#aafth ,,congress #b;d ,session ,in the ,house of ,representatives1 ,u4 ,s41 ,december #aj1 #bjbj ,,amendment3 ,that the bill from the ,senate 7,s4 #aacj7 entitled ,an ,act to amend the ,public ,health ,service ,act to improve the health of children and help better understand and enhance awareness about unexpected sudden death in early life41 do pass with the following ,strike all after section #a and insert the following3 #b4 ,amendment to the ,public ,health ,service ,act ,part ,b of title ,,xi of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bda et seq47 is amended-- 7#a7 in the part heading1 by striking ,sudden infant death syndrome and inserting ,sudden unexpected infant death1 sudden infant death syndrome1 and sudden unexpected death in childhood2 and 7#b7 by inserting before section #aabb the following3 #aaba4 ,addressing sudden unexpected infant death and sudden unexpected death in childhood 7a7 ,in general ,the ,secretary may develop1 support1 or maintain programs or activities to address sudden unexpected infant death and sudden unexpected death in childhood1 including by-- 7#a7 continuing to support the ,sudden ,unexpected ,infant ,death and ,sudden ,death in the ,young ,case ,registry of the ,centers for ,disease ,control and ,prevention and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood1 as appropriate1 including such systems supported by the ,health ,resources and ,services ,administration1 in order to-- 7,a7 increase the number of ,states and jurisdictions participating in such registries or systems2 and 7,b7 improve the utility of such registries or systems1 which may include-- 7i7 making summary data available to the public in a timely manner on the internet website of the ,department of ,health and ,human ,services1 in a manner that1 at a minimum1 protects personal privacy to the extent required by applicable ,federal and ,state law2 and 7ii7 making the data submitted to such registries or systems available to researchers1 in a manner that1 at a minimum1 protects personal privacy to the extent required by applicable ,federal and ,state law2 and 7#b7 awarding grants or cooperative agreements to ,states1 ,indian ,tribes1 and ,tribal organizations for purposes of-- 7,a7 supporting fetal and infant mortality and child death review programs for sudden unexpected infant death and sudden unexpected death in childhood1 including by establishing such programs at the local level2 7,b7 improving data collection related to sudden unexpected infant death and sudden unexpected death in childhood1 including by-- 7i7 improving the completion of death scene investigations and comprehensive autopsies that include a review of clinical history and circumstances of death with appropriate ancillary testing2 and 7ii7 training medical examiners1 coroners1 death scene investigators1 law enforcement personnel1 emergency medical technicians1 paramedics1 emergency department personnel1 and others who perform death scene investigations with respect to the deaths of infants and children1 as appropriate2 7,c7 identifying1 developing1 and implementing best practices to reduce or prevent sudden unexpected infant death and sudden unexpected death in childhood1 including practices to reduce sleep-related infant deaths2 7,d7 increasing the voluntary inclusion1 in registries established for the purpose of conducting research on sudden unexpected infant death and sudden unexpected death in childhood1 of samples of tissues or genetic materials from autopsies that have been collected pursuant to ,federal or ,state law and for which the parent or guardian has provided informed consent for inclusion in such registries2 7,e7 disseminating information and materials to health care professionals and the public on risk factors that contribute to sudden unexpected infant death and sudden unexpected death in childhood1 which may include information on risk factors that contribute to sleep-related sudden unexpected infant death or sudden unexpected death in childhood2 or 7,f7 providing information1 referrals1 or peer or follow-up support services to families who have experienced sudden unexpected infant death or sudden unexpected death in childhood4 7b7 ,application ,to be eligible to receive a grant or cooperative agreement under subsection 7a77#b71 a ,state1 ,indian ,tribe1 or ,tribal organization shall submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may require1 including information on how such ,state will ensure activities conducted under this section are coordinated with other federally-funded programs to reduce infant and child mortality1 as appropriate4 7c7 ,technical assistance ,the ,secretary shall provide technical assistance to ,states1 ,tribes1 and ,tribal organizations receiving a grant or cooperative agreement under subsection 7a77#b7 for purposes of carrying out the program in accordance with this section4 7d7 ,reporting forms 7#a7 ,in general ,the ,secretary shall1 as appropriate1 encourage the use of sudden unexpected infant death and sudden unexpected death in childhood reporting forms developed in collaboration with the ,centers for ,disease ,control and ,prevention to improve the quality of data submitted to the ,sudden ,unexpected ,infant ,death and ,sudden ,death in the ,young ,case ,registry1 and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood4 7#b7 ,update of forms ,the ,secretary shall assess whether updates are needed to the sudden unexpected infant death investigation reporting form used by the ,centers for ,disease ,control and ,prevention in order to improve the use of such form with other fatality case reporting systems supported by the ,department of ,health and ,human ,services1 and shall make such updates as appropriate4 7e7 ,definitions ,in this section3 7#a7 ,sudden infant death syndrome ,the term sudden infant death syndrome means a sudden unexpected infant death that remains unexplained after a thorough case investigation4 7#b7 ,sudden unexpected infant death ,the term sudden unexpected infant death means the sudden death of an infant under #a year of age that when first discovered did not have an obvious cause4 ,such term includes such deaths that are explained1 as well as deaths that remain unexplained 7which are known as sudden infant death syndrome74 7#c7 ,sudden unexpected death in childhood ,the term sudden unexpected death in childhood means the sudden death of a child who is at least #a year of age but not more than #ag years of age that1 when first discovered1 did not have an obvious cause4 ,such term includes such deaths that are explained1 as well as deaths that remain unexplained 7which are known as sudden unexplained death in childhood74 7#d7 ,sudden unexplained death in childhood ,the term sudden unexplained death in childhood means a sudden unexpected death in childhood that remains unexplained after a thorough case investigation4 7f7 ,authorization of appropriations ,for the purpose of carrying out this section1 there is authorized to be appropriated #ab1jjj1jjj for each of fiscal years #bjbb through #bjbf4 4 #c4 ,report to ,congress 7a7 ,in general ,not later than #b years after the date of enactment of this ,act and biennially thereafter1 the ,secretary of ,health and ,human ,services shall submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives a report that contains1 with respect to the reporting period-- 7#a7 information regarding the incidence and number of sudden unexpected infant death and sudden unexpected death in childhood 7including the number of such infant and child deaths that remain unexplained after investigation71 including1 to the extent practicable-- 7,a7 a summary of such information by racial and ethnic group1 and by ,state2 7,b7 aggregate information obtained from death scene investigations and autopsies2 and 7,c7 recommendations for reducing the incidence of sudden unexpected infant death and sudden unexpected death in childhood2 7#b7 an assessment of the extent to which various approaches of reducing and preventing sudden unexpected infant death and sudden unexpected death in childhood have been effective2 and 7#c7 a description of the activities carried out under section #aaba of the ,public ,health ,service ,act 7as added by section #b74 7b7 ,definitions ,in this section1 the terms sudden unexpected infant death and sudden unexpected death in childhood have the meanings given such terms in section #aaba of the ,public ,health ,service ,act 7as added by section #b74 ,clerk4