#aaf? ,,congress #b;d ,session ,s4 #aacj ,,an ,,act ,to am5d ! ,public ,heal? ,s]vice ,act to improve ! heal? ( *ildr5 & help bett] und]/& & enhance aw>5ess ab\t unexpect$ sudd5 dea? 9 e>ly life4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,sc>lett's ,sun%9e on ,sudd5 ,unexpect$ ,dea? ,act4 #b4 ,am5dm5t to ! ,public ,heal? ,s]vice ,act ,"p ,b ( title ,,xi ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bda et seq47 is am5d$-- 7#a7 9 ! "p head+1 by /rik+ ,sudd5 infant dea? syndrome & ins]t+ ,sudd5 unexpect$ infant dea?1 sudd5 infant dea? syndrome1 & sudd5 unexpect$ dea? 9 *ildhood2 & 7#b7 by ins]t+ be=e section #aabb ! foll[+3 #aaba4 ,address+ sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood 7a7 ,9 g5]al ,! ,secret>y may develop1 support1 or ma9ta9 programs or activities to address sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by-- 7#a7 cont9u+ to support ! ,sudd5 ,unexpect$ ,infant ,dea? & ,sudd5 ,dea? 9 ! ,"y ,case ,regi/ry ( ! ,c5t]s = ,disease ,control & ,prev5tion & o!r fatality case report+ sy/ems t include data p]ta9+ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 z appropriate1 includ+ su* sy/ems support$ by ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 9 ord] to-- 7,a7 increase ! numb] ( ,/ates & jurisdictions p>ticipat+ 9 su* regi/ries or sy/ems2 & 7,b7 improve ! utility ( su* regi/ries or sy/ems1 :i* may include-- 7i7 mak+ summ>y data available to ! public 9 a timely mann] on ! int]net website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 9 a mann] t1 at a m9imum1 protects p]sonal privacy to ! ext5t requir$ by applicable ,f$]al & ,/ate law2 & 7ii7 mak+ ! data submitt$ to su* regi/ries or sy/ems available to rese>*]s1 9 a mann] t1 at a m9imum1 protects p]sonal privacy to ! ext5t requir$ by applicable ,f$]al & ,/ate law2 & 7#b7 aw>d+ grants or coop]ative agreem5ts to ,/ates1 ,indian ,tribes1 & ,tribal organizations = purposes (-- 7,a7 support+ fetal & infant mortality & *ild dea? review programs = sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by e/abli%+ su* programs at ! local level2 7,b7 improv+ data collection relat$ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by-- 7i7 improv+ ! completion ( dea? sc5e inve/igations & compreh5sive autopsies t include a review ( cl9ical hi/ory & circum/ances ( dea? ) appropriate ancill>y te/+2 & 7ii7 tra9+ m$ical exam9]s1 coron]s1 dea? sc5e inve/igators1 law en=cem5t p]sonnel1 em]g5cy m$ical te*nicians1 p>am$ics1 em]g5cy dep>tm5t p]sonnel1 & o!rs :o p]=m dea? sc5e inve/igations ) respect to ! dea?s ( infants & *ildr51 z appropriate2 7,c7 id5tify+1 develop+1 & implem5t+ be/ practices to r$uce or prev5t sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ practices to r$uce sleep-relat$ infant dea?s2 7,d7 increas+ ! volunt>y inclusion1 9 regi/ries e/abli%$ = ! purpose ( conduct+ rese>* on sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 ( samples ( tissues or g5etic mat]ials f autopsies t h be5 collect$ pursuant to ,f$]al or ,/ate law & = :i* ! p>5t or gu>dian has provid$ in=m$ cons5t = inclusion 9 su* regi/ries2 or 7,e7 dissem9at+ in=mation & mat]ials to heal? c>e pr(essionals & ! public on risk factors t contribute to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 :i* may include in=mation on risk factors t contribute to sleep-relat$ sudd5 unexpect$ infant dea? or sudd5 unexpect$ dea? 9 *ildhood4 7b7 ,application ,to be eligible to receive a grant or coop]ative agreem5t "u subsection 7a77#b71 a ,/ate1 ,indian ,tribe1 or ,tribal organization %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require1 