,i #aaf? ,,congress #b;d ,session ,h4 ,r4 #gijj ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,july #ca1 #bjbj,mr4 ,c>twright introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d ! ,national ,organ ,transplant ,act to cl>ify ! def9ition ( valuable consid]ation1 to cl>ify t pilot programs t honor & promote organ donation d n violate t ,act1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,organ ,donation ,cl>ification ,act ( #bjbj4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,z ( ,june #bjbj1 #aaa1jjj p await an organ transplant1 ) #ic1jjj ( ^? p wait+ = a kidney1 & av]age wait times are approa*+ five ye>s = a kidney1 ) ne>ly twice z _m p be+ add$ to ! wait+ li/s z gett+ a transplant4 7#b7 ,( ! r\ghly two million ,am]icans :o die annually1 only #aj1ejj to #ac1hjj1 repres5t+ less ?an "o p]c5t ( all dea?s ea* ye>1 possess major organs heal?y en\gh = transplant+4 7#c7 ,on av]age1 #bb p a day di$ :ile wait+ = an organ 9 #bjai1 ) ! majority ( ^? p wait+ = a kidney4 7#d7 ,9 #bjai1 approximately #d1bjj p 7 remov$ f kidney wait+ li/s & approximately #a1gjj f liv]1 he>t1 & lungs wait+ li/s because !y became p]man5tly too sick to receive a transplant4 7#e7 ,n9ety p]c5t ( dialysis pati5ts are n employ$ because dialysis requires multiple treatm5ts p] week :i* la/ sev]al h\rs & leave pati5ts dra9$1 ?us creat+ a huge f9ancial burd5 on ! pati5ts1 _! families1 & ! gov]nm5t2 moreov]1 lo/ tax rev5ue f ^! individuals is n includ$ 9 ! co/ e/imates above1 & :i* c help lead to z few z #aj p]c5t ( dialysis pati5ts be+ employ$4 7#f7 ,a pati5t receiv+ a kidney transplant1 & ?us no long] ne$+ dialysis1 c enjoy a mu* high] quality ( life = ano!r #aj-ae ye>s on av]age4 7#g7 ,z m$ical advances ext5d p's lives on dialysis1 ! numb] ( pati5ts on dialysis w increase significantly1 z w ! co/s = individuals & ! ,f$]al ,gov]nm5t4 7#h7 ,r\ghly sev5 p]c5t ( ! ,m$ic>e budget goes to ! ,end ,/age ,r5al ,disease ,program1 ) dialysis co/+ ,m$ic>e ov] #ij1jjj p] pati5t p] ye>1 z ,f$]al law dictates t ,m$ic>e w cov] dialysis = ev]yone :o has made m9imal ,social ,security tax paym5ts4 7#i7 ,a kidney transplant pays = itself 9 less ?an two ye>s1 ) ea* transplant sav+ an av]age ( ov] #gjj1jjj 9 m$ical co/s ov] a #aj-ye> p]iod1 #he p]c5t ( :i* is sav+s to ! taxpay]s4 7#aj7 ,exp]ts project t if ! supply ( transplant kidneys c\ld be increas$ to meet ! dem&1 taxpay]s w\ld save m ?an #ab1jjj1jjj1jjj p] ye> 9 m$ical co/s4 7#aa7 ,! ,_w ,heal? ,organization e/imates t #aj p]c5t ( all transplants take place on ! int]national black m>ket1 ! la/ *oice = desp]ate pati5ts fac+ an alt]native ( dea?1 h[ev] recipi5ts (t5 receive infect$ kidneys & suff] poor heal? outcomes & donors are (t5 victimiz$4 7#ab7 ,pres5t policy on dome/ic donation has nev] be5 subject to /udies or pilots to det]m9e effectiv5ess 9 increas+ ! availability ( donat$ organs & ! effectiv5ess ( safegu>ds t prev5t co]cion or exploitation1 precludes all b altrui/ic donation1 prohibit+ any =m ( inc5tive or b5efit = donors4 7#ac7 ,9 #bjaj1 ,israel implem5t$ sweep+ *anges to its national organ donation program includ+ r$uc+ f9ancial burd5s on donors1 giv+ future transplantation priority to regi/]$ organ donors & _! families1 & promot+ donation