,,ii #aaf? ,,congress #a/ ,session ,s4 #aabf ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,april #aj1 #bjai ,mrs4 ,capito 7= h]self1 ,ms4 ,/ab5[1 ,mr4 ,wick]1 & ,mr4 ,m55dez7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,f9ance ,a ,,bill ,to provide bett] c>e & outcomes = ,am]icans liv+ ) ,alzheim]'s disease & relat$ dem5tias & _! c>egiv]s1 :ile accel]at+ progress t[>d prev5tion /rategies1 disease modify+ treatm5ts1 &1 ultimately1 a cure4 #a4 ,%ort title2 table ( cont5ts2 f9d+s 7a7 ,%ort title ,?is ,act may be cit$ z ! ,conc5trat+ on ,high-value ,alzheim]'s ,ne$s to ,get to an ,end 7,,*ange7 ,act ( #bjai4 7b7 ,table ( cont5ts ,! table ( cont5ts = ?is ,act is z foll[s3 ,sec4 #a4 ,%ort title2 table ( cont5ts2 f9d+s4 ,sec4 #b4 ,cognitive impairm5t detection b5efit 9 ! ,m$ic>e annual wellness visit & initial prev5tive physical exam9ation4 ,sec4 #c4 ,m$ic>e quality paym5t program4 ,sec4 #d4 ,report to ,congress on implem5tation4 7c7 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,x is e/imat$ t #e1hjj1jjj million ,am]icans are liv+ ) ,alzheim]'s disease 9 #bjai4 ,?is includes an e/imat$ #e1fjj1jjj million p age #fe & old] & approximately #bjj1jjj individuals "u age #fe :o h y\ng]-onset ,alzheim]'s4 ,by #bjej1 ! numb] ( p age #fe & old] ) ,alzheim]'s dem5tia is project$ to increase to #ac1hjj1jjj ,am]icans4 7#b7 ,z _m z half ( ! e/imat$ #e1ajj1jjj ,am]ican s5iors ) ,alzheim]'s disease & o!r dem5tias h nev] receiv$ a diagnosis4 7#c7 ,9 #bjai1 x is expect$ t ,alzheim]'s & relat$ dem5tias w co/ ,m$ic>e & ,m$icaid #aie1jjj1jjj1jjj4 ,by #bjej1 x is e/imat$ t ov]all ,alzheim]'s co/s w increase to m ?an #a1ajj1jjj1jjj1jjj4 7#d7 ,alzheim]'s exacts an emotional & physical toll on c>egiv]s1 result+ 9 high] incid5ce ( he>t disease1 canc]1 depression1 & o!r heal? consequ5ces4 7#e7 ,alzheim]'s disease disproportionately impacts wom5 & p ( color4 ,wom5 are twice z likely to develop ,alzheim]'s z !y are brea/ canc]4 ,african ,am]icans are ab\t #b times m likely ?an ,:ite ,am]icans to h ,alzheim]'s disease & o!r dem5tias4 ,lat9os are ab\t #aa_/b times m likely ?an ,:ite ,am]icans to h ,alzheim]'s disease & o!r dem5tias4 ,accord+ to ! ,c5t]s = ,disease ,control1 among p ages #fe & old]1 ,african ,am]icans h ! highe/ preval5ce ( ,alzheim]'s disease & relat$ dem5tias 7#ac4h p]c5t71 foll[$ by ,hispanics 7#ab4b p]c5t71 & non-,hispanic ,:ites 7#aj4c p]c5t71 ,am]ican ,indian & ,alaska ,natives 7#i4a p]c5t71 & ,asian & ,pacific ,isl&]s 7#h4d p]c5t74 ,?is high] preval5ce translates into a high] dea? rate3 ,alzheim]'s dea?s increas$ #ee p]c5t among all ,am]icans betwe5 #aiii & #bjad1 :ile ! numb] 0 #ajg p]c5t = ,lat9os & #ii p]c5t = ,african ,am]icans4 7#f7 ,! late/ sci5ce reveals !re are actions t c be tak5 bo? n[ & across ! lifespan ( an individual to help optimize bra9 heal?1 r$uce ! risk ( cognitive decl9e1 & help mitigate symptoms4 ,!re are also important behavioral & social dim5sions t c\ld delay cognitive decl9e & build a resili5t bra94 ,= example1 a #bjaf /udy support$ by ! ,national ,in/itutes ( ,heal? f\nd t a diet high 9 natural plant-bas$ foods & limit$ 9 saturat$ fats 0 associat$ ) r$uc$ cognitive decl9e4 ,a #bjag /udy publi%$ by ! ,lancet ,commission f\nd t physical activity _h a significant protective effect aga9/ cognitive decl9e4 ,a /udy support$ by ! ,national ,in/itutes ( ,heal? :i* 0 publi%$ 9 #bjah f\nd a connection betwe5 l[] blood pressure & decreas$ cognitive impairm5t4 ,an ,am]ican ,academy ( ,neurology /udy rec5tly publi%$ f\nd t physical activity & cognitive activity 7 bo? associat$ ) r$uc$ risk ( total dem5tia4 7#g7 ,!re are evid5ce-bas$1 reliable1 & ,national ,in/itutes ( ,heal?-id5tifi$ cognitive impairm5t detection tools t are available on ! ,alzheim]'s & ,dem5tia ,res\rces website ( ! ,national ,in/itute on ,ag+ t mu/ replace detection by direct obs]vation 9 ! ,m$ic>e ,annual visits & ,welcome to ,m$ic>e visits4 ,! ,national ,in/itutes ( ,heal?-id5tifi$ tools w all[ = appropriate foll[-up in/ead ( delay+ diagnosis or imp$+ opportunities = pati5ts to access timely treatm5t options1 includ+ cl9ical trial p>ticipation4 7#h7 ,an e>ly1 docum5t$ diagnosis1 communicat$ to ! pati5t & c>egiv]1 enables e>ly access to c>e plann+ s]vices & available m$ical & nonm$ical treatm5ts1 & optimizes ! ability ( pati5ts to build a c>e team1 p>ticipate 9 support s]vices1 & enroll 9 cl9ical trials4 7#i7 ,african ,am]icans repres5t #ac p]c5t ( ! ,unit$ ,/ates population1 b only #e p]c5t ( cl9ical trial p>ticipants1 & ,lat9os repres5t #ag p]c5t ( ! ,unit$ ,/ates population1 b less ?an #a p]c5t ( cl9ical trial p>ticipants4 ,fur!r1 ,lat9os & ,african ,am]icans acc\nt = only #c4e p]c5t & #a4b p]c5t1 respectively1 ( pr9cipal inve/igators support$ by ! ,national ,in/itutes ( ,heal? fund+1 limit+ ?is p]spective 9 rese>*4 ,bett] recruitm5t & trial designs are critical to address+ innovation 9 ,alzheim]'s g5]ally1 includ+ ! und]repres5tation ( ,african ,am]icans & ,lat9os4 7#aj7 ,inability to id5tify eligible pati5ts at ! e>lie/ /ages ( disease is a sub/antial imp$im5t to effici5t rese>* t[>d ,alzheim]'s disease prev5tion1 treatm5t1 & cure4 7#aa7 ,advanc+ treatm5t options to prev5t1 treat1 or cure ,alzheim]'s is an urg5t national priority4 7#ab7 ,a p>adigm %ift to drive syn]gies betwe5 high-value pati5t c>e1 c>egiv] support1 bra9 heal? promotion1 & rese>* initiatives is our be/ hope = prev5t+1 treat+1 & cur+ ,alzheim]'s disease4 #b4 ,cognitive impairm5t detection b5efit 9 ! ,m$ic>e annual wellness visit & initial prev5tive physical exam9ation 7a7 ,annual wellness visit 7#a7 ,9 g5]al ,section #ahfa7;hhh77#b7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7hhh77#b77 is am5d$-- 7,a7 by /rik+ subp>agraph 7,d7 & ins]t+ ! foll[+3 7,d7 ,detection ( any cognitive impairm5t or progression ( cognitive impairm5t t %all-- 7i7 be p]=m$ us+ a cognitive impairm5t detection tool id5tifi$ by ! ,national ,in/itute on ,ag+ z meet+ its crit]ia = select+ in/rum5ts to detect cognitive