includ+ in=mation on h[ su* ,/ate w ensure activities conduct$ "u ?is section are coord9at$ ) o!r f$]ally-fund$ programs to r$uce infant mortality1 z appropriate4 7c7 ,te*nical assi/ance ,! ,secret>y %all provide te*nical assi/ance to ,/ates1 ,tribes1 & ,tribal organizations receiv+ a grant or coop]ative agreem5t "u subsection 7a77#b7 = purposes ( c>ry+ out ! program 9 accordance ) ?is section4 7d7 ,report+ =ms 7#a7 ,9 g5]al ,! ,secret>y %all1 z appropriate1 enc\rage ! use ( sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood report+ =ms develop$ 9 collaboration ) ! ,c5t]s = ,disease ,control & ,prev5tion to improve ! quality ( data submitt$ to ! ,sudd5 ,unexpect$ ,infant ,dea? & ,sudd5 ,dea? 9 ! ,"y ,case ,regi/ry1 & o!r fatality case report+ sy/ems t include data p]ta9+ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood4 7#b7 ,update ( =ms ,! ,secret>y %all assess :e!r updates are ne$$ to ! sudd5 unexpect$ infant dea? inve/igation report+ =m us$ by ! ,c5t]s = ,disease ,control & ,prev5tion 9 ord] to improve ! use ( su* =m ) o!r fatality case report+ sy/ems support$ by ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 & %all make su* updates z appropriate4 7e7 ,def9itions ,9 ?is section3 7#a7 ,sudd5 infant dea? syndrome ,! t]m sudd5 infant dea? syndrome means a sudd5 unexpect$ infant dea? t rema9s unexpla9$ aft] a ?or\gh case inve/igation4 7#b7 ,sudd5 unexpect$ infant dea? ,! t]m sudd5 unexpect$ infant dea? means ! sudd5 dea? ( an infant "u #a ye> ( age t :5 fir/ discov]$ did n h an obvi\s cause4 ,su* t]m includes su* dea?s t are expla9$1 z well z dea?s t rema9 unexpla9$ 7:i* are kn[n z sudd5 infant dea? syndrome74 7#c7 ,sudd5 unexpect$ dea? 9 *ildhood ,! t]m sudd5 unexpect$ dea? 9 *ildhood means ! sudd5 dea? ( a *ild :o is at lea/ #a ye> ( age b n m ?an #ag ye>s ( age t1 :5 fir/ discov]$1 did n h an obvi\s cause4 ,su* t]m includes su* dea?s t are expla9$1 z well z dea?s t rema9 unexpla9$ 7:i* are kn[n z sudd5 unexpla9$ dea? 9 *ildhood74 7#d7 ,sudd5 unexpla9$ dea? 9 *ildhood ,! t]m sudd5 unexpla9$ dea? 9 *ildhood means a sudd5 unexpect$ dea? 9 *ildhood t rema9s unexpla9$ aft] a ?or\gh case inve/igation4 7f7 ,au?orization ( appropriations ,= ! purpose ( c>ry+ out ?is section1 !re is au?oriz$ to be appropriat$ #ab1jjj1jjj = ea* ( fiscal ye>s #bjba ?r\gh #bjbe4 4 #c4 ,report to ,congress 7a7 ,9 g5]al ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act & bi5nially !reaft]1 ! ,secret>y ( ,heal? & ,human ,s]vices %all submit to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives a report t conta9s1 ) respect to ! report+ p]iod-- 7#a7 in=mation reg>d+ ! incid5ce & numb] ( sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood 7includ+ ! numb] ( su* infant & *ild dea?s t rema9 unexpla9$ aft] inve/igation71 includ+1 to ! ext5t practicable-- 7,a7 a summ>y ( su* in=mation by racial & e?nic gr\p1 & by ,/ate2 7,b7 aggregate in=mation obta9$ f dea? sc5e inve/igations & autopsies2 & 7,c7 recomm5dations = r$uc+ ! incid5ce ( sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood2 7#b7 an assessm5t ( ! ext5t to :i* v>i\s approa*es ( r$uc+ & prev5t+ sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood h be5 effective2 & 7#c7 a description ( ! activities c>ri$ out "u section #aaba ( ! ,public ,heal? ,s]vice ,act 7z add$ by section #b74 7b7 ,def9itions ,9 ?is section1 ! t]ms sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood h ! mean+s giv5 su* t]ms 9 section #aaba ( ! ,public ,heal? ,s]vice ,act 7z add$ by section #b74 ,pass$ ! ,s5ate ,may #bj1 #bjbj4,secret>y