,i  #aaf? ,,congress  #b;d ,session  ,h4
 ,r4 #hiha  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,decemb] #af1         
#bjbj,ms4 ,h]r]a ,beutl] 7= h]self &    
,ms4 ,port]7 introduc$ ! foll[+ bill2   
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,a ,,bill  ,to prohibit      
discrim9ation on ! basis ( m5tal or     
physical disability 9 cases ( anatomical
 gifts & organ transplants4  #a4 ,%ort  
title ,?is ,act may be cit$ z ! ,*>lotte
 ,woodw>d ,organ ,transplant            
,discrim9ation ,prev5tion ,act4  #b4    
,def9itions ,= purposes ( ?is ,act3 7#a7
 ,anatomical gift ,! t]m anatomical gift
 means a donation ( all or "p ( a human 
body t takes effect aft] ! dea? ( !     
donor = ! purpose ( transplantation or  
transfusion4  7#b7 ,auxili>y aids &     
s]vices ,! t]m auxili>y aids & s]vices  
includes-- 7,a7 qualifi$ int]pret]s or  
o!r effective me?ods ( mak+ aurally     
deliv]$ mat]ials available to           
individuals ) he>+ impairm5ts2  7,b7    
qualifi$ read]s1 tap$ texts1 or o!r     

effective me?ods ( mak+ visually deliv]$
 mat]ials available to individuals )    
visual impairm5ts2  7,c7 provision (    
in=mation 9 a =mat t is accessible =    
individuals ) cognitive1 neurological1  
developm5tal1 or intellectual           
disabilities2  7,d7 provision ( support$
 decision-mak+ s]vices2 &  7,e7         
acquisition or modification ( equipm5t  
or devices4  7#c7 ,cov]$ entity ,! t]m  
cov]$ entity means-- 7,a7 any lic5s$    
provid] ( heal? c>e s]vices1 includ+    
lic5s$ heal? c>e practition]s1          
hospitals1 nurs+ facilities1            
laboratories1 int]m$iate c>e facilities1
 psy*iatric resid5tial treatm5t         
facilities1 in/itutions = individuals ) 
intellectual or developm5tal            
disabilities1 & prison heal? c5t]s2 or  
7,b7 any entity responsible = mat*+     
anatomical gift donors to pot5tial      
recipi5ts4  7#d7 ,disability ,! t]m     
disability has ! same mean+ giv5 su* t]m
 9 section #d ( ! ,am]icans )           
,disabilities ,act ( #aiij4  7#e7 ,organ

 transplant ,! t]m organ transplant     
means ! transplantation or transfusion (
 a "p ( a human body into ! body ( ano!r
 = ! purpose ( treat+ or cur+ a m$ical  
condition4  7#f7 ,qualifi$ individual ,!
 t]m qualifi$ individual means an       
individual :o1 ) or )\t a support       
network1 provision ( auxili>y aids &    
s]vices1 or reasonable modifications to 
policies or practices1 meets eligibility
 requirem5ts = ! receipt ( an anatomical
 gift4  7#g7 ,reasonable modifications  
to policies or practices ,! t]m         
reasonable modifications to policies or 
practices include-- 7,a7 communication )
 individuals responsible = support+ an  
individual ) po/surgical &              
po/-transplantation c>e1 includ+        
m$ication2 &  7,b7 consid]ation (       
support networks available to !         
individual1 includ+ family1 fri5ds1 &   
home & community-bas$ s]vices1 includ+  
home & community-bas$ s]vices fund$     
?r\gh m$icaid1 m$ic>e1 ano!r heal? plan 
9 :i* ! individual is enroll$1 or any   

