifically on tick-borne disease & h demon/rat$ exp]i5ce 9 rese>*1 data collection1 or pati5t access to c>e2 7iii7 heal? in=mation te*nology exp]ts or o!r in=mation managem5t speciali/s2 7iv7 cl9icians1 entomologi/s1 vector-managem5t pr(essionals1 integrat$ pe/ managem5t pr(essionals1 public heal? pr(essionals1 & o!rs ) exp]tise 9 vector-borne disease1 includ+ ,lyme disease or o!r tick-borne diseases or disord]s2 & 7v7 rese>* sci5ti/s ) exp]i5ce conduct+ translational rese>* or utiliz+ surveillance sy/ems = sci5tific rese>* purposes4 7c7 ,objective ( ! ,(fice ,9 c>ry+ out subsection 7b71 ! ,director ( ! ,(fice %all facilitate & "w to ensure ! accompli%m5t ( ! foll[+ activities3 7#a7 ,expansion & enhancem5t ( epidemiological rese>* & basic1 translational1 & cl9ical biological & biom$ical rese>*4 7#b7 ,expansion & improvem5t ( tick surveillance1 l9k+ tick surveillance to surveillance ( ,lyme disease1 & report+ ( ,lyme disease & o!r tick- & vector-borne diseases1 includ+ co9fections ) ag5ts ( m ?an "o tick or vector-borne diseases4 7#c7 ,developm5t ( effective diagno/ic te/s to accurately & timely diagnose ,lyme disease & o!r tick- & vector-borne diseases1 includ+ direct det5tion te/s4 7#d7 ,developm5t ( treatm5ts to cure or improve ! lives ( ^? :o are infect$ ) ,lyme disease or o!r tick-& vector-borne diseases or :o suff] f a tick-induc$ disord] 7su* z tick ,,pim programs74 7#e7 ,address ! quality ( pati5t c>e1 treatm5t af=dability1 & public aw>5ess ( ,lyme disease & o!r tick or vector-borne diseases4 7#f7 ,design & conduct cl9ical trials ( suffici5t size & duration to support cl9ical recomm5dations4 7#g7 ,sy/ematic docum5tation ( ! exp]i5ces ( heal? c>e pr(essionals 9 diagnos+ & treat+ tick- & vector-borne disease1 includ+ diagno/ic & treatm5t outcomes4 7#h7 ,developm5t & ma9t5ance ( "o or m regi/ries ( pati5ts & _! exp]i5ces relat+ to exposure to1 diagnosis =1 & treatm5t ( tick- & vector-borne disease1 includ+ outcomes1 su* t ! confid5tiality & safety ( pati5t data is protect$4 7#i7 ,access to data & enable em]g+ te*nologies to improve pati5t c>e1 %>+ data ) rese>*]s & c>e provid]s4 7#aj7 ,coord9ation ) o!r ,f$]al dep>tm5ts to address tick- & o!r vector-borne diseases includ+ ! ,dep>tm5t ( ,def5se1 ! ,dep>tm5t ( ,agriculture1 ! ,environm5tal ,protection ,ag5cy1 ! ,dep>tm5t ( ,int]ior1 & ! ,dep>tm5t ( ,homel& ,security4 7#aa7 ,coord9ation ) ! ,tick-,borne ,disease ,work+ ,gr\p e/abli%$ "u section #bjfb ( ! #ba/ ,c5tury ,cures ,act 7#db ,u4,s4,c4 #bhds7 to develop & implem5t recomm5dations4 7#ab7 ,coord9ation ) int]national bodies to integrate & in=m ! fight aga9/ ,lyme disease1 & o!r tick- & vector-borne diseases globally4 #c4 ,regional ,c5t]s ( ,excell5ce 9 ,tick & ,vector-,borne ,diseases 7a7 ,9 g5]al ,! ,secret>y1 9 coord9ation ) ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! heads ( o!r ag5cies z appropriate1 %all aw>d grants1 contracts1 or coop]ative agreem5ts to eligible entities 7su* z in/itutions ( high] education1 ,/ate1 tribal1 & local heal? dep>tm5ts1 associations1 or o!r appropriate entities7 = ! e/abli%m5t or support ( ,regional ,c5t]s ( ,excell5ce 9 ,tick & ,vector-,borne ,diseases4 ,su* ,regional ,c5t]s %all be design$ to address ,lyme disease & o!r tick & vector-borne diseases by-- 7#a7 build+ collaboration betwe5 academia & public heal? ag5cies = surveillance1 prev5tion & response to ,lyme disease & o!r tick & vector-borne diseases2 7#b7 provid+ tra9+ = public heal? entomologi/s to deal ) ,lyme disease & o!r tick & vector-borne diseases2 & 7#c7 conduct+ appli$ rese>* to develop & validate prev5tion & control tools & me?ods1 & to anticipate & respond to outbreaks ( ,lyme disease & o!r tick & vector-borne diseases4 7b7 ,eligibility ,to be eligible to receive a grant1 contract1 or coop]ative agreem5t "u ?is section1 an entity %all prep>e & submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* agreem5ts & in=mation z ! ,secret>y may require1 includ+ a description ( h[ ! entity w-- 7#a7 coord9ate1 z applicable1 ) exi/+ ,f$]al1 ,/ate1 & tribal programs relat$ to ,lyme disease & o!r vector-borne diseases2 7#b7 exam9e1 evaluate1 & promote evid5ce-bas$ int]v5tions = individuals ) ,lyme disease & o!r tick- & vector-borne diseases1 includ+ ^? 