,i  #aafth ,,congress  #b;d ,session    
,h4 ,r4 #ijbg  ,,in ,,the ,,house ,,of  
,,representatives  ,december #ah1       
#bjbj,mr4 ,beyer introduced the         
following bill2 which was referred to   
the ,committee on ,energy and ,commerce1
 and in addition to the ,committee on   
,ways and ,means1 for a period to be    
subsequently determined by the ,speaker1
 in each case for consideration of such 
provisions as fall within the           
jurisdiction of the committee concerned 
,a ,,bill  ,to authorize the            
,patient-,centered ,outcomes ,research  
,institute to fund research of the      
symptoms of ,,covid-#ai1 and for other  
purposes4  #a4 ,short title ,this ,act  
may be cited as the ,,covid-#ai ,long   
,haulers ,act4  #b4 ,authorization to   
fund research of the long-term symptoms 
of ,,covid-#ai by the ,patient-,centered
 ,outcomes ,research ,institute  7a7 ,in
 general ,the ,patient-,centered        
,outcomes ,research ,institute under    
section #aaha7;b7 of the ,social        

,security ,act 7#db ,u4,s4,c4           
#acbj;e7b77 shall fund research         
described in subsection 7b74  7b7       
,research described ,for purposes of    
subsection 7a71 research described in   
this subsection shall include-- 7#a7    
prior to creating a patient registry    
described in paragraph 7#b71 survey     
existing patient registries that include
 individuals experiencing post-acute    
sequelae of ,,covid-#ai2  7#b7 creating 
a patient registry for those with       
,,covid-#ai with information that-- 7,a7
 contains the-- 7i7 symptoms that arise 
while an individual is actively infected
 with ,,covid-#ai and that resolve while
 such individual is actively infected2  
7ii7 symptoms that arise while an       
individual is actively infected with    
,,covid-#ai and that extend after the   
infection has resolved2  7iii7 symptoms 
that arise after an individual is       
actively infected with ,,covid-#ai and  
that endure and that the clinician of   
such individual has reason to suspect   

were related to the ,,covid-#ai         
diagnosis2  7iv7 symptoms that arise in 
an individual that may be related to    
,,covid-#ai but a diagnosis of          
,,covid-#ai was not obtained and cannot 
be identified due to a lack of          
antibodies2  7v7 treatments of          
individuals after primary diagnosis to  
,,covid-#ai and the effectiveness of    
such treatments disaggregated by age1   
gender1 and race or ethnicity2 and  7vi7
 any other relevant questions or issues 
related to individuals who experience a 
diagnosis of1 treatment for1 and        
management of care with ,,covid-#ai2    
7,b7 synthesizes information relating to
 individuals experiencing post-acute    
sequelae of ,,covid-#ai identified from 
the survey described in paragraph 7#a7  
and information under the patient       
registry described in paragraph 7#b72   
and  7#c7 outreach and inclusion 7as    
appropriate7 individuals from           
communities with traditional health     
disparities and inequities4  7c7 ,report

 ,not later than #a year after the      
establishment of the synthesized patient
 registry described in subsection       
7a77#b71 and annually thereafter1 the   
,patient-,centered ,outcomes ,research  
,institute shall submit data1 findings1 
and information with respect to the     
status of the patient registry          
7including progress1 barriers1 and      
issues7 to ,congress and the ,president4
  7d7 ,authorization of appropriations  
,there is hereby authorized #cj1jjj1jjj 
for fiscal year #bjba to carry out this 
section1 which shall remain available   
until expended4  #c4 ,authorization of  
appropriations for research with respect
 to individuals experiencing post-acute 
sequelae of ,,covid-#ai by the ,,nih    
7a7 ,in general ,the ,director of the   
,national ,institutes of ,health conduct
 research with respect to individuals   
experiencing post-acute sequelae of     
,,covid-#ai4  7b7 ,authorization of     
appropriations ,there is hereby         
authorized #ajj1jjj1jjj for fiscal year 

#bjba to carry out this section1 which  
shall remain available until expended4