by reimburs+ ! donor's m$ical co/s1 #dj days ( lo/ wages1 & five ye>s ( m$ical & life insurance co/s1 & z a result saw organ donation approximately triple ov] a #aj-ye> p]iod4 7#ad7 ,exp]ts are arriv+ at a cons5sus t trials are necess>y to f9d new me?ods ( promot+ additional organ donation :i* w save lives & r$uce organ traffick+4 #c4 ,cl>ification ( c]ta9 provisions ( ! ,national ,organ ,transplant ,act 7a7 ,relation to o!r laws ,section #cja ( ! ,national ,organ ,transplant ,act 7#db ,u4,s4,c4 #bgd;e7 is am5d$ by add+ at ! end ! foll[+3 7d7 ,relation to o!r laws 7#a7 ,gov]nm5ts enc\rag+ organ donation ,?is section %all n-- 7,a7 apply to actions tak5 by ! ,gov]nm5t ( ! ,unit$ ,/ates or any ,/ate1 t]ritory1 tribe1 or local gov]nm5t ( ! ,unit$ ,/ates to c>ry out a cov]$ pilot program2 or 7,b7 prohibit acceptance ( any nonca% b5efits provid$ by ! pilot program "u subp>agraph 7,a74 7#b7 ,no prohibition on o!r b5efits programs ,no?+ 9 ?is subsection %all be con/ru$ to prohibit actions1 o!r ?an actions describ$ 9 ?is section1 tak5 by any ,/ate1 t]ritory1 tribe1 or unit ( local gov]nm5t 9 ! ,unit$ ,/ates to provide b5efits = human organ donation4 7#c7 ,cov]$ pilot program ,= purposes ( ?is subsection-- 7,a7 ! t]m cov]$ pilot program means a pilot program approv$ by ! ,secret>y ( ,heal? & ,human ,s]vices1 subject to an e?ical review bo>d process1 ) a t]m ( n m ?an #e fiscal ye>s1 = ! purpose ( measur+ ! effect ( remov+ dis9c5tives or provid+ a nonca% b5efit t may increase ! organ pool4 ,di/ributions ( organs f deceas$ donors "u ! pilot program %all be conduct$ only ?r\gh ! ,organ ,procurem5t & ,transplantation ,network at a transplant c5t] approv$ by ! ,unit$ ,network = ,organ ,%>+ or any o!r entity designat$ by ! ,secret>y ( ,heal? & ,human ,s]vices2 & 7,b7 ! t]m nonca% b5efit means any b5efit or ?+ ( value receiv$ by an organ donor t is impossible to sell1 trade1 or o!rwise transf] to ano!r individual4 4 7b7 ,valuable consid]ation ,section #cja7;c77#b7 ( ! ,national ,organ ,transplant ,act 7#db ,u4,s4,c4 #bgd;e7c77#b77 is am5d$ to read z foll[s3 7#b7 ,! t]m valuable consid]ation does n include ! foll[+3 7,a7 ,reasonable paym5ts associat$ ) ! removal1 transportation1 implantation1 process+1 pres]vation1 quality control1 & /orage ( a human organ4 7,b7 ,reimbursem5t = travel1 lodg+1 food dur+ travel1 & o!r logi/ical exp5ses relat$ to donation4 7,c7 ,provision ( advanc$ paym5ts or reimbursem5t = dep5d5t c>e ne$s = pre-transplant appo9tm5ts 9 addition to dur+ ! p]iod ( donation & po/-transplant foll[-up c>e relat$ to ! donation = up to a #aj-ye> p]iod4 7,d7 ,reimbursem5t = lo/ wages relat$ to donation4 7,e7 ,m$ical exp5ses relat$ to donation & all relat$ foll[-up c>e includ+ prev5tative foll[-up c>e & m$ication = up to a #aj-ye> p]iod4 7,f7 ,pap]work or legal co/s relat$ to donation4 7,g7 ,any t]m life insurance policy aga9/ ! risk ( dea? or disability z a result ( donat+ an organ or ! long]-t]m heal? effects ( hav+ donat$ an organ1 t-- 7i7 9 ! case ( a life insurance policy1 provides = paym5ts 9 am\nts less ?an #b1jjj1jjj1 adju/$ annually = inflation2 & 7ii7 9 ! case ( a disability insurance policy1 provides = paym5ts equal to or less ?an ! reasonable e>n+s expectations ( ! donor4 4