9 rural & und]s]v$ populations1 & ^? :o provide c>e = su* individuals2 & 7#c7 prioritize activities relat+ to-- 7,a7 exp&+ ef=ts1 z appropriate1 to implem5t evid5ce-bas$ practices to address ,lyme disease & o!r tick- & vector-borne diseases1 includ+ ?r\gh ! tra9+ ( ,/ate1 local1 & tribal public heal? (ficials & o!r heal? pr(essionals on su* practices2 7,b7 support+ surveillance ( vectors1 & e>ly detection & diagnosis ( ,lyme & o!r tick- & vector-borne diseases1 includ+ improv+ ! quality & reliability ( diagno/ic tools at all /ages ( disease progression1 & develop+ a ,lyme disease te/ capable ( di/+ui%+ betwe5 pa/ & active infections2 7,c7 improv+ ! safety & efficacy ( any new1 r5ew$1 or modifi$ human vacc9e = ,lyme disease1 o!r tick- & vector-borne diseases1 or a comb9ation ( su* diseases2 7,d7 develop+ a /&>diz$ scre5+ protocol = ,lyme disease & o!r tick- & vector-borne diseases2 7,e7 enhanc+ /udies & activities on tick biology1 disease ecology1 & surveillance1 & tick managem5t2 & 7,f7 support+ o!r relevant activities id5tifi$ by ! ,secret>y or ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 z appropriate4 7c7 ,consid]ations ,9 aw>d+ grants1 contracts1 & coop]ative agreem5ts "u ?is section1 ! ,secret>y %all consid]1 among o!r factors1 :e!r ! entity-- 7#a7 provides s]vices to rural areas or o!r und]s]v$ populations2 7#b7 is able to build on an exi/+ infra/ructure ( s]vices & public heal? rese>*2 7#c7 is locat$ 9 an area ) a high preval5ce1 or 9 any area pr$ict$ to h a high preval5ce1 ( ,lyme disease or o!r tick- & vector-borne diseases2 & 7#d7 has exp]i5ce ) conduct+ rese>* relat$ to ,lyme disease & o!r tick- & vector-borne diseases4 7d7 ,au?orization ( appropriations ,= ! purpose ( c>ry+ out ?is section1 !re are au?oriz$ to be appropriat$ #aj1jjj1jjj = ea* ( fiscal ye>s f #bjba ?r\gh #bjbf4 ,am\nts appropriat$ %all be allocat$ "u ?is section to diseases 9 a mann] t proportionately mat*es ! disease burd5 ( ^? diseases 9 ! ,unit$ ,/ates1 :i* %all be reassess$ & adju/$ annually4 #d4 ,coop]ative agreem5ts ) ! ,c5t]s = ,disease ,control & ,prev5tion 7a7 ,9 g5]al ,! ,secret>y1 9 coord9ation ) ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! heads ( o!r ag5cies1 z appropriate1 %all ent] into coop]ative agreem5ts betwe5 ! ,c5t]s = ,disease ,control & ,prev5tion & heal? dep>tm5ts ( ,/ates1 political subdivisions ( ,/ates1 & ,indian tribes & tribal organizations1 to address ,lyme ,disease & o!r tick- & vector-borne diseases1 & to support ! developm5t & implem5tation ( evid5ce-bas$ rese>*1 int]v5tions1 & treatm5t ) respect to-- 7#a7 educat+ & in=m+ ! public1 bas$ on evid5ce-bas$ public heal? rese>* & data1 ab\t ,lyme ,disease & o!r vector-borne diseases2 7#b7 support+ e>ly detection & diagnosis2 7#c7 support+ prev5tion2 7#d7 improv+ treatm5t2 7#e7 support+ c>e plann+ & managem5t = individuals ) ,lyme disease & o!r tick- & vector-borne diseases2 & 7#f7 support+ o!r relevant activities id5tifi$ by ! ,secret>y or ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 z appropriate4 7b7 ,eligibility ,to be eligible to ent] into a coop]ative agreem5t "u ?is section1 an entity describ$ 9 subsection 7a7 %all prep>e & submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require1 includ+ a plan t describes-- 7#a7 h[ ! applicant proposes to develop or exp& programs to educate individuals ?r\gh p>tn]%ip engagem5t1 work=ce developm5t1 guidance & support = programmatic ef=ts1 & evaluation ) respect to ,lyme disease & o!r tick- or vector-borne diseases1 & h[ ! applicant proposes to support o!r relevant activities id5tifi$ by ! ,secret>y or ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 z appropriate2 7#b7 ! mann] 9 :i* ! applicant w coord9ate ) ,f$]al1 tribal1 & ,/ate programs relat$ to ,lyme ,disease & o!r vector-borne diseases1 & appropriate ,/ate1 tribal1 & local ag5cies1 z well z o!r relevant public & private organizations or ag5cies2 & 7#c7 ! mann] 9 :i* ! applicant w evaluate ! effectiv5ess ( any program c>ri$ out "u ! coop]ative agreem5t4 7c7 ,au?orization ( appropriations ,= ! purpose ( c>ry+ out ?is section1 !re are au?oriz$ to be appropriat$ #bj1jjj1jjj = ea* ( fiscal ye>s f 7#bjba ?r\gh #bjbf74 ,am\nts appropriat$ %all be allocat$ "u ?is section to diseases 9 a mann] t proportionately mat*es ! disease burd5 ( ^? diseases 9 ! ,unit$ ,/ates1 :i* %all be reassess$ & adju/$ annually4