program or s\rce ( fund+ available to ! 
individual1 9 det]m9+ :e!r ! individual 
is able to comply ) po/transplant m$ical
 requirem5ts4  7#h7 ,secret>y ,! t]m    
,secret>y means ! ,secret>y ( ,heal? &  
,human ,s]vices4  7#i7 ,support$        
decision mak+ ,! t]m support$ decision  
mak+ means ! use ( a support p]son to   
assi/ an individual 9 mak+ m$ical       
decisions1 communicate in=mation to !   
individual1 or asc]ta9 an individual's  
wi%es4 ,su* t]m may include-- 7,a7 !    
inclusion ( ! individual's              
attorney-9-fact1 heal? c>e proxy1 or any
 p]son ( ! individual's *oice 9         
communications ab\t ! individual's      
m$ical c>e2  7,b7 p]mitt+ ! individual  
to designate a p]son ( _! *oice = !     
purposes ( support+ t individual 9      
communicat+1 process+ in=mation1 or mak+
 m$ical decisions2  7,c7 provid+        
auxili>y aids & s]vices to facilitate ! 
individual's ability to communicate &   
process heal?-relat$ in=mation1 includ+ 
use ( assi/ive communication te*nology2 

7,d7 provid+ in=mation to p]sons        
designat$ by ! individual1 consi/5t ) ! 
provisions ( ! ,heal? ,insurance        
,portability & ,acc\ntability ,act (    
#aiif 7#d ,u4,s4,c4 #ac et seq471 & o!r 
applicable laws & regulations gov]n+    
disclosure ( heal? in=mation2  7,e7     
provid+ heal? in=mation 9 a =mat t is   
readily und]/&able by ! individual2 &   
7,f7 work+ ) a c\rt-appo9t$ gu>dian or  
o!r individual responsible = mak+ m$ical
 decisions on behalf ( ! individual1 to 
ensure t ! individual is includ$ 9      
decisions involv+ ! heal? c>e ( !       
individual & t m$ical decisions are 9   
accordance ) ! individual's own express$
 int]e/s4  7#aj7 ,support network ,! t]m
 support network means1 ) respect to a  
p]son1 "o or m individuals select$ by ! 
p]son or by ! p]son & ! gu>dian ( !     
p]son1 to provide assi/ance to t p]son  
or guidance to t p]son 9 und]/&+ issues1
 mak+ plans = ! future1 or mak+ complex 
decisions1 includ+ ! p]son's family1    
fri5ds1 unpaid support]s1 religi\s      

congregations1 & community c5t]s4  #c4  
,prohibition ( discrim9ation  7a7 ,9    
g5]al ,subject to subsection 7b71 a     
cov]$ entity may n1 solely on ! basis ( 
a qualifi$ individual's m5tal or        
physical disability-- 7#a7 deem su*     
individual ineligible to receive an     
anatomical gift or organ transplant2    
7#b7 d5y su* individual m$ical or relat$
 organ transplantation s]vices1 includ+ 
evaluation1 surg]y1 c\nsel+1 &          
po/op]ative treatm5t & c>e2  7#c7 refuse
 to ref] ! individual to a transplant   
c5t] or o!r relat$ speciali/ = ! purpose
 ( evaluation or receipt ( an organ     
transplant2  7#d7 refuse to place an    
individual on an organ transplant wait+ 
li/1 or placem5t ( ! individual at a    
l[]-priority position on ! li/ ?an !    
position at :i* ! individual w\ld h be5 
plac$ if n = ! disability ( !           
individual2 or  7#e7 decl9e insurance   
cov]age = su* individual = any proc$ure 
associat$ ) ! receipt ( an anatomical   
gift1 includ+ po/-transplantation c>e if

 su* proc$ure w\ld be cov]$ "u su*      
cov]age = su* individual if n = !       
disability ( ! individual4  7b7         
,exception  7#a7 ,9 g5]al ,not)/&+      
subsection 7a71 a cov]$ entity may take 
an individual's disability into acc\nt  
:5 mak+ treatm5t or cov]age             
recomm5dations or decisions1 solely to !
 ext5t t ! physical or m5tal disability 
has be5 f\nd by a physician1 foll[+ an  
individualiz$ evaluation ( ! pot5tial   
recipi5t1 to be m$ically significant to 
! provision ( ! anatomical gift4 ,!     
previ\s s5t5ce %all n be treat$ z       
requir+ ref]rals or recomm5dations =1 or
 ! p]=mance (1 m$ically inappropriate   
organ transplants4  7#b7 ,cl>ification  
,if an individual has ! necess>y support
 sy/em to provide reasonable assurance t
 ! individual w comply ) po/transplant  
m$ical requirem5ts1 ! individual's      
inability to indep5d5tly comply ) ^?    
requirem5ts may n be deem$ to be        
m$ically significant = purposes (       
p>agraph 7#a74  7c7 ,reasonable         

