,,iv  #aaf? ,,congress  #b;d ,session   
,h4 ,,res4 #igj  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #ae1 #bjbj,mr4   
,cr[ 7= himself1 ,mr4 ,fitzpatrick1 ,ms4
 ,sewell ( ,alabama1 ,mr4 ,calv]t1 ,mr4 
,deut*1 ,mr4 ,l>son ( ,connecticut1 ,mr4
 ,k+ ( ,i[a1 ,mr4 ,clay1 ,mr4 ,neguse1  
,mr4 ,hold+1 ,mr4 ,o',hall]an1 ,mr4     
,r\da1 ,mr4 ,van ,drew1 ,mr4 ,rask91    
,mr4 ,hurd ( ,texas1 ,mr4 ,quigley1     
,mrs4 ,axne1 ,mr4 ,m\lton1 ,mr4 ,ca/5 ( 
,ill9ois1 ,mr4 ,cole1 ,mr4 ,s*iff1 ,ms4 
,ca/or ( ,florida1 ,mr4 ,rodney ,davis (
 ,ill9ois1 ,mr4 ,=t5b]ry1 ,mr4 ,huffman1
 ,mrs4 ,rodg]s ( ,wa%+ton1 ,mr4         
,gallagh]1 ,mr4 ,case1 ,ms4 ,blunt      
,ro*e/]1 ,mr4 ,suozzi1 ,mr4 ,connolly1  
,mr4 ,lamborn1 ,mrs4 ,davis ( ,cali=nia1
 ,mr4 ,panetta1 ,mr4 ,rose ( ,new ,york1
 ,mr4 ,mc,govern1 ,mr4 ,johnson (       
,georgia1 ,mr4 ,?ompson ( ,mississippi1 
,mr4 ,k+ ( ,new ,york1 ,mr4 ,bo/1 ,mr4  
,m>%all1 ,mr4 ,we/]man1 ,mr4 ,price (   
,nor? ,c>ol9a1 ,mr4 ,bilirakis1 ,ms4    
,velzquez1 ,ms4 ,f9k5au]1 ,mr4 ,biggs1  

,mr4 ,trone1 ,mr4 ,butt]field1 ,mrs4    
,beatty1 ,mr4 ,de,fazio1 ,ms4 ,matsui1  
,mr4 ,coh51 ,mr4 ,joyce ( ,ohio1 ,mr4   
,?ompson ( ,p5nsylvania1 ,mr4 ,wel*1    
,mr4 ,ma/1 ,mr4 ,v>gas1 ,mr4 ,lamb1 ,mr4
 ,tonko1 ,mr4 ,rupp]sb]g]1 ,mr4         
,espaillat1 ,mr4 ,bi%op ( ,georgia1 ,mr4
 ,engel1 ,ms4 ,bonamici1 ,ms4 ,adams1   
,mr4 ,lyn*1 ,ms4 ,mc,collum1 ,ms4       
,craig1 ,mr4 ,timmons1 ,ms4 ,lee (      
,cali=nia1 ,mr4 ,cleav]1 ,mr4 ,curtis1 &
 ,mrs4 ,c>olyn ,b4 ,maloney ( ,new      
,york7 submitt$ ! foll[+ resolution2 :i*
 0 ref]r$ to ! ,committee on ,en]gy &   
,comm]ce  ,,resolution  ,support+ !     
designation ( ,may #bjbj z ,,als        
,aw>5ess ,mon?4  ,:]eas amyotrophic     
lat]al scl]osis 7ref]r$ to 9 ?is        
preamble z ,,als7 is a progressive      
neurodeg5]ative disease t affects n]ve  
cells 9 ! bra9 & ! sp9al cord2 ,:]eas ! 
life expectancy = an individual ) ,,als 
is betwe5 #b & #e ye>s aft] ! date on   
:i* ! individual receives an ,,als      
diagnosis2 ,:]eas ,,als occurs ?r\gh\t !

