,i  #aaf? ,,congress  #b;d ,session  ,h4
 ,r4 #fbch  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,m>* #ab1 #bjbj,mr4   
,got!im] 7= himself & ,mr4 ,upton7      
introduc$ ! foll[+ bill2 :i* 0 ref]r$ to
 ! ,committee on ,ways & ,means1 & 9    
addition to ! ,committee on ,en]gy &    
,comm]ce1 = a p]iod to be subsequ5tly   
det]m9$ by ! ,speak]1 9 ea* case =      
consid]ation ( su* provisions z fall )9 
! jurisdiction ( ! committee conc]n$  ,a
 ,,bill  ,to am5d ! ,int]nal ,rev5ue    
,code ( #aihf to re/ore ! am\nt ( !     
orphan drug tax cr$it1 & = o!r purposes4
  #a4 ,%ort title ,?is ,act may be cit$ 
z ,cam]on's ,law4  #b4 ,re/oration (    
am\nt ( orphan drug tax cr$it  7a7 ,9   
g5]al ,section #de;,c7a7 ( ! ,int]nal   
,rev5ue ,code ( #aihf is am5d$ by /rik+ 
#be p]c5t & ins]t+ #ej p]c5t4  7b7      
,effective date ,! am5dm5t made by ?is  
section %all apply to taxable ye>s      
beg9n+ aft] ! date ( ! enactm5t ( ?is   
,act4  #c4 ,,cdc /udy on surveillance   
infra/ructure = r>e diseases &          

conditions  7a7 ,/udy ,n lat] ?an #a ye>
 aft] ! date ( enactm5t ( ?is ,act1 !   
,director ( ! ,c5t]s = ,disease ,control
 & ,prev5tion 79 ?is section ref]r$ to z
 ! ,director7 %all complete a /udy on   
enhanc+ & exp&+ ! infra/ructure to track
 ! epidemiology ( r>e diseases &        
conditions1 includ+ ) respect to !      
foll[+3 7#a7 ,rates ( mortality4  7#b7  
,pot5tial = rese>* & treatm5t4  7#c7    
,demographics4  7#d7 ,diagnosis &       
progression m>k]s4  7#e7 ,! hi/ory ( !  
disease or condition4  7#f7 ,detection  
managem5t4  7b7 ,consultation ,9        
conduct+ ! /udy requir$ by subsection   
7a71 ! ,director %all consult ) relevant
 exp]ts1 includ+-- 7#a7 epidemiologi/s )
 exp]i5ce 9 disease surveillance2  7#b7 
repres5tatives ( national volunt>y heal?
 associations2  7#c7 heal? in=mation    
te*nology exp]ts or o!r in=mation       
managem5t speciali/s2  7#d7 cl9icians ) 
exp]tise 9 r>e diseases or conditions2  
7#e7 rese>* sci5ti/s ) exp]tise 9 r>e   
diseases or conditions1 or exp]i5ce     

conduct+ translational rese>* or utiliz+
 surveillance sy/ems = sci5tific rese>* 
purposes2 &  7#f7 pati5ts1 & c>egiv]s ( 
pati5ts1 ) r>e diseases or conditions4  
7c7 ,report ,n lat] ?an #c mon?s aft]   
complet+ ! /udy requir$ by subsection   
7a71 ! ,director %all submit a report to
 ! ,congress on ! results ( ! /udy4  7d7
 ,def9ition ,9 ?is section1 ! t]ms r>e  
diseases & conditions & r>e diseases or 
conditions ref] to human diseases &     
conditions t are-- 7#a7 a r>e disease or
 condition1 z def9$ 9 section #ebf ( !  
,f$]al ,food1 ,drug1 & ,cosmetic ,act   
7#ba ,u4,s4,c4 #cfj;bb72 or  7#b7       
det]m9$ by ! ,director to be r>e & lack+
 9 treatm5t options1 s z to w>rant      
consid]ation 9 ! /udy requir$ by        
subsection 7a74