impairm5t 9 ! prim>y c>e sett+1 & o!r validat$ cognitive detection tools z ! ,secret>y det]m9es2 7ii7 include docum5tation ( ! tool us$ = detect+ cognitive impairm5t & results ( ! assessm5t 9 ! m$ical record ( ! pati5t2 & 7iii7 take into consid]ation ! tool us$1 & results (1 any previ\sly p]=m$ cognitive impairm5t detection assessm5t4 2 7,b7 by mov+ subp>agraphs 7,g7 & 7,h7 two ems to ! left2 7,c7 by r$esignat+ subp>agraph 7,i7 z subp>agraph 7,j72 & 7,d7 by ins]t+ aft] subp>agraph 7,h7 ! foll[+ new subp>agraph3 7,i7 ,ref]ral ( pati5ts ) detect$ cognitive impairm5t or pot5tial cognitive decl9e to-- 7i7 appropriate ,alzheim]'s disease & dem5tia diagno/ic s]vices1 includ+ amyloid positron emission tomography1 & o!r m$ically accept$ diagno/ic te/s t ! ,secret>y det]m9es are safe & effective2 7ii7 speciali/s & o!r cl9icians ) exp]tise 9 diagnos+ or treat+ ,alzheim]'s disease & relat$ dem5tias2 7iii7 available community-bas$ s]vices1 includ+ pati5t & c>egiv] c\nsel+ & social support s]vices2 & 7iv7 appropriate cl9ical trials4 4 7#b7 ,effective date ,! am5dm5ts made by p>agraph 7#a7 %all apply to annual wellness visits furni%$ on or aft] ,janu>y #a1 #bjbj4 7b7 ,initial prev5tive physical exam9ation 7#a7 ,9 g5]al ,section #ahfa7ww77#a7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7ww77#a77 is am5d$ by ins]t+ detection ( any cognitive impairm5t or progression ( cognitive impairm5t z describ$ 9 subp>agraph 7,d7 ( subsection 7hhh77#b7 & ref]rals z describ$ 9 subp>agraph 7,i7 ( su* subsection1 aft] ^u ! agreem5t ) ! individual14 7#b7 ,effective date ,! am5dm5ts made by p>agraph 7#a7 %all apply to initial prev5tive physical exam9ations furni%$ on or aft] ,janu>y #a1 #bjbj4 #c4 ,m$ic>e quality paym5t program ,n lat] ?an ,janu>y #a1 #bjbj1 ! ,secret>y ( ,heal? & ,human ,s]vices %all implem5t ,m$ic>e policies "u title ,,xviii ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq471 includ+ quality measures & ,m$ic>e ,advantage plan rat+ & risk adju/m5t me*anisms1 t reflect ! public heal? imp]ative (-- 7#a7 promot+ heal?y bra9 life/yle *oices2 7#b7 id5tify+ & respond+ to pati5t risk factors = ,alzheim]'s disease & relat$ dem5tias2 & 7#c7 inc5tiviz+ provid]s =-- 7,a7 adequate & reliable cognitive impairm5t detection 9 ! prim>y c>e sett+1 t is docum5t$ 9 ! electronic heal? record ( ! pati5t & communicat$ to ! pati5t2 7,b7 timely ,alzheim]'s disease diagnosis2 & 7,c7 appropriate c>e plann+ s]vices1 includ+ id5tification (1 & communication ) pati5ts & c>egiv]s reg>d+1 ! pot5tial = cl9ical trial p>ticipation4 #d4 ,report to ,congress on implem5tation ,n lat] ?an #c ye>s aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all submit to ,congress a report on ! implem5tation ( ! provisions (1 & am5dm5ts made by1 ?is ,act1 includ+-- 7#a7 ! increas$ use ( validat$ tools = detection ( cognitive impairm5t & ,alzheim]'s disease2 7#b7 utilization ( ,alzheim]'s disease diagno/ic & c>e plann+ s]vices2 & 7#c7 outrea* ef=ts 9 ! prim>y c>e & pati5t communities4