modifications ,a cov]$ entity %all make 
reasonable modifications to policies1   
practices1 or proc$ures ( su* entity if 
su* modifications are necess>y to make  
s]vices su* z transplantation-relat$    
c\nsel+1 in=mation1 cov]age1 or treatm5t
 available to qualifi$ individuals )    
disabilities1 unless ! entity c         
demon/rate t mak+ su* modifications w\ld
 fundam5tally alt] ! nature ( su*       
s]vices4  7d7 ,cl>ifications  7#a7 ,a   
cov]$ entity %all take su* /eps z may be
 necess>y to ensure t no qualifi$       
individual ) a disability is d5i$       
s]vices su* z transplantation-relat$    
c\nsel+1 in=mation1 cov]age1 or treatm5t
 because ( ! abs5ce ( auxili>y aids &   
s]vices1 unless ! entity c demon/rate t 
tak+ su* /eps w\ld fundam5tally alt] !  
nature ( ! s]vices be+ (f]$ or w\ld     
result 9 an undue burd54  7#b7 ,a cov]$ 
entity %all o!rwise comply ) !          
requirem5ts ( titles ,,ii & ,,iii ( !   
,am]icans ) ,disabilities ,act ( #aiij &
 ! ,am]icans ) ,disabilities ,act       

,am5dm5ts ,act ( #bjjh4  7#c7 ,!        
provisions ( ?is section apply to ea* "p
 ( ! organ transplant process4  #d4     
,en=cem5t  7a7 ,9 g5]al ,any individual 
) a claim1 ) respect to a cov]$ entity1 
to be 7or to h be57 subject to          
discrim9ation 9 violation ( section #c--
 7#a7 may br+ su* a claim to ! ,(fice = 
,civil ,rights ( ! ,dep>tm5t ( ,heal? & 
,human ,s]vices = exp$it$ resolution2 & 
7#b7 :e!r or n su* a claim is br\ght "u 
p>agraph 7#a7 or a violation is f\nd    
pursuant to p>agraph 7#a71 may br+ a    
civil action be=e ! appropriate ,f$]al  
c\rt = injunctive or o!r equitable      
relief1 includ+ ! relief describ$ 9     
subsection 7b71 aga9/ su* cov]$ entity  
to en=ce compliance ( su* cov]$ entity )
 su* section4  7b7 ,relief available ,! 
injunctive & equitable relief available 
9 a civil action br\ght "u subsection   
7a77#b71 ) respect to a cov]$ entity1   
includes-- 7#a7 requir+ auxili>y aids or
 s]vices to be made available by su*    
entity2  7#b7 requir+ ! modification ( a

 policy1 practice1 or proc$ure ( su*    
entity2 or  7#c7 requir+ facilities (   
su* entity be made readily accessible & 
usable4  7c7 ,exp$it$ review ,9 ! case (
 a civil action br\ght "u subsection    
7a77#b71 ) respect to a cov]$ entity1 ! 
,f$]al c\rt be=e :i* su* action is      
br\ght %all advance on its docket &     
exp$ite review & disposition ( su*      
action4  7d7 ,rule ( con/ruction ,no?+ 9
 ?is section is int5d$ to limit or      
replace available rem$ies "u ! ,am]icans
 ) ,disabilities ,act ( #aiij & !       
,am]icans ) ,disabilities ,act ,am5dm5ts
 ,act ( #bjjh or any o!r applicable law4