,,ii  #aaf? ,,congress  #a/ ,session    
,s4 #adgf  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,may #ae1 #bjai,mrs4   
,gillibr& 7= h]self & ,mr4 ,cassidy7    
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,f9ance  ,a ,,bill  ,to waive ! #bd-mon?
 wait+ p]iod = ,m$ic>e eligibility =    
individuals disabl$ by ,hunt+ton's      
disease4  #a4 ,%ort title ,?is ,act may 
be cit$ z ! ,hunt+ton's ,disease ,p>ity 
,act ( #bjai4  #b4 ,f9d+s ,congress     
makes ! foll[+ f9d+s3 7#a7 ,hunt+ton's  
disease is a progressive deg5]ative     
neurological disease t causes total     
physical & m5tal det]ioration4 ,9 !     
,unit$ ,/ates1 approximately #cj1jjj    
individuals are affect$ by ,hunt+ton's  
disease1 along ) ano!r #bjj1jjj         
individuals :o are g5etically at risk4  
,!re is no effective treatm5t 9 t]ms (  
halt+ or sl[+ ! progression ( ! disease4
  7#b7 ,cl9ical indicators ( ,hunt+ton's
 disease include-- 7,a7 loss ( ability  
to control bodily movem5ts2  7,b7 loss (

 ability to ?9k or act quickly1         
inability to le>n new mat]ial1 & loss ( 
memory2 &  7,c7 behavioral or           
psy*ological problems1 includ+          
p]sonality *anges1 irritability1 mood   
sw+s1 anxiety1 obsessive-compulsive     
behavior1 inability to conc5trate1      
decreas$ motivation1 & sev]e depression4
  7#c7 ,adult-onset ,hunt+ton's disease 
typically results 9 ! developm5t (      
symptoms 9 individuals betwe5 #cj & #ej 
ye>s ( age4 ,late-onset ,hunt+ton's     
disease is *>act]iz$ by developm5t (    
symptoms aft] #ej ye>s ( age & is       
usually associat$ ) a mild] c\rse ( !   
disease4 ,juv5ile ,hunt+ton's disease   
affects individuals :o h yet to atta9   
#ai ye>s ( age & progresses at a m rapid
 rate4  7#d7 ,because ( ! incapacitat+  
nature ( ,hunt+ton's disease1           
individuals liv+ ) ?is illness1 includ+ 
^? 9 ! e>ly /ages ( ! disease1 are      
unable to reta9 employm5t4 ,z a result1 
_m su* individuals rely solely on       
,social ,security ,disability           

,insurance4  7#e7 ,aft] qualify+ =      
,social ,security ,disability           
,insurance1 individuals ) ,hunt+ton's   
disease mu/ wait ano!r #bd mon?s be=e   
receiv+ b5efits "u ! ,m$ic>e program1   
despite ! fact t su* individuals (t5    
become incapacitat$ be=e rea*+ !        
age-eligibility requirem5t "u ! ,m$ic>e 
program ( #fe ye>s ( age4  7#f7 ,9      
#bjjj1 ! ,c5t]s = ,m$ic>e  ,m$icaid     
,s]vices waiv$ ! #bd-mon? wait+ p]iod   
requirem5t = p disabl$ by amyotrophic   
lat]al scl]osis 7,,als71 a deg5]ative   
neurological condition t is simil> to   
,hunt+ton's disease4  7#g7 ,9 light ( ! 
significant cognitive1 behavioral1 &    
physical incapacitation fac$ by         
individuals ) ?is disease1 !re is an    
urg5t ne$ = ! removal ( ! #bd-mon? wait+
 p]iod = cov]age "u ! ,m$ic>e program = 
su* individuals1 simil> to ! exi/+      
exemption = individuals :o h be5        
diagnos$ ) ,,als4  #c4 ,waiv] ( #bd-mon?
 wait+ p]iod = cov]age "u m$ic>e program
 = individuals diagnos$ ) ,hunt+ton's   

disease  7a7 ,9 g5]al ,section #bbf7;h7 
( ! ,social ,security ,act 7#db         
,u4,s4,c4 #dbf7;h77 is am5d$1 9 ! matt] 
prec$+ p>agraph 7#a71 by ins]t+ or      
,hunt+ton's disease 7,,hd7 aft]         
amyotrophic lat]al scl]osis 7,,als74    
7b7 ,effective date ,! am5dm5t made by  
subsection 7a7 %all apply to b5efits "u 
title ,,xviii ( ! ,social ,security ,act
 ) respect to items & s]vices furni%$ 9 
mon?s beg9n+ aft] ! date ( ! enactm5t ( 
?is ,act4