 _w ) no racial1 e?nic1 g5d]1 or        
socioeconomic b\nd>ies2 ,:]eas ! #b     
diff]5t types ( ,,als are sporadic ,,als
 & familial ,,als2 ,:]eas sporadic      
,,als-- 7#a7 is ! mo/ common =m ( motor 
neuron disease 9 ! ,unit$ ,/ates2  7#b7 
acc\nts = betwe5 #ij & #ie p]c5t ( all  
cases ( ,,als 9 ! ,unit$ ,/ates2 &  7#c7
 may affect any individual 9 any        
location2 ,:]eas familial ,,als         
7commonly kn[n z ,,fals7-- 7#a7 is      
inh]it$2 &  7#b7 acc\nts = betwe5 #e &  
#aj p]c5t ( all cases ( ,,als 9 ! ,unit$
 ,/ates2 ,:]eas !re is a #ej p]c5t *ance
 t ea* (fspr+ ( an individual ) familial
 ,,als w inh]it ! g5e mutation =        
familial ,,als & develop ! disease2     
,:]eas1 on av]age1 ! p]iod betwe5 ! date
 on :i* an individual fir/ exp]i5ces    
symptoms ( ,,als & ! date on :i* !      
individual is diagnos$ ) ,,als is ab\t  
#a ye>2 ,:]eas ! onset ( ,,als (t5      
involves muscle weakness or /iffness1 & 
! progression ( ,,als results 9 ! fur!r 
weak5+1 wa/+1 & p>alysis (-- 7#a7 !     

muscles ( ! limbs & trunk2 &  7#b7 !    
muscles t control vital functions1 su* z
 spee*1 swall[+1 & brea?+2 ,:]eas ,,als 
c /rike individuals ( any age b         
pr$om9antly /rikes adults2 ,:]eas x is  
e/imat$ t t5s ( ?\s&s ( individuals 9 ! 
,unit$ ,/ates h ,,als at any giv5 "t2   
,:]eas1 bas$ on /udies ( ! population ( 
! ,unit$ ,/ates1 slightly m ?an #e1fjj  
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* ye>1 & #ae         
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* day2 ,:]eas1 betwe5
 #bjae & #bjdj1 ! numb] ( ,,als cases   
ar\nd ! _w is expect$ to increase ne>ly 
#gj p]c5t2 ,:]eas ! majority (          
individuals ) ,,als die ( respiratory   
failure2 ,:]eas milit>y vet]ans are     
approximately twice z likely to be      
diagnos$ ) ,,als z ! g5]al public 9 !   
,unit$ ,/ates2 ,:]eas1 z ( ! date (     
introduction ( ?is resolution1 !re is no
 cure = ,,als2 ,:]eas ! sp\ses1 *ildr51 
& family memb]s ( individuals liv+ )    
,,als provide support to ^? individuals 

) love1 day-to-day c>e1 & m2 & ,:]eas an
 individual ) ,,als & ! c>egiv]s ( su*  
an individual c be requir$ to be>       
significant co/s = m$ical c>e1 equipm5t1
 & home heal? c>e s]vices = ! individual
 z ! disease progresses3 ,n[1 !re=e1 be 
x ,t ! ,h\se ( ,repres5tatives-- 7#a7   
supports ! designation ( ,,als ,aw>5ess 
,mon?2  7#b7 affirms ! d$ication ( !    
,h\se ( ,repres5tatives to work+ t[>d   
secur+ cures & bett] treatm5ts =        
amyotrophic lat]al scl]osis 7ref]r$ to 9
 ?is resolution z ,,als7 z soon z       
possible2  7#c7 recognizes ! *all5ges t 
individuals ) m$ically det]m9$ ,,als    
face on a daily basis2 &  7#d7 comm5ds !
 d$ication ( ! family memb]s1 fri5ds1   
organizations1 volunte]s1 rese>*]s1 &   
c>egiv]s across ! ,unit$ ,/ates t are   
work+ to improve ! quality & l5g? ( life
 ( ,,als pati5ts4