,,iv  #aaf? ,,congress  #a/ ,session    
,h4 ,,res4 #bdb  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,m>* #ah1 #bjai,mr4   
,butt]field 7= himself & ,mr4           
,bilirakis7 submitt$ ! foll[+           
resolution2 :i* 0 ref]r$ to ! ,committee
 on ,en]gy & ,comm]ce  ,,resolution     
,affirm+ ! importance ( ! ,orphan ,drug 
,act1 celebrat+ ! ov] #gej new orphan   
!rapies approv$ s9ce its creation1 &    
recogniz+ ! ne$ to cont9ue support+     
rese>* & developm5t = r>e diseases4     
,:]eas #cj million p 9 ! ,unit$ ,/ates1 
or ne>ly "o out ( e #aj individuals 9 ! 
,unit$ ,/ates1 lives ) at lea/ "o ( m   
?an #g1jjj kn[n r>e diseases2 ,:]eas !  
,orphan ,drug ,act 7,public ,law        
#ig-dad7 0 enact$ to provide rese>* &   
developm5t inc5tives to enc\rage !      
developm5t ( new !rapies = diseases     
affect+ few] ?an #bjj1jjj p 9 ! ,unit$  
,/ates2 ,:]eas 9 ! #aj ye>s prior to    
enactm5t ( su* ,act1 only #aj !rapies = 
r>e diseases 7 develop$ by private      
indu/ry & approv$ by ! ,food & ,drug    

,adm9i/ration2 ,:]eas s9ce enactm5t (   
su* ,act1 rese>* & developm5t ( !rapies 
address+ r>e diseases has result$ 9 m   
?an #gej new !rapies = r>e diseases2    
,:]eas exp]ts e/imate t )\t ! tax cr$it 
"u section #de;,c ( ! ,int]nal ,rev5ue  
,code 7relat+ to a tax cr$it = cl9ical  
te/+ exp5ses = c]ta9 drugs = r>e        
diseases or conditions71 "o ( !         
inc5tives = innovation e/abli%$ 9 !     
,orphan ,drug ,act 7,public ,law        
#ig-dad71 at lea/ "o-?ird ( su* new     
!rapies w\ld likely n h be5 develop$2   
,:]eas ! ,orphan ,drug ,act 7,public    
,law #ig-dad7 cont9ues to lead to       
increas$ rese>* & successful !rapeutic  
developm5t along ! full range ( r>e     
diseases2 ,:]eas p ) r>e diseases b5efit
 f new orphan drugs by hav+ a long] life
 & a high] quality ( life2 ,:]eas       
society b5efits f new orphan drugs ?r\gh
 increas$ productivity f individuals    
affect$ by r>e diseases z well z a      
pot5tial decl9e 9 ! res\rces devot$ to  
heal? c>e1 disability1 c>egiv+1 & relat$

 sp5d+ ) respect to ^? individuals2     
,:]eas despite ! success ( ! ,orphan    
,drug ,act 7,public ,law #ig-dad71 few] 
?an #aj p]c5t ( ! m ?an #g1jjj id5tifi$ 
r>e diseases h at lea/ "o treatm5t      
option t is approv$ by ! ,food & ,drug  
,adm9i/ration2 & ,:]eas ! significant1  
lifesav+ accompli%m5ts ( su* ,act ov] ! 
c\rse ( ! #cf ye>s s9ce its enactm5t    
%\ld be recogniz$3 ,n[1 !re=e1 be x  ,t 
! ,h\se ( ,repres5tatives-- 7#a7        
applauds ! trem5d\s gr[? 9 rese>* &     
developm5t into new !rapies = r>e       
diseases & ! result+ numb] ( !rapies = p
 liv+ ) r>e diseases approv$ by ! ,food 
& ,drug ,adm9i/ration2  7#b7 recognizes 
t significant rese>* & developm5t ef=ts 
& relat$ inve/m5ts are ne$$ to develop  
!rapies to treat & cure ! ?\s&s ( r>e   
diseases = :i* no treatm5t options are  
curr5tly available2 &  7#c7 affirms !   
ne$ to cont9ue support+ public inve/m5t 
& enc\rag+ private inve/m5t 9 rese>* &  
developm5t ( new treatm5ts = r>e        
diseases4